Cambridge Rare Disease Network Sponsorship Packages 2017

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1 Cambridge Rare Disease Network

2 About CRDN Cambridge Rare Disease Network is a newly established charity working to build a community of people in Cambridge to address the unmet needs in rare disease research and treatment. Our trustees include some of the UK s foremost experts in rare diseases, and our founding members come from diverse backgrounds in academia, business, healthcare and patient support networks. Medical research and drug development have transformed the outlook of countless people living with diseases that were formerly untreatable. Our challenge now is to create and maintain a climate that fosters innovations in health while providing widespread access and meeting therapeutic needs. Education is a key aim of CRDN as there is so much unknown about rare diseases. The aim of CRDN is to develop a rare disease e-learning platform and rare disease video information hub which will be of national and International importance Our team Kay Parkinson Alastair Kent, OBE Jo Balfour Dr. Tim Guilliams Flora Raffai Prof. Alan Barrell CEO Chair Conference & Events Director Founding Member Trustee Trustee

3 CRDN Annual Summit Cambridge International Rare Disease Summit, Monday 23rd October 2017, Robinson College, Cambridge This day-long event seeks to create a forum that brings together patient groups, healthcare, academics, researchers, biotech companies, and the pharmaceutical industry in a spirit of collaboration, innovation and passion to re-imagine and re-invent the rare disease patient journey. Theme: Re-imagining the Patient Journey We will provide a morning of exploration of inspirational rare disease patient journeys where patients and patient carers have been partners in healthcare and treatment development. Take a walk with us through casestudies from early symptoms, dead-ends and steps forward to diagnosis, patient group formation, campaigning and research to pharma collaboration and drug development. Patient groups have a chance to showcase posters in a Patient Journey Gallery and all delegates will enjoy wide networking opportunities with exhibition stand holders from industry and patient organisations Followed by a drinks and canape reception in the pleasant surroundings of the Crausaz Wordsworth building on site The afternoon will showcase pioneering work being undertaken in Cambridge and around the world to re-imagine and re-write the endings of rare disease patient journeys from drug re -purposing and pharma adoption of rare diseases to empowering patient revolution. Alastair Kent, OBE Chair of CRDN

4 camraredisease.org Why support CRDN? Contribute to global efforts in rare disease research aise your profile in the rare disease community among R delegates and research professionals Promote your presence to over 200 delegates at our annual International Summit Increase social media presence and coverage One in 17 people will develop a rare disease at some point in their lives that s 3.5 million in the UK alone. Most of these diseases manifest in early childhood and many are life-limiting conditions. It s vital that we now work together to see these advances make the leap from the lab bench to the bedside and in quality of life enhancement. The CRDN brings together stakeholders from research, industry, business, healthcare and patient charities making a real and positive difference in the lives of people living with rare diseases. CRDN Launch Event: Parent Entrepreneurship Judge Business School, Cambridge

5 Packages available Platinum 15,000 Panel participation for one person 4 complimentary passes for summit pre/after event) Highlighted as Platinum Sponsor at opening and closing notes Company text & logo on website sponsors section Company highlight in social media promotions and interviews Logo printed on signs at venue Head banner displayed on the event registration page Drinks and canapes sponsor Gold 10,000 4 complimentary passes for summit pre/after event) Highlighted as Gold Sponsor at opening and closing notes Company text & logo on website Sponsors section Company highlight in social media promotions and interviews Logo printed on signs at venue Head banner displayed on the event registration page Glisser audience participation technology sponsor With recent advances in medicine and genetics, we re more able than ever before to diagnose and treat rare diseases. We can even see cures on the horizon

6 Packages available Silver 6,000 3 complimentary passes per summit pre/after event) Highlighted as Silver Sponsor at opening and closing notes Company text & logo on website Sponsors section Company highlight in social media Logo printed on signs at venue Bronze 3,000 2 complimentary passes per summit pre event) Highlighted as Bronze Sponsor at opening and closing notes Company logo on website Sponsors section Company Highlight in social media The CRDN brings together stakeholders from research, industry, business, healthcare and patient charities making a real and positive difference in the lives of people living with rare diseases Contact Kay Parkinson, Chief Executive Officer Jo Balfour, Conference & Events Director kay@camraredisease.org jo@camraredisease.org

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