Federal Legislative Activity related to Autism. Kim Musheno Act Early Summit --October 2009

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1 Federal Legislative Activity related to Autism Kim Musheno Act Early Summit --October 2009

2 Autism Treatment Acceleration Act S. 819 introduced by Sen. Durbin, Casey (D-PA), and Menendez (D-NJ) on April 2 H.R introduced by Mike Doyle (D-PA) and Chris Smith (R-NJ) on May 14 Comprehensive services bill that focuses on services across lifespan, not just children Combines elements of Sens. Clinton and Obama/Durbin bills from last Congress

3 Acceleration Act Main elements Demonstration project to develop comprehensive, coordinated autism services Demonstration grants to develop adult services Voluntary population-based registry Provision to strengthen existing national, regional, and local networks National training initiatives to provide interdisciplinary training, continuing education initiatives, and technical assistance Requires that health insurers cover the diagnosis and treatment of ASD, including ABA, assistive communication and assistive technology devices 3

4 ATAA in Health reform Two elements included in health reform: 1. Health insurance coverage 2. Interdisciplinary training grants 4

5 ATAA elements in health reform Rep. Doyle (PA) and Sen. Menendez (NJ) Minimum services includes mental health and substance use disorder services, including behavioral health treatment. Doyle amendment to include interdisciplinary training grants (House); working on Senate champion Workforce Advisory Committee - Report on behavioral health workforce capacity 5

6 Long term services in health reform Community Living Assistance Services and Supports (CLASS) Act Community First Choice Option (Sec. 101 of the Community Choice Act) 6

7 Health reform other provisions Exchange or market place for people without insurance to shop for plans Expansion of Medicaid to households earning less than 133% FPL Cannot deny coverage based on preexisting conditions Elimination of annual and lifetime caps Employer mandates Individual mandate and subsidies 7

8 Public Option debate Opt in? Opt out? Trigger? Co-op? or none?

9 Will it really happen? 9

10 Next steps House leaders plan to release merged bill this week and vote next Senate is merging now with hopes to have it to the floor before Thanksgiving Democrats want a bill signed by Christmas 10

11 Department of Defense TriCare Bill H.R introduced by Rep. Joe Sestak (D-PA) on March 18 Revises TRICARE (a Department of Defense [DOD] managed health care program) to authorize treatment of autism spectrum disorders, if a health care professional determines that such treatment is medically necessary Referred to Armed Services Committee 11

12 HANDS H.R.1707/S. 706 introduced on March 25 by Rep. Kay Granger (R-TX) and Sen. Menendez (D-NJ) To increase Housing, Awareness, and Navigation Demonstration Services (HANDS) for individuals with autism spectrum disorders 12

13 ABLE Accounts Act of 2009 Achieving a Better Life Experience Act To encourage individuals with autism and other disabilities to save, tax-free, for disability-related expenses S Sens. Robert Casey (D-PA), Orrin Hatch (R- Utah), and Christopher Dodd (D-CT H.R Reps. Ander Crenshaw (R-FL), with Reps Patrick Kennedy (D-RI), Cathy McMorris Rodgers (R-WA), and Kendrick Meek (D-FL)

14 Other Legislation Coming UP After health care reform. WIA/Rehab Act NCLB Reauthorization Direct Support Professionals DD Act Reauthorization 14

15 Resources AUCD: Public policy Autism Action Center: Consortium for Citizens with Disabilities (CCD) Autism Task Force: NCSL Database for state legislation for state autism profiles 15

16 Questions? 16

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