H&V Leadership Conference

Transcription

1 10th Annual H&V Leadership Conference Madison, Wisconsin June 20 22nd, 2013 Chapter Hosts: Wisconsin Families for Hands & Voices Outside Your Comfort Zone Don t be afraid to expand yourself, to step out of your comfort zone. That s where the joy and the adventure lie. Herbie Hancock HANDS& VOICES TM

2

3 Thursday, June 20th 9am-12pm 1:00pm - 5:00pm Concurrent Meetings Chapter Leadership Senate A GBYS Program Coordinator Senate B Concurrent Pre-Sessions Advocacy Senate A H&V Guide By Your Side - GUIDE Session Conference Room 1 Fundraising & Development Senate B Leadership Conference Room 2 5:00pm - 6:00pm Registration 6:00pm - 7:00pm Dinner Friday, June 21st 7:00pm - 9:00pm Mixer and Poster Session 7:30am - 4:30pm Exhibitors 7:30am - 8:30am Continental Breakfast 8:30am - 9:45am Plenary I: Leadership - Falomi Randolph 9:45am - 10:00am Break 10:00am - 11:00am Breakout Session A TRACK ONE: We Are Hands & Voices Lisa Crawford, Chris Moody Ovations TRACK TWO: Presentation from the AAP Elizabeth R. Michaels, DO FAAP Senate A/B TRACK THREE: The Impact of Spiritual Life on the Family Journey Janet DesGeorges, Stephanie Olson 11:15am - 12:15pm Plenary II: Infant Mental Health - Elizabeth Seeliger 12:15pm - 1:30pm Lunch 1:30pm - 3:00pm Breakout Session B TRACK ONE: Supporting Families Without Bias Candace Lindow-Davies, Marie Pank Ovations TRACK TWO: Consensus Tony Ronco TRACK THREE: Communicating vs Communicating Pamela Farley Senate A/B 3:00pm - 3:15pm At a Glance Agenda 10th Annual Hand & Voices Leadership Conference June 20-22nd Concourse Hotel, Madison, WI Break 3:15pm - 4:15pm Breakout Session C TRACK ONE: Guide By Your Side Lisa Kovacs Ovations TRACK TWO: But She is Doing So Well: Supporting Families with Gifted Children Who are D/HH Sara Kennedy, Liesel Thomas TRACK THREE: Keeping the Passion Karen Putz Senate A/B 4:30pm - 6:00 pm Up Time - Designated Areas Saturday, June 22nd 7:30am - 8:30pm Continental Breakfast 8:45am - 9:45am Breakout Session D TRACK ONE: Making Your Event Deaf Friendly Marcy Dicker/Dan Houlihan University TRACK TWO: Data Roundtable Vicki Hunting, Maria Yenerich Senate A/B TRACK THREE: O.U.R, Project Harold Johnson 10:00am - 11:15am Plenary III: Promoting Advocacy - Andrea Marwah 11:15am - 11:30 am Break 11:30am - 12:30pm Plenary IV: D/HH Guides and the D/HH Person You Meet at Target What s the Difference? Karen Putz, Stephanie Olson

4 Thanks to the following Organizations, Agencies, and Companies for their support of Hands & Voices and of this conference GOLD SPONSOR Office for the Deaf and Hard of Hearing - Wisconsin SILVER SPONSORS Advanced Bionics Professional Interpreting Services Thanks to all our Exhibitors: ACS Captions Advanced Bionics Ear Gear Hands & Voices Harris Communications National Cued Speech Association The National Center for Hearing Assessment and Management The National Technical Institute for the Deaf Terri Lynn Quality Foods A special thanks to: The Centers for Disease Control and Prevention for funding which help made this conference possible. (The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the Department of Health and Human Services, nor does the mention of trade names, commercial practices, or organizations imply endorsement by the U.S. Government ) Thanks to the Hands & Voices organizing committee for all their hard work! Molly Martzke, Jeannene Evenstad, Laurie Nelson, Elizabeth Seeliger, Janet DesGeorges, and Cheryl Johnson. Thank you to all our presenters for your time and expertise in sharing at this event. A huge THANK YOU to our conference chapter hosts: Wisconsin Families for Hands & Voices

