Supporting Carers of People with Personality Disorder

Transcription

1 Supporting Carers of People with Personality Disorder Dr Ruth Sutherland, Principal Clinical Psychologist Alice Holland, Carer Consultant Leeds Personality Disorder Managed Clinical Network

2 Background to Evaluation Borderline Personality Disorder THE NICE GUIDELINE ON TREATMENT AND MANAGEMENT

3 The Group Programme Session Themes 1 What is Personality Disorder? Stay Well (WRAP) How does Personality Disorder develop? 3 Schema, coping responses & personality disorder Staying Well Making sense of self harm 5 Treatment principles and options Managing day to day Staying Well

4 Recruitment

5 Methodology: Evaluation Measures Demographics questionnaire Personality Disorder: Knowledge and Skills Questionnaire (PD-KASQ, Bolton et al, 1, adapted) Short Warwick-Edinburgh Mental Well-being Scale (SWEMWBS) Carer Satisfaction Questionnaire, (Larsen et al., 1979, adapted)

6 Outcomes: Demographics Total number of attendees over two groups: Attendance at group Gender 3 1 Six Five Four Three Two One male female Age Ethnicity White British Other

7 Outcomes: Demographics Cared-for person Cared for person's contact with Leeds PD service Carer's previous contact with Carers Leeds Yes No Yes No

8 After Group Outcome Measures: Knowledge and Understanding Pre- and Post- Measures were completed by 1 attendees PD-KASQ Scores Before Group An increase in score demonstrates improved understanding and knowledge of Personality Disorder. T-test indicates a statistically significant change in scores (p=.81)

9 After Group Outcome Measures: Wellbeing Pre- and Post- Measures were completed by 1 attendees SWEMWBS Before Group An increase in score demonstrates improved wellbeing. T-test did not indicate a statistically significant change (p=.1)

10 Modal Average Outcome Measures: Satisfaction This Post-group Measure was completed by 1 attendees Satisfaction 3 1 q1 q q3 q q5 q q7 q8 Question Number

11 Outcome Measures: Satisfaction What was helpful about the group? Opportunity to share experiences with other carers Feeling validated and hopeful Opportunity to learn about personality disorder Facilitators perceived as interested, helpful, professional, knowledgeable and experienced What could be better? More time to discuss topics and issues in-depth More opportunities for discussions in pairs/small groups The group should lead on to further ongoing support A need for balance between specific topics and more open space for support

12 The Carer Experience I wanted to understand personality disorder and find ways to support my partner so attended the carer s support group. Learning the theory behind personality disorders gave me a better insight into my partner s emotions and behaviours. There was group understanding of difficult situations which helped provide supportive strategies and coping mechanisms. It gave us space to consider our own wellbeing.

13 Service Outcomes Psychoeducational group to run -3 times per year New bimonthly Peer support group in partnership with Carer s Leeds Recruitment of a Carer Consultant to co-facilitate groups Development of a training package for other services

14 References NICE (9). Borderline Personality Disorder: Recognition and Management Copeland, M.E. (1997). Wellness Recovery Action Plans. Peach Press, San Francisco, CA NHS Health Scotland, University of Warwick and University of Edinburgh (8). Short Warwick Edinburgh Mental Well-Being Scale (SWEMWBS) s_7_item.pdf Bolton, W., Feigenbaum, J., Jones, A., and Woodward, C. (1). Development of the PDKASQ (Personality Disorder Knowledge, Attitudes and Skills Questionnaire) Larsen, D.L., Attkisson, C.C., Hargreaves, W.A., and Nguyen, T.D. (1979). Assessment of client/patient satisfaction: Development of a general scale. Evaluation and Program Planning, Vol., pp197-7

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