Dr. Paula Pittman Dr. Claudine Störbeck

Similar documents
Dr Claudine Störbeck and Selvarani Moodley (MA Audiology) The University of the Witwatersrand The Centre for Deaf Studies

COCHLEAR IMPLANTATION IN AN EARLY INTERVENTION PROGRAMME IN SOUTH AFRICA

EHDI Conference 2011 Atlanta, Georgia

Dr. Christine Pickup, Au.D. The Top 10 Things You Must Know Before Choosing Your. Audiologist. Mt. Harrison Audiology

What is the Role of the Hearing Specialist in Early Steps? Karen Anderson, PhD Coordinator of Early Intervention Services for Hearing and Vision

RESPONSE TO THE LANGUAGE EQUALITY AND ACQUISITION FOR DEAF KIDS (LEAD K) TASK FORCE REPORT

Interviewer: Tell us about the workshops you taught on Self-Determination.

These materials are Copyright NCHAM (National Center for Hearing Assessment and Management). All rights reserved. They may be reproduced

Maine s Collaborative Early Intervention Model You can do it too!

A PARENT S GUIDE TO DEAF AND HARD OF HEARING EARLY INTERVENTION RECOMMENDATIONS

Research findings Current trends in early intervention How can you make a difference?

the time is now: wisconsin s journey towards improving early intervention services

& Host CAMP ASL. April 27-29, 2018 Camp Friendship Annandale, Minnesota.

HOME SCHOOL ASL 101. Lesson 1- Fingerspelling

Training ECD Practitioners inclusively toward Inclusive Education in ECD

HEARING SCREENING Your baby passed the hearing screening. Universal Newborn

MAINSTREAM TEACHER OF THE DEAF

3/25/2016. The Need. Statistics. Don t Leave Safety to Chance! Prioritize Proactive, Explicit Teaching. Train the Police Promote Mutual Understanding

CHILDREN WITH CMV: DON T FORGET THE IMPORTANCE OF EARLY INTERVENTION. Paula Pittman, PhD Director, Utah Parent Infant Program for the Deaf

Families with Young Children who are Deaf and Hard of Hearing in Minnesota

Cochlear Implant Education Center

Michael Macione, AuD; & Cheryl DeConde Johnson, EdD

What makes us special? Ages 3-5

To learn more, visit the website and see the Find Out More section at the end of this booklet.

GUAM. Newborn Hearing At-A-Glance. Guam EHDI Progress Report. Håfa Ådai! January - December 2012

UNDERSTANDING THE CHALLENGES OF HERITAGE SIGNERS. Needs Assessment Report

Trends and Opportunities from EI SNAPSHOT: Lessons learned from families, providers, and EI systems

Newborn Screening Free health checks for your baby. Newborn. Hearing Screening. Referral to Audiologist

JFK-HCP Webinar - Partnering to Support Children with Hearing Loss - 2/27/14 1

Saying without Speaking

Allen Independent School District Bundled LOTE Curriculum Beginning 2017 School Year ASL III

Marginalization Within the Sign Language Interpreting Profession: Where is the Deaf Perspective?

Section 3. deaf culture

EHDI & FAMILY SUPPORT: PAST, PRESENT & FUTURE. Janet DesGeorges Curt Leitz Maria Rodriguez

Thank you for your time and dedication to our industry and community.

TIPS FOR TEACHING A STUDENT WHO IS DEAF/HARD OF HEARING

True survivors. INTErNATIONAL BEST PrACTICE

Indiana Early Hearing Detection and Intervention (EHDI)

TExES Deaf and Hard-of-Hearing (181) Test at a Glance

Feasible First Steps

South Dakota School for the Deaf

Expanding Language Access Strategies in Palm Beach County. A Project of the Palm Beach Medical Society. In Collaboration with the:

Syllabus. ASL Level 3. Instructor: Deanne Bray-Kotsur (Video Relay Service) Class Meets: In Room I-7

Response to the Language Equality and Acquisition for Deaf Kids (LEAD-K) Task Force Report

HOW DO YOU REALLY KEEP YOUR KIDS SAFE FROM ADDICTION?

