4 Has this patient been transplanted No

Transcription

1 Form 1RL: Relisting Print this Form t Started 1 Date of Relisting Height and Weight 2 Height Centimeters Inches Calculated BSA: n/a BMI: n/a 3 Weight Kilograms Pounds 4 Has this patient been transplanted 4 Indicate total number of prior transplants This includes transplants that were and were not done at your hospital. 5 Main reason for Re Listing Coronary artery disease, (infarction, arrhythmia, CHF post MI) n Specific Graft Failure (>30 days post transplant) Pulmonary Hypertension/RV Failure Rejection, acute Rejection Hyperacute (onset < 24 hours post transplant) Rejection, Acute Sudden Cardiac Death, no MI documented 6 Contributing reason for Re Listing Coronary artery disease, (infarction, arrhythmia, CHF post MI) n compliance n specific graft failure (>30 days post transplant) Pulmonary Hypertension/RV Failure Rejection, acute

2 Rejection, hyperacute (onset < 24 hours post transplant) Sudden cardiac death, no MI documented Status Details at Re Listing 7a Status at Re Listing Brazil Canada United Kingdom United States 7a Status at Re Listing, US 1 (this option is only for listings prior to 1) 1A 1B 2 7 7a Exemption Status: transplant MD believes candidate urgency is comparable to other candidates at the requested status 7a Significant CHD per OPTN approved CHD diagnosis 7a Exemption Status: transplant MD believes candidate urgency is comparable to other candidates at the requested status 7a Status at Re Listing, Canada a Status at Re Listing, UK Routine Urgent 7a Status at Re Listing, Brazil n Priority Priority

3 7b Status Details Check all that Apply Per UNOS Policy 6.1 On 6/14/20 Has ductal dependent pulmonary or systemic circulation, with ductal patency maintained by stent of prostaglandin infusion In hospital Out of hospital Requires Inotropes 7b 7b 7b ICU Requires continuous mechanical ventilation Inotropes Dose High Dose or Multiple IV Single Low Dose 7b ABO incompatible Infectious Disease Screening HIV Serology AIDS testing CMV Serology CMV PCR EBV Serology EBV PCR

4 IFA Toxo Toxoplasma testing HBs Ag Hepatitis B surface antigen HB core Ab Hepatitis B core antibody HBs Ab Hepatitis B surface antibody Hep C Ab Hepatitis C antibody RPR/Syphilis Syphilis testing Medical History at time of Re Listing Medical History Medical History Details Select all medical history the patient had at the time of listing. Arrhythmia (current heart only) Cardiac arrest/cpr (current heart) Diabetes GI/Nutrition Heterotaxy/Isomerism Malignancy Metabolic Disorder Mitochondrial Disorder Neurological

5 Pacemaker (current heart) Peripheral myopathy/neuromuscular disease Prenatal Diagnosis Prior transfusions Renal insufficency Respiratory Shock (current heart) Syndrome Arrhythmia Afib/flutter Complete heart block V Fibrilliation V Tachycardia Date of last cardiac arrest/cpr Pacemaker Defibrillator/AICD Pacemaker, CRT/Biventricular pacing Pacemaker, not CRT and not ICD Pacemaker, not CRT and not ICD, Date Placed Pacemaker, CRT/Biventricular pacing Date palced, Date Placed Defibrillator/AICD, Date Placed Date of last appropriate Shock Date of Last Hgb A1c Value of Last Hgb A1c

6 Treating with Insulin GI/Nutrition Failure to thrive/cachexia Fontan associated liver disease Infectious hepatitis Protein losing Enteropathy Hepatitis History A B C Heterotaxy/Isomerism Asplenia Polysplenia Situs inversus Unspecified Malignancy Lymphoma, leukemia s/p BMT s/p Chest Radiation Solid organ cancer Neurologic Anoxic brain injury Hemorrhagic and/or thromboembolic stroke Anoxic Brain Injury Date Hemorrhagic and/or Thromboembolic Stroke, Date Last Peripheral myopathy/ neuromuscular disease Becker muscular dystrophy Duschenne muscular dystrophy Freidrich's ataxia Unspecified

7 Respiratory Asthma Plastic Bronchitis Tracheostomy Syndrome Cardiofaciocutaneous syndrome Costello syndrome DiGeorge (22q11 deletion) Down's/Trisomy 21 Ehlers Danlos Syndrome LEOPARD/Multiple Lentigenes Loeys Dietz Syndrome Marfan Syndrome onan syndrome Other Marfan like syndrome Turner Syndrome Unspecified Williams syndrome Renal Insufficiency Dialysis, acute (within past 30 days) Dialysis, chronic (>1 month duration) Dysfunction, not dialysis Specify Metabolic Disorder Specify Mitochondrial Disorder Insurance 10 Primary Insurance Charitable Donation Free Government Private Self Pay

