ANNUAL REPORT. Network of Maharashtra People with HIV/ Annual Report 1 st April st March

Transcription

1 ANNUAL REPORT

2 INTRODUCTION TO NMP+ The Network of Maharashtra People with HIV (NMP+) is a community based organization formed by people with HIV to improve conditions for positive people. Membership is open to all people living with HIV in the state of Maharashtra, irrespective of gender, caste, religion or social group. We have volunteers working all over the state, positive people empowering others to develop self-esteem and to support their affected families. We were formed in 1997 and have been registered with the government under the Society Registration Act since Our work throughout Maharashtra has aided more than one lakh people as of 2013 through multiple projects. Our District level Networks and Key Population Organizations provide direct services to people. We have been affiliated with India HIV/ AIDS Alliance, UNICEF, EATON and many more national and international organizations. OUR VISION An improved quality of life of people living with HIV and an increased active participation in society. Our Mission To improve the quality of life and provide a sense of belonging to people living with HIV and their families for full active participation in society, and reduce further HIV transmission. OUR WORK Our work includes Advocacy, Service Delivery and Network Building through a variety of outreach projects that address the needs of people living with HIV in Maharashtra. 2

3 ADVOCACY Our advocacy efforts span a wide range of programs which aim to improve the lives of people living with HIV. Some of these efforts include: Pap Smear Testing for Women Living with HIV to be made mandatory test in NACO guideline for all ART Centre. Stop unnecessary referral of ANC positive women for delivery from PHC, Rural Hospital to Civil Hospital (Reduce stigma & discrimination) Push to make second line treatment freely available Campaigning for the introduction of the original HIV/AIDS Bill Speaking out in public to increase awareness Improve the effectiveness of the response of government and civil society for evidence based HIV policy and programs NMP+ BOARD Ms. Shabana Patel - President. Ms. Vaishali Maid - Vice President Mr. Manoj Pardesi - General Secretary Mr. Prashant Yende - Treasurer Mr. Vijay Bhende - Joint Secretary Mr. Gautam Dhale - Executive Board Member Ms.Vaishali Naik - Executive Board Member. PROJECT DETAILS. Sr.No Project Name Funding Agency Population Reached 1. TAAL CSR initiative PLHIV s taking ARV from Private sector. 2. Koshish SRHR India HIV/ AIDS Alliance PLHIV and Key populations 3. Saksham Unicef CLHIV and care givers 4. Taking the Wheel EATON Truckers, EATON staff, Rural population, youth. 3

4 SERVICE DELIVERY We have a number of programs through which we provide services to people with HIV, and our valued partners, the district networks. These include the Sexual Reproductive and Health Rights supported by India HIV/AIDS Alliance, Saksham I Study Club for children between 10 to 14 years & Teen club for children between 15 to 19 years supported by Unicef, Taking the Wheel supported by EATON and TAAL Pharmacy. Through these projects we: Provide information, counseling, Provide referrals and other linkages Advocacy on SRHR issues of WLHIV, FSW and MSM. Advocacy for free second line treatment & ban on Stavudine drug replaced by Tenofovir. Provide decision makers, latest information on SRHR Link PLHIV for medical treatment though NARI, government hospitals and private HIV physicians. Arrange health checkup camps for women and children. Income generation support for Women Living with HIV (WLHIV) AREA OF OPERATION NMP+ works throughout Maharashtra. In the present year we implemented 4 projects namely. 1. Sexual Reproductive and Health Rights supported by India HIV/AIDS Alliance. 2. Saksham I, supported by Unicef 3. Taking the Wheel by EATON. 4. TAAL Pharmacy 4

