Cahaba Grand Conference Center Grandview Parkway Birmingham, AL. Senior Associate Director, Advancement, The Michael J.

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1 Agenda Partners in Parkinson s Birmingham Cahaba Grand Conference Center 3660 Grandview Parkway Birmingham, AL Saturday, March 19, a.m.-2:30 p.m. 8 9 a.m. Registration and Breakfast 9 9:15 a.m. Welcome and Introduction Patricia Radford Senior Associate Director, Advancement, The Michael J. Fox Foundation 9:15 9:45 a.m. The Many Faces of Parkinson s Disease MODERATOR: Dave Iverson Contributing Editor, The Michael J. Fox Foundation PANELISTS: Jeri Boyd; Ken Cater; Michael S. Fitts 9:45 10:45 a.m. Seeing a Movement Disorder Specialist: What to Know, Ask and Expect MODERATOR: Dave Iverson PANELISTS: Thomas Davis, MD, FAAN Professor of Neurology, Vanderbilt University Medical Center Carol and Rusty Stewart 10:45 11 a.m. Morning Break 11 11:30 a.m Parkinson s Research: The Road Ahead MODERATOR: Dave Iverson PANELISTS: Kuldip Dave, PhD Director, Research Programs, The Michael J. Fox Foundation David G. Standaert, MD, PhD Professor and Chair of Neurology, University of Alabama at Birmingham Laura A. Volpicelli-Daley, PhD Assistant Professor, University of Alabama at Birmingham 1

2 Agenda 11:30 a.m.-12 p.m. Moderated Q&A on Morning Sessions MODERATOR: Dave Iverson PANELISTS: Kuldip Dave, PhD David G. Standaert, MD, PhD Laura A. Volpicelli-Daley, PhD 12-12:45 p.m. Lunch 12:45 1:30 p.m. You, Your Loved One and Parkinson s Disease 1:30 1:45 p.m. MODERATOR: Dave Iverson PANELISTS: Joey Bennett; John Bennett; Mary Honeycutt-Morgan Afternoon Break 1:45-2:30 p.m. Breakout Sessions Choose one of three options: I m Still Wondering About... Resource Fair Keep Your Balance: Caring for Mind and Body with Parkinson s 2

3 Agenda Breakout Sessions BREAKOUT SESSIONS In the afternoon, there will be opportunities to choose from the following breakout sessions. Each breakout lasts 45 minutes including Q & A. I m Still Wondering About... Ask your questions in a smaller group setting. MODERATOR: PANELISTS: Patricia Radford The Michael J. Fox Foundation Kuldip Dave, PhD The Michael J. Fox Foundation Thomas Davis, MD, FAAN Vanderbilt University Medical Center Karon Link Resource Fair (open from 8 a.m. to 3 p.m.) Connect with community resources available to help you build your care team. See pages following the floorplans for a detailed listing of Resource Fair participants. Keep Your Balance: Caring for Mind and Body with Parkinson s Discuss how to build a health care team that addresses the many aspects of life with Parkinson s. MODERATOR: PANELISTS: Dave Iverson Marcas M. Bamman, PhD Director, UAB Center for Exercise Medicine Maggie Barnett, RN, LPC Parkinson s Disease Advocate Rachel Dolhun, MD Vice President, Medical Communications, The Michael J. Fox Foundation Laura Lieb, CRNP, MPH Nurse Practitioner, Department of Neurology, UAB 3

4 National Partners THE DAVIS PHINNEY FOUNDATION The Davis Phinney Foundation is a nonprofit organization whose mission is to help people living with Parkinson s to live well today. While it s critical to find a cure, we feel strongly that people living with Parkinson s need information, inspiration and tools that motivate them to take action to improve their quality of life right now th Street, Suite 150 Boulder, CO (866) info@davisphinneyfoundation.org PARKINSON S ACTION NETWORK Parkinson s Action Network (PAN) is a nonprofit organization based in Washington, DC, which serves as the unified voice of the Parkinson s community advocating for better treatments and a cure. In partnership with other Parkinson s organizations and our powerful grass roots network, we educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson s Vermont Avenue NW, Suite 1120 Washington, DC (800) info@parkinsonsaction.org LSVT GLOBAL, INC. LSVT Global is a socially responsible business with a mission to empower people with Parkinson disease (PD) through evidence-based speech, physical and occupational therapy programs. LSVT Global seeks to translate clinical treatment research directly to public health practice and increase accessibility of LSVT to people living with PD globally. We offer Free Resources for people with PD and family members including an LSVT Certified clinicians database, monthly webinars on topics related to communication and movement in PD, and live minisymposiums and exercise demonstrations in numerous US and international locations N Campbell Ave., Suite 5 Tucson, AZ (888) (520) (520) info@lsvtglobal.com NATIONAL PARKINSON FOUNDATION At the National Parkinson Foundation, we make life better for people with Parkinson s through expert care and research. Everything we do helps people actively enjoy life with their friends, families, children and grandchildren until there is a tomorrow without Parkinson s. 200 SE 1st StreetSuite 800Miami, Florida (800) contact@parkinson.org 4

