Part of EVIDENCE BASED PRACTICE UNIT

Transcription

1 Part of EVIDENCE BASED PRACTICE UNIT

2 A note from the Director: The heart of our work is helping services most effectively support young people and their families to get on with their lives and to flourish. Miranda Wolpert

3 Evidence Based Practice Unit EBPU Everything you need to know Website: Website: Hampstead site: 12 Maresfield Gardens, London NW3 5SD Tel: King s Cross site: 4-8 Rodney Street, London, N1 9JH Tel: CORC@annafreud.org

4 CONTENTS Who we are 5 What we do 6 Our partners 8 Our team 8 Our services 9 Youth Wellbeing Directory 10 Services for pupils in schools 11 What s-up 11 Services for young people thinking of getting mental health support 12 My CAMHS Choices 12 Services for young people getting mental health support 13 CAMHSWeb 13 Services for funders and providers of specialist mental health support 14 Payment Systems 14 Services for policy makers 15 Child Policy Research Unit (CPRU) 15 Services for therapists working with children and young people with mental health issues 16 UPROMISE 16 Services for collaborations of funders, professionals and service users 17 Closing the Gap: Shared decision making in CAMHS 17 Spreading Improvement 17 Services for researchers 18 HeadStart evaluation 18 CLAHRC 18 Data collection and analysis of Children and Young People s Improving Access to Psychological Therapies (CYP IAPT) 19 DIY Health evaluation 19 Perinatal Mental Health Value Score Card evaluation 20 SAFE 21 EPBU and the Child Outcomes Research Consortium 22 CORC in schools 23

5 Who we are The Evidence Based Practice Unit (EBPU) is a not for profit organisation committed to supporting mental wellbeing for children, young people and their families. EBPU is part of University College London (UCL), one of the world s leading research institutions and child mental health charity The Anna Freud Centre. We also provide the central team for the Child Outcomes Research Consortium (CORC). 5

6 Together, we are: Collaborators We work with partners across education, government and the health service to develop cutting-edge services for child mental health. Enablers We bridge the gap between academic research and frontline practice to provide real world solutions for child mental health services. Innovators We use the latest techniques and technologies to effectively engage with children and young people. Networkers We share the latest evidencebased research and information to support children, young people and healthcare professionals alike. Researchers We research and evaluate best ways to support young people s mental wellbeing. What we do The World Health Organisation estimates that by 2020, mental disorders will become one of the five most common causes of serious ill health among children. To help tackle this growing health issue we provide professionals with the tools to inform their services, while empowering young people to take an active role in their treatment. 6 EBPU Everything you need to know

7 For professionals we: Work collaboratively to help them explore different ways of improving the help that they offer Provide online and published resources and training Evaluate a broad range of services to support suggestions for improvement Publish regularly in international peer-reviewed academic journals to advance knowledge in supporting youth mental wellbeing. For young people and their families we: Provide online and published resources to help them make choices about different forms of support Undertake cutting-edge research into what supports mental wellbeing for young people Publish material relevant to young people and their families through our publishing arm, CAMHS Press. For commissioners and policy makers we: Offer advice and suggestions for service standards and policy objectives Provide frameworks for performance management and outcome monitoring.

8 Our partners Effective collaboration is key to our success. We work with partners from both the public and private sectors to ensure the services we provide are informed by research; tested in the field; and tailored to young people s needs. We work with: Academic researchers Service providers Experts with experience of using services Policy makers National funding bodies Service development networks. Our team Our highly experienced team is made up of professionals from a wide range of disciplines. We share a collective commitment to the health and wellbeing of young people and their families. We are: Postdoctoral researchers Mental health support providers Design experts Project managers Quality improvement experts Administrators Statisticians. 8 EBPU Everything you need to know

9 Our services More than 20 percent of young people seen in specialist services do not return after one meeting, and up to 56 percent report not feeling listened to by their service provider. In addition, schools regularly tell us that they don t know what services are on offer, or how they can recognise quality. Ultimately, this means that children and young people do not take an active enough role in decisions about their care. To address this we are not only looking at the services that are provided, but at how they can be best communicated. Our current projects will collectively reach over 130,000 children and young people, together with more than 200 Child and Adolescent Mental Health Services (CAMHS) nationally. This will lead to an improvement in young people s understanding of their conditions and choice of treatment providers, and as a result, reduce dropout rates. Over the next 13 pages you will find details of these projects and services, together with the programme of research and evaluation that underpins them. 9

10 Youth Wellbeing Directory The Youth Wellbeing Directory is a free online directory of child and adolescent mental health service providers. Designed for anyone using these services, the directory also includes information on best practice and a glossary of terms. Online, interactive directory of mental health support and information providers Designed for potential funders and service users Encourages service providers to work to a recognised set of quality standards.

