A NNUAL R EPORT

Transcription

1 SOCIETY OF SINGAPORE A NNUAL R EPORT the factor... THE HAEMOPHILIA SOCIETY OF SINGAPORE.

2 ABOUT US The Haemophilia Society of Singapore is a voluntary organization that was set up in 1985 by a group of people with haemophilia, parents, healthcare providers and some interested professionals. It is an Institution of Public Character and an affiliated member of the National Council of Social Service and a member of the World Federation of Haemophilia. The Society s main service to its members is to provide subsidies for members treatment costs at three government hospitals. This is to alleviate the high costs that members often incur following bleeding episodes. Apart from financial assistance, the Society offers support to parents to help them cope with a haemophilic child, promotes home treatment and keeps members abreast of developments in the area of haemophilia care. Our Mission To ensure that every person with haemophilia receives affordable and safe treatment so as to lead full and productive lives in society. Our Objectives * To help people with haemophilia to achieve their potential. * To look after the welfare of people with haemophilia. * To assist with treatment costs * To promote public awareness and understanding of haemophilia Registered Address Block 704 Bedok Reservoir Road # Singapore Mailing Address Farrer Road P O Box 0273 Singapore Key Bankers DBS Bank Maybank Auditors TKNP International Treatment Centres Singapore General Hospital Haematology Staff-in-charge : Lillie Ho Telephone No. : National University Hospital Paediatrics Doctor-in-charge : Dr Koh Pei Lin Telephone No. : KK Women s & Children s Hospital Paediatric Haematology Staff-in-charge : Lim Chiew Ying Telephone No. : Charity Registration No: Unique Entity No: S85SS0047A Website: Society Registration No: ROS 105/85 For enquiries: ( Dr Tan HH ) ( Dr Gan KL )

3 contents President s Message 2 Highlights of the Year 3 Key Programmes 4 & 5 Executive Committee 2013/14 6 My World Congress Experience 7 - a parent s perspective Journey with Haemophilia (I) 8 Journey with Haemophilia (II) 9 Financial Information Summary 10 Audited Financial Information 11 & 12 List of Donors 13 The Society s Song ANNUAL REPORT

4 PRESIDENT S MESSAGE The year started on a promising note. The Society received the good news in July 2013 that it was a beneficiary for a fund raising event organized by the students of Hillgrove Secondary School. To receive such support from the community was indeed great encouragement for us in our quest to better the lives of the members with haemophilia under the Haemophilia Society umbrella. Treatment for haemophilia is expensive and the Society s income is expended mainly on subsidies for treatment costs of its members. Our Society s focus is to have an effective long term plan for the management of haemophilia needs with co-operation from persons with haemophilia, healthcare professionals and the Ministry of Health. We have a dedicated team of healthcare professionals in the Treatment Centres at Singapore General Hospital, National University Hospital and KK Women & Children s Hospital who provide optimal care for patients with haemophilia. This has enabled Singapore to be ranked alongside developed societies. Haemophilia, as opposed to other chronic genetic illness, has the potential of a normal outcome, with adequate therapy. This is shown in countries like Sweden, Netherlands and Australia. We hope to see greater use of prophylaxis in children as it will be more cost effective in the long term. The Society hopes to bring such issues to the attention of the authorities and to voice its views on healthcare policies that may directly impact those with haemophilia. Our recent participation at the May WFH 2014 World Congress held in Melbourne, Australia, provided opportunities for exchange with healthcare professionals and patients on challenges and solutions to improve treatment, to share insights on patient healthcare issues and care and to network with people around the world. It was indeed an enriching experience for the few of us who were there. The Society s total expenditure was $170, and our total income for the year 2013/14 was $224,975.00, 153% higher than the previous year, giving us a modest surplus of $54, The increase in income was largely attributed to the generosity of our wellwishers and a successful charity film premiere that was held in May As a small charity, we face many challenges especially in the area of fund raising, but with passion and zeal, we can overcome the odds and achieve! My sincere thanks to Member of Parliament, Ms Low Yen Ling, Chua Chu Kang GRC and who is also the Parliamentary Secretary of Culture, Community and Youth, Baxter Pharmaceuticals (Asia) Pte Ltd, Lee Foundation and Singapore Island Country Club, among others, for their support which helped us to achieve our target. In conclusion, I wish to express my heartfelt appreciation and thanks to the Executive Committee for their dedication and valuable contributions to the work of our Society. I hope that more members will volunteer themselves to continue the work of the Society. I believe that the baton must be passed on to the younger generation to helm the Society. Lastly to our donors, volunteers and wellwishers, thank you for supporting our cause this past year. We look forward to your support in the coming years. Together we can strive for an even better tomorrow. Dr Tan Hooi Hwa President Haemophilia Society of Singapore 2 ANNUAL REPORT

