DIABETES NEWS SUMMER 2017

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1 DIABETES NEWS SUMMER 2017 Local News from the Children s and Young People s Diabetes Clinic at the Oxford Children s & Horton Hospitals CLINIC STAFFING NEWS 1) Dr. Anna Disney leaves Oxford 2) Hannah Powell is going on maternity leave We are sorry that Hannah will be away from the Team for a while, but delighted that she will be having a baby at the end of September. We wish her all the very best and look forward to welcoming her back in September Anna has been working with the Children s Diabetes Team for the last 4 years, but has now left Oxford to move with her family to the south west. She will continue to work in diabetes but with young adults this time, which is a new challenge for her. We are all going to miss her very much, but wish her every happiness for the future in such a lovely part of the country. We are in the process of appointing a successor to Anna, but these things take time! Dr. Kate Green, who has worked with families in Banbury, may be able to help with families in Oxford needing urgent psychology, but please bear with us while we await our new psychologist who, once in post, will be able to offer a full-time service to the clinic. 3) Welcome to Nina Marong We are very pleased that Nina joined the Children s Diabetes Team in May 2017 as our nursing assistant. You will all meet her when you come to clinic, as she will be doing the HbA1c checks and downloading blood glucose meters and/or insulin pumps (if you have not done it at home before you come along). You may recognise her, as she has worked in the Outpatient Department before, so knows our clinic well. 4) Welcome to Dr Supriyo Basu Dr Basu has joined the Children s Endocrinology and Diabetes Team as a speciality doctor, which is a permanent position, so you will all meet him at some time when you come to clinic. Safety Alert Novo Nordisk Ltd. has detected that the insulin cartridge holder in a number of Novopen Echo and Novopen 5 batches may crack or break if exposed to certain chemicals, for example household cleaning agents. Please contact the website or customer careline to check if your pen batch number is affected and what to do: or Novo Nordisk Customer Care Line:

2 CLINIC NEWS Logo Competition Thank you to the young people and families who entered the Children s Diabetes Service logo competition. We have 2 winners! Jennifer Ellis designed the logo on the left, which will be used on the front cover of the primary school communication books. Pedro Couto and Rozane Gomes designed the logo on the right, which will be used on all our written documentation from now on. Well done to both designers. Children s Diabetes Service Patient and Family Experience Questionnaire Every 3 years we conduct a survey of our service at the Children s Hospital in Oxford and the Horton Hospital in Banbury. This survey, for parents to complete, will be sent to you all with a Freepost envelope in which to return it to us. It is very important to us that we continue to develop the Children s Diabetes Service as our children and families want, so the information we obtain from competed questionnaires is extremely valuable to us. Thank you for taking time to complete it. If you lose the Freepost envelope, you can return it to us when you come to clinic or send it to: Mary C. Cheeseman Children's Diabetes Administrator Level 2, Oxford Children's Hospital Headington Oxford OX3 9DU Ella s story - how one young person feels about diabetes and pump therapy (thank you to Ella for sharing this with us). When I first decided to get the pump, I was so nervous about what people would think of it if they saw it. After about a week of having the pump, I had become so much more confident, as my lumpy injection sites had gone and I could feel that my body was so much healthier than it was when I was injecting. I am now confident enough to wear crop tops out and whenever people ask me what my pump is, I am now comfortable enough to tell them and explain it.

3 Changes to the formulation of Lucozade Energy The government has recommended that the sugar content in all drinks is reduced. In April Lucozade reformulated some of their products. If you use Lucozade Energy, this has changed and it now contains 8.4g carbohydrate per 100ml. Lucozade Energy - nutritional information is: Typical values per 100ml: Energy 149kJ (35kcal), Carbohydrate 8.4g, Sugars 4.5g, Salt 0.06g. We recommend using Lucozade Sport - This HAS NOT CHANGED. It contains 6.5g Carbohydrate per 100ml. Lucozade Sport - nutritional information is: Typical values per 100ml: Energy 118kJ (28kcal), Carbohydrate 6.5g, Sugars 3.6g, Salt 0.13g. Many other sugary drinks may have had their formulation changed. If you use any other than Lucozade Sport to treat low blood glucose levels, please check the labels carefully to ensure you are using the correct amount. School Holiday Effects We often hear from families that managing diabetes during school holidays is tricky. During school time, children/young people are much more sensitive to their insulin, as they are using their brains to learn, doing extracurricular activities and are generally active during the school day. During the holidays the amount of energy they use will change, which often makes the blood glucose levels higher at this time. It might seem like a good idea to wait until you come to clinic to adjust insulin doses, however, we know that having higher blood glucose levels can create an increased resistance to the insulin in the body. This can make it even harder to get on top of the numbers, even when you try. Our advice is to think about it earlier rather than later, think about increasing background insulins (basal rate, Lantus, levemir or degludec) now. If you are unsure whether you should change doses, or not sure what to change, give your nurse or dietitian a call. Oxford Children s Diabetes Service Website Just to remind you all that our website is available for you to find information and read about events, etc. The website address is: DID YOU KNOW ABOUT THIS? LONDON BRIDGES CHALLENGE 2017 This is a great day out - why not give it a try and raise money at the same time! London Bridges Challenge, Sunday, 1 st October 2017 Any questions? londonbridges@diabetes.org.uk or call:

4 OTHER NEWS Sunday, 14 th May 2017 Gavin Griffiths was diagnosed with Type 1 diabetes at the age of 8. In his teens, he played semi-professional football for Dartford FC, before turning into an ultra-marathoner. He was a London 2012 Olympic torchbearer and has accomplished over 70 ultra-endurance feats across 5 continents of the world, including once running 30 marathons in 30 days from John O Groats to Land s End. He inspires others with T1DM through his social media presence and work with international diabetes organisations. You can follow him on Facebook or google him to find out what he has been doing recently! On the day of the Sports Workshop, Gavin ran activity sessions with the youngsters who came along, while parents attended an education session delivered by Dr Alistair Lumb, Dr Taffy Makaya and Anne-Marie Frohock (Specialist Dietitian), who run our Specialist Sports Clinic. Feedback from everyone was excellent, a most informative and fun day. Look out for another of these workshops next year! Calshot Activity Weekend 2017 Due to tremendous fundraising efforts, we are able to run our annual activity weekend to Calshot Activities Centre at Fawley near Southampton again from 6 th to 8 th October This year it will be for young people in school years 7 to 10 inclusive, who will be able to enjoy climbing, skiing, archery, cycling, sailing and kayaking. Letters with more information should have arrived on your doorstep recently. If not, do get in touch to make sure you have your invitation or if you need more information. All our young people (years 4-7) who enjoyed Calshot in 2016.

5 FUNDRAISING 24-hour Classathon At the end of April, Oscar and his family completed an amazing fundraising event - this is what they did - well done to you all. This weekend I did a 24-hour classathon at The Barn Fitness in Cholsey. It was 24-hours of gym classes back-to-back. Oscar joined in lots of the classes himself alongside family, friends and his teachers from school. We had about 60 people in total come along and join in, many for an 8-hour stint through the night. My husband gathered many donations by wearing a pink tutu for some classes (he doesn't usually wear one to work out!!). The good news is that so far we have raised over 4,000 for Diabetes UK and the donations are still flooding in. Nichola Military Mud Run for JDRF Well done Joe and friends, great fundraising effort. Joe says: "A week ago I did an obstacle course called a military mud run with my friends Eddie, Archie, Joey, Harry and Dylan and also Jess, who is my sister. The run was 5k with lots of things to climb over and lots of muddy water to go through. The best part was where we had to go down a slide into a pond with very black water! By the end we were extremely muddy. I did the run to help scientists to figure out how to cure Type 1 diabetes. We raised over 600 for the JDRF. I would definitely do it again because it was so much fun!" Wood Green School Interact Group A group of young people from Wood Green School in Witney, who run events during the school year, raise money for nominated charities, including one international charity and one local charity during the academic year. This year, Niamh Nolan, an active group member, nominated the Oxford Children s Diabetes Service as the local charity and, at the end of year final assembly, presented us with a cheque for We are extremely grateful for all their fundraising efforts and really appreciate them supporting us. Thank you to Niamh and her fellow fundraisers. And A BIG THANK YOU TO EVERYONE WHO HAD MADE DONATIONS OR FUNDRAISED ON OUR BEHALF. All contributions are really appreciated and allow us to continue to offer extra activities to families and children.

6 Non-School Uniform Day for Diabetes UK Craig Eltham and Jamie Whittingham raised 635 for Diabetes UK by holding a non-uniform day at St. Birinus School in Didcot. The boys also took over a whole school assembly to raise awareness of diabetes and to share what it is like to live with the condition. Swim 22 Challenge for Diabetes UK - Team McGinley Brian, Sharon, Hannah, Louisa and Aiden took on this challenge to raise money for Diabetes UK. They had to swim 22 miles (the distance across the English Channel) over a three month period. They completed the challenge before May and have raised over 500 for Diabetes UK, alongside raising awareness of the charity through social media. Ashington to Amsterdam Kev Binns and friends have cycled from Ashington in Sussex to Amsterdam. Between Kev, Joe and friends, they have raised over 4,000 for the JDRF. MANY CONGRATULATIONS TO THE BINNS FAMILY AND FRIENDS - WELL DONE. RESEARCH Aged 6-17? FAT AND PROTEIN RESEARCH PROJECT FOR YOUNG PEOPLE WITH TYPE 1 DIABETES Are you interested in taking part in research? Using carbohydrate counting and multiple daily injections? Been diagnosed over one year with an HbA1c below 75mmol/mol (9%)? Then you might be interested in this. We are looking for participants to take part in a project looking at whether giving extra insulin for the fat and protein in meals, as well as insulin for the carbohydrate, makes any difference to blood glucose levels after we eat. What will I have to do? Eat a standard meal (provided by us) for 3 nights in a week. Give extra rapid-acting insulin with these meals as an extra injection either before, 1 hour after or 2 hours after (we will tell you how much). Wear a continuous glucose monitor for the week of the study. If you are interested in taking part, please contact Anne-Marie Frohock, Paediatric Diabetes Dietitian by telephone on or by anne-marie.frohock@ouh.nhs.uk