5 Pre-conference Schedule - Thursday June 20th Morning Concurrent Meetings 9:00am 12:00pm SESSION I: GBYS Program Coordinator Senate A This session is an annual meeting for the GBYS Program Coordinators. During this session Program Coordinators will share with each other their successes and challenges, discuss ways to make the most of the quarterly roundtable calls, have a presentation on reflective supervision, be introduced to the new GBYS Leveled Guide Program, and also learn about the new HQ Annual Health Assessment for Chapters and GBYS programs. This session will be sure to provide ongoing training as well as allow for the opportunity for the Program Coordinators to reconnect with fellow parents that they seldom get to be with in person. Trainers: Lisa Kovacs (IN/HQ) SESSION II: Chapter Leadership and Management: Looking at your Chapter s Health and Digging Deeper Senate B This will be an interactive session with break-out groups that will focus on the major areas of chapter development and management. This pre-session will allow for small groups of Parent Leaders to focus on the priorities of the chapter, receiving technical support from HQ in building, evaluating and promoting a healthy H&V Chapter. Chapter Leaders will also have the opportunity to gain knowledge and insight from fellow Parent Leaders within your own region, as well as throughout the H&V network. Pre-work will be sent prior to the conference to assist you in assessing your chapter s current area(s) of need. This session is for Chapter Leaders from Start-up, Provisional and Authorized chapters (Executive Directors, Board Members and start-up chapter parent leaders) Trainers Vicki Hunting (IA/HQ), Terri Patterson (GA/HQ) PRESESSION I: Advocacy Afternoon Concurrent Pre-Sessions 1:00 pm 5:00 pm (Requires separate registration) Senate A The ASTra PreSession is an intensive four-hour workshop on roll-up-your-sleeves advocacy that s specific to Deaf/Hard of Hearing issues in school, using H&V s new book, The Hands & Voices Guidebook on Educational Advocacy for Students Who Are Deaf or Hard of Hearing.This book may be pre-purchased for pick up at conference and/or purchased on day of workshop)we ll move through an IDEA review then dive into its applications for our D/HH students. We will draw on real-world H&V cases showcasing advocacy strategies that work and those that haven t proved successful. We ll explore LRE, FAPE, and Special Considerations for Deaf Students through the lens of case law, as well as legal precedents in other disability arenas that set important precedents all ASTra advocates should know. We will discuss current trends happening at IEP tables around the country regarding eligibility, school placement, and the issue of communication choices in the school setting. Prerequisite: Participants will benefit from prior experience with special education advocacy and some working knowledge of IDEA and relevant laws; this is not an introductory course, although no registrant will be excluded from attending. Trainers: Janet DesGeorges (HQ), Leeanne Seaver (HQ), Cheryl DeConde Johnson (HQ) PRESESSION II: H&V Guide By Your Side GUIDE Session Conference Room 1 This session will be for any H&V parent guides who serve in their GBYS programs and H&V Chapter parents who serve as parent-to-parent support on an ongoing basis within their chapters. Join in this in-depth, thoughtful training to help develop practical skills in supporting families in their journey. Trainers Lisa Kovacs (IN/HQ), Susan Rolinger (IA), Elizabeth Seeliger (WI), Laurie Nelson (WI), Marcy Dicker (WI) - 1 -

6 PRESESSION III: Fund Development: Creating Your Success Page 2 Senate B Fund Development is a major part of the role of the board of directors, but what does this mean? What does this include? This pre-session will begin with ways to engage your board in fund development, move into the various ways of raising sustainable funding. We ll go through ways to create a strong message about your organization to potential donors, create and cultivate prospective donors, look at fundraising ideas, grant writing and much, much more! Be ready to learn, take notes, ask questions and walk away needing a glass of wine!! Trainers: Helen Cotton-Leiser(OR/HQ), Molly Martzke (WI/HQ) PRESESSION IV: Leadership Development Conference Room 2 Leadership that Matters- Guess what, we are the one we have been waiting for. Each one of us has the divine potential to provide leadership that can transform our families, our communities, and yes even the world. This session will explore the characteristics and practices of transformative leaders. Facilitators: Falomi Randolph Thursday Evening - June 20th, 2013 General Conference Begins 5:00 pm to 6:00 pm REGISTRATION Registration is open from 7:30 am to 9:30 pm, but it s recommended that you arrive by 5:00 pm at the latest so you can join in on dinner and evening activities. Poster Set up: Poster Session Theme: Outside the Box! Create a poster about your chapter and leaders which highlight unique characteristics of your chapter. Maybe skill sets that board/staff bring to the table that might help others or be of interest. Ideas could include: Professional skills or experiences of leaders that are outside deafness I m a professional event planner I m a professional belly dancer I m an attorney I work at a zoo I m a teacher of the deaf who worked with kids in India for 3 years Unique activities or collaborations your chapter/gbys program has taken on We have a specific guide that works with families who have adopted children from China Our chapter partnered with a national running event and raised funds for H&V We have a board member that is related to Brad Pitt and Angelina Jolie Have fun with this poster. Be creative! 6:00 pm 7:00 pm DINNER Join us for a light meal together as we arrive and settle in. 7:00 pm 9:00 pm MIXER & POSTER SESSION Before you roll your eyes at a mixer opportunity, be prepared for something new.don t miss this annual get to know you event. One of the aspects of our time together is about creating connections and community. Make new friends and learn more about those you thought you already knew! - 2 -

