Wellness in the workplace webinar An introduction to dementia Thursday 29 November 2018

Transcription

1 Wellness in the workplace webinar An introduction to dementia Thursday 29 November 2018

2 CARE AWARE : Improving the lives of people with dementia Steve Callaghan Director/Clinical Lead CARE AWARE International Ltd Principal Consultant EQE Health Ltd Visiting Lecturer University of Chester Full-time carer and independent nurse consultant Vannessa Young BIBA, Compliance and Advisory Boards Manager

3 Learning Outcomes By the end of the session, participants should be able to: 1. Understand the context of why BIBA is hosting this webinar 2. An example of how CARE AWARE operates in that context 3. Identify and recognise the signs of dementia. 4. Explain the problems people living with dementia face on a day-to-day basis 5. Understand how to reduce the chances of getting dementia 6. Make the link between dementia and the BIBA & ABI code of good practice.

4 Why is BIBA hosting this webinar? There is a growing interest about the impact of dementia [in non-health & social care circles] AND a desire to make a difference to people living with dementia It links to the BIBA & ABI code of good practice Supports your CPD It supports Insurance United Against Dementia campaign

5 Insurance United Against Dementia Insurance United Against Dementia is an Alzheimer s Society movement created and championed by leaders from across the insurance industry. AIM - to raise 10 million to fund vital research to take on the 21st century s biggest killer.

6 Insurance United Against Dementia

7 International call for multi-sectoral collaboration for people with dementia Collaboration needs engagement at the government level of all relevant public sectors, such as health, social services, education, employment, justice, and housing, as well as partnerships with relevant civil society and private sector entities(1). 1. WHO (2016). Draft global action plan on the public health response to dementia. EXECUTIVE BOARD EB140/28 140th session [23 December 2016 Provisional agenda item 10.2]

8 Why is there a need for collaboration with health & social care? Source:

9 Example Dementia Pathways Housing s Role Practice Guide (Feb 17) 4 key elements of housing s potential contribution 1. Assisting and supporting early diagnosis (opportunities) 2. Assessing whether the home environment is suitable (design) 3. Helping a person affected by dementia to remain at or return home quickly 4. Ensuring holistic assistance and support as dementia progresses

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11 CARE AWARE structured framework

12 The CARE AWARE system two awards It is about individual behaviour change I am CARE AWARE is a scheme to support individuals to conform to best practice in serving the needs of people who are vulnerable (e.g. PLWD) It is about organisational change We are CARE AWARE is a scheme for businesses to ensure that the whole business conforms to best practice in serving the needs of people who are vulnerable

13 Relationships and evaluation

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15 Context

16 Dementia What is dementia? Signs and symptoms of dementia Statistics How to reduce the chances of getting dementia

17 Definition Dementia is the name given to describe a set of symptoms/problems that affect people. As dementia affects the brain, symptoms may include memory loss and difficulties with thinking, problem-solving or language and often changes in mood, perception or behaviour.

18 Dementia iceberg

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20 BIG impact on carers Women are the main providers of informal care Worldwide Published July 2018 The amounts of informal care are enormous, more than 80 billion hours per year, corresponding to more than 40 million full time workers.

21 Pre-BIBA webinar questions The missing numbers round Self-assessment on how well you have done

22 1. Globally, someone is diagnosed with dementia every 3 seconds 2. There are more than 100 different types of dementia 3. By 2021 there will be approximately 1 million people living with dementia in the UK ,000 is the estimated number of people living with undiagnosed dementia in the UK 5. Out of the all the dementia s 62% of people have Alzheimer s Disease 6. Your chances of developing dementia when you are over the age of 65 is 1 in All adults over the age of 40 are advised to get their blood pressure checked at least every 5 years

23 Globally, someone is diagnosed with dementia every 3 seconds In the UK it is one person every 3 minutes

24 There are more than 100 different types of dementia

25 Approximately 1 million people will be living with dementia in the UK by 2021 (currently 850,000)

26 300,000 is the estimated number of people living with undiagnosed dementia Not everyone with dementia has a diagnosis!!! In 2012 in Essex, Southend & Thurrock There were 22,000 PLWD. Due to a higher than average population of over 65s & over 85s it is estimated that this will increase to 35,000 by 2025

27 Out of the all the dementias 62% of people have Alzheimer s Disease

28 Your chances of developing dementia when you are over the age of 65 is 1 in 13 The most common age for dementia to start is when you are in your 60s

29 Look after your heart and you ll look after your head All adults over the age of 40 are advised to get their blood pressure checked at least every 5 years Why? There are over 42,000 people under 65 with dementia in the UK. High blood pressure is a contributing factor to vascular dementia (2 nd most common dementia) People who do regular physical activity have up to a 30% lower risk of dementia

30 How did you do?

31 Looking after yourself and your family Promote a healthy lifestyle

32 Looking after yourself and your family

33 Alcohol and dementia Research shows that individuals who drink heavily or engaged in binge drinking (where a person consumes a large quantity of alcohol in a short time period) were more likely to develop Alzheimer's disease or any other form of dementia than those who engaged in moderate alcohol consumption

34 Dementia everyone is different Every person is unique and will experience dementia in their own way.

35 Diagnosis Because everyone is different in how they first present with dementia, it makes diagnosis more difficult than other diseases (e.g. stroke) Other causes should be excluded first (e.g. depression, thyroid problems) Assessment for diagnosis is made over time with brain scans, memory tests and physical assessment

36 Post-diagnostic support There are a range of different activities for people with dementia such as memory cafes, dementia friendly cinema screenings, singing for the brain and art classes etc. as well as day centre and respite support for carers. Often these are varied across the country. If you want to help carers - direct them to the Alzheimer s Society (local and national) The local branches tend to have all the information about what is going on in their area

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38 Quiz question Name the show and the catchphrase Answer: Allo Allo Listen very carefully, I shall say this only once

39 Forgetfulness can cause people to: Repeat the same question over and over Not grasp what is happening next Struggle to think things through (because there are bits of information missing) They may also have a reduced attention span which means they get distracted easily and forget what they are doing

40 Which of the following statements are true? 1. Physical illness can cause you to forget 2. Depression can cause you to forget 3. Stress can cause you to forget There are lots of reasons why people forget besides dementia all the above are true. Another reason why dementia is misdiagnosed or not recognised

41 Common areas in which people with memory loss often have particular difficulty: 1. Remembering events (especially what has just happened) 2. Taking in new information (recall) 3. Recognising people and places 4. Separating fact from fiction

42 Communication Depending on the severity of the person s dementia communication can either be plain and straight forward or difficult (meaningless jumble of words). But people with dementia may understand all forms of communication eg Verbal and non-verbal, gestures, posture, written information etc Think about your behaviour as people with dementia often reflect back your feelings happy = happy, miserable = miserable Use of language avoid jargon, technical details etc

43 Successful Communication Be patient, listen carefully and don t interrupt. Reduce distractions, make eye contact and talk in short sentences. Write things down, take your time and use gestures. Find your own way/style. But be aware what works with one person with dementia may not work with another person a main carer is a good source of information to help you.

44 Successful Communication Speak just slower than usual but try to keep the natural rhythms of your speech do not shout. [If face-to-face] do not cover your mouth as this will interfere with lip-reading. The person should be able to see your face clearly. Never stand too close or stand over someone to communicate: it can feel intimidating. Also think about whether the person has some hearing loss be adaptable to get your message across.

45 Mental capacity A person with mental capacity has at least a general understanding of: 1. The decision they need to make. 2. Why they need to make it. 3. Any information relevant to the decision. 4. What is likely to happen when they make it. Source:

46 Support from a carer / family This really is your best form of support It prevents distress, lasting anxiety and confusion for the person with dementia. It helps you to effectively and efficiently manage the situation and get the issue resolved. However, you need assurance that the person you are talking to has the authority to deal with the person s affairs.

47 Lasting Power of Attorney An LPA is a legal document that lets you (the donor ) choose trusted people ( attorneys ) to make financial decisions or health and care decisions on your behalf. An LPA is mainly used if you don t have the mental capacity to understand and make decisions yourself. NOTE: You need mental capacity to make an LPA.

48 Lasting Power of Attorney People can sometimes make certain decisions but don t have the mental capacity to make others. For example, someone may be able to decide what to buy for dinner but be unable to understand and arrange their home insurance. Source:

49 Example - Telephone communication This can be extremely difficult for the person with dementia as they may not be able to: 1. Answer the phone 2. Acknowledge who you are 3. Understand the issue you are calling about 4. Rationalise what to do about it (eg renew) 5. Make a decision on what to do 6. Pay or agree to use the card details from the previous year 7. Close the call down once satisfied

50 BIBA & ABI code of good practice. FCA and vulnerable consumers

51 Why bother with a code of conduct/practice? It promotes Moral behaviour Acts as a guideline for ethical decision making Enhances the reputation of an organisation Prevents negative legal effects Encourages positive relationships Prevents discrimination or harassment

52 It s good for business! A code of conduct allows an organisation to stand out in the marketplace and become more competitive. Our research has shown that older people, people living with a disability and carers see that those who are committed to using the CARE AWARE code and practices are a desirable organisation to use.

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54 C. Customer commitments BIBA & ABI code of good practice (a) Business processes at renewal for potentially vulnerable customers. Insurers and Brokers should: 12. Ensure staff are adequately trained to recognise and understand potentially vulnerable customers at renewal, listen to their particular needs and be equipped with flexible options to help address those needs where appropriate.

55 BIBA & ABI code of good practice C. Customer commitments (a) Business processes at renewal for potentially vulnerable customers. Insurers and Brokers should: 14. Take account of the characteristics associated with vulnerability in making decisions on pricing and promotional practices in order to mitigate against the risks of poor customer outcomes for potentially vulnerable customers.

56 FCA and vulnerable consumers Why the interest? What is a vulnerable customer? FCA Mission and Approach to Consumers Discussion paper on a new duty of care Pricing practices work Consultation in 2019

57 FCA and vulnerability A vulnerable consumer is someone who, due to their personal circumstances, is especially susceptible to detriment, particularly when a firm is not acting with appropriate levels of care. Source: FCA Occasional Paper No 8

58 FCA and vulnerability Vulnerability can come in a range of guises, and can be temporary, sporadic or permanent in nature. It is a fluid state that needs a flexible, tailored response from firms. Source: FCA Occasional Paper No 8

59 Financial services and insurance guide launched

60 Summary Dementia is a very common condition of the brain Alzheimer s disease is the most common People with dementia present differently People with dementia act differently People with dementia experience their world differently

61 Summary The BIBA & ABI code of good practice supports your firm in dealing with people with dementia. CARE AWARE can support your organisational processes and organisational maturity. Carers / family members can make your work more efficient and effective. Too much alcohol, smoking and not enough exercise increases your risk of getting dementia. Finally look after yourself and your family and promote and enjoy a healthy lifestyle.

62 A nice picture of Liverpool to look at while we answer questions

63 Thank you Stephen Callaghan