8 Charitable Donation Indicates that a company, institution or individual(s) donated funds to pay for the care of the listed patient. Free Indicates that the listing hospital will not charge the patient for the cost of the hospitalization Government Other US or state government insurance. For Example, Medicaid, Medicare, CHIP (Children s Health Insurance Program), Department of VA refers to funds from the Veterans Administration or others. Private Refers to funds from agencies such as Blue Cross/Blue Shield, etc. Self Pay Indicates that the recipient will pay for the largest portion of the cost of the hospitalization. Other For example, funds from a foreign government. Specify foreign country in the space provided. Percent or Panel Reactive Antibody (closest to relisting) 11a Cytotoxic PRA ie. Serum is tested against panel of lymphocytes Done 11a 11a T Cell % B Cell % 11a Date (Cytotoxic PRA) 11b Cytotoxic PRA, DTE/DTT Panel performed on serum treated with DTE or DTT (or equivalent) to reduce the IgM antibodies and identify high PRA results presumably secondary to a drug or other causes. Done 11b 11b T Cell % B Cell % 11b Date (Cytotoxic PRA, DTE/DTT) 11c Flow Cytometry or Luminex PRA Done Class I %

9 11c 11c Class II % 11c Date 11d 11d Re listed for prospective crossmatch Prospective Crossmatch Type Donor Cells Donor Cells and Virtual Virtual 11d Virtual Crossmatch Avoidance of donor antigens to all antibodies present Avoidance of donor antigens to antibodies above pre specified threshold Avoidance of donor antigens to C1q fixing antibodies only Hemodynamics Prior to Re Listing Indicate the hemodynamics even if the patient is on pressors or inotropes. Best hemodynamics are those performed during the administration of agents given specifically to lower the pulmonary arterial pressure or the pulmonary vascular resistance. All pressures should be listed in mmhg. If unclear, please consult with your PI. Were hemodynamics done prior to relisting? Date Fontan Mean Pressure RAm (RAP or CVP) Right Atrial Mean Pressure PAm Pulmonary Artery Mean

10 PCW Mean Pulmonary Capillary Wedge Pressure SVC Sat Oxygen Saturation in the SVC AO Sat Aortic Saturation Rp, PVRI Pulmonary resistance indexed to body surface area (BSA) Woods Units x m 2 wu x m 2 Rs, SVRI Systemic resistance indexed to body surface area (BSA) Woods Units x m 2 wu x m 2 EDP End diastolic pressure of systemic ventricle C.O. Cardiac output (i.e. Qs) in L/min L/min C.I. L/min/m 2 Cardiac index (i.e. C.O. divided by m 2 ) in L/min/m 2 12b Was patient on mechanical support at time of Hemodynamics 12b Hemodynamic Agents 12b Indicate agent for best hemodynamics 100% O2 Dobutamine Dopamine Epinephrine Isuproterenol (Isuprel) Milrinone (Primacor) Nesiritide Nitric Oxide Nitroglycerin

11 Nitroprusside (Nipride) repinephrine PGE (Alprostadil) PGI (Flolan) Phenylephrine/ Neosynephrine Sildenafil Vasopressin Schooling Is patient in school? Are they at the age appropiate level Are they in a special education class t Applicable Exercise Test 14 Was exercise test performed? 14 If test no, specify reason Age Inappropriate Too Sick 14 Max VO 2% Predicted for Age Refers to predicted maximum VO 2 for patient (should be listed in exercise report; if not, exercise lab personnel should be able to provide this data) % 14 Respiratory Value at Peak Max VO 2 Maximum oxygen consumption ml/kg/min

12 14 Laboratory Values closest to time of this report te: labs may have been collected on different dates. Total Bilirubin mg/dl Direct Bilirubin mg/dl AST Aspartate transaminase (also SGOT) U/L ALT Alanine transaminase (also SGPT) U/L BNP B type natriuretic peptide pg/ml or ng/l Pro BNP Pro NT B type natriuretic peptide pg/ml or ng/l CRP C reactive protein mg/dl Creatinine mg/dl BUN Blood urea nitrogen mg/dl Cystatin C mg/l Total Protein g/dl

13 Pre Albumin mg/dl Serum Albumin g/dl Cholesterol Total Cholesterol mg/dl TG Triglycerides mg/dl LDL Low density lipoprotein mg/dl HDL High density lipoprotein mg/dl VLDL Very low density lipoprotein mg/dl NYHA and Ross' Heart Failure 16 NYHA Class NYHA Classes Class I: symptoms at any level of exertion and no limitation in ordinary physical activity. Class II: Mild symptoms and slight limitation during regular activity. Comfortable at rest. Class III: ticeable limitation due to symptoms, even during minimal activity. Comfortable only at rest. Class IV: Severe limitations. Experience symptoms even while at rest (sitting in a recliner or watching TV). 16 Ross Heart Failure Class

14 Ross Heart Failure Classes Class I: limitations or symptoms Class II: Mild tachypnea and/or diaphoresis with feeds in infants; dyspnea on exercise in older children. growth failure. Class III: Marked tachypnea and/or diaphoresis with feeds or exertion and prolonged feeding time with growth failure. Class IV: Symptomatic at rest with tachypnea, retractions, grunting or diaphoresis PHTS [test]