5 We cover almost 10 districts for the above projects. Our Saksham I program is in 05 districts namely Chandrapur, Latur, Nandurbar, Sangli and Yawatmal. Sexual Reproductive and Health Rights project works in 5 districts. NMP+ is playing the role of State Level Network and Mamta as State Level Partner. Districts covered by NMP+ under this project are Ahmednagar, Kolhapur and Thane and Nagpur and Amravati under Mamta. Each district we have two organizations (1 DLN and 1 KP organization). Taking the Wheel project covers 3 districts namely Ahmednagar, Nashik and Pune. TARGET POPULATIONS Our target population is people living with HIV, (PLHIV) mainly focuses on women living with HIV (WLHIV), Female Sex Workers (FSW) and Male having Sex with Men (MSM). NMP+ has its own ethic that states that our organization is open to all people living with HIV in the state of Maharashtra, irrespective of gender, caste, religion or social group. We have HIV positive volunteers working across the state to empower others to develop positive self-esteem and support their affected families. CURRENT PROJECT OVERVIEW TAAL Taal is a community pharmacy run and supported by the people with HIV community. The first Taal Pharmacy was established in January 2006 in Pune. TAAL means: T: Treatment, A: Advocacy, A: Adherence, L: Literacy. Presently Taal is functioning in five districts of Maharashtra and providing psycho social support and information related to ART adherence. At TAAL more than 3300 clients are registered. 5

6 More than 60% of clients are linked to a government set up for free ART % discount on First line and Second line medicines has been given to clients. TAAL 2013: New Year Celebration Event, Mr. Manoj Pardesi sharing memories of NMP+ Celebration: Mr. Khanna - Emcure enjoying cutting cake with child during New Year evening. 6

7 SAKSHAM - I SAKSHAM Phase I gave us insight into issues that HIV positive children and adolescents faced in their daily lives. SAKSHAM Phase I commenced with setting up of and creating a common platform where HIV positive children could be by themselves and be accepted. A conducive and safe space for such children, through the concept of Study Club for years was created. One study club was formed in each of the 5 UNICEF focused districts namely Sangli, Latur, Nandurbar, Yavatmal and Chandrapur. In order to deal with adolescents, a Teen Club was similarly formed in each of the 5 UNICEF focused districts to interact with adolescents between the ages of years of age. HIV positive children were to be empowered to build positive relationships, improve their selfesteem and acquire life skills through peer mentorship. Take on adult role modeling and structured activities, ultimately leading to improved clinical and mental health outcomes as well as a healthy transition into adulthood. Teen Club aimed to strive to give each teenager the opportunity to normalize their social experiences and to enhance their positive outlook on life. Having created a Teen Club, adolescents have voiced their fears, their needs and their requirements. Parents also expressed their views, opinions and requirements for their positive children. The following points of concern emerged from the Experience Sharing and Review Meeting (ESRM) that took place to amalgate all the learning and sharing that took place. 1. No medication could compromise for the inner discomfort and turmoil that was felt on being HIV positive. 2. Psychosocial, emotional and mental support was as important as adherence to treatment. Children and adolescents wanted to talk and express what they felt. 3. HIV positive children and adolescents had big dreams and wanted to achieve them. They needed an outlet to express their inner desires and aspirations. 4. Parents were willing to support and encourage their off springs and expressed that very clearly. 5. A strong impetus to take this further was required in order to guide, lead and assist these children and adolescents. Parents strongly wanted this activity to be taken forward. 7

8 To conduct this activity at district level 10 facilitators, & 75 children with their caregivers were oriented about the program. 25 meetings on different issues were organized in 5 districts. Unicef and NMP+ consultants monitored each and every activity of the program. In the month of December 2012 ESRM was conducted for children of both clubs. Training Of Trainers by Unicef Consultant Orientation of Saksham phase I to Children and care givers from districts 8

9 Teen Club Members busy in Body Mapping in 2 nd meeting at Sangli Study Club member in learning mood during 3 rd meeting at latur 9

10 ESRM Children from teen Club (above) and from study club (below) sharing their experiences during ESRM 10

11 KOSHISH SRHR PROJECT Koshish a European Commission-funded program, strengthens civil society organizations and networks specifically those representing and working with PLHIV and other marginalized groups like MSM, transgender, sex workers, and people who use drugs to effectively advocate for policies and strategies on sexual and reproductive health (SRH) and rights for PLHIV in India. Through coalitions, partner organizations develop and implement state and district-level efforts, affirming the principles of empowerment and meaningful partnerships as core elements of effective advocacy. Three districts namely Ahmednagar, Kolhapur and Thane were selected from Maharashtra to execute the project activities. Three District Level Networks, three key population organizations and four civil society organizations were also selected from these 3 districts. Selected District Level Networks, Key Population Organization and Civil Society Organizations are as below. State Level District Type of Organization Name of the Organization Network Covered NMP+ Ahmednagar District level Organization Network of Ahmednagar by People Living with HIV. (NADP+) Ahmednagar Key Population Organization Snehalaya Kolhapur District level Organization Network of Kolhapur by People Living with HIV. (NKP+) Kolhapur Key Population Organization Maitra Organization. Thane District level Organization Network of Thane by people Living with HIV. Thane Key Population Organization Adiji Sanstha. State Level Network District Covered Name of the Civil Society Organization NMP+ Kolhapur Jeevan Jyoti Sanstha Pune Pune Pune CYDA Cifar Satthi sehat 11

12 ACTIVITIES UNDER THE PROJECT Community consultation. Every quarter community consultation is conducted by the DLN and KP organization. SRHR related issues are identified through this meeting. 24 Community consultation by DLN & Key Population Organization were conducted during the year 2012 to Consultations were mainly conducted to find out the burning issues on SRHR to advocate through Koshish project. State Coalition Meetings. Representatives from 20 Civil Society organizations attend the meeting. The platform is used to discuss the issues raised in the community consultation meetings, contribute to prepare the advocacy plan & define role of every CSO to make the advocacy successful. In this year a total of 4 State Coalition Meetings were conducted NMP+ organized 3 and Mamta organized 1 meeting. Capacity Building Alliance had organized Refresher training for TSP & TSO for state level staff of Maharashtra and Gujarat at Lonawala, Maharashtra from 1oth to 14 th of December From August 2012 bimonthly Capacity building trainings were organized for the district level staff of Maharashtra. Dr. Ujwal Nene was appointed as Consultant to conduct the trainings to DLN, KP Organization, SLN and SLP staff. TSP assisted the consultant in each training. Capacity building of the district staff and the Key Population Organization staff is also done by Technical Support Officer (TSO). Advocacy Events Advocacy events were organized at district level on marker day events like Doctor Day, World AIDS Day etc to initiate Pap smear testing at ART centers. Both the events brought success & Pap Smear testing was initiated at Ahmednagar, Kolhapur and Thane. Till date more than

13 testing is been done at Ahmednagar (every 1 st and 3 rd Saturday) Kolhapur (every Tuesday & Friday) Thane (Twice a month) Panel discussion on unnecessary referral of ANC positive women from PHC to Civil hospital was also conducted at Ahmednagar and Kolhapur. Case studies of such unnecessary referrals are collected in order to conduct state level advocacy event in August Capacity building of State level partners by India HIV/AIDS Alliance 13

14 Capacity Building training for DLN, KP Org, SLN and SLP Staff of Koshish Project st st 1 April March

15 Pap Smear Testing initiated at Ahmednagar after successful advocacy. Pap smear testing camp and motivating women s for testing in Thane. 15

16 EATON - TAKING THE WHEEL Eaton a CSR imitative was started from February The program aims To increase health seeking behavior regarding STI, HIV and AIDS by initiating Behavior Change Communication activities and education programs amongst the infected and affected in communities that are relevant to Eaton* Increase HIV/AIDS awareness & to promote positive attitude leading to changes in CRE s behavior. PLANNING MEET Meetings were arranged with EATON team to plan the yearly activities. The final plan is as below. 1. Dental Camp at Ranjangaon for school children. 2. Health camp at Kada, Ahmednagar rural population. 3. Dental camp at Kada, Ahmednagar for school children. 4. Dental Camp at Nashik for school children. 5. De addiction and safe driving camp for truckers. 6. Camp for adolescent girls from Pune. 7. Income Generation support for women living with HIV. 8. World AIDS week event Red Ribbon Bus. GENERAL HEALTH & DENTAL CHECKUP CAMPS During the first year, 4 camps for school children were organized by NMP+ at Ahmednagar, Nashik and Pune. One general health checkup camp and 3 dental health checkup camp were organized with the help of Doctors from Bharati Vidhyapeeth Medical college, KBH Dental College Nashik and Yashwantrao Chavan Dental College Ahmednagar children from different school were benifited from this camps. 16

17 INCOME GENERATION PROGRAM. A small support for Income Generation for four Women Living with HIV from Pune was provided through Taking the Wheel Project. Women are happy with the small financial support for opening small business like fruit stall, utensils shop, groom making & starting mess for students. A midyear survey was done which expressed their sustainability through this initiative. WORLD AIDS DAY. With the common interest of EATON and NMP+ to create awareness and reduce stigma and discrimination on HIV and AIDS an innovative approach of Red Ribbon Bus event for World AIDS Week from 1 to 7 December 2012 was planned. The Red Ribbon Bus seeks to spread awareness about HIV and AIDS, promote safe sex and reduce discrimination against HIV infected people in and around Pune, Ahmednagar and Nashik district especially with high risk groups mainly truckers and migrant workers through awareness strategy and reducing stigma and discrimination strategy with rural population by giving real face and voice through PLHIV individuals. Communications activities such as poster exhibition, street plays, film shows, group meetings, quiz competition, Information, Education and Communication (IEC) distribution, demonstration and counseling sessions were planned for Red Ribbon Bus. The Red Ribbon bus reached to truckers, education institutes, local gram panchayat leaders, youth groups, women groups, highway dhaba owners and urban slum dwellers etc. Journey of Red Ribbon Bus Covered 3 Districts and 30 Spotsfrom Pune, Ahmednagar, Nashik Covered 10 Truckers Halt Point. 21 Street plays, 4 Film Shows,9 group Meetings with stake holders, 17

18 Distributed IECbrouchers (NMP+, ART information,treatment record keeping diary, TAAL pharmacy information, HIV help line stickers, Sexual and Reproductive Health Rightsrelated broacher)distributed during red ribbon bus. 348 one to one & group counseling sessions with students, truckers and general population. 6 condom depot established at Truckers Halt Point Dhaba More than 250 calls attended at NMP+ office Pune during and after Red Ribbon bus initiative Reached population Bus travelled total 819 kilometers and reached more than 100,000 people (25000 direct and through IEC distribution) New Fruit Stall business opened at YMC Hospital Pune through IGP support 18

19 Making grooms through IGP support Utensils shop with IGP support 19

20 Dental checkup camp at Kada, Ahmednagar 20

21 Red Ribbon Bus.. Flag Hosting by Mr. Raja Kochar. Street Play performance at shirur 21

22 PSB at and Group meeting with Shri Sainath Madhyamik va Uccha Madhyamik Vidyalaya - Shirdi Quiz competation at Adgaon- Nashik Manmad road THP 22

23 FUNDING AND SUPPORT Sources of funding and support by project: SRHR: India HIV/AIDS Alliance Saksham - I: UNICEF Taking The Wheel: EATON REGISTRATION DETAILS Registration No: Society Registration Act (1860): MH/658/2001/Pune Bombay Public Trust Act (1956): F18765 FCRA Registration No: PAN Card No: AAATN4190J CONTACT INFORMATION Office Address: Network of Maharashtra People with HIV , Ganga Prestige Arcade, Laxmi Road, Nana Peth, Pune, Maharashtra, India Telephone: /84 nmpplus@gmail.com Website: 23

24 ACRONYMS AIDS - Acquired Immuno Deficiency Syndrome ANC - Antenatal Clinic ART - Anti-retroviral Therapy BCC - Behavior Change Communication BCSU CBO - Community-Based Organisation CSO - Civil Society Organisation CST - Care, Support & Treatment CLHIV - Children Living with HIV DAPCU - District AIDS Prevention & Control Unit DIC - Drop In Centre DLN - District Level Network FSW - Female Sex Workers GFATM - Global Fund for AIDS, Tuberculosis and Malaria GIPA - Greater Involvement of People living with HIV/AIDS HIV - Human Immunodeficiency Virus ICTC - Integrated Counseling and Testing Centre IEC - Information, Education and Communication KP - Key Population LAC - Link ART Centre MSM - Men who have Sex with Men NACO - National AIDS Control Organisation NGO - Non-Government Organisation NRHM - National Rural Health Mission ORW - Outreach Worker PHC - Primary Health Centre PLHIV - People Living with HIV PPP - Preferred Private Provider PPTCT - Prevention of Parent to Child Transmission PRI - Panchayati Raj Institution RCH - Reproductive and Child Health RTI - Reproductive Tract Infection SRHR - Sexual Reproductive and Health Rights SDP - Service Delivery Point SLN - State Level Network SLP - State Level Partner TB - Tuberculosis TG - Transgender UNAIDS - United Nations Programme on HIV/AIDS UNDP - United Nations Development Programme UNICEF - United Nations Children s Fund WHO - World Health Organization 24