The Deaf of Mozambique The Mozambican Sign Language Community

Interact-AS. Use handwriting, typing and/or speech input. The most recently spoken phrase is shown in the top box

Alexander Graham Bell Association for the Deaf and Hard of Hearing

Sign Language and Early Childhood Development

Perspective of Deafness-Exam 1

Top Ten Things to Know About Motivational Interviewing

Passion for a Voice. For hundreds of deaf people, American Sign Language, or ASL, was the first

HEARING SCREENING A Parent s Guide

Speak Out! Sam Trychin, Ph.D. Copyright 1990, Revised Edition, Another Book in the Living With Hearing Loss series

MINNESOTA EARLY HEARING DETECTION AND INTERVENTION (EHDI) PROGRAM. EHDI Goals, Indicators and Benchmarks

Michael Macione, AuD, & Cheryl DeConde Johnson, EdD. a critical link within the Early Hearing Detection and Intervention (EHDI) process.

Newborn Screening Free health checks for your baby. Newborn. Hearing Screening. Your Baby s Hearing Screen

Universal Newborn. Your baby has referred for another Hearing Screening or Diagnostic Hearing Test

Financial Disclosure 3/22/2018

Making Connections: Early Detection Hearing and Intervention through the Medical Home Model Podcast Series

Areas to Address with All Families

PEN-International in Japan. Naoki Ohnuma, MasahikoSuto Tsukuba College of Technology

Inclusive Education. De-mystifying Intellectual Disabilities and investigating best practice.

TCP Family Retreat National Initiative Funded by the Oberkotter Foundation

The article entitled Sam Comes to School: Including Students with Autism in Your

Children with cochlear implants: parental perspectives. Parents points of view

Communication Options and Opportunities. A Factsheet for Parents of Deaf and Hard of Hearing Children

the research project

Living with Hearing Loss: Workbook

There are often questions and, sometimes, confusion when looking at services to a child who is deaf or hard of hearing. Because very young children

The FASD Network s. Training and Events

Dream in Gold. If you had the opportunity to meet the one person who inspires you most; what would you say?

Recommendations for Jeevan Gnanodaya School for the Deaf Sarika D. Mehta (sarikadmehta AT gmail DOT com)

New Mexico TEAM Professional Development Module: Deaf-blindness

Changes to Australian Government Hearing Services Program and Voucher scheme

Deaf Support Department

Communication. Jess Walsh

Responding to HIV in the Workplace

NAMI In Our Own Voice Presenter Screening Tool

Phase Learners at a School for the Deaf (Software Demonstration)

I M P A C T R E P O R T S EPT J U L Y 2015

Developmental Hearing and Auditory Milestones. Presented by : Amy Packer & Marilyn Nelson

Introduction. Diagnosis

Chapter 14 Support for parents and caregivers

Improving Communication Among Professionals Working with Children With Cochlear Implants

Hands & Voices Family Leadership In Language & Learning (FL3) DHH Guidelines

8.0 Guidance for Working with Deaf or Hard Of Hearing Students

Early Intervention Services for Children Who Are Deaf or Hard-of-Hearing and Their Families

Early Hearing Detection and Intervention (EHDI): The Role of the Medical Home

PILOT IMPLEMENTATION EVALUATION REPORT

Purpose: To define deafblindness and discuss its impact. To describe the role of interveners. To address systems issues

Perinatal Community Service (Croydon)

Co-Diagnosis is changing dentistry

I. Language and Communication Needs

A. Executive Summary:

Maine s Family Centered Exploration of Communication Opportunities

A Resilience Program Model

Under the Supervision of: Prof. Judy Freedman Fask, College of the Holy Cross

Deaf and Hard of Hearing Children s Visual Language and Developmental Checklist

Understanding Homelessness

Transcription:

