ICPCN Conference 2014 Mumbai India
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1 FROM IDEAS TO ACTION THROUGH EDUCATION: TRANSFORMING EDUCATION IN CHILDREN S PALLIATIVE CARE ICPCN Conference 2014 Mumbai India John J. Collins AM Head of Department Pain Medicine & Palliative Care The Children s Hospital at Westmead john.collins@health.nsw.gov.au
2 THE TRANSFORMATIVE NATURE OF EDUCATION MAYA ANGELOU When you know better, you do better
3 BASIC PRINCIPLES OF EDUCATION Ghandian Principles of Education 1. Nai Talim ('Basic Education for all') 2. Knowledge & work are not separate 3. Focus on: i) lifelong character of education ii) social character iii) holistic process
4 FROM IDEAS TO ACTION THROUGH EDUCATION: TRANSFORMING EDUCATION IN CHILDEN S PALLIATIVE CARE Questions: What needs to be transformed? How do we transform what needs to be transformed?
5 TRANSFORMING EDUCATION IN CHILDEN S PALLIATIVE CARE To answer these questions need to understand: 1. What are the target groups for PPC education? 2. What has been achieved for each of these groups? 3. What are areas for improvement? 4. What are strategies for transformation?
6 TARGET GROUPS NEED DIFFERENT LEVELS OF EDUCATION (EAPC) 1. Family education 2. Professional education a. Palliative Care Approach: a way to integrate PC in settings not specialised in PC b. General Palliative Care: provided by primary care professionals & specialists treating children with LLI who have good basic PC knowledge c. Specialist Palliative Care: Services whose main activity is the provision of PC supported by clinicians with specialist qualifications
7 What has been achieved in PPC education for families? 1. Family education Information booklets/brochures: most services Children s Hospices web-sites Clinician initiated education at the time of referral, during palliative care, bereavement
8 What has been achieved in PPC education for families? What are some issues for clinician initiated family education for community care? Small numbers of children + dispersed geographically + clinicians with little expertise > Creating new models to transform clinician initiated education for families & professionals Pop-up Model of Care with Just-in-time training Paediatric Palliative Care Planning Framework
9 What has been achieved in PPC education for families? Internet: Google 739,000 references > You Tube: Pediatric palliative care = 2180 results Paediatric palliative care = 429 results Families need education about assessing health information on the internet
10 Transforming internet information Empowering families on assessing internet informationhttps:// Who is providing the information? When was this information published? How up to date? Do you understand the information? Does this resource provide links to other reputable resources? Does this person or company have a commercial reason to promote a particular product? Does the resource discuss the risks as well as the benefits of a particular approach?
11 TARGET GROUPS NEED DIFFERENT LEVELS OF EDUCATION (EAPC) 1. Family education 2. Professional education a. Palliative Care Approach: a way to integrate PC in settings not specialised in PC b. General Palliative Care: provided by primary care professionals & specialists treating children with LLI who have good basic PC knowledge c. Specialist Palliative Care: Services whose main activity is the provision of PC supported by clinicians with specialist qualifications
12 What has been achieved in PPC education for professionals? 1. Standards incorporate PPC education as an essential component: - Eur J Pall Care, 2007; 14 (3), American Academy of Pediatrics 106 (2): , Recommendations for: - Comprehensive training & support - Core part of curriculum - Centres of excellence for training
13 What has been achieved in PPC education for professionals? 2. Textbooks
14 What has been achieved in PPC education for professionals? 3. Distance learning courses for health professionals:
15 What has been achieved in PPC education for professionals? E-learning Introduction to Children s Palliative Care WHO Guidelines on persisting pain in children Communicating with Children Childhood Development and Play Symptoms other than pain Non-pharmacological pain management End of life care Grief and Bereavement
16 What has been achieved in PPC education for professionals? Web resources
17 What has been achieved in PPC education for professionals? Novel communication technology Webinars: interactive conferences or online workshops webinar
18 Great achievements but.. What are the challenges for professional education in PPC? 1. Volume of material 2. How do we determine the quality of the material? 3. What are the outcomes? 4. How do we become educated about the internet?
19 Professional education: assessing health information on the internet Who is providing the information? When was this information published? How up to date? Do you understand the information? Does this resource provide links to other reputable resources? Does this person or company have a commercial reason to promote a particular product? Does the resource discuss the risks as well as the benefits of a particular approach?
20 Quo Vadis?
21 Another component to transformation: allying PPC education with international changes to health education Health professionals for a new century: transforming education to strengthen health systems in an interdependent world Frenk, J et al. The Lancet Commissions.
22 Allying PPC education with international changes to health education Reform agenda in health care education Early 1900s, science based curriculum 1950s, problem-based instructional innovations 2000s - Recognising the need to improve capacity & performance within health care systems by: - adapting core professional competencies to specific contexts - drawing on global knowledge as our world becomes more inter-dependent
23 Allying PPC education with international changes to health education Challenges: 1. PPC is a small area of clinical practice, yet PPC has an obligation to improve capacity within health care systems & become more inter-dependent 2. The volume of PPC education material is huge & the quality unknown 3. PPC Core professional competencies need development
24 KEY POINTS for TRANSFORMATION 1. Target groups need different levels of education 2. Be judicious about available resources 3. Collaborate & share 4. Consult the research, make the messages evidence-based to ensure quality 5. Create competencies
25 Education is the most powerful weapon which you can use to change the world.
26 THANK YOU Dept. Pain Medicine & Palliative Care, Children s Hospital at Westmead, Sydney Australia
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