7 Friday June 21st, :30 am 4:30 pm EXHIBITORS Support our exhibitors and sponsors by stopping by and enjoying good conversation and learning something new to take back to our 7,000 families and professionals across the globe! 7:30 am - 8:30 am CONTINENTAL BREAKFAST/EXHIBITORS 8:30-8:45 am WELCOME Welcome from Wisconsin Families for Hands & Voices Welcome from Cheryl Johnson, Board President and Janet DesGeorges, Executive Director 8:30-9:45 am PLENARY I: Leadership Leadership that Matters- Guess what, we are the one we have been waiting for. Each one of us has the divine potential to provide leadership that can transform our families, our communities, and yes even the world. This session will explore the characteristics and practices of transformative leaders. Trainer: Falomi Randolph 9:45-10 am BREAK VISIT THE EXHIBITORS 10:00 am 11:00 am BREAKOUT SESSION A Note: This year s breakouts are broken into three tracks: TRACK ONE: These sessions are basic courses designed for first timers to the conference, start up, provisional, and newer chapters. These courses are also good for leaders who want to present this information back in their home chapters and want to observe how to present the information in these courses. TRACK TWO: These sessions are designed for chapters who may be ready for more advanced applications in different content areas. TRACK THREE: These sessions are topical in nature and may be of interest to all participants. Attendees may participate in any of the breakouts, and designations are meant for planning purposes and clarification for those attending. TRACK ONE: We Are Hands & Voices O vations Who are we? What are our values and goals of the organization? This basic training takes a look at the overall history, structure and current status of Hands & Voices. This session is one that is designed for chapters to present in their own locales, and the trainers of this session will also talk about how to present this session back in your own regions. Trainers: Lisa Crawford (TX,) Chris Moody (TX) TRACK TWO: AAP and Hands & Voices: Working Together for a Better Tomorrow Senate A/B The diagnosis of hearing loss in a child or infant is beyond overwhelming. The physical and emotional support needs to come from a multitude of resources so the family can aid their child s communication to the outside world. It is imperative that your doctor take on a primary role. Primary care physicians are guided by their EHDI chapter champion liaisons. Dr. Michaels will be covering the EHDI task force goals and objectives, which were created to improve the effectiveness of newborn hearing screening, diagnosis, and intervention. The second portion of her talk will touch upon different resources to help stressed out parents cope with the confirmation and lifestyle of a hearing-impaired child. Trainer: Elizabeth R. Michaels, DO, FAAP - 3 -