5 HIGHLIGHTS OF THE YEAR In June 2013, the Haemophilia Society of Singapore was informed by Member of Parliament, Ms Low Yen Ling from the Chua Chu Kang GRC, that it was one of two beneficiaries to benefit from the fund raising efforts of the students from Hillgrove Secondary School. The students were involved in a community project to collect old newspapers from households in the school s vicinity and then sell the newspapers to raise funds for the charities concerned. MP Low Yen Ling and students visiting residents to collect old newspapers Group photo of students of Hillgrove Sec School Cheque Presentation Haemophilia Awareness Day Know My Bleeding Points On 30 July, 2013, Dr Tan Hooi Hwa, Ms See Ek May and Ng Kheng Chew attended the cheque presentation ceremony at the school. The Society thanked MP Ms Low Yen Ling, the Principal, staff and students of Hillgrove Secondary School for their combined effort to extend a helping hand to the less fortunate in the community. The Society was given an opportunity to address the school and acquainted the students about haemophilia, a condition unfamiliar to them. They also met Kheng Chew, a student with this condition. In April 2014, to mark World Haemophilia Day which falls on 17 April, the SingHealth cluster of hospitals, namely Singapore General Hospital and KK Children s Hospital, together with Baxter Healthcare (Asia) and Novo Nordis, involved the Haemophilia Society of Singapore to be a part of the Haemophilia Awareness Day event at United Square on 12 April, The Guest-of-Honour was Dr Lam Pin Min, Chairman Government Parliamentary Committee for Health and Member of Parliament, Sengkang West Constituency. Members of the public learnt more about bleeding disorders from staff present and the various posters, pamphlets and exhibits. The publicity generated created a greater awareness about haemophilia and the existence of the Society and the work it does. On 4 May, 2014, the 3D Film The Amazing Spiderman 2 was screened at Cathay Theatre this being the Haemophilia Society s first Charity Film Premiere, to raise funds for the Society. The event was sponsored by Baxter Healthcare (Asia). Member of Parliament, Ms Low Yen Ling, who is also the Parliamentary Secretary of Culture, Community and Youth, graced the occasion. Charity Film Premiere Group Photo : Drs Tan & Gan, MP Low Yen Ling, Mr & Mrs Shankar Kaul & Grace Khoo Media publicity was by way of interviews with two members of the Society. Mr Chong Kek Ngow appeared on Channel News Asia regarding medical and costs of living. Six year old Lee Jue Ming and his father were in a special feature by Ministry of Health on how Medifund has helped with Jue Ming s healthcare expenses. Straits Times also had an article on Jue Ming on 21 April, 2014 and Singapore Press Holdings kindly arranged for a video that showed little Jue Ming at home, at play and in hospital for his infusions. This was available on-line too. The media effort allowed for greater coverage in terms of wider readership and viewership and enabled the Society to gain from the exposure. The highlights of the year culminated in the WFH 2014 World Congress which was held in Melbourne, Australia from May, Dr Tan Hooi Hwa, Dr Gan Kim Loon, See Ek May and Grace Vaz represented the Haemophilia Society of Singapore at the Congress. Their participation was made possible through the kind sponsorships from Baxter Healthcare (Asia) and Biotest. The WFH Congress is considered the largest international meeting for the global bleeding disorders community. The team from Singapore gained much knowledge in terms of advances in treatment and best practice care. ANNUAL REPORT

