Increasing Clinical Trials Enrollment: Resources
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1 Increasing Clinical Trials Enrollment: Resources MCC 2016 Annual Meeting Working Together, Overcoming Barriers, Achieving Success Connie Szczepanek RN, BSN Cancer Research Consortium of West Michigan (CRCWM)
2 Cancer Research Consortium of West Michigan A Consortium Approach Funded by a National Cancer Institute Grant since 1983 and the following Members Bronson Battle Creek Lakeland HealthCare Mercy Health Mercy Campus Mercy Health Saint Mary s Metro Health Hospital Michigan State University College of Human Medicine Munson Medical Center Spectrum Health Spectrum Health Reed City Hospital Van Andel Research Institute ⓫ West Michigan Cancer Center ⓫ 35
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4 NCI Community Oncology Research Program Overview (NCORP) August 2014 A Collaboration of NCI s Divisions of Cancer Prevention, Cancer Control and Population Sciences, Cancer Treatment and Diagnosis, and Center to Reduce Cancer Health Disparities 37
5 Why Support Cancer Research in the Community Setting? Majority of cancer care is provided in the community Increase the generalizability of study findings Access to large diverse patient populations Access to real world healthcare delivery settings Testing feasibility of new interventions/processes Accelerates the uptake of evidence-based practice, new interventions, and processes into routine practice 38
6 Past Research Achievements in the Community Setting Contributed 40% of the overall treatment accrual to NCI s clinical trials network Significant minority population accrual Incorporated cancer control, symptom management, risk reduction, and toxicity management Engaged primary care providers into the management of cancer/at-risk-of cancer patients Adopted new agents and technologies into clinical practice 39
7 NCORP Sites 40
8 NCORP in Michigan The only state with 3 of the 34 NCORP Community Sites NCORP Sites Cancer Research Consortium of West Michigan (2014) Formerly Grand Rapids Clinical Oncology Program (CCOP) and Kalamazoo CCOP (Since 1975/1983) Michigan Cancer Research Consortium (Since 1994) Beaumont NCORP (Since 2002) 41
9 Additional Resources --ASCO Research Community Forum Coverage Analysis Workgroup Work force metrics Resource Library Cancer Research Committee Best Practices Initiative 42
10 Additional Resources --ASCO Q&A resource for policy questions / practice and billing challenges TAPUR Advocacy ASCOconnection.org Journal of Oncology Practice (JOP) 43
11 Additional Resources Local NCORP /clinical trials offices MCC: html ONS Clinical Trials Nursing Manual Clinical trials training courses Educational materials Your clinical trials patients 44
12 Additional Resources Engaging Patients in Your Research Program: A Local Difference 45
13 CRCWM Patient Advisory Board for Clinical Research established May
14 Research advocates can help Provide a link to the community Increase awareness about clinical trials by talking with patients and the public about clinical trials Help reduce the barriers patients face in gaining access to clinical trials Talking to patients about their experience participating in a clinical trial Provide resources to patients and their families 47
15 Research advocates can help Act as an advisor to your program Develop/review educational materials about clinical trials Serve as the community member of your IRB or Ethics Committee Work to raise money for cancer research to offset costs for people participating in clinical trials Support political advocacy in your state 48
16 Real World Impact in West Michigan Getting the word out Sharing perspective Media Opportunities Articles and Interviews Cancer Center Walk-Throughs Building Tools Web Site Design Educational and Study Materials Survivorship Care Plan Clinical Trials Summary Our own local Clinical Trials Video
17 Real World Impact in West Michigan Testing tools and plans Kick the tires and test drive ideas Offer brutally honest feedback and opinions Planning recruitment strategies Providing accurate information and personal experience Advising Program Leadership Renaming our Program Inspiring the Research Team!!!!
18 Implications for Oncology Care Providers You are part of the Research TEAM A Partner in Care! Help with study referrals / recruitment / enrollment Provide care for research patients Support your patient s participation Become a Direct Team Member 51
19 Implications for Oncology Care Providers Work-Up, Treatment Planning, Pre-Auth, Enrollment Informed Consent Study Compliance Medication Adverse Events Symptom Management Follow-up Visits Documentation 52
20 Locating NCI Clinical Trials in the Community They may be closer than you think 53
21 Locating NCI Clinical Trials in the Community National Cancer Institute CANCER ( ) The NCI clinical trial registry is the nation s most comprehensive resource on cancer clinical trials Website Features to note: About Clinical Trials Trial Search 10 Step Guide: How to find a Cancer Treatment Trial Clinical Trials Results For Patients and For Medical Providers 54 54
22 Locating NCI Clinical Trials in the Community Cancer Research Consortium of West Michigan or
23 Cancer Clinical Trials WE HAVE Real Answers, Real Options, Real Miracles Right here in our community! HOPE FOR THE FUTURE 56
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