Cancer Society of New Zealand. Development of a Survivorship Model in New Zealand Alexandra Leggat, Health Psychologist, Auckland Northland Division

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1 Cancer Society of New Zealand Development of a Survivorship Model in New Zealand Alexandra Leggat, Health Psychologist, Auckland Northland Division

2 Overview Survivorship A shifting paradigm What s happening internationally Why develop a Model? Feedback from the Survivorship forum Next steps

3 An individual is considered a survivor from the time of diagnosis through the balance of his or her life The national cancer Institute

4 How things have changed Faster treatments Early detection and awareness Growing and Aging population Better treatments

5 Models of Survivorship Care United Kingdom Source: Department of Health, Macmillan Cancer Support and NHS Improvement, NCSI Vision, 2010, p. 23 NZ Cancer Survivorship Model National Workshop 2016

6 Models of Survivorship Care - UK Source: Macmillan Cancer Support NZ Cancer Survivorship Model National Workshop 2016

7

8

9 Models of Survivorship Care Australia Clinical Oncology Society of Australia NZ Cancer Survivorship Model National Workshop 2016

10 Models of Survivorship Care USA American Society for Clinical Oncology NZ Cancer Survivorship Model National Workshop 2016

11 Why Develop a Model?

12 One year ago I completed treatment for breast cancer. When I left the hospital the day of my last dose of radiation, my sister rang to congratulate me on having gotten through what was an horrific nine months She asked if I was going to celebrate and I burst into tears. Just when I expected to feel ecstatic, I felt lost and confused. Did I have cancer that morning when they strapped me into the radiation machine, and that afternoon I didn t? I d been a cancer patient for a year, who was I now?

13 I was more afraid at that moment than any other moment since my diagnosis During treatment I was so focused on fighting the disease. Surrounded by those whose job it was to help take on the cancer. I was too busy being sick to think about dying. Having leaned heavily on my family and friends throughout the previous year, I was also self conscious about sharing this new crisis with them how could I tell them the mental anguish had only just begun.

14 12/17/10

15 12/17/10

16 National Survivorship Forum: Wellington 2016 A chance to bring people together Work collaboratively Highlight great work in this area Brainstorm for the future

17 1.What are the critical components or factors of survivorship care in New Zealand 2.What would a pathway for survivorship look like? And how wide is the scope? 3.Who makes up the survivorship workforce? And should there be survivorship standards and competencies? 4.What does the transition process look like, throughout the cancer care continuum?

18 The workshop highlighted several key themes: Survivorship Care planning from diagnosis with the patient at the centre Coordinated services during and post treatment Workforce requirements to support survivorship Equity of access and culturally appropriate support

19 Survivorship care planning

20 Coordination of services

21 Workforce requirements

22 Equity of access

23 Next steps: A document for distribution The beginnings of model development Continued collaboration and communication

24 The Cancer Society of New Zealand, Central Cancer Network and Cancer Nurses College thanks all those involved

25 ANY CANCER, ANY QUESTION ( 237 (226 CANCER 0800 Cancer Information Helpline Input division details here A Level 2 Red Cross House, 69 Molesworth Street, Thorndon, PO Box , Wellington 6144 T (04) F (04)

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