Dystonia. Research Programs. Treatment Options. Publications and Videos. Events and Symposiums. Patient Support. Healthcare Referral.

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1 Oral Medications Botulinum Toxin Injections Surgery Complementary Therapy Links General treatments copy Notes: Each subsection is static.

2 Books Brochures Videos Newsletters Awareness Materials Intro Text Explaining pricing issues. Books Title Author Price Publication Date Abstract download PDF exerpt from book Purchase photo

3 Local Area Regional Representatives Bulletin Boards Advocacy and Informational Links Advocacy and Informational Intro text List of (database fields) *Name Description (255) * denotes required field

4 Local Area Regional Representatives Bulletin Boards Advocacy and Informational Links Advocacy and Informational List of (database fields) *Name *Description (large text field) Update (2 or 3 sentences on recent news about this program) PDF files (up to 3) Links (up to 3) * denotes required field

5 Studies Funding Opportunities Award Materials Clinical Trials Links Scientific Advisory Board (datebase fields for abstracts, sort by funding type then date, in this order: contracts, grants, and fellowships): Funding Type Date Title Investigator Institution City State Abstract (500 words). Funding Type: Contract Date: 2000 Title: The Generation and Characterization of an Animal Model of DYT1 Investigator: William Dauer, M.D. Institution: Columbia University City: New York State: NY Abstract: DYT1 dystonia is caused by a mutation in the gene which codes for a protein named TorsinA. This mutation is a three base-pair deletion in the gene. An important element of dystonia research as a whole is to examine the chemical and biological consequences of this mutation. Dr. Dauer's project (which began last year) has two basic aims. The first is to make a disease model of DYT1 dystonia in mice. This is accomplished by altering the mouse TorsinA gene so it contains the same mutation as that found in the disease. The second aim is to create a mouse in which the TorsinA gene is completely missing. This will help to determine the normal function of TorsinA. Ideally each mouse will exhibit motor abnormalities that may help illustrate the function of the TorsinA protein and the way in which the mutation leads to disease.

6 Submit a Meeting or Event List of Events Date: Event Name: City: State: Short Description:

7 Submit an Meeting or Event Event Details Page Date: Cost: Time: Event Name: City: State: Location: Person Name: Person Phone (optional): Person (optional): Long Description URL: Register (goes to online form) download registration PDF (optional)

8 Forms of Copy Classification Causes Diagnosis Genetics Prognosis Related Disorders Forms of Links

9 Board of Directors Scientific Advisory Board Junior Advisory Board DMR Foundation Canada Musicians w/ Program Headquarter Staff Parent s Council International Partnership Join the Foundation (links to the Donate page) Board of Directors (fields for all lists in this section) Section: Name: Title: University: Location: Term:

10 Books Brochures Videos Newsletters Awareness Materials Intro Text Explaining pricing issues. Newsletters Title Price Publication Date Abstract download PDF of newsletter Purchase

11 Focal Forms of Blepharospasm Cervical Embouchure Limb Oromandibular Spasmodic Writer's Cramp Inherited Forms of Early-Onset Generalized Dopa-Responsive Paroxysmal X-Linked -Parkinsonism Myoclonic Rapid-Onset -Parkinsonism Secondary Form of Links Writer s Cramp What is Writer s Cramp? Specific actions may induce dystonia in particular areas. Closely related to skilled activities, these action-induced or task-specific dystonias are known as "occupational dystonias." Writer s cramp, the best known occupational dystonia, is a pure action dystonia triggered only when the person attempts to write or perform other fine hand functions, such as playing a musical instrument. The hand and finger muscles contract or extend, halting the action or causing the exaggerated posture to continue. Some people notice that the hand freezes during an attempt to move across the page and describe the hand as having a "mind of its own." As soon as the writing instrument is removed from the hand, the muscles relax. Symptoms Common manifestations of simple writer s cramp include excessive gripping of the pen, flexion, and sometimes deviation of the wrist, elevation of the elbow, and occasional extension of a finger or fingers causing the pen to fall from the hand. Sometimes the disorder progresses to include the elevation of shoulders or the retraction of arm while writing. Rarely, tremor instead of sustained dystonic posture, is seen. In people with dystonic writer s cramp, dystonia symptoms appear with other tasks such as eating with utensils, applying make-up, shaving, using scissors, screwdrivers, or other tools, and performing other manual tasks in addition to writing. Cramping or aching of the hand is not common. Discomfort may occasionally be present in the fingers, wrist, or forearm, but it is usually mild. A similar cramp may be seen in musicians as the violin is Writer's Cramp What is it? Symptoms Types Cause Diagnosis Medications Botulinum Toxin Surgery Complementary Therapy Related Questions Botox Reimbursement Media Icon

