HIV Screening in Behavioral Health Settings: The Need is Clear Alyssa A. Bittenbender, MPH Program Director, Arizona AIDS Education and Training Center University of Arizona College of Medicine
MISSION Provide healthcare professionals with the knowledge and skills necessary to provide outstanding care to people living with HIV and AIDS www.aetc-arizona.org
Objectives 1. Describe HIV infection trends on global, national and local levels 2. Articulate the importance of early HIV detection and intervention 3. Describe how stigma affects HIV screening and access to care 4. Explain the importance of mental health professionals addressing HIV with their clients
Name Introductions Job Experience with HIV What you hope to learn from this training
George 50 year old white male presents in an out-patient setting Seeing him for alcohol abuse and depression States he s not gay Always lived in Phoenix Indicates that he has never used injection drugs What can you tell him about his HIV risk?
Epidemiology - World
Women as Share of People Living with HIV by Region, 2009 NOTE: Among adults, aged 15 and older. SOURCE: Kaiser Family Foundation, based on UNAIDS, Report on the Global AIDS Epidemic, 2010.
Epidemiology - USA About 1.1 million people living with HIV/AIDS Prevalence 0.6% Men > Women Every 9.5 minutes someone in the US gets infected Leading cause of death in minorities 25-44 yrs CDC. HIV Prevalence Estimates United States, 2006. MMWR 2009;57(39):1073-76.
AIDS Diagnosis Rate per 100,000 by Race/Ethnicity, United States, 2009 NOTE: Data are estimates for adults/adolescents aged 13 and older and do not include cases from the U.S. dependencies, possessions, and associated nations, and cases of unknown residence. SOURCE: Kaiser Family Foundation, based on CDC, HIV Surveillance Report, Vol. 21, 2011.
HIV in American Subpopulations In Washington DC: 1 in 30 adults are infected 1 in 16 black men are infected In New York City: 1 in 40 black Americans are infected 1 in 10 men who have sex with men (MSM) are infected 1 in 8 injection drug users (IDU) are infected El-Sadr WM et al. AIDS in America Forgotten but Not Gone. New England Journal of Medicine, March 2010
HIV Prevalence in Adults from Selected Countries in Sub-Saharan Africa and Subpopulations El-Sadr WM et al. AIDS in America Forgotten but Not Gone. New England Journal of Medicine, March 2010
ADHS 2011 HIV/AIDS Annual Report Arizona HIV Prevalence Cases of HIV & AIDS, 2009
Arizona HIV Epidemiology Arizona Demography Total residents 6,595,778 2009 Race distribution White 57.3% Black 4.4% AI/AN 4.9% Asian/PI 2.6% Hispanic 30.8% US Census Bureau 2009 ADHS HIV/AIDS surveillance - 2010 Arizona HIV Epidemiology HIV prevalence 14,435 at time of analysis 0.2% - of total AZ residents 0.6% - of adults in US Race distribution of the 14,435 White 56.8% Black 11.1% AI/AN 3.2% Asian/PI 1.2% Hispanic 25.3% Other/Unk 3.2%
Arizona HIV prevalence by race and gender ADHS HIV/AIDS Surveillance - 2008
Arizona Emergent HIV/AIDS Diagnoses, 1999-2009 ADHS 2011
Arizona 5-Year Emergent HIV/AIDS Case Rate Trend, 1990-2009 ADHS 2011
Number of Prevalent Cases Arizona Prevalent HIV, AIDS, and HIV/AIDS cases, December 2004 March 2011 16000 14000 12000 10000 8000 6000 HIV AIDS Total 4000 2000 0 ADHS 2011
Rate per 100,000 Arizona County-Specific Prevalent HIV/AIDS, 2011 250 200 State Prevalence Rate= 216 State Prevalence Rate= 216 150 100 50 0 *28% of prevalent cases in Pinal County are among persons currently incarcerated **15% of prevalent cases in Graham County are among persons currently incarcerated
Rate per 100,000 Arizona County-Specific Emergent HIV/AIDS, 2005-2009 18 16 14 12 10 State Emergence Rate = 11.5 8 6 4 2 0 *26% of emergent cases in Pinal County are among persons incarcerated at the time of diagnosis
Rate per 100,000 Arizona Emergent HIV/AIDS by Gender, 2000-2009 25 20 15 10 Males Females 5 0 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 Year ADHS 2011
Proportion of Emergent Cases Arizona Relative Percentage of Emergent Cases by Reported Risk Behavior, 1990-2009 80 70 60 50 40 30 20 MSM IDU HRH OTHER NRR 10 0 5-Year Period ADHS 2011
Male United States and Arizona Estimates of New HIV Infections, By Transmission Category MSM =Men Who Have Sex with Men IDU = Injection Drug User NRR =No Risk Reported ADHS 2011
Female United States and Arizona Estimates of New HIV Infections, By Transmission Category IDU = Injection Drug User NRR =No Risk Reported ADHS 2011
Arizona Percent/Rate Currently Infected with HIV Among Estimated Risk Group Population
Elvin 24 year old Latino gay male is thinking about getting tested but isn t really sure he wants to because He doesn t know where he can go to get tested He s gay and believes its inevitable that he will get the disease Heard that the medications have bad side effects He doesn t have health insurance Rather not know because there is nothing he can do about it anyway Do you think Elvin should get tested? Why?
Why test? Better for the patient Extend life of patient, reduce HIV related illnesses Better for the community Change in risky behavior Lower community viral load Better for the economy Even though HIV treatment is expensive, it appears to still be less costly to treat early than to wait and deal with the opportunistic infections, cancers, and other co-morbidities seen in late stage HIV/AIDS
The Public's Experience With HIV Testing 51% 47% Tested in last 12 months 16% Tested, but not in last 12 months 30% Yes, been tested No, never tested Notes: Don t know responses not shown; Numbers may not add up exactly due to rounding. Source: Kaiser Family Foundation Survey of Americans on HIV/AIDS (conducted January 26 March 8, 2009).
