The quality of health information on the Web: a case for regulation? Célia Boyer Executive Director
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1 The quality of health information on the Web: a case for regulation? Célia Boyer Executive Director
2 Outline Online Health Information Presentation of HON Health Website Certification The HONcode Database Search Engine Technologies of HON Perspectives & Conclusion
3 ONLINE HEALTH INFORMATION
4 Importance of the Online Health and Medical Information 1.7 billion Internet users in 2009 growing rate by 4 in 9 years Half of the European population is connected grew 3 times since 2000 Europe Health Internet usage increased by 25% in 2 years Sources.: ehealth trends across Europe , Andreessen & all
5 Control the quality of health websites? 61% of adults gather health information online Health searches impacted treatment decision on six in ten e-patients Three-quarters of health seekers do not check the source and date of the health information they find online The New Yorker, 1993 Sources: The Social Life of Health Information, June 2009 E-patients With a Disability or Chronic Disease, Oct. 2007, Pew internet & American Life project, pewinternet.org
6 PRESENTATION OF HON
7 The Health On the Net Foundation Created in 1996, HON is a not-for profit foundation Mission: HON guides Internet users by highlighting reliable, comprehensible, relevant and trustworthy sources of online health and medical information the overwhelming quantity of information and the uneven quality of health information available online Funded by the Geneva state, European Commission, France
8 International recognition In 2002, HON Foundation was recognized as a non-governmental organization and granted special consultative status with the United Nations Economic and Social Council In May 2004, HON won the «eeurope Award for ehealth» Since 2007, in France, HON is the official certifying organisation for French health websites
9 HEALTH WEBSITE CERTIFICATION
10 The HONcode Authoritativeness Complementarity Privacy Attribution Justifiability Transparency Financial disclosure Sponsorship Indicate the qualifications of the authors Information should support, not replace, doctorpatient relationship; Mission and Audience of site Respect the privacy and confidentiality of personal data submitted to the site by the visitor Cite the source(s) of published information and dating of medical and health pages Site must back up claims relating to benefits and performance of a specific treatment. Completeness. Accessible presentation, identities of editor and Webmaster, accurate and accessible contact Identifying funding sources Clearly distinguish advertising from editorial content
11 The HONcode Certification THE PROCESS The HONcode certification is requested by the Web publisher with a self-evaluation step The HONcode Review Committee conducts a thorough inspection and provide recommendations Transparency of the certification: excerpts of proof Deliver the HONcode seal
12 The HONcode Certification IDENTIFICATION When certified, the site displays a unique dynamic HONcode seal valid for one year
13 The HONcode Certification Duration of validity Annual systematic audit Automatic continuing monitoring Re-evaluation after a complaint submission
14 THE HONCODE DATABASE
15 The HONcode database Compliance with the HONcode principles Indexed with MeSH terms and HON labels sites in 102 countries with sites in 24 European countries 34 languages + 10 millions webpages certified
16 SEARCH ENGINE TECHNOLOGIES OF HON
17 HONcode search engine
18 HONcode sites by country
19 Indentification of HONcode certified sites
20 Lights-up toolbar if web site is certified
21 HONcode toolbar
22 European research how to treat diabetes
23 PERSPECTIVES & CONCLUSION
24 Perspectives HON as a participating body in the implementation of the WHO ehealth resolution action plan Collaboration with governing bodies to provide quality control to national health websites Continued advancement in the providing access to quality health information online
25 Conclusion Active for over 14 years Educate citizens to efficiently use the medical information Automatic tools developed in order to support human expertise and tackle the large number of existing Web pages HON implement the 2001 eeurope Quality Criteria for Health Web sites, based on the HONcode principles Collaboration with the French Health Authority for the certification of health Web sites in France Adherence to the HONcode enhances a website s overall quality Finally, the content quality of Depression-related websites was significantly and positively correlated with the presence of the HON label, and affiliation of the websites. Quality of web-based information on depression Ariane Zermatten & all. Depress Anxiety Jan 22
26 Thank you for your attention
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