5 National Partners AMERICAN PARKINSON DISEASE ASSOCIATION The American Parkinson Disease Association (APDA) was founded in 1961 to Ease the Burden - Find the Cure for Parkinson s disease. APDA is here to serve the more than one million Americans with Parkinson s disease and their families through a nationwide network of Chapters, Information and Referral (I&R) Centers, and support groups. APDA also funds Centers for Advanced Research and awards grants to fund the most promising research toward discoveringthe cause(s) and finding the cure for Parkinson s disease. 135 Parkinson Avenue Staten Island, NY Phone: (800) (718) Fax: apda@apdaparkinson.org PARKINSON S DISEASE FOUNDATION The Parkinson s Disease Foundation (PDF) is a leading national presence in Parkinson s disease research, education and public advocacy. We are working for the nearly one million people in the US who live with Parkinson s by funding promising scientific research while supporting people living with Parkinson s through educational programs and services. Since its founding in 1957, PDF has dedicated nearly $110 million million to fund the work of leading scientists throughout the world and nearly $47 million million to support national education and advocacy initiatives. PARKINSON VOICE PROJECT Parkinson Voice Project is the only nonprofit organization in the United States solely dedicated to preserving the voices of those with Parkinson s and related neurological disorders. The organization runs a speech therapy clinic in the Dallas, Texas area where any person with Parkinson s may receive its SPEAK OUT! and LOUD Crowd therapy programs. Parkinson Voice Project provides training to speechlanguage pathologists around the world so that patients receiving care in other hospitals and clinics may also benefit from these therapy programs. A listing of trained speech-language pathologists is maintained on Parkinson Voice Project s website. 646 N. Coit Road, Suite 2250 Richardson, Texas (855) contact@parkinsonvoiceproject.org 1359 Broadway, Suite 1509 New York, NY (212) (800) Fax: info@pdf.org 5

6 Event Floor Plan General Session ROOM A-I 9 a.m.-12 p.m. Resource Fair COORIDOR K, L, N & P 8 a.m.-2:30 p.m. I m Still Wondering About... COORIDOR J, ROOM M 1:45 2:30 p.m. Keep Your Balance ROOM A-I 1:45 2:30 p.m. ROOM A-I Hospitality Room ROOM O-Q 8 a.m. 2:30 p.m. CORRIDORS K, L, N, O, P COORIDOR J, ROOM M ROOM O, Q 6

7 Resource Fair Floor Plan NATIONAL ORGANIZATIONS 1. The Michael J. Fox Foundation 2. Parkinson s Disease Advocates 3. Parkinson s Action Network 4. Parkinson s Disease Foundation 5. Parkinson Voice Project 6. The Davis Phinney Foundation 7. American Parkinson Disease Association 8. Fox Trial Finder 9. National Parkinson Foundation 10. LSVT Global, Inc. CARE CENTERS AND TRIAL SITES University of Alabama at Birmingham LOCAL RESOURCES 13. Parkinson Association of Alabama 14. APDA Birmingham ALLIED HEALTHCARE PROVIDERS 15. EW Motion Therapy

8 Resource Fair Overview [Variable: Resource Fair Overview] Organization/ Institution Clinical Trials Patient Care Services Support Groups Exercise Opportunities Allied Healthcare Advocacy Other EW MOTION THERAPY FOX TRIAL FINDER GROWING HEARTS INTERNATIONAL PARKINSON ASSOCIATION OF ALABAMA UNIVERSITY OF ALABAMA AT BIRMINGHAM 8

