Cambia Palliative Care Center of Excellence Member Publications Publications

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1 Cambia Palliative Care Center of Excellence Member Publications 2015 Publications Albright DL, Washington K, Parker-Oliver D, Lewis A, Kruse RL, Demiris G. The Social Convoy for Family Caregivers Over the Course of Hospice. J Pain Symptom Manage Sep 30. PubMed PMID: Anderson WG, Cimino JW, Ernecoff NC, Ungar A, Shotsberger KJ, Pollice LA, Buddadhumaruk P, Carson SS, Curtis JR, Hough CL, Lo B, Matthay MA, Peterson MW, Steingrub JS, White DB. A multicenter study of key stakeholders' perspectives on communicating with surrogates about prognosis in intensive care units. Ann Am Thorac Soc Feb;12(2): doi: /AnnalsATS OC. PMID: Arnold RM, Back AL, Barnato AE, Prendergast TJ, Emlet LL, Karpov I, White PH, Nelson JE. The critical care communication project: Improving fellows' communication skills. J Crit Care Dec 2. [Epub ahead of print] Aslakson RA, Curtis JR, Nelson JE. The changing role of palliative care in the ICU. Crit Care Med. 2014; 42 (11): Back AL, Park ER, Greer JA, Jackson VA, Jacobsen JC, Gallagher ER, Temel JS. Clinician roles in early integrated palliative care for patients with advanced cancer: A qualitative study. J Palliat Med. 2014; 17 (11):

2 Back AL, Rushton CH, Kaszniak AW, Halifax JS. "Why are we doing this?": Clinician helplessness in the face of suffering. J Palliat Med. 2015; 18(1): Back AL, Safyan RA, Edwards KA. What Residents Learn From Inpatient Hematology-Oncology: A Call to Rebuild a Community of Practice. J Oncol Pract Jul;11(4): Bowles KH, Dykes P, Demiris G. The use of health information technology to improve care and outcomes for older adults. Res Gerontol Nurs. 2015;8(1):5-10. Bunnell A, Ney J, Gellhorn A, Hough C. Quantitative neuromuscular ultrasound in intensive care unit acquired weakness: A systematic review. Muscle Nerve Jun 4. Casarett D, Harrold J, Harris PS, Bender L, Farrington S, Smither E, Ache K, Teno J. Does Continuous Hospice Care Help Patients Remain at Home? J Pain Symptom Manage Sep;50(3): Epub 2015 Apr 30. PubMed PMID: Chi NC, Demiris G, Lewis FM, Walker AJ, Langer SL. Behavioral and Educational Interventions to Support Family Caregivers in End-of-Life Care: A Systematic Review. Am J Hosp Palliat Care Jul 7. PubMed PMID: Chi NC, Demiris G. A systematic review of telehealth tools and interventions to support family caregivers. J Telemed Telecare. 2015;21(1): Chi, N. C., & Demiris, G. (2015). A systematic review of telehealth tools and interventions to support family caregivers. Journal of telemedicine and telecare,21(1),

3 Cohen J, Pivodic L, Miccinesi G, Onwuteaka-Philipsen BD, Naylor WA, Wilson DM, Loucka M, Csikos A, Pardon K, Van den Block L, Ruiz-Ramos M, Cardenas-Turanzas M, Rhee Y, Aubry R, Hunt K, Teno J, Houttekier D, Deliens L. Internatio Cox CE, Hough CL. Improving functional recovery after critical illness. JAMA Intern Med Jun;175 (6): Cox CE, Wysham NG, Walton B, Jones D, Cass B, Tobin M, Jonsson M, Kahn JM, White DB, Hough CL, Lewis CL, Carson SS. Development and usability testing of a Web-based decision aid for families of patients receiving prolonged mechanical ventilation. Ann Intensive Care Mar 25;5:6. doi: /s ecollection PMID: Cox-North P, Issues in the End Stage Liver Disease Patient for which Palliative Care Could Be Helpful. Clinical Liver Disease, Volume 6 Number 1, July 2015 Creutzfeldt CJ, Engelberg RA, Healey L, Cheever CS, Becker KJ, Holloway RG, Curtis JR. Palliative Care Needs in the Neuro-ICU. Crit Care Med Apr 11. Creutzfeldt CJ, Holloway RG, Curtis JR. Palliative Care: A Core Competency for Stroke Neurologists. Stroke Sep;46(9): Creutzfeldt CJ, Hough CL. Get out of bed: immobility in the neurologic ICU. Crit Care Med Apr;43 (4): Creutzfeldt CJ, Longstreth WT, Holloway RG. Predicting decline and survival in severe acute brain injury: the fourth trajectory. BMJ Aug 6;351:h3904.

