08.30 Coffee and Registration The Gallery Welcome Fiona Walter & Jon Emery, local hosts, University of Cambridge

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1 Programme Sunday 14th April Jesus College, Cambridge Registration Welcome & informal drinks David Weller, Chair of executive board Ca-PRI Executive meeting & dinner Students dinner organised by Cambridge students VENUE College Bar TBA TBA Monday 15 th April Court, Magdalene College, Cambridge Coffee and Registration Gallery Welcome Fiona Walter & Jon Emery, local hosts, University of Cambridge David Weller, Chair of executive board Ca-PRI Plenaries: Personalising care along the cancer journey Chair: David Weller Personalising care: implications of genetic susceptibility Prof Sir Bruce Ponder FRS, Emeritus Professor & Head, University Department of Oncology, University of Cambridge Personalising care: follow-up care and survivorship Prof Clare Wilkinson, Professor of General Practice, Director of Research North Wales Clinical School, & Chair of NCRI Primary Care Clinical Studies Group Discussion Coffee & informal networking time Gallery Oral presentations in parallel sessions Session 1: Early diagnosis Chair: Peter Vedsted, Denmark O-01: Do symptoms of operable and inoperable lung cancer differ?: An interview study of symptoms experienced by patients awaiting lung cancer resection Lucy Brindle, University of Southampton, UK Room 3

2 O-02: Factors associated with later presentation and later stage at diagnosis of lung cancer: early results from a prospective cohort Fiona Walter, University of Cambridge, UK O-03: Experience of symptoms potentially indicative of gynaecological cancers in UK women Emma Low, University College London, UK Cancer Research UK Student Travel Award O-04: acceptability of a gynaecological cancer information leaflet in general practice Alice Simon, City University London, UK Session 2: Cancer care Chair: Jeff Sisler, Canada O-05: Perception of continuity of care in patients newly diagnosed with lung cancer and their family physician Michele Aubin, Université Laval, Canada Room 4 O-06: Are there age disparities in presentation, diagnosis pathway and treatment of colorectal patients? Magdalena Esteva, Majorca, Spain O-07: Variation in patient experience of integrated care for cancer Catherine Saunders, University of Cambridge, UK O-08: How do Danish cancer patients perceive the performance of their GP's? Soren Laursen, Danish Cancer Society, Denmark Session 3: Survivorship Chair: Clare Wilkinson, UK O-09: impact of geography on the experiences of young adult cancer survivors Bo Miedema, Dalhousie University, Canada Room 5 O-10: Evolution in loneliness and quality of life in older versus younger cancer patients Laura Deckx, KU Leuven, Belgium O-11: Long-term follow-up for cardiovascular disease after chemotherapy and/or radiotherapy for breast cancer in an unselected population Liselotte Boerman, University of Groningen, Netherlands

3 O-12: Characteristics of high health care users among childhood, adolescent and young adult cancer survivors Mary McBride, BC Cancer Agency, Canada Plenary: oral presentation session for Best Abstracts Chair: Richard Neal, UK O-13: Cancer-related gut feelings among Dutch general practitioners Gé Donker, NIVEL, Netherlands Cancer Research UK Postdoc Travel Award O-14: Does having a melanoma excised in primary care lead to poorer outcomes? Peter Murchie, University of Aberdeen, UK O-15: Partners of cancer patients have increased primary health care use for somatic and psychosocial problems Marianne Heins, NIVEL, Netherlands Lunch Gallery Workshops W-1: International collaborative research to improve cancer screening Christine Campbell, University of Edinburgh, UK Carrie Klabunde, National Cancer Institute, USA Stephen Taplin, National Cancer Institute, USA David Weller, University of Edinburgh, UK W-2: Contributions and challenges of qualitative approaches to primary care cancer research Rikke Sand Andersen, Aarhus University, Denmark Linda Birt, University of Cambridge, UK W-3: Workshop on international policy initiatives on early cancer diagnosis in primary care Jon Emery, Universities of Western Australia, Melbourne and Cambridge Greg Rubin, Durham University, UK Georgios Lyratzopoulos, University of Cambridge, UK Peter Vedsted, Aarhus University, Denmark Jeff Sisler, CancerCare Manitoba, Canada Room 4 Room 3 Room Tea Gallery Oral presentations in parallel sessions

4 Session 4: Symptom appraisal Chair: Fiona Walter, UK Room 3 O-16: Cancer symptom appraisal in everyday life: a community-based qualitative interview study Katriina Whitaker, University College London, UK Cancer Research UK Postdoc Travel Award O-17: How does the thought of cancer arise during a consultation? May-Lill Johansen, University of Tromsø, Norway O-18: Missing early presentations of cancer: effects of an alternative explanation and disease prevalence Olga Kostopoulou, King s College London, UK Session 5: Diagnosis and follow-up Chair: Christine Campbell, UK O-19: Clinical features of myeloma in primary care Willie Hamilton, University of Exeter, UK Room 4 O-20: Quality deviations during the diagnostic pathway for Danish cancer patients as assessed by the GP and the patient - prevalence, types and agreement Henry Jensen, Aarhus University, Denmark O-21: Who's doing what? role of physician specialties in colorectal cancer follow-up care in Manitoba, Canada Jeff Sisler, University of Manitoba, Canada Session 6: Database studies Chair: Steve Taplin, USA O-22: Development of methods to evaluate the pre-diagnostic breast cancer patient trajectory linking existing population-level databases Marcy Winget, Cancer Care, Alberta Health Services, Canada Room 5 O-23: Variation in use of the 2-week referral pathway for suspected cancer David Meechan, Trent Cancer Registry, UK O-24: Factors associated with the length of the peri-diagnostic encounter leading to an oral cavity cancer diagnosis: demonstration of a new approach using administration data Patti Groome, Queen s University, Canada