Awareness of Serostatus Among People with HIV and Estimates of Transmission ~25% Unaware of Infection Accounting for: ~54% of New Infections ~75% Aware of Infection ~46% of New Infections Marks, et al. AIDS 2006;20:1447-50
Natural History of HIV-1 Infection Acute Retroviral Syndrome Clinical Latency Viral Load CD4 count AIDS 1-12 weeks 6-10 years 1-2 years
Knowledge is Power After people become aware they are positive, the prevalence of high-risk sexual behavior is reduced substantially Reduction in unprotected anal or vaginal intercourse with negative partner: -- 68% (HIV-pos Aware vs. HIV-pos Unaware) Meta-analysis of high-risk sexual behavior in persons aware and unaware they are infected with HIV in the U.S. Marks G, et al. JAIDS. 2005;39:446
Criteria that Justify Routine Screening 1.Serious health disorder that can be detected before symptoms develop 2.Treatment is more beneficial when begun before symptoms develop 3.Reliable, inexpensive, acceptable screening test 4.Costs of screening are reasonable in relation to anticipated benefits Principles and Practice of Screening for Disease -WHO Public Health Paper, 1968
Rationale for Revising CDC HIV Testing Recommendations Many HIV-infected persons access health care but are not tested for HIV until symptomatic Effective treatment available Awareness of HIV infection leads to substantial reductions in high-risk sexual behavior Inconclusive evidence about prevention benefits from typical counseling for persons who test negative Great deal of experience with HIV testing, including rapid tests
CDC Revised HIV Testing Guidelines for Adults and Adolescents Routine, voluntary HIV screening for all persons 13-64 in health care settings, not based on risk Repeat HIV screening of persons with known risk at least annually Opt-out HIV screening with the opportunity to ask questions and the option to decline Include HIV consent with general consent for care; separate signed informed consent not recommended Prevention counseling in conjunctions with HIV screening in health care settings is not required
Arizona HIV Testing Law Revised in September 2008 No written consent form required for HIV testing No formal pre or post test counseling is required with a HIV test Verbal consent is sufficient for a HIV test HIV testing can be incorporated into general medical consent that is signed by each patient prior to initiating medical care It is recommended but NOT required that the provider document that written or oral consent information was given to the patient
Melinda 27 year old African American woman Member of AA, clean and sober, 5 years 2 children ages 2 and 4 Works part time as a cashier at the local supermarket, has no benefits In a long term heterosexual relationship with an abusive partner Recently found out she was infected with HIV when she went to the Maricopa Medical Center ED after a violent incident with her partner She was referred to a local non-profit for HIV case management but did not show-up for her appointment Why did Melinda miss her appointment?
HRSA Continuum of Engagement Not in Care Fully engaged Unaware of HIV status Aware of HIV status May be receiving other medical care but not HIV care Entered HIV medical care but dropped out In and out of HIV care or infrequent user Fully engaged in HIV medical care Later: Retention in Care Source: Cheever. Clin Infect Dis 2007;44:1500-1502
Why is Engagement Important for People Living with HIV? Better for the patient Extend life of patient, reduce HIV related illnesses Better for the community Change in risky behavior Lower community viral load Better for the economy Even though HIV treatment is expensive, it appears to still be less costly to treat early than to wait and deal with the opportunistic infections, cancers, and other co-morbidities seen in late stage HIV/AIDS
Who misses appointments? (I) HIV-related clinical markers Higher CD4 count (Catz, 1999; McClure, 1999; Arici, 2002) Not having an AIDS diagnosis (Israeleski, 2001; Arici, 2002) Detectable VL & AIDS-defining CD4 count (Berg, 2005)
Who misses appointments? (II) Health Issues Substance Abuse HIV treatment not a priority Lack of access to health care due to economic instability Feel guilty for using and don t want to see doctor (Kissinger, 1995; Lucas, 1999; McClure, 1999; Arici, 2002; Mugavero, 2009) Mental health issues Better adherence if mental health issues are treated Need to stabilize other social and medical needs to make HIV a priority (Expert Panel of HIV Care Providers, LAC, 2010)
Who misses appointments? (III) Health Care System Issues Testing site did not link to care (Mayer 2011; Aziz,2011) Language and cultural barriers (Moore 2011) Less engagement with health care provider (Bakken,2000) Provider Discrimination (Aziz,2011; Mayer,2011; Christopoulos,2011) Patient Mistrust (Aziz,2011; Mayer,2011; Christopoulos,2011)
Who misses appointments? (IV) Structural Issues Lack of child care, transportation (Norris, 1990; Aziz, 2011; Catz, 2011) Lack of health insurance (Mugavero, 2007) Economics (Expert Panel of HIV Care Providers, LAC, 2010) Undocumented Status (Galvin, 2000) Incarceration (Zaller, 2011)
Who misses appointments? (V) Issues on the Individual Level Forgetting appointment, meant to cancel (Palacio, 1999; Quinones, 2004) Not feeling well (Palacio, 1999) Competing time issues (e.g., work, appointment, family illness) (Norris, 1990; Palacio, 1999; Aziz, 2011) Fear of stigma and violence (Aziz, 2011) Depression and low self image (Aziz 2011) Difficulty with self acceptance (Christopoulos 2011) Language and Cultural barriers ( Moore 2011)
Questions? Alyssa Bittenbender, MPH alyssa1@email.arizona.edu 520-626-0723 www.aetc-arizona.org