Dr. Paula Pittman Dr. Claudine Störbeck SKI-HI Institute Utah State University paula.pittman@usu.edu The University of the Witwatersrand The Centre for Deaf Studies claudine.storbeck@gmail.com

2005 Began Discussions with South Africa to Implement SKI-HI Model of Early Intervention Service in the Province of Gauteng, with a Hope of Becoming a National Early Intervention Program At that Time Home-Based Early Intervention Programs had never been offered anywhere in South Africa A five year proposal was written to create an early intervention program in South Africa for children who are deaf or hard of hearing and obtain funding for that program

Program received funding in 2006 from the Nelson Mandela Children s Fund and in Fall of 2006 HI HOPES began HI HOPES Home Intervention Hearing and language Opportunities Parent Education Services

There are a very small number of individuals in South Africa living in areas where families need services who have knowledge of deaf education or early childhood-townships, squatter villages,etc. The field of early childhood is not seen as a profession in South Africa, and home-based services have never been provided there for any child with any disability.

SKI- HI Training is designed to meet the needs of a North American audience, incorporating small group learning, reflection, and instruction with personal application activities. These learning approaches were foreign to our first group of participants. Some of the participants were working in schools for the deaf, most had never met a person who was deaf or hard of hearing, none had ever worked in a home setting with young children and their families

South Africa proudly boasts 11 national languages. Most participants spoke at least 3 languages, most spoke 4-7. For many of them, English was their 3 rd or 4 th learned language, yet training was provided in English. South Africa s history with Apartheid created a didactic education system, where students were not encouraged to think on their own or think outside of the box. Rote memory was the modality incorporated in every classroom for learning.

Training challenges were even more complex in Deaf Mentor Training, where Oral Deaf Mentors had to lip read an American, and South African Sign Language (SASL) and Signed English Mentors had to gather information in training from an interpreter since training was not provided in SASL or Sim Com using South African Signs There are also a variety of dialects in SASL, no research has been done, but fluent signers suggest there are probably as many as 6 or 7 dialects of SASL still used in South Africa.

Because there are few people with background in deaf education in the townships and varied areas in South Africa, training had to be extended to 7 days with intensive mentoring and ongoing training in areas of need for early interventionists working with families. We are hoping to establish a pre-service program that provides in depth training and information for the future.

There are professional organizations in early childhood in South Africa that are not specific to children with disabilities. HI HOPES staff have affiliated themselves with these organizations and connect with them for staff development and collaboration.

South Africans learn differently from Americans. Training and training activities had to be changed to better meet the learning abilities of South Africans. A cultural broker is a must! Dr. Claudine Storbeck, our accidental cultural broker, is a 4 th generation South African, speaks three South African languages fluently, including SASL, and understands Deaf Education. The first training workshops held in South Africa were learning experiences for ALL of us!

New vocabulary has to be clarified and written down or at least discussed. Asking, Does anyone have any questions? or Does that seem clear? are a waste of time because admitting in front of a group that you don t understand is not common in South Africa and not comfortable for a vast majority of adult learners. The trainer has to assume all concepts may be new to many of the participants.

Participants benefit GREATLY by repeating the training two or three times. They would also benefit from classes in audiology and early childhood development prior to training. These are areas we are developing right now. Buddy groups were created among participants once Parent Advisors and Deaf Mentors began serving families. In each group was at least one person with strong English skills so they could decipher materials and processes together and talk them through.

We brought in one of the Deaf Mentors who was trained in the first Deaf Mentor Training to assist with the next two Deaf Mentor Training workshops, then we trained her as the first South African Deaf Mentor Trainer. She knows SASL and all of the dialects of SASL and makes the curriculum come alive for participants.

