Annual Report 2013
Table of Contents Mission Statement and Vision Statement Page 2 Board Letter Joann Ingulli-Fattic 2013 Page 3 Auditor Letter Page 4 Statement of Financial Position Page 5 Statement of Net Assets Page 6 Notes to Financial Statements Page 7 9 Foundation 2013 year in Review Page 10 11 Foundation Board of Directors and Staff Page 12 Chapter Mission Statement The Lupus Foundation of America, Indiana Chapter, is dedicated to improving the quality of life for all people affected by lupus through programs of research, education, and advocacy. Vision Statement The Lupus Foundation of America envisions a world without lupus. The organization will advance the science and medicine of lupus to find a cure and improve the quality of life for all people affected by lupus. 2
Dear Lupus Community, May 2014 2013 was quite a year for the Lupus Foundation of America, Indiana chapter. Our chapter has been on a growth trend for the past 3 years and things really came together in 2013. The year started with our annual strategic planning session in January where our board reiterated and rededicated themselves to our 3 foundational goals: 1. Increase and Diversify Revenue: The board recognizes that without sustainable financial support, we cannot fulfill our mission of lupus awareness, education and patient support. Our priority was focused on increasing and diversifying revenue. We increased our state wide fundraising efforts to cover geographic areas not previously reached; we increased corporate funding by acquiring two new corporate sponsors, Roche and Eli Lilly. We are continuing to work on increasing individual contributions by collecting information and strategies on individual giving and submission of appropriate grants. 2. Increase Public Awareness of Lupus and of the Foundation: Because we were able to increase our financial resources, we were able to expand our education programs. We created a network of volunteerspokespersons, without whom we could not advance our message. New volunteers were recruited and trained to help manage with our fundraising and education events. We hosted 3 very well attended Living with Lupus symposiums across the state as well as partnered with Minority Health coalition to foster Advanced Advocacy Programs. We hired a public relations firm, Pickett and Associates, to help us assess and maintain a year round public media campaign. 3. Capacity building across our organization: As we continue to grow, we judiciously added resources we needed. We added a part time volunteer coordinator, a part time grant writer and optimized our use of interns. The intern opportunity not only provided extra resources for the foundation but enabled the interns to acquire real life work experience. These individuals took part of the work from the rest of the staff therefore helping the office run smoother and giving the staff time to develop tools that helped us be more productive, such as dashboard reporting. In addition to achieving many of our strategic goals, we have other achievements to site. We have started a succession planning process to assure that when the time comes we will have a smooth transition for our staff and board. From a board perspective, we added board members who brought needed skills, such as legal and fundraising expertise. In fiscal 2013, we increased foundation net revenues by 9% and ended 2013 with rock solid net assets of $251,600, the highest in our history. During 2013, we increased our participation in the number of community forums, health fairs, and advisory councils. Most important, patient support groups grew from three in 2012 to twelve groups in 2013. The board is proud that in 2013, we continued trajectory growth from the previous year and are looking forward to continued accomplishments in 2014. Joann Ingulli-Fattic Chairman of the Board, 2013 Lupus Foundation of America, Indiana Chapter 3
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2013 Events 3State-wide Living with Lupus Symposiums 20 State-wide Health Fairs 10 12 State-wide Support Groups
Crown Point Walk Crown Point, Indiana Indianapolis Walk Indianapolis, Indiana Links Fore Lupus Golf Outing Indianapolis, Indiana A Tasteful Affair Indianapolis, Indiana Chili Cook-Off Merrillville, Indiana 11
2013 Board of Directors Joann Inguli-Fattic, Chair Melissa Sandala, Treasurer Annie Smith, Secretary Marlene Aldo-Benson, MD Melody Benson Virginia Githiri, Ph.D. Ronda Hite Councillor Maggie Lewis Kathy McGraw Rod Richardson Cindy Rojas Staff Jan Ferris, Chief Executive Director Lark Stark, Outreach and Development Debbie Campbell, Patient Programs and Volunteer Coordinator 12 317.225.4400 800.948.8806 9302 N. Meridian St., Suite 203 Indianapolis, IN 46260 lupusindiana.org info@lupusindiana.org