12 Focal Forms of Intro text Blepharospasm Cervical Embouchure Limb Oromandibular Spasmodic Writer's Cramp Inherited Forms of Form Name Form Name Form Name Early-Onset Generalized Dopa-Responsive Form Name Paroxysmal X-Linked -Parkinsonism Myoclonic Rapid-Onset -Parkinsonism Secondary Roll-over text Forms of Links

13 Information for: Physicians ers s Link to French page Link to Spanish page Definition photo Headline (graphic) Story more> Survey Results Headline (graphic) with on/off button in admin Story with on/off button in admin more> (links to the Full Story page) Headline (graphic) with on/off button in admin Story with on/off button in admin more> past stories (links to a list page (title and abstract (255 char), from there to the Full Story page) Allergan Info Copyright 2000 Medical Foundation Legal Disclaimer (link)

14 Books Brochures Videos Newsletters Awareness Materials Intro Text Explaining pricing issues. Brochures Title Price Publication Date Abstract download PDF of brochure Purchase

15 Donate Paragraph about donating to the Foundation. Donation form.

16 Books Brochures Videos Newsletters Awareness Materials Intro Text Explaining pricing issues. Awareness Materials Title Price Description Purchase picture (opt)

17 Links If you are a physician and would like to be on our referral list or update your profile Intro (copy) find a physician by state: or by name: California Physician Name results to bring up: Name of Physician by last name. Name of practice City Phone Address Website

18 Local Area Regional Representatives Bulletin Boards Advocacy and Informational Links Area Group find a group Name of the Group City Name Group Number Home Phone Work Phone Name Home Phone Work Phone Web site address California Notes: List should come up alphabetically by city.

19 Studies Funding Opportunities Award Materials Clinical Trials Links Intro Copy

20 Oral Medications Botulinum Toxin Injections Surgery Complementary Therapy Links Complementary Therapies (one paragraphy of copy) Is exercise helpful in dystonia? copy Headline copy Headline copy etc. Excercise Aquatic Therapy Chiropractic Orthopedic Devices Acupuncture Hypnosis Vitamins Food Interactions Feldenkrais Therapy Magnets T'ai Chi & Qigong (Chi Kung) Physical Therapy (these are anchors that jump the user to that section of the page) Notes: Each subsection is static.

21 You are here: Home > > Regional Representatives Local Area Regional Representatives Bulletin Boards Advocacy and Informational Links Regional Representatives find a rep Region Name Address Home Phone Work Phone Web site address California etc.

22 Oral Medications Botulinum Toxin Injections Surgery Complementary Therapy Links Medications (one paragraphy of copy) Headline copy Headline copy Headline copy etc. Drug Groups & Side Effects Starting New Medications Long-Term Effects of Medications Tardive /Dyskinesia Drug causing Tardive Thorazine (chlorpromazine) & Notes: Each subsection is static.

23 Books Videos Brochures Newsletters Materials Awareness Materials Merchandise Intro Text Please send me a free General Info kit: ( Form) Name Address City State Zip Submit Main Pubs and Video page

24 Books Brochures Videos Newsletters Awareness Materials Intro Text Explaining pricing issues. Videos Title Price screen capture Date Abstract Purchase