5 16.30 Plenary Chair: Greg Rubin, UK Cancer registry data - what do you really need? Dr Jem Rashbass, Eastern Cancer Registry and Information Centre, National Director for Disease Registers in Public Health England Social programme Jesus College, Cambridge Free time Opportunity for guided walking and running tours A short RECITAL by the CHORISTERS OF JESUS COLLEGE, CAMBRIDGE and Mr Mark Williams, Director of Music* Chapel RECEPTION in the Upper Hall* Upper Hall DINNER in the Great Hall* with a short Welcome from Prof Sir Bruce Ponder, Fellow of Jesus College, Cambridge * By kind permission of the Master and Fellows of Jesus College, Cambridge Great Hall

6 Tuesday 15 th April Court, Magdalene College, Cambridge Plenaries: New approaches to early diagnosis and quality of care Chair: Kurt Stange, USA New diagnostic approaches for primary care Prof Rebecca Fitzgerald, MRC Cancer Cell Unit, University of Cambridge, UK What do we know about improving quality of care? Is it relevant to primary care for cancer? Prof Martin Roland, Professor of Health Services Research, University of Cambridge, UK Discussion Coffee Informal networking time with poster viewing Electronic posters Chair: Peter Vedsted, Denmark Gallery Orangery & East Room P-01: Patients' preferences for post-treatment breast cancer follow-up in primary care versus secondary care: a qualitative survey Annette Berendsen, University of Groningen, Netherlands P-02: Interviews with primary care teams in Lancashire and South Cumbri Neil Cook, University of Central Lancashire, UK P-03: Use of electronic communication media to enhance cancer screening in primary care Alan Katz, University of Manitoba, Canada P-04: role of primary care in the management of teenagers and young adults with cancer: a qualitative study Matthew Ridd, University of Bristol, UK P-05: Does seeing the same general practitioner affect how quickly breast, colorectal or lung cancer are diagnosed? Matthew Ridd, University of Bristol, UK P-06: Perceived delay in lung, colorectal, breast and prostate cancer diagnosis: analysis of data from the national GP audit Christina Dobson, Durham University, UK Cancer Research UK Student Travel Award

7 P-07: Development of the Find Cancer Early community education campaign in regional Western Australia Victoria Gray, University of Western Australia, Australia P-08: GP s role in advising cancer patients about Complementary and Alternative Medicine Corina Guethlin, Goethe-University Frankfurt, Germany P-09: Development and implementation of a mobile application (app) to support patients during shared-care follow-up after testicular cancer. Hink Boer, University of Groningen, Netherlands P-10: Quality of GP-care as perceived by cancer patients in different phases of illness Petra Hopman, NIVEL, Netherlands P-11: I deal with the small things'. doctor-patient relationship and professional identity in GPs stories of cancer care May-Lill Johansen, University of Tromsø, Norway P-12: Family physicians (FPs) views on Survivorship Care Plans (SCPs) as tools to support follow-up of breast cancer patients Mary Ann O'Brian, University of Toronto, Canada P-13: Developing and implementing a primary care practice based curriculum for cancer survivorship Linda Overholser, University of Colorado, USA P-14: Emotions: do they have a role in medical help-seeking for symptoms suggestive of cancer? A systematic literature review Chantal Smeekens, University of Cambridge, UK Paper posters in guided small group tours Leaders: Michele Aubin, Canada; Carrie Klabunde, USA; Peter Murchie, UK; Marie Pirotta, Australia Orangery & East Room P-15: GP and practice determinants of safety netting in cancer diagnosis: findings from the International Cancer Benchmarking Partnership (ICBP) Module 3 for Wales Adrian Bellwood, Bangor University, UK P-16: Prevalences of potential lung cancer symptoms stratified by common comorbidities in GP-referred chest-x-ray attendees: implications for improving earlier diagnosis Lucy Brindle, University of Southampton, UK P-17: Keep it short and simple : GPs pragmatic needs for inter-provider

