ON DEATH AND DYING. DR. LAURA MATOS AFA/CDCGS Texas State Council On AD And Related Disorders, Austin 2007
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1 ON DEATH AND DYING DR. LAURA MATOS AFA/CDCGS Texas State Council On AD And Related Disorders, Austin 2007
2 WHAT IS DEATH? SCIENTIFICALLY SPIRITUALLY SOCIALLY IT IS A MYSTERY, that historically, since the beginning of the humanity all inhabitants have tried to understand and disclose.
3 WHAT IS DEATH? All definitions are appropriate since they are based on the pre-determinant factors AND FOR YOU, WHAT IS IT?
4 WHAT IS NOT? It is not a failure Should not be feared Our own mortality comes guarantee the minute we are alive DYING IS A NATURAL ACT
5 Medical Science has determined terminally ill patient as those patients that are suffering for an illness that gives them not more than 6 months of life.
6 WHAT S IMPORTANT AT THE DYING MOMENT? It varies from culture to culture From family to family For religious creed to creed IT IS BY ALL MEANS A MOMENT OF THE MOST INTIMATE RECONCILIATION WITH THE GOD WE BELIEVE AND THE PEOPLE WE LOVE
7 The respect to His/Her Terminally Ill, Universal Rights Preservation of their human rights until the last minute Respect of His/Her decisions Dynamic participation in the last minute decisions if possible. Maximum Physical Comfort
8 WHAT A DYING PERSON NEEDS? -Maximum Pain Control -Constant company ( fear to loneliness) -Fulfillment of the spiritual needs -Fulfillment of his/her social needs -Fulfillment of his/her personal realization needs -Satisfaction of the emotional needs
9 They need constant validation Not worries or concerns for unfinished business Tranquility Peaceful environment Need of feeling unconditional love Personal interactions in spite of physical limitations
10 The patient has full acknowledgement of His/Her circumstance and accepts destiny No Physical pain Time for making peace with the loved ones Time for spiritual intimate reconciliation Medical Assistance Spiritual Assistance
11 The one that lacks all the human needs fulfilled Characterized by physical suffering, loneliness null time for preparation and goodbye Sudden Death Suicide Accidental Death Crime Death
12 RETROGENESIS AND COMMUNICATION WITH THE A.D. PATIENTS IN SEVERE STAGE OF A.D. HAS PROVEN THEIR CAPACITY OF THINKING IS PRESERVED (Dr. Auer 1994) Therefore the common statements made in front of any AD patient about does not recognize me, does not understand what we said are false and hurtful
13 Retrogenesis (Reinberg 2002) it s the process by which the degenerative process of the organism follows the reverse order by which they were acquired Comparing the developmental scales in children with the deterioration rates in the AD patients this theory has established a clear co-relation between development stage and deterioration of functions
14 Caregivers assume the Ad patients DO NOT HAVE any of the above mentioned needs limiting with this assumption their LIFE S QUALITY. Our AD patients feel, have intact emotions and thinking process. They cannot express their needs and caregivers are limited to fill it.
15 Using the retrogenesis theory, we certainly can make a world of difference in providing the AD patients in all stages of the disease the satisfaction of all his needs. Our dying AD patient needs more of us than anyone else.
16 It will vary greatly according to the cause of death, the person s general health, medications and any other significant factors It can last from 12 hours up to 72 hours In general we see: Less physical activity, communication and interest in the surroundings.
17 Changes body in temperature and Blood pressure Less interest in food or water Verbalizations decrease( not spontaneous speaking) but still communicates with body language or metaphorically Coma
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21 GRIEF Elizabeth Kubler- Ross developed a model of grieve. On her life long experience caring for chronic terminally ill patients she corroborated these patients go through all the stages and how to guide the families and caregivers to understand them and to live them in a more benevolent manner
22 Denial Anger Bargaining Depression Acceptance GRIEF STAGES
23 GRIEF AND THE CAREGIVERS Grief in unlike any other life experience It is an engulfing, overpowering self consuming experience Usually we become overprotective of our beloved ones Over worry y about either simple or tragic imaginary events
24 GRIEF AND THE CAREGIVERS Caregiver becomes disorganized, unfocussed and the attention wanders. Disbelief, AD caregivers experience disbelief in a very low percent, we all suffer disbelief several times during the illness process. During this period of time, the person experiences numbness and disassociation of the real world (it seems like a bad dream)
25 GRIEF AND THE CAREGIVERS Denial, the AD caregivers denial is somehow different, since we had gone through this several times, the denial after the death is more a re-remembering of previous denials. Rage and Anger are NORMAL EXPERIENCES Guilt or Regrets they are different, yet very dangerous and the end result of them is the total de-socialization and isolation of the grieving person
26 GRIEF AND THE CAREGIVERS Guilt, is what you believe when you have done something wrong knowlingly Regret, is what you wish you had done or said Depression, can last for minutes to years, it presents very different and caregivers need to know how to identify it.
27 GRIEF AND THE CAREGIVERS Fears Panic Physical Illness Continuous Reminders (holidays etc.) Dreams, nightmares or visions RESOLUTION, PEACE AND COMFORT
28 THANKS FOR YOUR ATTENTION ALL RIGHTS RESERVED TO THE AUTHOR, NOT PARTIAL OR TOTAL REPRODUCTION IS PERMITTED DR. LAURA MATOS
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