Q1 What age are you?
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- May Carroll
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1 Q1 What age are you? Answered: 504 Skipped: % % % % % % % % % % % % % % % % % % 52 TOTAL / 26
2 Q2 What is your gender? Answered: 504 Skipped: 0 Female Male Prefer not to say Other 85.91% % % % 5 TOTAL / 26
3 Q3 In what country do you live? Answered: 504 Skipped: 0 Albania Andorra Armenia Austria Azerbaijan Belarus Belgium Bosnia and Herzegovina Bulgaria Croatia Cyprus Czech Republic Denmark Estonia Finland France Georgia Germany Greece Hungary Iceland Ireland Italy Kazakhstan Kosovo Latvia Liechtenstein Lithuania Luxembourg Macedonia (FYROM) 0.40% % % % % % % % % % 4 3 / 26
4 Malta Moldova Monaco Montenegro Netherlands Norway Poland Portugal Romania Russia San Marino Serbia Slovakia Slovenia Spain Sweden Switzerland Turkey Ukraine United Kingdom (UK) Vatican City (Holy See) 4.17% % % % % % % 78 TOTAL / 26
5 Q4 Are you currently: Answered: 496 Skipped: 8 Studying full-time Studying part-time Employed full-time Employed part-time Unemployed and seeking work Unemployed and not seeking work Self-employed 6.05% % % % % % % 11 Total Respondents: / 26
6 Q5 What level of education have you achieved so far? Answered: 497 Skipped: 7 Completed high school/second level Certificate Diploma Bachelor's Degree Master's Degree PhD Other (please specify) 36.82% % % % % % % 92 TOTAL / 26
7 Q6 What neurological disorder(s) are you affected by? (Tick all that apply) Answered: 504 Skipped: 0 Myalgic Encephalomyelitis (ME) Chronic pain Migraine Other (please specify) Restless Legs Syndrome (RLS) ADHD Multiple Sclerosis (MS) Acquired Brain Injury (ABI) Brain Tumour Dystonia Tourette Syndrome Myasthenia Gravis Spina Bifida and Hydrocephalus Ataxia Dementia Epilepsy Huntington s disease Motor Neurone Disease (MND) Parkinson s disease Stroke % % % % % % % % % % % % % 1 Total Respondents: / 26
8 Q7 Do you take prescribed medication for the above? Answered: 501 Skipped: 3 Yes No Previously, but not now 40.92% % % 35 TOTAL / 26
9 Q8 Are you currently under treatment of a specialist/neurologist? Answered: 500 Skipped: 4 Yes No Previously, but not now 19.20% % % 83 TOTAL / 26
10 Q9 Are other members of your family affected by a neurological disorder? Answered: 502 Skipped: 2 Yes No Unsure 46.41% % % 70 TOTAL / 26
11 Q10 How well do you feel your family understand your condition? Answered: 484 Skipped: 20 AVERAGE NUMBER TOTAL NUMBER Total Respondents: , / 26
12 Q11 How well do you feel your friends understand your condition? Answered: 481 Skipped: 23 AVERAGE NUMBER TOTAL NUMBER Total Respondents: , / 26
13 Q12 How comfortable would you feel discussing your brain disorder with a new friend? Answered: 479 Skipped: 25 AVERAGE NUMBER TOTAL NUMBER Total Respondents: , / 26
14 Q13 How comfortable would you feel discussing your brain disorder with an employer? Answered: 477 Skipped: 27 AVERAGE NUMBER TOTAL NUMBER Total Respondents: , / 26
15 Q14 Do you feel public understanding of your condition is: Answered: 478 Skipped: 26 AVERAGE NUMBER TOTAL NUMBER Total Respondents: , / 26
16 Q15 Do you feel public understanding of brain disorders generally is: Answered: 478 Skipped: 26 AVERAGE NUMBER TOTAL NUMBER Total Respondents: , / 26
17 Q16 Are there any digital tools which help you with the management of your neurological disorder? Answered: 487 Skipped: 17 Yes No I tried something but stopped using it 16.22% % % 33 TOTAL / 26
18 Q17 If 'Yes', what are they called? Answered: 68 Skipped: / 26
19 Q18 If you previously tried a digital tool but stopped using it, why was that? Answered: 79 Skipped: 425 Too difficult to use It was boring It seemed ineffective I'm worried about how my personal health data might be used Other (please specify) 31.65% % % % % 18 Total Respondents: / 26
20 Q19 Have you ever taken part in any awareness-raising activities relating to brain disorder/your own condition? Answered: 483 Skipped: 21 Yes No 39.96% % 290 TOTAL / 26
21 Q20 If No, is this something you would be interested in? Answered: 287 Skipped: 217 Yes No 63.41% % 105 TOTAL / 26
22 Q21 Are you a member of a patient organisation? Answered: 480 Skipped: 24 Yes No In the past, but not now 48.75% % % 24 TOTAL / 26
23 Q22 If No, would you be interested in finding out more about one? Answered: 196 Skipped: 308 Yes No 63.78% % 71 TOTAL / 26
24 Q23 Patient organisations need to know about the issues that affect you most as a young person with a neurological condition. Please arrange the issues below so that the most serious issue is at the top (1) and the least serious is at the bottom (8). Answered: 451 Skipped: 53 Access to employment TOTAL SCORE 5.54% % % % % % % % Access to education 4.66% % % % % % % % Depression / anxiety 4.21% % % % % % % % Relationships and sexual health 3.77% % % % % % % % Cost of medication/treatment 4.21% % % % % % % % Stigma surrounding brain disease 13.08% % % % % % % % Isolation 19.73% % % % % % % % Access to medication/treatment 44.79% % % % % % % % / 26
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