Long Island Regional Group (LIRG) Introductory Webinars. August 10 & 17, 2015

Transcription

1 Long Island Regional Group (LIRG) Introductory Webinars August 10 & 17, 2015 August 31, 2015

2 2 WELCOME! We encourage you to actively participate by writing your questions in the chat box to the right during the presentation All participants will be muted upon entry o If we unmute the lines, you can mute your line (press *6 to mute, press #6 to unmute) Please do not put us on hold, especially if your phone system plays music Slides and other resources will be available after the webinar For any technical issues, call WebEx at (866)

3 3 Agenda Introductions/Opening Remarks What is NY Links? o Ending the Epidemic (EtE) by 2020 o Regional Data o Measures What is your role and key start-up activities? Next Steps/Q&A

4 4 Introductions & Opening Remarks Stephen Crowe, MSW Steve Sawicki, MHSA Lawrence E. Eisenstein, MD, FACP James L. Tomarken, MD, MPH, MBA, MSW

5 5 Question: Which HIV related networks, initiatives, or projects are you currently involved with in NYS (funded or non-funded)?

6 6 What is NY Links? Systems Linkages and Access to Care for Populations at High Risk for HIV Infection in New York State

7 7 Engagement in Care Continuum Non-Engager Sporadic User Fully Engaged [1] Health Resources and Services Administration, HAB. August Outreach: Engaging People in HIV Care Summary of a HRSA/HAB 2005 Consultation on Linking PLWH Into Care. [2] Eldred L, Malitz F. Introduction [to the supplemental issue on the HRSA SPNS Outreach Initiative]. AIDS Patient Care STDS 2007; 21(Suppl 1):S1 S2.

8 8 NY Links Mission We identify and spread innovative solutions for improving linkage and retention in HIV care that support the delivery of routine, timely, and effective care for PLWHA in New York State. We will bridge systemic gaps between HIV related services and achieve better outcomes for PLWHA through improving systems for monitoring, recording, and accessing information about retention, linkage, and viral load suppression in NYS.

9 9 NY Links Goals Bridge systemic gaps between HIV-related services within NYS Improve systems for monitoring, recording, and accessing information about HIV care in NYS Foster communication and collaboration between service providers and community members, and encourage the removal of barriers that limit the effective use of data systems Facilitate entry into and continuation in HIV care by those who are unaware of their HIV status, have not entered care, or are no longer retained in care

10 10 NY Links Partners NYSDOH AIDS Institute NYSDOH Department of Evaluation and Epidemiological Research NYS County Health Departments NYSDOH Clinical and Consumer Advisory Committees Regional Planning Councils and Networks Regional Providers, Leaders and Community Members

11 Existing Regional Groups in NYS 11

12 UM Regional Group Engagement of all medical, non-medical, and supportive services providers in the Upper Manhattan geographic area to improve linkage to and retention in HIV care. Initiated 10/11. Expectations for participation: Quarterly face-to-face meetings Routine data submission of standardized indicators Implementation of QI interventions to address internal and cross-agency linkage/retention challenges 12 Blue-Clinical Program Participating in the Upper Manhattan Regional Group Yellow-Supportive Service Program Participating in Upper Manhattan Regional Group

13 13 Western New York State Regional Group Red-Programs Participating in the WNYS Regional Collaborative Engagement of all medical, nonmedical, and supportive services providers in the Western NY geographic area (Rochester and Buffalo) to improve linkage to and retention in HIV care. Initiated 6/12. Current progress: Next Learning session scheduled for August 2015 Facilities utilizing data, as a system and individually, to locate areas where interventions would have the most impact Some facilities working on improving tracking systems for better identification

14 14 Queens-Staten Island Regional Group Engagement of all medical, non-medical, and supportive services providers in the Queens and Staten Island geographic area to improve linkage to and retention in HIV care. Initiated 2/13. Current progress: Breaking Queens and Staten Island into separate regional groups Facilities working on data acquisition and analysis as well as QI/QM team building/strengthening Generating momentum to work on linkage and retention interventions

15 Mid and Lower Hudson Regional Group 15 Engagement of all medical, nonmedical, and supportive services providers in the Mid and Lower Hudson geographic area to improve linkage to and retention in HIV care. Initiated 1/14. Current progress: Generating momentum to jointly work on linkage and retention improvement Collected baseline information to assess readiness as well as TA needs

16 16 NY Links Expansion Long Island Bronx Brooklyn Central NY Southern/Lower Tier Northeastern NY

17 NY Links Website 17

18 Why Participate? Contributes towards Ending the Epidemic by the end of 2020 in NYS working towards reducing new infections to 750 (and getting to zero) Positions programs/agencies for future funding and grant opportunities based on participation in a community-based network focused on regional and statewide improvement activities Fosters collaborative learning opportunities across Nassau and Suffolk regional leadership, providers, and community members Significant opportunities for resource and information sharing Technical assistance and training provided by NYSDOH related to improvement activities, such as getting staff and consumer buy-in to participate Improving care and health outcomes for patients and the community 18

