EBMT Society EBMT. History Organisation Studies Activity Philosophy. EBMT Website. European Group for Blood and Marrow Transplantation

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1 EBMT EBMT Organisation and Activities J Apperley 13th. ESH-EBMT Training Course Targu Mures May 24 26, 2010 History Organisation Studies Activity Philosophy EBMT Website EBMT Society European Group for Blood and Marrow Transplantation Established in 1974 and registered in Maastricht Non-profit organisation that promotes excellence in haemopoietic cell transplantation including basic and clinical research, education, standardisation, quality control and accreditation of transplant procedures

2 EBMT Activity survey on HSCT Allogeneic HSCT, autologous HSCT, Teams Membership Overview H S C T // Structure of EBMT Quality Manager EBMT Board Executive committee Working Parties Registries Patients and Families Nurses Group Committees JACIE Accreditation Programme Status: Acute Leukaemia Aplastic Anaemia Autoimmune Diseases National Activity Survey EBMT Working Parties Board Education Total Centers registered:206 Chronic Leukaemias Immunobiology Inborn Errors Infectious Diseases Late Effects Lymphoma Paediatric Diseases Solid Tumours Austria Czech Rep France Germany Italy -Allo Italy - Auto The Netherlands Central Registry Data Office, Paris Registry Support, London Inborn Errors Cord Blood Research committee Editorial Board Nuclear Accident Quality Assessment of HSC Grafts Developmental Prospective Clinical Trials Statistical Outreach Total inspections: 171 Facilities accredited: 139 Countries:16 Switzerland Turkey UK - BMT UK - paediatric 3563 members 527 centers 57 countries Cord Blood close collaboration with FACT

3 EBMT Committees EBMT Educational Courses 2009 Cord Blood Education Nuclear Accident response Outreach Prospective Clinical Trials Quality assessment of autologous grafts Developmental Statistical Guidelines Regulations Visions Training Courses Handbook Dates Event Venue May 2009 The 13th EBMT-ESH Training Course: Blood and Marrow Transplantation Latimer, UK 4-6 June nd Training Course on Bone and Marrow Transplant in Children Genoa, Italy Sept 2009 Joint EBMT Paediatric Working Party - Raisa Gorbacheva Third Memorial Meeting on Haematopoietic Stem Cell Transplantation Saint Petersburg, Russia Sept 2009 EBMT Inborn Errors Working Party Meeting Cambridge, UK Oct 2009 EBMT Acute Leukaemia Working Party Meeting and Symposium Barcelona, Spain Oct 2009 EBMT Paediatric Diseases Working Party Meeting Barcelona, Spain Oct th EBMT Lymphoma Working Party Educational Course Haematopoietic Stem Cell Transplantation and Lymphoma Bristol, UK Oct th EBMT Infectious Diseases Working Party Training Course Rome, Italy Nov 2009 Haematopoietic Stem Cell Transplantation (HSCT) for Severe Autoimmune Diseases Meeting Florence, Italy Nov 2009 EBMT Immunobiology Working Party Meeting Perugia, Italy Data Management Group Network of transplant data managers and statisticians EBMT Central Registry Office, London EBMT Data Office, Paris PROMISE Data Capture System, Leiden EBMT Transplant Activity Survey Office, Basel Retrospective data analysis Med A Med B Med C Transplant Activty survey Outcome analysis Quality control EBMT ACTIVITY SURVEY Current status Indication Donor type Stem Cell Source Comparison Within region Between regions Population Economics Analysis Absolute numbers By population Trends Quality control instrument Policy tool Numbers

4 EBMT Activity survey on HSCT in 2008: patient and transplant numbers EBMT Activity survey on HSCT in 2008: main indications Indication Allogeneic HSCT Autologous HSCT Total Indication Allogeneic 1st Tx. Autologous 1 st Tx. Total 1st transplants Leukaemias* Lymphoproliferative Retransplants Additional transplants disorders Bone marrow failures Solid tumours Non-malignant disorders TOTAL Others Teams: 615 Countries: : final data Total * includes CLL : final data EBMT risk score: Age, disease stage, donor type, 7me interval, gender combina7on Impact of JACIE accreditation status 1 0,8 0,6 0,4 0, AML ALL CML AA MDS MM NHL 0,8 0,6 0,4 0,2 0 AML ALL CML AA MDS MM NHL Cancer ;115: The European The European Group Group for Blood for Blood and Marrow and Marrow Transplantation

5 Scientific Activities of EBMT Networking WBMT Federation 46 Publications in peer-review journals 150 Retrospective Analyses underway 8 Prospective Clinical Trials underway 350,888 Transplants in the EBMT Registry 30,293 HSCTs submitted to the Activity Survey in EBMT Members across 57 Countries