6 KEY PROGRAMMES There are about 200 people in Singapore with haemophilia all males. Haemophilia is usually inherited, but one-third of people have no previous history. Members of the Haemophilia Society of Singapore comprise babies, toddlers, children, youths, young and mature adults. Growing up with haemophilia involves the whole family. With today s medical advances, parents need not feel it is the end of the world when their sons are diagnosed with haemophilia. All these boys can have a bright future once the missing factor is replaced. Effective treatment for haemophilia is available, but as yet there is no cure. Treatment is very costly for those with haemophilia and most working individuals and families would have difficulties meeting treatment costs, especially if they experience frequent bleeding episodes into muscles and joints, which if not managed properly, can cause arthritis and joint problems. Aid from the Society is rendered to all its members regardless of financial background, to help alleviate the heavy costs of treatment. The key programmes offered by the Society are aimed at addressing the different needs of our members. Treatment Subsidy Haemophilia is treated by replacing the missing clotting factor in the blood. This is done by injecting a product that contains the needed factor into the vein. Bleeding stops when enough clotting factor reaches the affected area. The Society assists its members with monthly subsidies to defray part of their treatment costs, capped at $ and $ per month for youths /adults and children respectively. The subsidies programme is the main expenditure item for the Society. Hence all its funds raised are used mainly to support this programme. Welfare Fund The Society has in place a welfare fund, with funds specifically designated to provide financial assistance to members with haemophilia facing financial hardships. Members who require financial aid would need to submit their request and aid is approved when the situation warrants it. The approved applicants are reviewed every quarterly and they are encouraged to seek employment where possible, rather than be dependent on the Society. Educational Awards The Society initiated the Educational Awards programme, also known as Merit Awards in the year The awards were to encourage our members in primary, secondary, junior colleges and polytechnics to value the importance of education, that with education they can improve their lives and reach higher heights. The awards given at each Annual General Meeting are based on academic performance and the two categories are excellence and encouragement and the monetary rewards range from $ (junior college/polytechnic) to $ (primary). This year, 8 awards were given to members from primary (1), secondary (5 ), Polytechnic (1) and SIM Diploma (1). The Dulcie Wilson Scholarship Fund in memory of the late Mrs Dulcie Wilson was set up in A sum of $20, was set aside for this purpose. This fund would be used to assist those pursuing studies in a recognized local tertiary institution. Grants of a maximum of $1, per academic year would be granted to a maximum of 3 members per year. The scholarships are given on a yearly basis. No applications have been received to date. Merit Awards Presentation to Benjamin Tang 4 ANNUAL REPORT

7 Seminars / Talks Seminars and talks are organized for members of the Society to impart knowledge of haemophilia, to keep members abreast of latest developments and management of haemophilia from specialists in the field, both locally and from overseas. Talks for members range from caring for joints, importance of dental care, to physical activities members can engage in. Support Group The Mothers Support Group which was started in 2009 had been well received. Its purpose was to enable mothers with haemophilic sons to come together to share their experiences in managing their sons conditions and to obtain moral and emotional support from one another. Most mothers gave positive feedback of the support group as the mothers feel connected as they share a common bond. At these gatherings, mothers and their sons are encouraged to learn self-infusion so that the clotting factor can be administered promptly to minimize bleeding episodes.this would enable them to be on home treatment with minimal disruption to their daily routine. Dr Scott Dunkley s talk Slide on EmPowerMent Activities / Outings During the year, the Society arranged for different activities or outings for its members. In 2013, some of our members attended two talks by Dr Joyce Lam, Consultant, Paediatric Haematology, KKCH who spoke on Know Your Factors and Dr Scott Dunkley, Specialist Haematologist and Director, Haemophilia Treatment Centre at the Royal Prince Alfred Hospital, Sydney, whose topic was Prophylaxis Is this still relevant? In October, members also had the opportunity to hear educational psychologist, Dr Gloria Kong s talk on EmPowerMent at the Medical Alumni Theatrette. The talk was especially beneficial to the youths who were asked to examine elements within themselves that could help them be the best that they can be. In 2014, the Society organized outings for members to Sungei Buloh Wetland Reserves, the Nyee Phoa Flower Garden and the Live Turtle & Tortoise Sungei Buloh Outing World Haemophilia Day Lunch photo Museum. For the Sungei Buloh outing, the Society was assisted by the Nature Society of Singapore, who provided a bi-lingual volunteer to conduct the guided trek of the Reserves. On 13 April, 2014, to commemorate World Haemophilia Day, more than 50 members of the Society had a sumptuous buffet lunch at the FernTree Café, Miramar Hotel. Food and fellowship made the event memorable! ANNUAL REPORT