4 Creutzfeldt CJ, Wunsch H, Curtis JR, Hua M. Prevalence and Outcomes of Patients Meeting Palliative Care Consultation Triggers in Neurological Intensive Care Units. Neurocrit Care May 5. Curtis JR, Rubenfeld GD. "No escalation of treatment" as a routine strategy for decision making in the ICU: Con. Intensive Care Med. 2014; 40(9): Epub 2014 Aug 5. Curtis JR. Palliative care in critical illness: Challenges for research and practice. Palliat Med Apr;29 (4): PMID: Curtis JR1, Treece PD2, Nielsen EL3, Gold J4, Ciechanowski PS5, Shannon SE6, Khandelwal N7, Young JP8, Engelberg RA9. Randomized Trial of Communication Facilitators to Reduce Family Distress and Intensity of End-of-life Care. Am J Respir Crit Care Med Sep 17 Demiris G, Kneale L. Informatics Systems and Tools to Facilitate Patientcentered Care Coordination. YearMed Inform Aug 13;10(1): PubMed PMID: ; PubMed Central PMCID: PMC Diaz-Lobato S1, Smyth D2, Curtis JR3. Improving palliative care for patients with COPD. Eur Respir J Sep;46(3): Dougherty, C.M., Fairbanks, A.M., Eaton, L.H., Morrison, M.L., Kim, M.S., & Thompson, E.A., (2015). Comparison of patient and partner quality of life and health outcomes in the first year after an implantable cardioverter defibrillator (ICD). Journal of Bahavioral Medicine, online. Eaton, L. H., Meins, A. R., Mitchell, P. H., Voss, J., & Doorenbos, A. Z. (2015). Evidence-based practice beliefs and behaviors of nurses providing cancer pain management: A mixed-methods approach. Oncology Nursing Forum, 42,

5 Ehlenbach WJ1, Larson EB2,3,4, Curtis JR5, Hough CL5. Physical Function and Disability After Acute Care and Critical Illness Hospitalizations in a Prospective Cohort of Older Adults. J Am Geriatr Soc Oct;63 (10): Epu Fann JR, Bombardier CH, Richards JS, Wilson C, Heinemann A, Warren AM, Brooks L, McCullumsmith C, Temkin N, Tate D, for the PRISMS Investigators. Venlafaxine extended-release for depression following spinal cord injury: a randomi Farber S, Living every minute. J Pain Symptom Manage Apr;49(4): Frontera JA, Curtis JR, Nelson JE, Campbell M, Gabriel M, Mosenthal AC, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Lustbader DR, Brasel KJ, Weiss SP, Weissman DE. Integrating Palliative Care Into the Care of Neurocritic Ill Patients: A Report From the Improving Palliative Care in the ICU Project Advisory Board and the Center to Advance Palliative Care. Crit Care Med Jul 2. Gozalo P, Leland NE, Christian TJ, Mor V, Teno JM. Volume Matters: Returning Home After Hip Fracture. J Am Geriatr Soc Oct;63(10): Epub 2015 Oct 1. PubMed PMID: Gozalo P, Plotzke M, Mor V, Miller SC, Teno JM. Changes in Medicare costs with the growth of hospice care in nursing homes. N Engl J Med May 7;372(19): PubMed PMID: ; PubMed Central PMCID: PMC

6 Hurd CJ, Curtis JR. The intensive care unit family conference. Teaching a critical intensive care unit procedure. Ann Am Thorac Soc Apr;12(4): PMID: Jolley SE, Dale CR, Hough CL. Hospital-level factors associated with report of physical activity in patients on mechanical ventilation across Washington State. Ann Am Thorac Soc Feb;12(2): doi: /AnnalsATS.2014 Khandelwal N, Curtis JR. Economic implications of end-of-life care in the ICU. Curr Opin Crit Care. 2014; 20(6): Khandelwal N, Engelberg RA, Benkeser DC, Coe NB, Curtis JR. End-of-life expenditure in the ICU and perceived quality of dying. Chest. 2014; 146(6): Khandelwal N, Kross EK, Engelberg RA, Coe NB, Long AC, Curtis JR. Estimating the effect of palliative care interventions and advance care planning on icu utilization: A systematic review. Critical care medicine 2015;43: Klyce DW, Bombardier CH, Davis TJR, Hartoonian N, Fann JR, Kalpakjian CZ. Distinguishing grief from depression during acute recovery from spinal cord injury. Archives of Physical Medicine and Rehabilitation. March 3, 2015 [Epub ahead of print] Knobf, M. T., Cooley, M. E., Duffy, S., Doorenbos, A., Eaton, L., Given, B., Mayer, D. K., McCorkle, R., Miaskowski, C., Mitchell, S., Sherwood, P., Bender, C., Cataldo, J., Hershey, D., Katapodi, M., Menon, U., Schmacher, K., Su Lazar A, Demiris G, Thompson HJ. Involving family members in the implementation and evaluation of technologies for dementia: a dyad case study. J Gerontol Nurs. 2015;41(4):21-6.