9 Resource Fair Care Centers and Trial Sites UNIVERSITY OF ALABAMA AT BIRMINGHAM Primary Contact: LAURA LIEB Nurse Practitioner (205) ASHLEE RAWLINS Research Coordinator ALLEN JOOP Research Coordinator DAVID STANDAERT, MD, PHD Professor/Chairman AMY AMARA, MD, PHD Assistant Professor KELLEY HAMMOND PhD Candidate, PT BYRON W LAI PT Student byronlai@uab.edu WILLIAM CALLANS Research Coordinator wcallans@uabmc.edu GALEN HALE Program Manager galenhale@uabmc.edu 9

10 Resource Fair Allied Healthcare Providers EW MOTION THERAPY Primary Contact: ALLISON SCHMIDT (205) KARETH DOW BECCA LEE ALLY EDWARDS PHILLIP MOORE KATHERINE STONE BEN STEEVER 10

11 Resource Fair Local Resources Community Organizations and Exercise Opportunities PARKINSON ASSOCIATION OF ALABAMA Primary Contact: MARY T. MILLER Executive Director (205) GROWING HEARTS INTERNATIONAL Primary Contact: MALISSA SMITHA, PHD Executive Director (205) JAMIE LANEY President, Board of Directors Executive Committee KEN CATER Past President, Board of Directors Executive Committee 11

12 Resource Fair National Resources THE DAVIS PHINNEY FOUNDATION (866) THE MICHAEL J. FOX FOUNDATION FOR PARKINSON S RESEARCH (800) info@michaeljfox.org PARKINSON S ACTION NETWORK (800) info@parkinsonsaction.org NATIONAL PARKINSON FOUNDATION (800) contact@parkinson.org PARKINSON S DISEASE ADVOCATES PARKINSON VOICE PROJECT (855) contact@parkinsonvoiceproject.org AMERICAN PARKINSON DISEASE ASSOCIATION (800) (718) apda@apdaparkinson.org LSVT GLOBAL, INC. (888) (520) info@lsvtglobal.com PARKINSON S DISEASE FOUNDATION (212) (800) info@pdf.org 12

13 Partners in Parkinson s ABOUT PARTNERS IN PARKINSON S A diagnosis of Parkinson s disease brings with it many questions. You may wonder where to begin. Today, we invite you to take hold of two of the greatest tools for managing your disease: knowledge and support. A better understanding of what Parkinson s is, and what it may mean for you, your loved ones and caregivers, can help you live better now and in the future. You are not alone; there are many sources of information and assistance to help you chart your own course for living well with Parkinson s disease. Connecting Parkinson s patients, families and caregivers with these resources is the goal of Partners in Parkinson s. We encourage you to take advantage of the tools we offer beyond today s event, all of which you can access at your own pace from the comfort of home: A first-ever online tool to find a movement disorder specialist (created in collaboration with the International Parkinson and Movement Disorder Society). The opportunity to connect with an advocate by phone for one-on-one advice and support. An educational website with information about Parkinson s disease, including a downloadable Parkinson s disease guide. Whether you are newly diagnosed, have been living with Parkinson s for years or are caring for someone with Parkinson s, we hope to help you discover the benefits of team. To take advantage of all Partners in Parkinson s resources, visit ABOUT THE MICHAEL J. FOX FOUNDATION As the world s largest nonprofit funder of Parkinson s research, The Michael J. Fox Foundation is dedicated to accelerating a cure for Parkinson s disease and improved therapies for those living with the condition today. The Foundation pursues its goals through an aggressively funded, highly targeted research program coupled with active global engagement of scientists, Parkinson s patients, business leaders, clinical trial participants, donors and volunteers. In addition to funding more than $450 million in research to date, the Foundation has fundamentally altered the trajectory of progress toward a cure. Visit to learn more about how you can get involved. ABOUT ABBVIE AbbVie is a global, research-based biopharmaceutical company formed in 2013 following separation from Abbott Laboratories. The company s mission is to use its expertise, dedicated people and unique approach to innovation to develop and market advanced therapies that address some of the world s most complex and serious diseases. For further information on the company, please visit ABOUT PARKINSON ASSOCIATION OF ALABAMA Founded in 1978, the Parkinson Association of Alabama (PAA) is a 501(c)3 nonprofit organization committed to providing support, encouraging action, increasing awareness, and supporting research to lead to new and improved treatments for Parkinson s disease that will ultimately lead to a cure. 13