11 Services for pupils in schools What s-up! The What s-up! interactive website supports year olds with behavioural or emotional difficulties. Funded by the Department of Education, the portal is being rolled out to schools and youth centres to support young people s mental health and wellbeing. Website with information and interactive support materials for year olds Working with 13 schools, 13 youth centres and 4 policy research units Supports emotional wellbeing. whatsup@annafreud.org 11

12 Services for young people thinking of getting mental health support My CAMHS Choices The My CAMHS Choices website has been created in collaboration with young people to demystify the CAMHS process. Using video footage of both young people and professionals, together with FAQs, contact details and links to other resources, it is designed to allay the anxiety and worry associated with having involvement with mental health services. Online resource created in collaboration with young people Designed for anyone considering using, or currently working with CAMHS Includes video footage of young people and professionals CAMHS experiences EBPU Everything you need to know

13 Services for young people getting mental health support CAMHsWeb CAMHsWeb is an interactive website to support children and young people accessing CAMHS across England. Through a range of online resources including tips and games, it enables them to become active participants in their care, personalise their treatment packages and make informed decisions about forms of treatment and choices of providers. Interactive website for young people Works with 70 CAMHS across England Empowers young people to take control of their therapeutic journey. camhsweb@annafreud.org 13

14 Services for funders and providers of specialist mental health support Payment Systems The Payment Systems project aims to find the best way to facilitate the allocation of funds to CAMHS providers in accordance with the needs of children and young people. Project to develop a payment system for CAMHS Designed for CAMHS professionals and service providers. pbrcamhs@annafreud.org 14 EBPU Everything you need to know

15 Services for policy makers Child Policy Research Unit (CPRU) The EBPU leads on the mental health strand of this Department of Health research project. We are exploring service transformation in CAMHS and investigating which aspects of CAMHS are associated with the most positive outcomes. Multidisciplinary project across paediatrics and adolescent health, public health, health economics, clinical psychology, sociology, social policy and care Provide better understanding of child development and learning Improve transition to parenthood and the wellbeing of ill/ disabled children. 15

16 Services for therapists working with children and young people with mental health issues UPROMISE UPROMISE, or Patient Related Outcome Measures to Improve Service Effectiveness, provides professionals with a series of structured learning activities on how to make the most effective use of patient feedback. Service for CAMHS professionals Designed to improve quality of services Enables practitioners to make the most of patient feedback. ebpu@annafreud.org

17 Services for collaborations of funders, professionals and service users Closing the Gap: Shared decision making in CAMHS Spreading Improvement Closing the Gap operates across four UK CAMHS sites to examine best practice for shared decision making. Themes include: agreeing problems and goals; understanding available options; agreeing on an option; reviewing progress; and making necessary changes. Spreading Improvement is informed by the findings from previous work on developing shared decisionmaking and personalisation of care in CAMHS, and is based around a structured training course consisting of nine regional master classes which are supported by online materials. For commissioners, service providers and users In collaboration with Child Outcomes Research Consortium (CORC) and Young Minds Allows consideration of different ways of developing services. ebpu@annafreud.org Training for commissioners, service providers and users In conjunction with Child Outcomes Research Consortium (CORC) Ensures that patient-centred care is at the heart of all CAMHS activity. ebpu@annafreud.org

18 Services for researchers HeadStart evaluation CLAHRC HeadStart is a two-year programme trialling a broad range of initiatives for improving resilience in year olds. Funded by the Big Lottery, it is being piloted across a number of different community-based schemes in twelve locations. Community-based scheme aimed at year olds In collaboration with Big Lottery, University of Manchester and Common Room Consulting Ltd Aims to develop a consistent measurement to assess a broad range of initiatives. fulfilling-lives-headstart Collaborations for Leadership in Applied Health Research and Care (CLAHRC) will evaluate the What s-up! website (see page 11) during its trial phase at selected schools in East London and the North Thames area. The evaluation will test a sample group who have both physical and mental health problems and address the portal s cultural acceptability for different ethnic groups. Evaluation of the What s-up! website Sample group includes those with both physical and mental health problems Addresses its cultural acceptability for different ethnic groups. whatsup@annafreud.org 18 EBPU Everything you need to know