8 information exchange Anne Dahlhaus, Goethe-University Frankfurt, Germany P-18: Routes to diagnosis of lung cancer in Denmark Louise Guldbrandt, Aarhus University, Denmark Cancer Research UK Student Travel Award P-19: Changes in the cancer screening system in Japan Chisato Hamashima, National Cancer Centre, Japan P-20: Systematic needs assessment of cancer patients in primary care based on a new web-based patient questionnaire Dorta Gilså Hansen, University of Southern Denmark, Denmark P-21: Alarm symptoms of cancer and healthcare-seeking behaviour. A population-based, cross-sectional study Dorte Ejg Jarbøl, University of Southern Denmark, Denmark P-22: Quality deviations during the diagnostic pathway for Danish cancer patients assessed by their GPs- prevalence and type and association with diagnostic time interval Henry Jensen, Aarhus University, Denmark P-23: Distance to screening site and participation in screening for breast cancer a population-based study Line Flytkjær Jensen, Aarhus University, Denmark P-24: A study of primary care consultations preceding referral and diagnosis of cancer Nadia Llanwarne, University of Cambridge, UK P-25: Domiciliary care and primary caregivers of patients with terminal cancer Joan Llobera, Majorca, Spain P-26: Comparing future strategies for medical oncology management in New Zealand and the Netherlands Jiska Meijer, University Medical Center Groningen, Netherlands P-27: Using calendar landmarking instruments may aid patient recall of cancer symptom time intervals from onset to diagnosis Katie Mills, University of Cambridge, UK P-28: Impact on patterns of urgent referral for suspected cancer of a national early diagnosis initiative in primary care Greg Rubin, Durham University, UK

9 P-29: Unbearable suffering studied in end-of-life cancer in Dutch primary care Cees Ruijs. VU University Medical Centre, Amsterdam, Netherlands P-30: Symptomatic diagnosis of lung cancer: a systematic review Joanna Shim, University of Southampton, UK P-31: To what extent does prevention explain the paradox of primary care? Kurt Stange, Case Western Reserve University, USA P-32: effect of continuing medical education (CME) on cancer risk assessment skills in Danish general practice Berit Skjoedeberg Toftegaard, Aarhus University, Denmark P-33: Why do some patients present with thicker melanomas? A qualitative exploration of patients' symptom detection and help-seeking decisions. Linda Birt, University of Cambridge, UK Oral presentations in parallel sessions Session 7: Early diagnosis Chair: Knut Holtedahl, Norway O-25: Should GPs investigate or refer for lower-risk cancer symptoms, and does it matter? Richard Neal, Bangor University, UK Room 3 O-26: Delay in cancer diagnosis and primary healthcare Dominique Tremblay, University, Canada O-27: Cancer suspicion in general practice: the role symptoms and patients characteristics and relationships with subsequent cancer Benedicte Scheel, University of Tromsø, Norway O-28: Patient views on being referred for diagnostic testing for cancer a vignette based survey Jon Banks, University of Bristol, UK Session 8: Inequalities & cancer diagnosis Chair: Peter Rose O-29: Ethnic inequality in cancer diagnosis Taminola Martins, Exeter University, UK Room 5 O-30: General practitioners suspicion of cancer and other serious diseases: implications for future diagnosis and use of healthcare services Peter Hjertholm, Aarhus University, Denmark

10 O-31: Cultural explanatory model for cervical cancer: the implications for health seeking and treatment outcome in Uganda Amos Deogratius Mwaka, Makerere University, Uganda O-32: Gender inequalities in promptness of diagnosis of bladder and renal cancer: secondary analysis of national audit data Georgios Lyratzopoulos, University of Cambridge, UK Session 9: Primary care trials and complex interventions Chair: Bo Miedema, Canada O-33: Developing a community-based complex intervention to improve quality of life in people with colorectal cancer: evidence, theory and acceptability Nicola Gray, University of Aberdeen, UK Room 4 O-34: Effectiveness and cost-effectiveness of dermoscopy in primary care: a cluster randomised clinical trial Cecile Koelink, University of Groningen, Netherlands O-35: ProCare Trial: a phase II randomised controlled trial of shared care for men with prostate cancer Jon Emery, University of Western Australia, Australia Lunch Gallery Ca-PRI welcomes NAEDI: introductions David Weller, Chair of executive board Ca-PRI Overview & update of primary care NAEDI studies Dr Sara Hiom, Director of Early Diagnosis & Patient Engagement, Cancer Research UK International Cancer Benchmarking Partnership Chair: Willie Hamilton, UK ICBP 2: Public awareness and attitudes Prof Jane Wardle, University College London, UK ICBP Module 3: Factors in primary care that might affect international differences in cancer survival Dr Peter Rose, University of Oxford, UK ICBP Module 4: Time intervals from first symptom to treatment Prof Peter Vedsted, Aarhus University, Denmark Prof David Weller, University of Edinburgh, UK

11 Discussion Tea Gallery International Ca-PRI studies Chair: Jon Emery, Australia Preliminary results from the CRC collaboration: associations between primary care interval and tumour staging Dr Marie Louise Tørring, Aarhus University, Denmark Prof Greg Rubin, Durham University, UK Rural Cancer Initiative: a factorial trial of a complex intervention to reduce the diagnostic interval in rural cancer patients in Western Australia Victoria Gray, University of Western Australia, Australia Discussion Presentation by Ca-PRI 2014 organisers Jeff Sisler, University of Manitoba, Canada Closing session David Weller, Chair of executive board Ca-PRI Social programme Punting: Organised from Scudamores, Magdalene Bridge Cash Bar in Jesus College Bar College Bar Own arrangements for dinner

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