19 Organizations/Providers We have or are in the process of reaching out to the following organizations/providers to participate, but please help us to identify more organizations, providers, solo/group practitioners, and consumers! AIDS Healthcare Foundation Brookhaven Memorial Hospital Medical Center Circulo de la Hispanidad, Inc. David E. Rogers, MD Center for HIV/AIDS Care - Southampton Hospital Dolan Family Health Center (North Shore LIJ) Eastern Infectious Disease Associates (EIDA) Economic Opportunity Commission of Nassau, Inc. Economic Opportunity Council of Suffolk Education and Assistance Corporation Five Towns Community Center, Inc. Hispanic Counseling Center, Inc. Hofstra University Hudson River Healthcare Infectious Disease Medical Associates Integrated Health (formerly Amagansett Primary Care) Long Island Association for AIDS Care, Inc. (LIAAC) Long Island Council on Alcoholism and Drug Dependence, Inc. (LICAAD) Long Island Crisis Center, Inc. Long Island Gay and Lesbian Youth, Inc. Long Island Infectious Disease Associates, PC Long Island Minority AIDS Coalition, Inc. (LIMAC) Nassau County Department of Health Nassau County Department of Social Services (DSS) Nassau County State of NY - Nassau County Sherriff's Dept. Nassau Health Care Corporation - Roosevelt Freeport Family Health Center (Long Island FQHC, Inc.) Nassau University Medical Center/Nassau Health Care Foundation - Center for Positive Health/DAC Nassau-Suffolk Law Services Committee, Inc. National Black Leadership Commission on AIDS, Inc. North Shore Infectious Disease Consultants, PC North Shore University Hospital - Center for AIDS Research & Treatment (CART)/Division of Infectious Disease North Shore/LIJ Health Systems Northport Veterans Medical Center Options for Community Living, Inc. Planned Parenthood of Nassau County, Inc. 19 Research Foundation SUNY - Stony Brook Riverhead Family Health Center Services & Advocacy for LGBT Elders (SAGE-LI)/ LGBT Community Center of LI South Brookhaven Health Center East South Nassau Family Medical at Long Beach (Long Beach Medical Center - Family Practice Clinic) South Shore Infectious Disease & Travel Medicine Consultants, PC Suffolk County Department of Health Services Suffolk Internal Medicine Associates Thursday's Child True Ministries, Inc. United Way of Long island University Associates in Obstetrics & Gynecology University Hospital and Medical Center at Stony Brook - HIV Center Winthrop University Hospital Infectious Disease Associates

20 Questions? Comments? 20

21 21 Ending the Epidemic with NY Links

22 22 Defining the End of AIDS A 3-Point plan announced by the Governor on June 29, Identify all persons with HIV who remain undiagnosed and link them to health care. 2. Link and retain those with HIV in health care, to treat them with anti-hiv therapy to maximize virus suppression so they remain healthy and prevent further transmission. 3. Provide Pre-Exposure Prophylaxis (PrEP) for persons who engage in high-risk behaviors to keep them HIV negative Reduce the number of new HIV infections to just 750 [from an estimated 3,000] by 2020

23 Blueprint Structure and Content On January 13, 2015 the NYS Ending the Epidemic (ETE) Task Force completed its charge and finalized 44 committee recommendations that address HIV related prevention, care and supportive services. Committee Recommendations were informed by 294 community recommendations and 17 statewide stakeholder meetings. The final Blueprint contains 30 Blue Print Recommendations and 7 Getting to Zero Recommendations. 23

24 Public Release of the Blueprint April 29, 2015 We must add AIDS to the list of diseases conquered by our society, and today we are saying we can, we must and we will end this epidemic. ~Governor Cuomo 24

25 25

26 Blueprint Recommendations (BPs) Link and retain persons diagnosed with HIV in care to maximize virus suppression so they remain healthy and prevent further transmission. 26 BP5: Continuously act to monitor and improve rates of viral suppression BP6: Incentivize Performance BP7: Use client-level data to identify & assist patients lost to care or not virally suppressed BP8: Enhance & streamline services to support the non-medical needs of persons with HIV. BP9: Provide enhanced services for patients within correctional and other institutions. BP10: Maximize opportunities through DSRIP process to support programs. BP29: Expand & enhance the use of data to track and report progress

27 Questions? Comments? 27

28 NYS & Regional Data (2012) 28

29 BHAE/AI/NYDSOH 3/2014

30 BHAE/AI/NYDSOH 3/2014

31 BHAE/AI/NYDSOH 3/2014

32 Questions? Comments? 32

33 NY Links Performance Measures 33

34 34 NY Links Measures The following measures will be collected and reported in aggregate by all NY Links regional groups participating HIV clinical, general medical, and supportive service providers and should capture all patients/clients with a diagnosis of HIV/AIDS, regardless of age or funding sources.

