Wanda Whitten Shurney MD CEO / Medical Director
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1 Wanda Whitten Shurney MD CEO / Medical Director Sickle Cell Disease Association of America Michigan Chapter
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3 OUR MISSION TO MAXIMIZE THE QUALITY LIFE OF INDIVIDUALS LIVING WITH SCD TO ENABLE INDIVIDUALS WITH SICKLE CELL TRAIT TO MAKE INFORMED DECISIONS THAT THEY BELIEVE ARE IN THEIR BEST INTEREST WITH RESPECT TO FAMILY PLANNING TO PROVIDE EDUCATION, TESTING AND INFORMATION FOR THE GENERAL PUBLIC SERVE AS THE COODINATING CENTER FOR THE NEWBORN HEMOGLOBINOPATHY SCREENING PROGRAM FOR THE MDHHS
4 SCDAA MI Patient Advocates/Community Health Workers SERVICES Ann Arbor Benton Harbor Detroit Flint CARE COORDINATION SUPPORT SERVICES Basic needs Emergency financial support Grand Rapids Jackson Kalamazoo Lansing Muskegon Pontiac Saginaw Muskegon Grand Rapids Lansing Jackson Kalamazoo Saginaw Flint Pontiac Detroit Ann Arbor EDUCATION Patient Community CAREER COUNCELING FREE TESTING SUMMER CAMP PROGRAM Benton Harbor
5 AWARENESS AND EDUCATION Annual Walks TV/ Radio Coverage Lauren Lake Paternity Court Last Fiscal Year 48 Presentations 36 Exhibits 34 Health Fairs
6 Treatment Demonstration Grant Increase # of physicians caring for patients with SCD Increase # of physicians prescribing hydroxyurea Newborn Screening Grant Community Health Health Workers (CHWs) Locate inactive patients Medical home placement Care coordination Dr. Donnell Ivy, MD, MPH Medical Officer, Genetics Services Branch
7 TRANSITION Transition begins at birth Encouraging independence Greater focus on patient Education Standardized transition program ( Got Transition ) HRSA Quality Improvement initiative
8 MEDICATION ADHERANCE Hydroxyurea brochure/workshops
9 MENTAL HEALTH FT Clinical Psychologist CHM PT Mental Health Professional Adult Clinic Patient Advocates - referrals
10 CME Dinners Detroit Saginaw Kalamazoo Lunch and Learns: FQHC Detroit Pontiac Grand Rapids PROVIDER SHORTAGE Adult Sickle Cell Clinic Detroit Medical Center
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12 NHLBI Guidelines ASH Brochures TeleECHO
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14 ABOUT REFLEXOLOGY Reflexology is the application of pressure to areas on the feet, hands and ears. Reflexology is generally relaxing and may be an effective way to alleviate stress. The theory behind reflexology is that these areas correspond to organs and systems of the body. Proponents believe that pressure applied to these areas affects the organs and benefits the person's health. Reflexologists use foot charts to guide them as they apply pressure to specific areas. Sometimes these practitioners use items, such as rubber balls, rubber bands and sticks of wood, to assist in their work. Practitioners of reflexology include chiropractors, physical therapists and massage therapists, among others. Several studies funded by the National Cancer Institute and the National Institutes of Health indicate that reflexology may reduce pain and psychological symptoms, such as anxiety and depression, and enhance relaxation and sleep. Studies also show that reflexology may have benefits in palliative care of people with cancer. Reflexologists claim that reflexology also can treat a wide variety of medical conditions, such as asthma, diabetes and cancer. However, scientific evidence is lacking to support these claims. Reflexology is generally considered safe, although very vigorous pressure may cause discomfort for some people.
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16 Type of sickle cell SS SC Sbeta thal zero Sbeta thal plus Usual Hemoglobin level Blood Type Allergies: Medication Dose Reason Frequency (times per day) to Date Time Purpose Doctor Phone Appointment Kept? Y Y Y N N N Date # of Units Hemoglobin level pre transfusion Hemoglobin level post transfusion Pre-Medication?
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18 Current Practice: Managing Complications Managing wellness: Keeping Patients Well
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