Dementia friendly communities: learning from Yorkshire and beyond. Philly Hare Programme Manager 23 March 2015

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Caroline Grant
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1 Dementia friendly communities: learning from Yorkshire and beyond Philly Hare Programme Manager 23 March 2015

Joseph Rowntree s legacy Inspiring social change Joseph

philanthropist Wanted his money to be used to tackle the root

York This and other property is still managed through the

2 Joseph Rowntree s legacy Inspiring social change Joseph Rowntree ( ): Quaker, successful businessman and philanthropist Wanted his money to be used to tackle the root causes of social problems Built garden village of New Earswick, York This and other property is still managed through the Joseph Rowntree Housing Trust (JRHT) 1904 Joseph Rowntree Foundation (JRF) established

Continence, urgency Sensory overload Mood changes Short concentration Ageing Other impairments: sensory,

isolation and loneliness Low confidence and self-esteem Ageism and sexism Leads to Anxiety Negotiating

3 Living with dementia it s complicated! The condition Perceptual and spatial disturbance Confusion and disorientation Communication Reasoning, decisions Continence, urgency Sensory overload Mood changes Short concentration Ageing Other impairments: sensory, mobility, frailty Short term memory loss Social attitudes Stigma, ridicule, fear and ignorance Exclusion, isolation and loneliness Low confidence and self-esteem Ageism and sexism Leads to Anxiety Negotiating relationships Fatigue Constant change No one can understand what it is like to have dementia unless they ve got it. I would never have believed how complicated life could be Peter Jones, retired architect, York

4 Dementia without Walls Inspiring local communities

Evaluations Yorkshire case studies Grants and awards JRF/JRHT Networks:

5 Inspiring local communities: to be more aware and understanding of dementia Projects in Bradford, York, N Ireland and NE Scotland Evaluations Yorkshire case studies Grants and awards JRF/JRHT Networks: Wales Dementia Action Alliances Prime Minister s Champions European Foundations (EFID)

6 Dementia friendly York City of York Council commitment Independent evaluation Scoping: process and report People with dementia Local dementia action alliance Awareness raising Small grants (JRF)

7 Dementia friendly Bradford Partnership: JRF/Bradford Council/ Alzheimer s Society Community approaches involving ward officers New DAA 2013 New Face It Together group Dementia Friends training Marginalised communities: faith, ethnicity, sexuality Co-op stores

8 People with dementia at the heart and the start

Strengthening voice: supporting the collective engagement of people with dementia The role of DEEP Building connections between involvement groups Collating and

9 Strengthening voice: supporting the collective engagement of people with dementia The role of DEEP Building connections between involvement groups Collating and developing good practice Funding local groups and initiatives Brokering national opportunities Being a central repository Setting expectations Nothing about us without us

Examples of engagement and influence National Commitment from Care Minister to meaningful involvement National Call to Action on language and dementia British Psychological Society guidelines

10 Examples of engagement and influence National Commitment from Care Minister to meaningful involvement National Call to Action on language and dementia British Psychological Society guidelines Red Nose Day Twitter storm and TV Local Training staff Assessing grants Auditing shopping centre in Bradford Influencing new way-finding scheme in York Films and plays to raise awareness, in York

11 Thinking differently about dementia challenging attitudes, understanding and behaviours Is dementia a feminist issue? Does it help to think of dementia as a disability? Should we always tell the truth? Should we think more about people's rights? How do negative language and images disempower?

12 Key messages and learning We all need to understand better what it means to live with dementia. It s not just about new things every community and every person already has many assets and so much to offer. It s about the whole community we can all contribute and we can all gain. There is a real appetite for information: we are pushing at an open door. Language and images have a real impact Networks aid communication and learning People with dementia can achieve much by acting collectively Involving people with dementia themselves is crucial

Further information on Dementia without Walls:

uk/topic/dementia-without-walls Key resources and

uk/work/workarea/dementia-resources http://www.jrf.

13 Further information on Dementia without Walls: Programme web page: Key resources and reports: DEEP JRF Programme:

National Dementia Vision for Wales Dementia Supportive Communities

National Dementia Vision for Wales Dementia Supportive Communities Crown Copyright 2011 WAG11-11223 F641 Introduction In Wales, we are justifiably proud of the communities we have built, just as we are