The Role of Maggie s Centres in Supporting People with Cancer and their Families. Mrs Karen Verrill Centre Head, Maggie s Newcastle

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1 The Role of Maggie s Centres in Supporting People with Cancer and their Families Mrs Karen Verrill Centre Head, Maggie s Newcastle

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3 Maggie s Newcastle

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9 Maggie s Vision Founded in 1995 by Maggie Keswick Jencks to provide support for people affected by cancer, their families, carers and friends Vision: A unique and pioneering model of psychosocial support to transform the way people live with cancer Purpose: to empower people to live with, through and beyond cancer by bringing together professional help, communities of support and building design to create exceptional centres.

10 Unique Model of Support Thoughtfully designed and purpose built World Class Architects ensuring each building is distinctive and unique. Close to the Hospital. Relaxing, welcoming, homely, open, light, supportive, non-clinical, enabling environment no signs, no uniforms, no charge! Specialist Team of Professionals - Centre Head, Cancer Support Specialists, Clinical Psychologist, Benefits Advisor, Fundraisers, Volunteers Unique people centred programme of care Drop in support service no referral needed, no barriers Peer support/kitchen table

11 5 Core Elements Emotional and psychological support Information Benefits advice Stress management and relaxation Other support for living with cancer

12 Maggie s Centres 20 Centres in 20 years including online and Hong Kong Further 10 within next 5 years 60 Cancer Centres in the UK Maggie s Centres on 50% of sites Fully independent of its sister hospital shares close links

13 Edinburgh Glasgow, Gatehouse Dundee Highlands Fife West London Cheltenham Swansea Nottingham

14 Glasgow, Gartnavel Newcastle Aberdeen Hong Kong Merseyside Lanarkshire Oxford Online

15 Maggie s provides free practical, emotional and social support for people with cancer, and their family and friends through our growing network of Centres across the UK & Online.

16 Maggie s Centres

17 Maggie s Newcastle

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19 Maggie s Edinburgh Holistic Cancer Centre James Cook, Middlesbrough

20 Maggie s Edinburgh Maggie s Newcastle Holistic Cancer Centre James Cook, Middlesbrough

21 Metro Boundary of Freeman Hospital Site Car Park Maggie s NCCC Buses

22 Maggie s Newcastle to date 1 st year expected 4,500 visitors 1 st 4 months > 5,000 visitors! < 3 years > 51,000 visitors Top 4! Where did everyone go before?

23 Small team of professional staff Maureen Elliott Kristy Carlson Marissa Magee Cancer Support Specialist Cancer Support Specialist Fundraising Manager

24 Cancer Support Specialists What we do Daily Drop In Triage - listen, unscramble, unpick, clarify, information giving, decision support, treatment related side effects, post treatment challenges, late effects, emotional A and E! Some booked 1:1 s Support/Networking Groups Courses Relaxation sessions Talking Heads Information library, leaflets, books, computers Collaborative working/h & WB, Signposting Focus Groups Educational Events

25 Benefits Advisor Finances can be extremely stressful for anyone who has experienced the impact of a cancer diagnosis. Since Maggie s opened in May 2013 > 4 million in benefits/grants has been obtained People with Primary Cancer can qualify for financial support although this is not widely known Our Benefits Advisor will be happy to advise

26 Psychologist Booked 1:1 s Joint sessions with the Centre Head Where now? Stress Management ACT Mindfulness Workshops Sleep Workshops

27 Where Now 7 week course focusing on supporting people after treatment has finished Week 1 Introductions, Ground Rules, Ice Breaker-help the Group connect Week 2 Benefits of Exercise Theoretical & Practical Week 3 Nutrition Week 4 Emotional Wellbeing Week 5 Post Treatment Challenges Week 6 Partnering with your Medical Team Week 7 Keeping up Momentum and Staying on Track

28 Stress Management (includes mindfulness and suggested homework) Week 1 Impact of trauma on the brain Week 2 Understanding the relationship between triggers, thoughts, feelings, physical sensations and helpful versus unhelpful behaviours Week 3 Thoughts and Language. Why thought control is impossible (e.g. don t think of a white bear) Week 4 Dealing with difficult feelings, Benefits of Mindfulness, the evidence Week 5 Dealing with difficult relationships and how to sleep better Week 6 Planning ahead for a better life. Reflections on the course and feedback

29 Sessional Therapists Nutrition Workshops Tai Chi Yoga Exercise Therapeutic Art Look Good Feel Better Return to Work Clinics

30 Eating Well

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33 Maggie s for Men

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35 Maggie s Newcastle future additions to the programme Radiotherapy collaboration/advice sessions Discharge Living with Secondary Breast Cancer Course Therapeutic Gardening Creative Writing Gospel Choir???

36 Maggie Keswick Jencks For people diagnosed with Cancer, not to lose the joy of living in the fear of dying

37 Maggie s Newcastle is a wonderful new resource for cancer patients in the North. However compassionately we deliver care at the Northern Centre for Cancer Care the focus is on medical treatment. Together, but separate, Maggie s and the NCCC come much closer to completely meeting the needs of cancer patients and their families. Cancer not only invades people s bodies but their lives and families as well. Maggie s can support patients, their families and carers in finding a way not just to cope but to live as well as possible. Dr Tony Branson, Consultant Medical Oncologist of the Northern Centre for Cancer Care and Medical Director of The North of England Cancer Network