8 EXECUTIVE COMMITTEE 2013/14 Name Designation Date of Appointment Dr Tan Hooi Hwa President 29 September, 2013 Dr Gan Kim Loon Vice-President 29 September, 2013 Wee Ai Choo Honorary Secretary 29 September, 2013 Chang Yew Wye Assistant Honorary 29 September, 2013 David Secretary Lim Keok Kung Honorary Treasurer 29 September, 2013 Freddy Members: Ng Teck Hiang 29 September, 2013 Poh Soon Leong 29 September, 2013 Wee Lester 29 September, 2013 See Ek May 29 September, 2013 Ang Har Boon 29 September, 2013 Anthony Haemophilia Society of Singapore is governed by the Executive Committee which has the authority and responsibility for policy making and determination of activities. Members of the Committee are volunteers and receive no monetary renumeration for their contribution. 6 ANNUAL REPORT

9 MY WORLD CONGRESS EXPERIENCE - a parent s perspective I had the privilege of attending the WFH 2014 World Congress in Melbourne, Australia in May. It was an eye-opener. Never have I met so many people interested in haemophilia. There were possibly a few thousand at the World Congress and they came from all around the world. I met people from the Philippines, Malaysia, Brazil, America, Canada, India, Iran, Australia and many other countries. Many of those I met are themselves suffering from haemophilia. They are successful people in life, among them are doctors, psychologists, therapists, teachers and businessmen. Haemophilia is just a small disorder in their lives. While some of them suffered from the physical effects of poorly treated injuries, they all worked around their affliction and live successful, fruitful lives. As one of them said, haemophilia is just 5% of their lives. 95% of the time, they are normal and should be treated as normal. I agree totally! I believe that we must look at the positive side and focus on the ability, not the disability. I was very much inspired by the young adults and teenagers who involved themselves in the Congress, sitting in the sessions, learning more about the disorder and contributing to discussions. It was good to see them interested and taking personal responsibility to do more for themselves and their community. I was touched to see family members, not just parents, but also siblings and wives, who also attended the Congress to support their son/brother/husband in coping with haemophilia. The Congress catered to a wide range of interests from medical/dental, to nursing, to psychosocial and musculoskeletal. For me, I attended many workshops and one of the topics that struck me was the one about the impact of haemophilia on family members. I realized that many times we fail to consider the emotional needs of siblings. We should remember not to place the needs of the child with haemophilia above others. How we parent our children and cope with the disorder may impact sibling s relationship with their brother with haemophilia. Another workshop that resonated with me was one where the speaker reminded the audience not to pamper our children with haemophilia. As with normal kids, pampering can do much harm. A winning combination for success in life is: Grit and Good Fortune. Grit because the individual s passion and perseverance are important and good fortune where one has good doctors, nurses, family and community who can support the treatment and or create opportunities for growth. My experience at the Congress has shown how important it is for us to come forward to do something for our children, for our community and that all of us have a role to play and to contribute. Let us not wait for others to advocate for us. Instead we need to work together for our children and all who suffer from haemophilia. Only then can we make things happen. Grace Vaz ANNUAL REPORT

