The Prime Minister s Challenge on Dementia. Lorraine Jackson Deputy Director: Domestic Dementia Policy Department of Health

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1 The Prime Minister s Challenge on Dementia Lorraine Jackson Deputy Director: Domestic Dementia Policy Department of Health 1

2 Costs and impact of dementia Estimated 676,000 people in England with dementia, 850,000 in the UK 540,000 carers of people with dementia Huge variation in services across the country An estimated 25% of hospital beds are occupied by people with dementia. Dementia costs UK society 26bn a year, more than the costs of cancer, heart disease or stroke. Costs of dementia are predicted to treble to over 50 billion per year over the next 30 years By 2020, the cost of skills and experience lost from the workplace due to dementia will rise from 628m to 1.16bn. By 2030, dementia will cost companies over 3bn 2

3 Programme of work

4 Dementia: Prime Minister s Challenge The Prime Minister s Challenge on Dementia sent a clear signal that dementia was and is a national priority for the Government. It built on the significant progress already made through the National Dementia Strategy, Living Well with Dementia published in February The Prime Minister s Challenge on Dementia had the key priorities areas of: Health and Care; Dementia Friendly communities (including Dementia Friends and Awareness) and Research 4

5 Cumulative total of Tier 1 trained NHS staff Cumulative amount ( millions) Diagnosis rate (%) Dementia diagnosis Current progress Dementia Friendly Communities Dementia diagnosis rates Dementia Friendly Communities Year Number Dementia Friends Year Number , ,054,043 Now 120 Now 1,375,144 More people now receive a diagnosis of dementia than ever before 120 communities signed up to become dementia friendly. Over 1.3 million people have become Dementia Friends Tier 1 trained NHS Workforce Research spending 600, , , , , , /15 Quarter 1 Achieved 287, /15 Quarter 2 Achieved 377, /15 Quarter 3 Achieved 437, /15 Quarter 4 Achieved 515, Year Research spending since 2009/ Over half a million of our NHS staff and over 100,000 social care staff have been trained in better supporting people with dementia. The Government has doubled research spending on dementia. 5

6 Dementia: Prime Minister s challenge on dementia what does it set out to achieve The Prime Minister s challenge on dementia 2020 builds on the achievements of the Prime Minister s challenge on dementia It aims to identify what needs to be done to make sure that dementia care, support, awareness and research are transformed by The 2020 Challenge sets out how the Government wants to see society at large, including the NHS, social care, voluntary and community sectors responding to the challenge that dementia presents up till It builds on the Challenge with a focus on risk reduction, health and care, expansion of Dementia Friendly Communities and continuing investment in research. 6

7 Overview: Prime Minister s Challenge on Dementia 2020 Health and Care Dementia Friendly Communities Risk Reduction Research Timely diagnosis GPs ensuring coordination and continuity of care Meaningful care ensuring everyone with a diagnosis receives this. Measured against NICE Quality Standards and tracked with effective metrics Meaningful care delivery of timely information at and post diagnosis, care navigation Meaningful care support for carers Workforce training NHS staff Workforce training social care providers. Care Certificate implementation monitored by CQC Improving quality of care in all settings and across the pathway through to end of life Dementia-friendly hospitals and care homes Additional 3m Dementia Friends by 2020 England leading efforts to make Dementia Friends a global movement Over half of people living in Dementia Friendly Communities - measured by BSI Standards Dementia friendly businesses (including employment, products & services) National and local government taking a leadership role on becoming dementia friendly All primary and secondary schools being encouraged to include dementia awareness in their work programmes National risk reduction strategy UK best place for dementia research(ers) Further work on the evidence base for risk reduction, and greater use of Funding for dementia evidenced-based tools and research on track to be intelligence doubled by 2025 Development of a risk assessment calculator An international dementia institute established in England NHS Health Checks Increased investment in dementia research from the pharmaceutical, biotech devices and diagnostics sectors International framework for dementia research cure or disease-modifying treatments by 2025 Research on service models Open access to research publications Increased participation in dementia research 7 DH Leading the nation s health and care

8 What meaningful care means for people with dementia and their carers The I statements developed by the Dementia Action Alliance: I was diagnosed in a timely way I know what I can do to help myself and who else can help me Those around me and looking after me are well supported I get the treatment and support, which are best for my dementia, and for my life I feel included as part of society I understand so I am able to make decisions I am treated with dignity and respect I am confident my end of life wishes will be respected. I can expect a good death I know how to participate in research. 8

9 What do we want from the engagement process? Expert views from respective organisations/individuals on the questions: What areas (and/or specific deliverables) of the 2020 dementia challenge would you prioritise in this theme and why? What actions and milestones would you expect to see for the areas and deliverables you would prioritise for delivery and what would the impacts be? Are there any interdependencies across the commitments in the Challenge? How should these be taken into account? If there any gaps in the delivery plan(s), do you have suggestions on how to achieve the commitment? What could you/your organisation do to help deliver the 2020 dementia challenge? In addition, for people with dementia and their carers: What part of the 2020 Challenge would make the biggest difference to you? 9 DH Leading the nation s health and care

10 10 End of Life: Bromley Better Care Fund St Christopher s Hospice Namaste Care

11 Airedale NHS Foundation Trust: Telemedicine Airedale NHS Foundation Trust (ANHSFT) has deployed telemedicine in a number of settings including care homes and patients own homes. Results show 37% in non elective admissions 5 million in savings to the local health system Reduced hospital length of stay Now part of the Airedale Partner's Vanguard as part of the NHS New Models of Care programme 11

12 Building support for carers Opportunities Carers provide an invaluable contribution to society and we have legislated to give them new rights. The Care Act: extends carers rights to an assessment creates a well-being principle to underpin the care and support system Initiatives such as John s Campaign Carers Strategy Commitment to Carers 12

13 Contact us What areas (and/or specific deliverables) of the 2020 dementia challenge would you prioritise in this theme and why? What actions and milestones would you expect to see for the areas and deliverables you would prioritise for delivery and what would the impacts be? Are there any interdependencies across the commitments in the Challenge? How should these be taken into account? If there any gaps in the delivery plan(s), do you have suggestions on how to achieve the commitment? What could you/your organisation do to help deliver the 2020 dementia challenge? What part of the 2020 Challenge would make the biggest difference to you? Contact 13