19 Data collection and analysis of Children and Young People s Improving Access to Psychological Therapies (CYP IAPT) DIY Health evaluation CYP IAPT is a training project for evidence-based treatments, service development and leadership using routine outcome monitoring. The project teaches clinicians how to use immediate feedback to inform their work and improve services. The DIY Health project aims to increase the skills, knowledge and confidence of parents in managing children s health and to reduce attendance in primary care and urgent NHS care services among children under five for self-limiting conditions such as coughs, colds, fever and feeding. Training for clinicians on how to use immediate feedback In conjunction with Child Outcomes Research Consortium (CORC) and MegaNexus Findings disseminated to NHS to inform service transformation. Project to improve parents confidence and skills in managing children s health Assesses the impact of the DIY Health project Determines if and how to distribute the DIY Health project more widely. ebpu@annafreud.org 19

20 Perinatal Mental Health Value Score Card evaluation The scorecard is used as a quality improvement tool to ensure that all perinatal women and their families receive the best quality care to strengthen their mental health. Evaluation of services for perinatal women Determine what perinatal women need from health visitors to protect their mental health Ensure perinatal women receive the best quality care. ebpu@annafreud.org

21 SAFE The Situation Awareness for Everyone (SAFE) programme looks at ways to improve safety on paediatric wards. EBPU is evaluating the impact of this to inform improvements, reduce patient harm and drive changes in staff, patient and family attitudes. Ensuring children s wards become safer places Working with professionals across 12 healthcare sites Gaining knowledge of what situational awareness looks like on wards. twitter.com/safe_qi

22 EPBU and the Child Outcomes Research Consortium The Child Outcomes Research Consortium (CORC) is an integral part of the EBPU. The CORC central team is based within the EBPU enabling collaborative working on a range of projects. CORC is a collaboration of mental health specialists from over 70 Child and Adolescent Mental Health Services (CAMHS). It aims to foster the effective and routine use of outcome measures in work with children and young people that experience mental health and emotional wellbeing difficulties. It does this by: Collecting questionnaire responses from children and families they work with to gain insight into their experiences of care and support Processing the pseudonymised data and providing support and feedback to members Using this information to help improve practice and in turn, outcomes Providing national governing bodies with the data to inform national policies. 22 EBPU Everything you need to know

23 CORC in schools CORC is available to schools, academies and local authorities, with support offered regionally. CORC schools members have access to training materials and systems of support from both regional and central teams. CORC s first beacon site is being developed at The Anna Freud Centre s family school, which caters for pupils aged 5 to 14 who are at risk of exclusion and struggling to achieve their potential. corc@annafreud.org CORC has been invaluable in enabling us to consider and demonstrate our impact, show how and with which children we are making a difference, as well as guiding us through areas of improvement. Wendy Traynor, Young People s Advisory Service, Liverpool CAMHS 23

24 Child Outcomes Research Consortium Free publications from CAMHS Press CAMHS Press is the publishing arm of the Evidence Based Practice Unit (EBPU) and is placed at the Anna Freud Centre, North London. CAMHS Press brings you the worlds of academic research and mental health practice, through a series of booklets, leaflets and other publications to support children, young people and mental health practitioners. CAMHS Press publications are free of charge. CAMHS Press is proud to work with front line practitioners, service users and policy makers to share knowledge and information and is committed to serve its readership. Guide to Using Outcomes and Feedback Tools with Children, Young People and Families Formally known as COOP Document edited by Dr Duncan Law & Dr Miranda Wolpert PDF PDF ISBN ISBN guide to using outcomes and feedback tools With Children, Young People And Families (Former Coop Doc), 2014 Edited by Duncan Law and Miranda Wolpert this guide provides a tool-kit setting out the forms recommended by CYP IAPT and CORC, in a coherent and structured way, setting out their uses clinically and as evaluation tools. It provides helpful tips and advice on using the forms in everyday clinical practice. using cyp iapt feedback and outcomes forms to aid clinical practice Key Messages, (2015) Created by Duncan Law, Melanie Jones and Miranda Wolpert, this guide provides advice and support for using feedback and outcome forms in clinical practice. It outlines why, how and when to use forms, with simple steps to get started.

