Socializing and Storytelling of #ActuallyAutistic Adults. Annuska Zolyomi Information School
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1 Socializing and Storytelling of #ActuallyAutistic Adults Annuska Zolyomi Information School
2 Technology Use of Autism Communities Autism Stories #ActuallyAutistic on Twitter Dr. Kelly Johnson UW Autism Center Ridley Jones, Tomer Kaftan 2
3 Autism Stories hosted by UW Autism Center Modeled after NPR StoryCorp Belief that everyone has a story to tell Hosted on SoundCloud autismstories/ 3
4 Pairs of Autism Storytellers 2 sets of parents Mother and older brother Two friends Student and his former middle school teacher 4
5 Themes of Youth and Adult Stories Identity and Diagnosis Diagnosis critical to my understanding. I m just a kid. Autistic friendships The social decoding fades away. 5
6 Twitter Research Questions What topics of discussion are important? What are they saying about autism and autistic characteristics? What are their social interactions like? Does the Twitter interface help or hinder social interactions? 6
7 Casting the net #actuallyautistic #autisticpride #feelhappyonthespectrum #autisticvoicesfirst #autismacceptance #boycottautismspeaks #autpolls #askingautistics #autisticcooking 7
8 Categories Topics Experiences Identity Hot topics Institutional concerns Actions Personal sharing Information sharing Socializing Persuasion Stereotyping Sentiment: Supportive tone within autistic community 8
9 Autistic Identity and Sense-Making - Diagnosis - Traits - I was kind of shocked the first time I saw people on Twitter talking about what they like about being autistic. Then when I read them I started thinking "hey, some of my positive traits are because I'm like this. - Strategies
10 Autistic Identity and Sense-Making - Comparison / imaging what neurotypicals think - #askingautistics #ActuallyAutistic just reading about how lots of us have movie quotes, lyrics from songs etc as our internal dialogue most of the time. Out of interest, what do NTs generally have as their internal dialogue? I can't even imagine
11 Socializing Humor Scaffolding each other s emotions and humor Naming what s happening, naming how I feel, spelling out the meta-cognitive aspects That made me laugh out loud
12 Socializing Addressing potential mishaps I m sorry that I reminded you of that [demeaning boss] Oh it s ok I learn to overcome it That s good Thanks and it wasn t easy but I m doing better That s very good then Thx You re welcome
13 Social Affordances of Twitter - Images - Polls - Retweet; undo RT - Block Noted challenges: characters only allows for so much. - Find tweets with a particular hashtag
14 Impact of technology-mediated storytelling Interactive Authentic Inter-connected network of individuals and organizations Sense-making and solidarity 14
15 Thank you! Sally Stuart, LEND Kelly Johnson, UW Autism Center We are recruiting storytellers for the Autism Stories project! My contact 15
16 Limitations - Selecting our sample - Selected people using hashtags within our given 2 week period - Some autistic people on Twitter never use the hashtags we selected. - Hashtags morph. Our analysis is of a point in time. The popular hashtags, hot topics, themes, etc, will change over time. - Future work: track trends over time - We are not comparing this group to any others. - How do they compare to other disability advocacy groups?
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