10 JOURNEY WITH HAEMOPHILIA (I) Two of our boys, six year old Lee Jue Ming and fourteen year old Ng Kheng Chew were featured in local publications. We share their journey with haemophilia. LEE JUE MING The boy who can t stop bleeding Whenever Lee Jue Ming goes out to play, his mother s heart skips a beat. This six year old has severe haemophilia, a rare condition that prevents his blood from clotting. He has less than 1 per cent of the normal amount of clotting factors in his blood. He bruises easily and often suffers spontaneous bleeding in the muscles and joints even when there is no injury. If he falls and cuts himself, the result can be devastating. He will need immediate infusion of blood-clotting proteins, also known as clotting factors, to stop the bleeding. His mother, Madam Ong Lee May, a human resource assistant, would often take Jue Ming and his sister, Wan Ting, 10, to the indoor playground at Changi Airport Terminal One. The playground s padded surfaces help cushion falls. The admission is free. We always try to be the first one there at 8 am to avoid the crowd. We would play with him, climb with him and just follow him around in case we need to catch hold of him if he falls, said Madam Ong. Jue Ming s treatment costs of $1,440 a month are now fully covered by Medifund. This is a relief to Madam Ong, whose take home pay is about $2000 a month. Her husband, Mr Lee Kwong Luen, quit his job as a mechanic when Jue Ming was six months old to care for him full- time. We hope that Jue Ming stays healthy, safe, happy always and can take care of himself eventually. If he can do well in his studies, it will be a bonus, said Madam Ong. * This article appeared in the Straits Times on 21 April, ANNUAL REPORT

11 JOURNEY WITH HAEMOPHILIA (Il) NG KHENG CHEW Sidelined but not forgotten While other kids run around and play without a care in the world, K.C. cuts a lonesome figure during Physical education lessons, watching from the sidelines. He suffers from haemophilia and so has to avoid physical activities that might cause bleeding especially contact sports such as rugby, football and basketball. When I was younger, I had to stop myself from playing rough, as I will get injured, says K.C. I am most afraid of joint bleeds as they are really painful. These bleeds take a long time to heal and damage my joints. Over time, the joints that suffered bleeding will become targets, so bleeds will frequently take place at these sites. There are the challenges of looking after a person with haemophilia. When he was little, his parents had to watch him round the clock and constantly check his body for signs of bleeding. Like all parents of children with haemophilia, they had to rush off to the hospital as often as four times a week for factor infusion and often meant missing work in the morning. K.C. needs regular intravenous infusions of blood-clotting factor as his ankle joint bleeds spontaneously. Before the age of five, the traumatic experience of being frequently injected was done in hospital by doctors or nurses. After he turned five, his parents learnt to administer the infusions at home. The ability to self-infuse means he can treat bleeds immediately at home instead of going to the hospital to seek help. When K.C. was young, his parents opted for treatment only when he had a bleeding episode instead of regular infusions which will help prevent spontaneous bleeds. This was because the infusions were very expensive. One vial of factor can costs from $130 to over $1000, depending on the sub-type of haemophilia. Although K.C. is thin, he requires a minimum of five vials to reduce bleeding. Dosage depends on the patient s body weight the greater the weight, the larger the amount of factor needed. His family thus spends about $1,250 a month on the infusions, after subsidies from the government and the Haemophilia Society of Singapore. Haemophilia is a life-long disease and the high cost of treatment is a major issue. Insurance companies have also rejected K.C. s parents attempts to buy him medical insurance. Now that I am bigger, it is somewhat easier to cope with haemophilia as I am able to take care of myself and suffer fewer bleeding episodes, says K.C. Currently he does not play any sports, but he knows how to swim and he enjoys playing the piano. Thankfully, haemophilia has not affected his studies or social life. I am like everyone else and I hang out with my friends. * Source: Haemophilia Society of Singapore s brochure ANNUAL REPORT

12 Financial information summary Breakdown of Total Income 2013/ % 3.59% Donations 94.87% Membership Fees Others Donations $213, % Membership Fees $3, % Others $8, % Breakdown of Total Expenses 2013/ % 90.15% Treatment Subsidies Administration Treatment Subsidies $153, % Administration $16, % 10 ANNUAL REPORT