There is no formal referral system followup for babies diagnosed with a hearing loss. Newborn hearing screening is not mandated at all birthing hospitals in South Africa, and many babies in South African are not born in hospitals.

Parent Advisors struggled to put training into practice in the home, and were not always conveying appropriate information to families. In South Africa in order to be truly accepted as a Parent Advisor in a home, you must be a member of the area where the child and family live and it helps if the race of the Parent Advisor is the same of that of the family.

Many South Africans do not own their own cars, making transportation to visits challenging. Driving long distances to make a home visit is not the mentality of South Africans. Driving long distances for any reason is not highly accepted.

Family handouts and visuals were created only in English and Spanish, but most of the families served spoke English as a third or 4 th language, not as their primary or secondary home language, so Parent Advisors struggled to explain the information and parents struggled to understand it. The Deaf Mentor Materials are based on American Sign Language and American Deaf culture, not SASL and South African Deaf Culture

How do we best serve children with additional disabilities? SKI-HI only addresses these issues on a basic level, although many sections of the SKI-HI Curriculum can be used with these children and families, there was still much needed to serve these children and their families effectively. Many areas are extremely unsafe, especially if visited at night.

Home visits were often made to families who had very, very limited resources.

EHDI South Africa was established in 2008 to begin a push for newborn hearing screening across South Africa and a hope of a stronger referral system for the country. We let people know about HI HOPES services and families came! Lots of PR has to happen with any new program to get the word out there. Newspaper, T.V., radio, magazines anywhere HI HOPES can get a word in, they do.

One-on-one meetings, group meetings, and South African conferences with audiologists and SLPs as well as other early childhood educators have been essential to let the public know about HI HOPES. Ongoing efforts are constantly being made to collaborate and support the work already being done throughout South Africa for children who are deaf or hard of hearing and their families.

Pairing Parent Advisors together to make home visits on a regular basis is sometimes a necessity in some areas because of the safety issue. Police can be asked for help from time to time as well.

We have continued to select Parent Advisors from remote areas, townships, or areas near squatters camps even though they do not have knowledge of deaf education or early intervention before they receive training because they will be accepted in the homes and in the community. They are then provided with lots of direct support and mentoring, and may also be paired with a more experienced Parent Advisor to improve their skills.

Just as in the states, the initial SKI-HI Training is just a jump off point. No training can provide you with every skill you need to do a job. You have to learn on the job. Mentoring and supervision had to be implemented in order to help Parent Advisors learn how to do their jobs effectively.

Mentoring has become a huge focus of the program. We have brought experienced supervisors/mentors from the US to work directly with select Parent Advisors in South Africa to build a strong mentoring/supervision program in South Africa. These efforts still continue today.

The buddy group has also helped Parent Advisors as they learn how to be effective early intervention providers by supporting one another and role playing lessons with one another, learning new skills in the process. On-going workshops were implemented to give more in-depth skills to Parent Advisors.

For Parent Advisors who do not have cars, we provide assistance to pay for taxis. Those who do have cars are asked to work with families who are further away and they are paid an extra stipend to make the longer drive, but when possible we still hunt for a potential Parent Advisor from the area where we have a child and family.

Our Deaf Mentor Trainer has adapted Deaf Mentor Training to include the South African Deaf community and Deaf culture, and we hope to obtain funding to translate all of the materials into South African Sign Language. Individuals who have had SKI-HI Training and have special language translation skills have been selected to translate SKI-HI visuals and handouts in Zulu, Xhlosa, and Afrikaans, the three most dominant languages in South Africa.

The best Parent Advisors in the program were hand selected to receive INSITE Training to help them deal more effectively with children who have multiple disabilities. The training was a huge success and we will begin a mentoring program in this area in the next year.

Parent Advisors in South Africa have learned that every parent communicates with his or her child everyday in daily routines and activities. If we focus on helping parents develop strategies to make the most of every language opportunity, the need for toys and other resources are not as necessary as some believe.