35 35 Brief Overview of NY Links Measures Measure Linkage Retention New Patient Retention Clinical Engagement Viral Load Suppression Agency Type All Programs that conduct HIV testing HIV Clinical Care HIV Clinical Care Supportive Services, General Medical & Dental Programs* All Sites *Including those co-located within HIV clinical care sites

36 36 NY Links Measures Definitions Linkage to care among newly diagnoses patients Percentage of newly diagnosed patients in the reporting period who had their first HIV clinical care visit within 30 days of the date of their confirmatory HIV test Clinical retention Percentage of patients with at least one HIV clinical care visit during the first 6 months of the 24-month measurement period who had at least one HIV clinical care visit in each 6- month period of the remaining 18 months of the measurement period with a minimum of 60 days between HIV clinical care visits (in line with HRSA/HAB measure) New patient retention Percentage of new patients who have their initial HIV clinical care visit during the first 4 months of the 12-month measurement period who had an HIV clinical care visit in each of the subsequent 4-month periods in the measurement period Clinical engagement Viral load suppression Percentage of active HIV clients/patients with a supportive service, general medical, or dental visit during the reporting period who have a documented or self-reported HIV clinical care visit within the prior 6 months Percentage of patients, regardless of age, with a diagnosis of HIV with a HIV viral load less than 200 copies/ml at last HIV viral load test during the measurement year

37 Performance Measurement Expectations 37 Self-reporting of NY Links measures quarterly (possibly every 4 months) Submission of performance measurement data to NY Links online database ( Sharing of quality improvement (QI) activities Future Webinars, Regional Groups, and Partnership Meetings will provide more in-depth information

38 Questions? Comments? 38

39 Participant Teams 39

40 40 Participant Teams Identify a leader who will drive change, support quality improvement activities, direct resources and facilitate communication within the organization in support of the agency specific NY Links activities Form a multidisciplinary team, including expert staff (data and evaluation, quality improvement, clinical providers, consumer(s) involved in QI) to participate as a team in the LIRG; and Members of the Participant Team attend all learning sessions and champion linkage, retention, and VLS activities in the agency.

41 41 Roles Identify key staff to fill the following potential roles/responsibilities: o Senior Leader/Participant Team Lead o Point of Contact person who can move QI projects ahead and coordinate o Data Manager to help with data extraction, accuracy and submission o Clinical Provider someone to inform the project o Consumer/PLWHA actively participating in QI

42 Questions? Comments? 42

43 Partnership Meetings 43

44 44 Purpose of Partnership Meetings Learn more about your agency and your participation in current HIV activities and coalitions/networks Meet with your staff who will be involved in the NY Links Initiative; including representation from agency s Primary Care, Supportive Service, HIV Testing, and Quality Management Programs Strengthen your agency s understanding of the NY Links Long Island Regional Group (LIRG) project Components: o Complete a Regional Group Assessment o Address any questions regarding LIRG o Identify team members for LIRG participation o Discuss pre-work/measures/qi activities for future LIRG meetings

45 45 Partnership Meeting Logistics Meeting Duration: minutes Each visit will be lead by a representative from NYSDOH, Stephen Crowe, and when possible, Steve Sawicki, NY Links Project Director, and a representative from Regional DOH Partner Participation: o Executive Leader(s), QI Program Coordinator, Data/IT Coordinator, and/or any other team members Aim to complete meetings by end of September

46 Regional Group Response Team 46

47 47 Regional Group Response Team A Response Team is a self-organizing, peer-driven group made up of 5-10 nominated leaders with various skill sets and roles who participate in the regional group. Members can be active providers, leaders, and/or community members of the regional group Purpose: Maintain leadership at the community level Streamline communication Strengthen leadership capacity and roles Support and direct the regional group Increase regional group sustainability Hold all participants accountable for participation, goals, and outcomes

48 48 Next Steps Hold Introductory Webinars (8/10 & 8/17) Continue Identifying/Inviting Providers & Consumers Schedule Partnership Meetings (Aug/Sept) Identify Participant Teams 1 st Regional Group Kick-Off Meeting: o August 24 th, 9:30AM-3:30PM, United Way of Long Island o RSVP w/ Staff & Consumer names to Pamela Harris at pamela.harris@health.ny.gov no later than 8/17

49 Q&A/Discussion 49

50 50 Thanks! Johanne Morne Steve Sawicki Bruce Agins Angela Rivera Karen Hagos Nanette Brey-Magnani Susan Weigl Diane Addison Carol-Ann Swain Ben Katz Dan Belanger Dan Tietz Clemens Steinböck Howard Lavigne Beth Woolston Meg Johnson And YOU!!!

51 51 Contact Information Stephen Crowe, MSW, NY Links LIRG Lead, Steve Sawicki, MHSA, NY Links Project Director, Bruce Agins, MD, MPH, Medical Director, General Information: