Strategies for Dementia and Alzheimer s Care. Welcome and Introduction. Thank you, Why this topic? 3/9/2017

Transcription

1 Strategies for Dementia and Alzheimer s Care LEADERS 2017 SLIDES PREPARED FOR PREVIEW MARCH CAMILLE PAVY CLAIBOURNE, APRN, PHD. Welcome and Introduction STRATEGIES CARING AND COMMUNICATING IN CAREGIVING FOR PEOPLE WITH DEMENTIA Thank you, Why this topic? 1

2 Objectives Caregiver cliff in caring for Dementia and Alzheimer's Dementia: Types and Clinical categories Communication Assessment for patient and family needs Techniques to individual care and communication Life transitions for family in planning of care Resources Alzheimer s Disease textbook, Mayo Clinic. A guide to treating and understanding 2015 Caregiving summary report. Families caring for an Aging America, National Academies of Science* Engineering*Medicine Alzheimer s facts and Figures 2016 Report Families Caring for an aging America report 2016 Rapid increase in older adults with shrinking families Personal impact of family caregiving Systemic barriers Effective interventions are available Urgent need for action 2

3 US populations Million informal and Formal family caregivers in US, Caring for someone ill, disabled or aged. >50% caregivers are employed Federal, state and municipal laws provide some protection for employed caregivers, yet little is known Research on Caring for parents Plans for longevity in life 10 year Story of a family with aging parents Falls, hospitalizations, stroke, and medications Costs of elder care Q and A section Moving at the age of 88 years old Medicare, medical expenses and Long term care insurance Alzheimer s and dementia Resources (rights, list, websites, research, living will and obituary guide) Communication. Individual, family. Health provider 3

4 Family communication 6 characters Mom and dad ( home base) and four children in own homes (2 in town and 2 out of town) Two recliners Home base phone calling four cell phones at various times (speed dial) Fruit trees, one lemon, one orange, grapefruit, satsuma and kumquat Pruner 2009 Vacillation of emotions Journal entry million are caring for someone with cognitive disorder, mental health condition, Alzheimer's or other form of dementia 2016 National academies of Sciences, engineering and medicine 4

5 STUDYING THE HEALTHY BRAIN DTI MRI Human Connectome Project Dementia Types and categories Dementia: a major neuro-cognitive disorder because it interferes with both cognitive function and performing everyday activities. Cognitive function refers to memory, speech, language, judgment, reasoning, planning and other thinking abilities. Categories Alzheimer s Disease (80-90% of all dementia cases) ½ of cases are solely Alzheimer s, rest are mixed Beta Amyloid protein fragments 5

6 Inside the brain Dementia categories cont d Vascular: 10% of Dementia cases. BV Location and type of injury affects function Dementia Dementia with Lewy Bodies (DLB) Early Sx of sleep disturbance, slowness, gait imbalance or Parkinson movement features Abnormal aggregations of protein alpha-synuclein in neurons Mixed and co-existence with other dementias 6

7 Other dementias Mixed Frontotemporal lobar degeneration (FLD) 10% Parkinson s Creutzfeldt-Jakob- rare and fatal Normal pressure hydrocephalus Breaking news A new pill to improve energy and resiliency, enhance immunity, offer greater feelings of joy no side effects. Alzheimer s Family research 2016 Social media response to survey 168 responses in less than 30 days Develop 10 question survey 7

8 Results of survey by question 55% of respondents have a biological family member diagnosed with Alzheimer's 30% provide care for that person How to work with families and patient to plan individual care Assessment. Is it current to assess family dynamics Incorporation of new techniques Options for plan to change rapidly Family support arm in organization Family support group Education for staff and family Assessment for workloads and caring frequently 8