13 THE HAEMOPHILIA SOCIETY OF SINGAPORE (Charity Registration No: &Society No: S85SS0047A) STATEMENT OF FINANCIAL POSITION AS AT 30 JUNE 2014 Note $ $ ASSETS Non-current assets Property, plant and equipment Current assets Cash and bank balances 5 1,171,212 1,138,636 Grant receivable 7 21,400 - Other receivables 6 1,600 1,960 1,194,212 1,140,596 Total assets 1,194,471 1,140,975 EQUITY AND LIABILITIES Current liabilities Other payables 8 4,800 6,360 Deferred interest income 1,800-6,600 6,360 Funds Unrestricted - Haemophilia welfare fund 9 50,265 52,065 - Dulcie Wilson scholarship fund 10 20,000 20,000 - Accumulated fund 1,117,606 1,062,550 1,187,871 1,134,615 Total liabilities and funds 1,194,471 1,140,975 See accompanying notes to the financial statements In our opinion, the financial statements are properly drawn up in accordance with the Charities Act, Cap 37, Recommended Accounting Practice 6, Societies Act, Cap 311 and Singapore Financial Reporting Standards and so as to give a true and fair view of the state of affairs of the society as at 30 June 2014 and the results, changes in funds and cash flows of the society for the financial year ended on that date. Report on Other Legal and Regulatory Requirements In our opinion, the accounting and other records required by the Act to be kept by the society have been properly kept in accordance with the provisions of the Act. TKNP INTERNATIONAL Public Accountants and Chartered Accountants Singapore

14 THE HAEMOPHILIA SOCIETY OF SINGAPORE (Charity Registration No: &Society No: S85SS0047A) STATEMENT OF FINANCIAL ACTIvITIES FOR THE FINANCIAL YEAR ENDED 30 JUNE Note Unrestricted Restricted Endowment Unrestricted Restricted Endowment Funds Funds Funds Total Funds Funds Funds Total $ $ $ $ $ $ $ $ Incoming resources Incoming resources from generated funds - Voluntary income , ,499 78, ,916 - Investment income 8, ,496 9, ,769 - Grant income 21,400 21, Total incoming resources 225, ,395 88, ,685 Resources expended Cost of generating voluntary funds - Depreciation Charity event 2, , Entertainment and refreshment 1, ,754 1, ,055 - General expenses IT related costs 1, , Miscellaneous Postage and stationery 3, ,934 1, ,524 10, ,323 3, ,685 Cost of charitable activities - Medical fee subsidies to members Membership fees - NCSS Membership fees - WFH Sub-total carried forward 1, , THE HAEMOPHILIA SOCIETY OF SINGAPORE (Charity Registration No: &Society No: S85SS0047A) STATEMENT OF FINANCIAL ACTIvITIES FOR THE FINANCIAL YEAR ENDED 30 JUNE Note Unrestricted Restricted Endowment Unrestricted Restricted Endowment Funds Funds Funds Total Funds Funds Funds Total $ $ $ $ $ $ $ $ - Sub-total brought forward 1, , Subsidy of treatment NUH Endowment Fund 77, ,320 89, ,041 - Subsidy of treatment SGH Endowment Fund 32, ,700 40, ,860 - Subsidy of treatment KKH Endowment Fund 39, ,150 27, ,372 - Welfare outing for members Welfare merit award 2, ,500 2, , , , , ,927 Governance costs - Accountancy fees 3, ,200 3, ,100 - Auditors remuneration 3, ,000 3, ,000 6, ,200 6, ,100 Finance cost Total resources expended 170, , , ,177 Net surplus/(deficit) resources 55, ,056 (81,492) - - (81,492) See accompanying notes to the financial statements