8 Page 4 TRACK THREE: The Impact of Spiritual Life on the Family Journey The impact of a family s faith, religion, and spiritual reflections in response to the identification, acceptance, decisions, and beliefs about deafness and hearing loss is often a primary driving force for families, and yet may or may not be communicated to those who are providing support. In the parent-to-parent support model, these conversations do often emerge. The necessary skills and self reflection of providing support in this context will be explored. Learning to define the boundaries of where these conversations go in the context of organizational representation, while having the freedom to be with a family where they are at, will also be addressed. Participants in this session will have the opportunity to share their own strategies and stories in keeping with the wisdom among us. Trainers: Janet DesGeorges (HQ), Stephanie Olson (HQ and CO) 11:15 am 12:00pm PLENARY II: Infant Mental Health We have all heard that Parent Involvement is the magic ingredient in successful child outcomes and the greatest predictor of successful outcomes for children who are Deaf or Hard of Hearing. So what is it about parent involvement that leads to these claims? Why are some parents involved and others not? This presentation will explore Infant and Family Mental Health Concepts and their application to the lives of families with children who are deaf or hard of hearing. The following premises will be made: infants and caregivers together form the cornerstone of human relationships; Communication evolves from early attachment patterns between the parent and infant and develops in the context of the relationship between them; and every relationship has the potential to be therapeutic. Topics such as the transition to parenthood, importance of attachment, interruptions in early relationships, maternal sensitivity and responsiveness and the emotional life of a baby will be discussed. Possible ideas about how Infant and Family Mental Health concepts might be utilized in Hands & Voices and H&V Guide By Your Side Programs will also be explored. Presenter: Elizabeth Seeliger (WI/HQ) 12:00 pm - 12:15 pm Awards Ceremony 12:15 pm - 1:30 pm LUNCH Pick up your box lunch and come sit with some new friends and discover what other chapters are doing all over the world! Committee/Topical Lunch Tables: For those of you involved in any of the following committees for Hands & Voices and/or interested in these topics, please find your designated table to eat and talk about these projects in an informal forum. These groups are open to anyone! All About the H&V Communicator Sara Kennedy Conference Room 1 OUR Coalition Members Harold Johnson Conference Room 2 Chat with the GBYS HQ Staff Helen Cotton-Leiser Conference Room 3 Chat with Chapter Support Coordinators Terri Patterson and Vicki Hunting Conference Room 4 D/HH Guides and D/HH Infusion Karen Putz, Stephanie Olson Conference Room 5 ASTra Program Lisa Kovacs / Janet DesGeorges All things Techy Support Joe DesGeorges Hosting the Annual Leadership Conference Molly Martzke 1:30 pm 3:00 pm BREAKOUT SESSION B TRACK ONE: Supporting Families without Bias O v a t i o n s The vanguard, required training for everyone who s just joining our group, or if you re preparing to present this session in your own state and need more time with the topic. Extremely helpful for professionals and parents working with families even if you re not part of Hands & Voices. Also required for GBYS start-ups. Trainer Candace Lindow-Davies (MN/HQ), Marie Pank (MN) - 4 -

9 TRACK TWO: Consensus How does your chapter leadership make decisions? What if the issue is controversial and there is diversity of thought? This session will look at the definition, theory and practice of consensus decision making, and provide H&V chapter boards and others some grounding in this topic. Trainer: Tony Ronco (HQ/CA) TRACK THREE: Communicating vs Communicating: Senate A/B Communication is difficult enough without throwing hearing challenges into the mix. How does a parent or a professional determine whether a child is not understanding due to hearing loss or simply being difficult? This workshop will explore the challenges of parent-child communication in general and offer suggestions for making sure the child (and the parent!) are understanding intended messages. Diverse communication modes will be touched on and ideas for enhancing family communication will be shared. This workshop will provide information that can be applied outside the scope of hearing/deaf culture. Taught by Pamela Farley, who grew up the only profoundly deaf individual in her family (and extended family), and who has successfully raised four hearing children alongside her deaf husband relying mostly on spoken language rather than signing. Pamela has a passion for working with dual-culture families to aid in improving communication in an attempt at reducing social issues experienced by children outside of their family environment. Trainer: Pamela Farley (TX) 3:00 pm 3:15 pm BREAK - VISIT THE EXHIBITORS Location: 3:15pm 4:15 pm BREAKOUT SESSION C TRACK ONE: Guide By Your Side: An Introduction and Update of Current Programs Ovations This session will cover the concept of GBYS and its flexibility in application to states whether focused on Parent Guides in early intervention systems, parent-networking, and/or Deaf/Hard of Hearing Guides or mentors. GBYS represents the values we have at H&V for direct parent-to-parent support and DHH role models--all who are trained to be unbiased and appropriate in working with families. TRAINERS: Lisa Kovacs (HQ/IN) TRACK TWO: But She is Doing So Well: Supporting Families with Gifted Children Who are D/HH Children who are gifted and deaf/hh require different expectations and programming to reach their potential. Families should not have to choose between services to address one exceptionality over another, though often that is the challenge in schools. Knowledge of effective advocacy strategies, resources and accommodations empowers both parents and educators. Strengths drawn from giftedness can be channeled to assist in compensating for hearing loss and its effect on language development, and enhance the child s identity as deaf or hard of hearing. Two experienced moms/advocates will share both practical and theoretical information on supporting the gifted child who is deaf/hard of hearing. Trainer: Sara Kennedy (HQ/CO, Liesel Thomas (CO)) TRACK THREE: Keeping the Passion Senate A/B When one year blends into the next, how do you keep it all going? What happens when you lose your passion while running your chapter--how can you fire it up again? In this presentation, Karen Putz shares the ups and downs of chapter life and how you can unwrap the passion again and again. Trainers: Karen Putz (IL/HQ) - 5 -

10 4:30 pm 6:00 pm UP TIME Page 6 Location: designated areas (Announced at Plenary II) Organizers: Wisconsin Families for Hands & Voices We need more down time!, the survey says. Not a chance at the H&V Leadership conference! Now in its 4th year and a H&V tradition, WI H&V will try and top MN, OR and ME in the most creative Up-Time opportunities this mandated session continues with activities to choose from a variety of fantastic events to participate in to have some fun in only the way the locals know how! Fasten your seat belts for some fun!! Saturday, June 22, :30am -8:30 am CONTINENTAL BREAKFAST 8:45 am 9:45 am BREAKOUT SESSION D TRACK ONE: Making Your Event Deaf Friendly University When you hear someone says the environment needs to be deaf friendly, can you imagine what takes to create the deaf friendly environment? Think beyond the interpreting and captioning services! When efforts are made to create a deaf friendly environment, everyone will benefit! Collaborations, ideas for incorporating technology, and resources of Deaf culture and language will be shared and will bring a new perspectives on how to expose families and children to the Deaf community and culture. The Deaf world may be small, but your family may be a part of this world. Learn how to create this deaf friendly environment it will bring out the best in all of us! Trainers: Marcy Dicker (WI), Dan Houlihan (WI) TRACK TWO: Data Roundtable Senate A/B This session is for Chapter Leaders from Start-up, Provisional and Authorized chapters (Executive Directors, Board Members and start-up chapter parent leaders) What data does your Chapter collect? How do you collect it? How do you use or share this information with others? If you have questions like this or would like to hear what other chapters are doing in the area of data collection, then join Vicki and Maria as they lead this discussion. This session will be an interactive roundtable discussion focusing on 2 areas; the work that Arizona H&V has done to build a central repository for their Chapter contact information and work being done at the HQ level on collection and use of data for Chapters and HQ reporting. This session will allow Chapters to hear about current and ongoing work as well as give Chapter leaders an opportunity to share what has worked for them on this topic of data collection. Trainer: Vicki Hunting (IA/HQ), Maria Yenerich (AZ) TRACK THREE: Taking the O.U.R. Project to the IEP - Ensuring the Safety and Success of our Children H&V has been working on the O.U.R. (to Observe, Understand, and Respond) Children s Safety Project for the last several years. This year, the exploration of our children s success via the IEP process will be explored by examining discussions that can happen in the most important meeting of the year: THE IFSP/IEP MEETING! Practical suggestions for incorporating children s safety needs through measureable goals/objectives families and advocates can bring to the table. Trainers: Harold Johnson (HQ), Sara Kennedy, (HQ and CO) - 6 -

11 10:00 am 11:00 am PLENARY SESSION III: Promoting Advocacy What makes a parent a successful advocate for their Deaf/HOH child? Legal protection is available for parents of children with disabilities; sadly not all parents are aware of it. This presentation offers both parents and professionals the basics to successfully work with schools for their child s educational future. Protection of the parent/school relationship is the most important aspect of successfully advocating for a child with disabilities. Professionals can easily educate parents in this model of parent/school relationship building without jeopardizing their position. IDEA protects parents; it s up to the parents to protect their relationship with school personnel. Trainer: Andrea Marwah (IL) 11:00am 11:15 am Break 11:15am 12:15 pm PLENARY SESSION IV: Deaf/Hard of Hearing Guides & the Deaf/Hard of Hearing Person You Meet at Target. What s the Difference? How do you and your husband have sex? Do you sleep with your hearing aids/implants on? How do you use the drive-thru? Parents are full of questions; Deaf and Hard of Hearing Guides have some of the answers. A guide s journey informs a parent s journey; it doesn t define that journey. Karen and Stephanie will discuss innovative ways to include Deaf and Hard of Hearing Adults on the parenting journey and how chapters can infuse the Hands & Voices Deaf and Hard of Hearing Guide program. Presenter: Karen Putz (Il/HQ), Stephanie Olson (CO/HQ) 12:15-12:30 Closing Video & Hands & Voices Naming Circle - Our signature H&V closer Safe Travels! - 7 -