25 PDF PDF ISBN ISBN goals and goal based outcomes (gbo s) Some useful information, 2013 The booklet was written by Dr Duncan Law, a member of the CORC Committee and Board, and offers information and advice on using Goals and Goal Based Outcomes. current view tool Completion Guide, 2013 This booklet was developed by members of CAMHS EBPU as part of the Payment by Results in CAMHS Pilot Project. It gives an overview of the Current View Tool and provides guidance on completing the tool. PDF PDF ISBN ISBN ebpu log book Learning from Experience, 2013 A booklet developed by CAMHS EBPU to help front line practitioners learn from their experience. Use the PDSA forms when you want to try something new to improve your practice. Every time you finish a PDSA cycle you start a new one trying to improve what you ve done in the previous cycle and it becomes a learning process. the kidstime workshops A Multi- Family Social Inter vention for the Effects of Parental Mental Illness, 2012 This booklet provides informa tion on what is needed to set up and run Kidstime Workshops. Kidstime is an approach, developed over the past 12 years, for helping the children of parents with mental illness.

26 there isn t time to say everything you might want to you feel embarrassed or scared to say things out loud to a therapist or counsellor the issue might not seem so important - but actually is you feel too under the spotlight in counselling, particularly early on say things in a different way remember things that you want to say write things that might be more difficult to say aloud. Having a shared understanding with your therapist is important, which is why forms might be used at different times including: the first time you go for counselling or therapy after each session before you leave counselling or therapy. Forms may use numbers for each question and your counsellor can add these to the information you have shared in discussions to get the best picture of your specific needs. your therapist or counsellor will be able to help by reading questions aloud and explaining them, but the bottom line is that the questionnaire or form should be helpful and you should feel comfortable completing it. It is OK not to fill in a questionnaire or form you should never feel pressured to complete something that you don t understand or want to do this is about you after all! NONE OF SOME OF ALL OF THE STATEMENTS RARELY OFTEN THE TIME THE TIME TIME NO EVERY DAYS DAYS DAYS DAYS DAYS DAYS DAY I ve been able to make up my own mind about things How are things? Session N o h ' Date: / / 20 Time: Please put a circle around the word that shows how often each of these things happen to you. There are no right or wrong answers I feel sad or empty Never Sometimes Often Always 2 Nothing is much fun anymore Never Sometimes Often Always 3 I have trouble sleeping Never Sometimes Often Always 4 I have problems with my appetite Never Sometimes Often Always 5 I have no energy for things Never Sometimes Often Always 6 I am tired a lot Never Sometimes Often Always 7 I cannot think clearly Never Sometimes Often Always 8 I feel worthless Never Sometimes Often Always 9 I feel like I don t want to move Never Sometimes Often Always 10 I feel restless Never Sometimes Often Always SUM: London and SouthEast NHS ID: CYP-IAPT Service allocated case ID 1/1 Depression/ Low Mood Child/Young Person Version 7 Questions 2003 Bruce F. Chorpita, Ph.D Visual Solution Slavi Savic, EBPU Resources aimed at Children and Young People PDF PDF ISBN ISBN i gotta feeling Top tips for feeling good (aimed at primary school children), 2011 This booklet has been designed by Help4Pupils to help children when they are feeling sad, worried or troubled. It is full of fun simple tips on what to do to improve their mood and maintain emotional wellbeing. how to get up and go when you re feeling low Top tips for feeling good (aimed at secondary school pupils), 2011 This booklet has been designed by Help4Pupils to help children when they are feeling sad, worried or troubled. It is full of fun simple tips on what to do to improve their mood and maintain emotional wellbeing. NOT JUST A NUMBER! UNDERSTANDING YOU AND YOUR DIFFICULTIES: HOW FORMS AND QUESTIONNAIRES CAN HELP IN SITUATIONS WHEN: PDF ISBN OR IF YOU WANT TO: IF YOU NEED EXTRA HELP WITH QUESTIONNAIRES AND FORMS: Eating Disorder examination questionnaire (EDE-Q 6.0) ON HOW MANY OF THE PAST 28 DAYS... The Warwick Edinburgh Mental Well-being Scale (WEMWBS) Below are some statements about feelings and thoughts. Please tick the box that best describes your experience of each over the last 2 weeks I ve been feeling optimistic about the future I ve been feeling useful I ve been feeling relaxed I ve been feeling interested in other people I ve had energy to spare I ve been dealing with problems well I ve been thinking clearly I ve been feeling good about myself I ve been feeling close to other people I ve been feeling confident I ve been feeling loved I ve been interested in new things I ve been feeling cheerful Instructions: The following questions are concerned with the past four weeks (28 days) only. Please read each question carefully. Please answer all the questions. Thank you. Questions 1 to 12: Please circle the appropriate number on the right. Remember that the questions only refer to the past four weeks (28 days) only. Have you been deliberately trying to limit the amount of food you eat to influence your shape or weight (whether or not you have succeeded)? Have you gone for long periods of time (8 waking hours or more) without eating anything at all in order to influence your shape or weight? Have you tried to exclude from your diet any foods that you like in order to influence your shape or weight (whether or not you have succeeded)? Have you tried to follow definite rules regarding your eating (for example, a calorie limit) in order to influence your shape or weight (whether or not you have succeeded)? Have you had a definite desire to have an empty stomach with the aim of influencing your shape or weight? Have you had a definite desire to have a totally flat stomach? Has thinking about food, eating or calories made it very difficult to concentrate on things you are interested in (for example, working, following a conversation, or reading)? Has thinking about shape or weight made it very difficult to concentrate on things you are interested in (for example, working, following a conversation, or reading)? 9 Have you had a definite fear of losing control over eating? Have you had a definite fear that you might gain weight? Have you felt fat? Have you had a strong desire to lose weight? WEMWBS NHS Health Scotland, University of Warwick and University of Edinburgh, 2006 PAGE 1/3 PLEASE GO TO THE NEXT PAGE EDE-Q Christopher G Fairburn and Sarah Beglin PDF choosing what s best for you What scientists have found helps children and young people who are sad, worried or troubled, 2007 A booklet that explains the latest research in this area to children and families to help them make treatment choices. More than 25,000 copies have so far been distributed across the UK and beyond. The booklet has been translated into Swedish. understanding, and helping you and your problems how forms and questionnaires can help 2014 This short leaflet explains a young person s journey through CAMHS.

27 My CAMHS Choices is a website featuring real life experiences of mental health services for young people and families, by young people and professionals. websites that might be of interest PDF youth wellbeing directory The overarching aims of this directory and quality assessment tool are to guide and facilitate funders decisionmaking and to provide templates to enable providers to self-report good service provision and innovation across a range of contexts (statutory services, non-statutory voluntary sector organisations and private companies). my camhs choices This website features video interviews with real clinicians and young people. You might like to look at this with a friend, trusted adult, or your CAMHS worker. This website has been created by young people with experience of Child and Adolescent Mental Health Services (CAMHS). corc website This grassroots learning collaboration offer free training to the members, consultancy to interested parties and advise government. choosing website This site aims to help you make the best choices for you. Knowing the facts makes it easier to make choices, but working out what the facts are is not always easy. All CAMHS Press produced material is free of charge. Requests for a copy of our booklet can be sent to our EBPU@annafreud.org PDF A copy of our booklet can be downloaded as a PDF file from EBPU website: or CORC website: CAMHS Press, 21 Maresfield Gardens, London NW3 5SD

28 CAMHS Press is the publishing arm of the Evidence Based Practice Unit and is placed at the Anna Freud Centre, North London. CAMHS Press brings to you the worlds of academic research and mental health practice, through series of booklets, leaflets and other forms of publications related to mental health in support of children, young people and mental health practitioners. CAMHS Press publications are free of charge. CAMHS Press is proud to work with front line practitioners, service users and policy makers to share knowledge and information and is committed to serving its readership. Contact CAMHS Press by EBPU website: Child Outcomes Research Consortium Child Outcomes Research Consortium is a learning collaboration of mental health professionals dedicated to improving the quality of Child and Adolescent Mental Health Services CAMHS nationwide. Every year over a quarter of a million children, young people and their carers attend CAMHS in the UK. CORC wants to understand what helps them best. Over 70 member services across the UK and Scandanavia are committed to ensuring that young people and their families receive the best help possible. CORC trains CAMHS professionals in how to use outcome data by offering free training to members, consultancy to interested parties and advice to government. Contact CORC by CORC@annafreud.org CORC website: Evidence Based Practice Unit, at the Anna Freud Centre and UCL, bridges the worlds of academic research and mental health practice, whether in clinics, schools or elsewhere. We develop and share the latest evidence with mental health professionals who want to reflect on and improve the support they provide to children, young people and their families. Our unit brings together researchers, clinicians, statisticians, graphic designers and trainers. We work with front line practitioners, service users, service managers, commissioners, policy makers and others to improve service provision by shining a light on current practice. The EBPU draws on and contributes to the latest research, and develops practical tools, training and information. Contact EBPU by EBPU@annafreud.org EBPU website: Anna Freud Centre 12 Maresfield Gardens London NW3 5SU Tel: