2017 Phoenix Clinical Research Fair Program of Events

Transcription

1 2017 Phoenix Clinical Research Fair Program of Events From 8:45 a.m. Check-in Second Floor of the Conference Center 8:45 a.m. 1:00 p.m. Trial Exhibition Second Floor of the Conference Center 9:30 a.m. 11:30 a.m. Plenary Session Partnering Toward Cures for PD Second Floor of the Conference Center Moderator Sohini Chowdhury, The Michael J. Fox Foundation 1:00 p.m. Event Ends Panelists Patti Meese, Person with Parkinson s, Phoenix Resident Mary Higgins, RN, Clinical Research Coordinator, Barrow Neurological Institute Dr. David Shprecher, DO, Movement Disorders Director, Banner Sun Health

2 One Clinical study visit at a time, you can help speed research that could transform millions of lives. Since The Michael J. Fox Foundation for Parkinson s Research (MJFF) opened its doors in 2000, we have been unwavering in our commitment to finding new therapies and, ultimately, a cure for Parkinson s. With the robust pipeline of therapies in development, the future has never looked brighter. However, there are still obstacles in our path to new treatments for Parkinson s disease (PD). Chief among these challenges is the need for participants to fill clinical trials. No amount of money can get us to a cure without volunteers like you people with and without Parkinson s. In coming here today to learn more about clinical research participation, you have demonstrated your commitment to accelerating progress in better understanding PD and testing new therapies. I, along with my colleagues at MJFF, am overwhelmed by your willingness and enthusiasm to be part of this critical work. One clinical study visit at a time, you can help speed research that could transform millions of lives. We hope that you walk away from today s Clinical Research Fair with the name of at least one study in which you may enroll and the knowledge that you can continue to find opportunities to participate in research by registering for the MJFF online clinical trial matching tool Fox Trial Finder. Thank you for participating in the Phoenix Clinical Research Fair and for your commitment to accelerating PD research. With deep gratitude, Sohini Chowdhury Deputy CEO The Michael J. Fox Foundation

3 Arizona State University Opportunities to Participate in PD Research Trial: Dual Tasking and Protective Stepping in People with Parkinson's Disease Focus: Symptomatic physical rehabilitation Trial: Perception of dysarthric speech Type: Observational Focus: Symptomatic - speech Banner Sun Health Research Institute Trial: Arizona Study of Aging and Neurodegenerative Disorders Type: Observational Focus: Biomarkers Trial: Progressive Supranuclear Palsy Trial (BMS CN002-12) Focus: Biomarkers & disease modifying Trial: Study Evaluating Nelotanserin for Treatment of REM Sleep Behavior Disorder in Subjects with Lewy Body Dementia (LBD) or Parkinson s Disease Dementia (PDD) Focus: Symptomatic - sleep disturbances Barrow Neurological Institute Trial: Deep Brain Stimulation of the nbm to Treat Mild Cognitive Impairment in Parkinson's Disease Focus: Symptomatic - cognition Trial: Deep Brain Stimulation (DBS) Database Focus: Symptomatic - outcomes following DBS Trial: Effect of L-Dihydoxyphenylserine on Locomotion, Postural Stability and Fall Risk Reduction in PD Focus: Symptomatic freezing of gait and balance Muhammad Ali Movement Disorder Center Trial: A Study to Evaluate the Efficacy of RO in Participants With Early Parkinson's Disease (PASADENA) Focus: Disease modifying Trial: A Study to Assess the Efficacy and Safety of the Gastric-retentive AP-CD/LD in Advanced Parkinson's Patients (Accordance) Focus: Symptomatic - motor fluctuations, reducing off time Trial: Nilotinib in Parkinson s Disease (NILO-PD) Focus: Symptomatic Trial: Single-Ascending Dose Study of BIIB054 in Healthy Participants and Early Parkinson's Disease Focus: Disease modifying University of Arizona Health Sciences Trial: RESTORE: A clinical study of patients with symptomatic neurogenic orthostatic hypotension to assess Sustained effects Of droxidopa therapy Focus: Symptomatic - symptom management Trial: Effect of LY on Cognition in Mild-to- Moderate Parkinson Disease Dementia Focus: Symptomatic - cognition The Michael J. Fox Foundation Trial: Fox Insight Web Study of Day-to-Day Health Type: Observational and web-based Focus: Patient preferences & experiences Website:

4 Research Team Directory Arizona State University Name: Daniel Peterson, PhD Title: Assistant Professor Name: Visar Berisha, PhD Title: Assistant Professor Banner Sun Health Research Institute Name: Terry Fogerty Title: Clinical Trial Events Coordinator Name: Molly Goddard Title: Clinical Research Coordinator Name: David Shprecher, DO Msci Title: Movement Disorders Director Barrow Neurological Institute Name: Meg Lambert, BSN, RN, CNRN Title: Deep Brain Stimulation Program Coordinator Name: Peg McAuley, RN, CNRN Title: Falls Program Coordinator Muhammad Ali Movement Disorder Center Name: Giulia Andrews Title: Research Assistant Name: Mary Harrigan Title: Clinical Research Coordinator Name: Catherine Richard Title: Clinical Research Specialist University of Arizona Health Sciences Name: Kayla Darris Title: Research Coordinator Name: Derek Gin Title: Research Coordinator Name: Eddie Soto Title: Research Technician PMDAlliance Name: Andrea Merriam Title: Director of Community Engagement The Michael J. Fox Foundation Fox Trial Finder Fox Insight Web Study Support

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