Newsletter. What s inside: ISSUE 3 SEPTEMBER 2017
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1 Newsletter ISSUE 3 SEPTEMBER 2017 I PE WELCOME TO THE THIRD NEWSLETTER OF THE RIBURST STUDY (REDUCING THE INTERNATIONAL BURDEN OF STROKE USING MOBILE TECHNOLOGY) Progress of the Study The study is progressing well with more than 9,000 participants. What s inside: PROGRESS OF THE STUDY PAGE 1 RESEARCHER PROFILE PAGE 2 RELEASES AND APP UPDATES PAGE 3 MEDIA RELEASES AND NEWS PAGE 4 Demographic data for the participants Average age Sex % female 51.5% male Ethnicity Country European 81% Russia 46.51% Malay/Indo/SEA 6% New Zealand 12.13% African 4% Malaysia 7.42% Latin American 2% Italy 6.69% Indian 2% Nigeria 3.09% Chinese 2% United Kingdom 2.90% Other/Unspecified 3% United States LOGO 2.40% ORGANIZATION Brazil 2.20% Kazakhstan 2.19% Belarus 1.85% Australia 1.58% India 1.14% Other 9.91%
2 Researcher profiles Professor Pablo M. Lavados Clínica Alemana de Santiago, Universidad del Desarrollo and Faculty of Medicine, Universidad de Chile Santiago Chile Pablo Lavados, MD, MPH, is Professor of Neurology at Clínica Alemana, Universidad del Desarrollo and Assistant Professor of Neurology at Universidad de Chile, both located in Santiago. Dr. Lavados is a clinician and researcher at the Vascular Neurology Unit, as well as the Director of the Research and Clinical Trials Unit, both at Clínica Alemana. He earned his medical degree and completed postgraduate training in Neurology at Universidad de Chile. Dr. Lavados obtained a Master s degree in Public Health at Johns Hopkins University School of Public Health, USA. He also completed a clinical research fellowship at La Sapienza University in Rome, Italy, and a Postdoctoral Clinical Research Fellowship in Cerebrovascular Diseases at Johns Hopkins University School of Medicine. Dr. Lavados was the principal investigator of the PISCIS epidemiological stroke project and is the country leader of three international academic clinical trials: INTERACT2, ENCHANTED and HEADPOST MAIN, organised by The George Institute for Global Heath of Australia. He is the principal co-investigator of the HEADPOST PILOT clinical trial and the RECCA stroke registry in Clínica Alemana, and co-investigator in the OPTIC Stroke Registry, the SOCRATES, and NAVIGATE ESUS international clinical trials, as well as the ÑANDU stroke surveillance study in southern Chile. He has been awarded the Presidential scholarship, a PAHO scholarship and a Fulbright scholarship, among other awards. He is also a Ministry of Health advisor on the national stroke programme in Chile. In his research, Dr. Lavados focuses primarily on the epidemiology of cerebrovascular disease and clinical trials in stroke. He has authored more than 100 papers in peerreviewed journals such as The New England Journal of Medicine, Lancet, The Lancet Neurology, Neurology, Stroke, International Journal of Stroke, Cerebrovascular Diseases, Journal of Stroke and Cerebrovascular Diseases and others. Dr. Lavados has lectured around the globe on topics that include quality control in stroke care, organised stroke care, secondary prevention of stroke, epidemiology of stroke, thrombolysis in acute ischemic stroke and research in stroke.
3 Releases and app updates New ios version Based on the feedback that has been received, the ios English version of the app has been updated. A new version will be released shortly. Malaysian collaborators doing validation trial In a cross-sectional study, which will be performed at Universiti Kebangsaan Malaysia Medical Centre (UKMMC) in Kuala Lumpur, a Stroke Riskometer assessment in English and Bahasa Malaysia (BM) will be conducted by a user who is proficient in both English and Malay. The purpose of this study is to test the Bahasa Malaysia version of the Stroke Riskometer for its content reliability among the Malay users. The MARS (Mobile Applications to Reduce Stroke) pilot study This study is based on the Stroke Riskometer (the same as RIBURST). This trial is progressing well in New Zealand. Recruitment has been completed and assessments have finished. The team are waiting for the final assessments from the secondary study site and analyses will begin very shortly. Translated versions of the app Please refer to the NISAN website to see details of the current translations available. ios version: Riskometer/available-languages Pro version: Riskometer/stroke-riskometer-pro-version
4 Media releases and news Editable advertising posters There are advertising posters available for download in English, French and Russian, for you and for recruitment of study participants in your area. Please see: You can modify these as you see fit, e.g. by adding the QR of the app in your language and adding local details. NISAN Stroke Riskometer webpage The NISAN Stroke Riskometer webpage has been updated, and navigation has been made easier. You can find a lot of relevant information on this page. See: Riskometer Article in BMJ Global Health This paper directly relates to the RIBURST project, and may be of help for local/national fundraising, raising the profile of the study (via your local or national media) and recruitment of study participants. As this is an open access paper, we encourage you to circulate it to your local or national media, network contacts and social media platforms. Feigin, V.L., Norrving,B., & Mensah, G.A. (2017). Primary prevention of cardiovascular disease through population-wide motivational strategies: Insights from using smartphones in stroke prevention. BMJ Global Health, 2, e doi: /bmjgh Presentation at ESOC 2017 Michael Kravchenko (Russia) presented information at ESOC 2017 (Preliminary results of stroke risk factors survey based on Stroke Riskometer app in Russia). Please see the attached poster. Stroke Riskometer app being used in Nigerian study Dr. KW Wahab (University of Ilorin, Nigeria) is using the Stroke Riskometer App to assess the risk of stroke in hypertensive patients attending the outpatient clinic of University of Ilorin Teaching Hospital in a cross-sectional study. Contact information RIBURST project manager: Rohit Bhattacharjee T: ext E: rbhattac@aut.ac.nz Dr. Rita Krishnamurthi T: ext E: rkrishna@aut.ac.nz NISAN (National Institute for Stroke and Applied Neuroscience) secretariat: Brigitte van Gils T: E: bvangils@aut.ac.nz Visit the NISAN website: New study collaborator since last newsletter Anthony Kim, University of California, San Francisco AUCKLAND UNIVERSITY OF TECHNOLOGY PRIVATE BAG AUCKLAND 1142 NEW ZEALAND
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Newsletter ISSUE 2 MARCH 2017 I PE WELCOME TO THE SECOND QUARTERLY NEWSLETTER OF THE RIBURST STUDY (REDUCING THE INTERNATIONAL BURDEN OF STROKE USING MOBILE TECHNOLOGY) PROGRESS OF THE STUDY What s inside:
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