7 Lazar A, Thompson H, Demiris G. A systematic review of the use of technology for reminiscence therapy. Health Educ Behav. 2014;41(1 Suppl):51S-61S. Le T, Thompson H, Demiris G. A Comparison of Health Visualization Evaluation Techniques With Older Adults. IEEE Comput Graph Appl Sep 23. PubMed PMID: Lee JJ1, Long AC1, Curtis JR1, Engelberg RA2. The Influence of Race/Ethnicity and Education on Family Ratings of the Quality of Dying in the ICU. J Pain Symptom Manage Sep 16. Leland NE, Gozalo P, Bynum J, Mor V, Christian TJ, Teno JM. What Happens to Patients When They Fracture Their Hip During a Skilled Nursing Facility Stay? J Am Med Dir Assoc Sep 1;16(9): Pub- Med Central PMCID: PMC4 Leland NE, Gozalo P, Christian TJ, Bynum J, Mor V, Wetle TF, Teno JM. An Examination of the First 30 Days After Patients are Discharged to the Community From Hip Fracture Postacute Care. Med Care Oct;53(10): PubMed PMID: ; PubMed Central PMCID: PMC Loggers ET, Lee S, Chilson K, Back AL, Block S, Loberiza FR. Advance care planning among hematopoietic cell transplant patients and bereaved caregivers. Bone Marrow Transplant. 2014; 49(10): Long AC, Curtis JR. Enhancing informed decision making: is more information always better? Crit Care Med Mar;43(3): PMID:

8 Long AC, Curtis JR. Quality of dying in the ICU: Understanding ways to make it better. Intensive Care Med. 2014; 40(11):1793. Epub 2014 Oct 7. Long AC, Kross EK, Engelberg RA, Downey L, Nielsen EL, Back AL, Curtis JR. Quality of dying in the ICU: Is it worse for patients admitted from the hospital ward compared to those admitted from the emergency department? Intensive Care Med. 2014; 40(11): Epub 2014 Aug 13. Marchand L. Integrative and complementary therapies for patients with advanced cancer. Annals of Palliative Medicine. 2014; 3(3): McCullumsmith C, Kalpakjian C, Richards JS, Forchheimer M, Heinemann A, Richardson E, Wilson C, Bar- ber J, Temkin N, Bombardier CH, Fann JR, PRISMS Investigators. Novel risk factors associated with current suicidal ideation and lifetime suicide attempt in individuals with spinal cord injury. Archives of Physical Medicine and Rehabilitation 96: , 2015 Meins, A. R., Doorenbos, A. Z., Eaton, L., Gordon, D., Theodore, B., & Tauben, D. (2015). TelePain: A community of practice for pain management. Journal of Pain & Relief, 4(2), 177. Merel SE, Stafford MM, White AA, Fligner CL, Amory JK, Hagman MM. Providers' beliefs about expressing condolences to the family of a deceased patient: A qualitative and quantitative analysis. J Palliat Med Dec 10. [Epub ahead of print] Nelson JE, Mathews KS, Weissman DE, Brasel KJ, Campbell M, Curtis JR, Frontera JA, Gabriel M, Hays RM, Mosenthal AC, Mulkerin C, Puntillo KA, Ray DE, Weiss SP, Bassett R, Boss RD, Lustbader DR. Integration of palliative care in the context of rapid response: a report from the

9 Improving Palliative Care in the ICU advisory board. Chest Feb;147(2): doi: /chest Review. PMID: Oliver DP, Washington K, Wittenberg-Lyles E, Gage A, Mooney M, Demiris G. Lessons learned from a secret Facebook support group. Health & Social Work. 2015;40(2): Parker Oliver D, Washington K, Gage LA, Demiris G. The promise of secret Facebook groups for active family caregivers of hospice patients. J Palliat Med. 2014; 17(11): Parker Oliver D, Washington K, Kruse RL, Albright DL, Lewis A, Demiris G. Hospice family members' perceptions of and experiences with endof-life care in the nursing home. J Am Med Dir Assoc. 2014; 15 (10): Parsons EC, Hough CL, Vitiello MV, Zatzick D, Davydow DS. Insomnia is associated with quality of life impairment in medical-surgical intensive care unit survivors. Heart Lung Mar-Apr;44(2): Pfoh ER, Chan KS, Dinglas VD, Girard TD, Jackson JC, Morris PE, Hough CL, Mendez-Tellez PA, Ely EW, Huang M, Needham DM, Hopkins RO. Cognitive screening among acute respiratory failure survivors: a cross sectional evaluation of the Mini-Mental State Examination.Crit Care May 5;19:220 Pivodic L, Pardon K, Morin L, Addington-Hall J, Miccinesi G, Cardenas- Turanzas M, Onwuteaka-Philipsen B, Naylor W, Ruiz Ramos M, Van den Block L, Wilson DM, Loucka M, Csikos A, Rhee YJ, Teno J, Deliens L, Houttekier D, Cohen J; EURO IMPACT. Place of death in the population dying from diseases indicative of palliative care need: a cross-national

10 population-level study in 14 countries. J Epidemiol Community Health Jul 22. PubMed PMID: Reinke LF, Feemster LC, Backhus LM, Gylys-Colwell I, Au DH. Assessment and management of symptoms for outpatients newly diagnosed with lung cancer. Am J Hosp Palliat Care Nov 5. [Epub ahead of print] Richards JS, Bombardier CH, Wilson CW, Chiodo T, Brooks L, Tate DG, Temkin NR, Barber J, Heinemann AW, McCullumsmith C, Fann JR. Efficacy of venlafaxine XR for the treatment of pain following spinal cord injury and major depression: a randomized, controlled trial. Archives of Physical Medicine and Rehabilitation 96: , 2015 Rosenberg AR, Kroon L, Chen L, Li CI, Jones B. Insurance status and risk of cancer mortality among adoles- cents and young adults. Cancer 2014 Dec 9 [epub ahead of print] Rosenberg AR, Orellana L, Kang TI, Geyer JR, Feudtner C, Dussel V, Wolfe J. Differences in parent- provider concordance regarding prognosis and goals of care among children with advanced cancer. J Clin Oncol 2014; 32(27): Rosenberg AR, Postier A, Osenga K, Kreicbergs U, Neville B, Dussel V, Wolfe J. Long-term psychosocial outcomes among bereaved siblings of children with cancer. J Pain Symptom Manage. 2015; 49(1): Rosenberg AR, Syrjala KL, Martin PJ, Flowers ME, Carpenter PA, Salit RB, Baker KS, Lee SJ. Resilience, health, and quality of life among long-term survivors of hematopoietic cell transplantation. Cancer 2015 Shannon SE, Ebola, team communication, and shame: but shame on whom? Am J Bioeth Apr;15(4):20-5.

11 Shin JA, Back AL. A snapshot of the person within: Using smartphone photos to understand values. J Palliat Med Feb;18(2): Stapleton RD, Ehlenbach WJ, Deyo RA, Curtis JR. Long-term outcomes after in-hospital CPR in older adults with chronic illness. Chest Nov;146(5): Tate DG, Forchheimer M, Bombardier CH, Heinemann AW, Neumann HD, Fann JR. Differences in quality of life outcomes among depressed spinal cord injury trial participants. Archives of Physical Medicine and Rehabilitation 96: , Teno JM, Bowman J, Plotzke M, Gozalo PL, Christian T, Miller SC, Williams C, Mor V. Characteristics of Hospice Programs With Problematic Live Discharges. J Pain Symptom Manage Oct;50(4): Epub 2015 May 21. PubMed PMID Teno JM, Freedman VA, Kasper JD, Gozalo P, Mor V. Is Care for the Dying Improving in the United States? J Palliat Med Aug;18(8): Epub 2015 Apr 29. PubMed PMID: ; PubMed Central PMCID: PMC Theodore, B., Whittington, J., Towle, C., Tauben, D., Endicott-Popovsky, B., Cahana, A., & Doorenbos, A. (2015). Transaction cost analysis of inclinic versus telehealth consultations for chronic pain: Preliminary evidence for rapid and affordable access to interdisciplinary collaborative consultation. Pain Medicine, 16(6), Washington KT, Parker Oliver D, Gage LA, Albright DL, Demiris G. A multimethod analysis of shared decision making in hospice interdisciplinary team meetings including family caregivers. Palliat Med Aug 17. PubMed PMID: 26

12 Washington KT, Pike KC, Demiris G, Oliver DP. Unique characteristics of informal hospice cancer caregiving. Supportive Care in Cancer 2015;23(7): Washington KT, Pike KC, Demiris G, Parker Oliver D, Albright DL, Lewis AM. Gender Differences in Care giving at End of Life: Implications for Hospice Teams. J Palliat Med Oct 20. PubMed PMID: Washington KT, Wittenberg-Lyles E, Oliver DP, Baldwin PK, Tappana J, Wright JH, Demiris G. Rethinking family caregiving: Tailoring cognitive behavioral therapies to the hospice experience. Health Soc Work. 2014;39(4): Wool, C., Kozak, L.E., & Lindley, L.C. Work environment facilitators of availability of complementary and alternative therapies in perinatal hospices. J of Hospice and Palliative Nursing 10/2015; 17(5):

Cambia Palliative Care Center of Excellence Member Publications Publications

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