15 LIST OF DONORS Ang Edwin Ang Han Chunn, Dannyn Ang Peng Chye (Dr) Ang Shu Qiong Au Ying Lai, Lydia Chan Chew Hua Chai Siow Peng Chan Siew Hoon Chee Chun Woei Chee Jing Jye (Dr) Chee Liee Chin Chen Wei Ching Chew Hwee Koon, Ivy Chin Wai Huoy, Claire Choe Peng Sum Choh Siew Choon Chong Gabriel Chong Siew Peng Chong Yee Feng Chu Kim Mui Chua Chung Peow Chua Han Yong Chua Harry Chua Meng Pin Dharmadi Betty Foo Cui Yun Foo Siang-Kee Fu Chun Yan Gan Rosie Gehle, Helmut Ghui Zhong Jun, Shannon Goh Han Meng Goh Koon Tho Goh Poh Ngee Goh Siew Hong Goh Siong Hoe Hall, Carolyn Heah Siew Min Heng Puay Fung Ho Kah Chung Ho Kwong Soon Ho May Sian Hong Siew Chen Hu Ian Jin Kaul, Shankar I n d i v i d u a l s Khoo Chwee Tin Kinman, John Koh Barbara Koh Zhen Hao Kong Wai Ping, Irene Kum Kelly Kuo Yew Ting Lam Ching Mei, Joyce (Dr) Lam Yeng Chin Le Meur, Carole Lee Hwee Chin, Erin Lee Michelle Lee Ren Sheng Liaw Jimmy Lim Ah Lay, Judy Lim Cheng Bee Lim Chiew Har Lim Chin Yiong, Jesper Lim Lian Arn (Dr) Loh Sow Mui, Karin Low Kok Chun Low Li Ying Low Wai Yee, Yvonne MayKyaw Soe Nyunt Ng Geok Hoon, Agnes Ng Jolene Ng Leong Chin Ng Mary Ng Peik Lan Ng Shuh Fang Ng Teck Hiang Ng Wei Ren, Clement Nur Sakinah bte Mahadi Ong Eng Hwa, Christopher Ong Lay Har Ong Yeow Chon Pan Cheng Lui Pan Yi Wen, Andy Pang Heng Mun Poh Beow Kiong Pon Yuet Peng Quek Hwee Choo Quek Sim Pin Rajah, Chelva Raull, Mary Seah Yuri See Beng Teck (Dr) See Li Ling Seng Ah Ngoh, Nerine Seng Boon Kheng (Dr) Sia Yoke Leng Sim Wee Li Soeparto Soh Siew Hong Song Darelle Tan Hooi Hwa (Dr) Tan Huang Tai, Peter Tan Isobel Tan Keshia Tan Kim Hock Tan Lai Ean Tan Lai See Tan Loon Ying Tan Siew Tuan Tan Suat Cheng Tan Wai Peng Tang Wee Loke Tensingh, Edwin Teo Soo Ling, Catherine Tham Chuey Ping Tien Sim Leng (Dr) Toh Wei Lin Tong Moo Kiat Vaz, Gerard Wagner, Juergen Wee Kim Hin Wee Shen Wen, Clinton Wee Shiang Ning Wee Soon Bing Whang Shang Ying Whang Tar Liang Wong Chen Liong Wong Chi Lun, Allan Wong George Wong Kee Ming Xiao Zhiqiang, Zed Yap Boon Kim, Pamela Yip Lai Lai, Lily Yong Kuek Siong (Dr) Young, Richard Fe O r g a n i s a t i o n s AllAlloy Dynaweld Pte Ltd Loyang Tua Pek Kong Temple Baxter Healthcare (Asia) Pte Ltd Qeren Communications Pte Ltd Char Yong (DABU) Fdn Pte Ltd Royal Thai Embassy DCA Architects Pte Ltd Sartorius Stedim Pte Ltd Eshcol Pharmaceutical Group Singapore Island Country Club Hillgrove Secondary School Singapore Press Holdings Ltd Lee Foundation ANNUAL REPORT

16 The Society s Song A RAY OF HOPE Everyday as the world unfolds We can see we are not alone Hand in hand, everyone we stand Firm with no regrets Though at times, we say life is unfair At times we just can t go on Then again, just a few steps away We witness a ray of hope So be strong, let us carry on To live a life worth living for Travelling on with our hearts as one Never letting go So at times, we say life is unfair Remember our song, our prayer Let it be our pillar of strength For many more years to come Mmm..(fade to end) This song was composed by Dayvid Foo, a member of the Haemophilia Society of Singapore. The song can be accessed from the Society s website. Annual Report Editorial Committee Dr Tan Hooi Hwa Dr Gan Kim Loon Wee Ai Choo See Ek May Printed by: Tri-Art Printers Pte Ltd