Lifespan Development in Autism A grounded theory study of the life experiences since leaving school in a cohort of adults in middle life
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1 Lifespan Development in Autism A grounded theory study of the life experiences since leaving school in a cohort of adults in middle life Anna Gilleard Supervisor: Dr David Simmons
2 Understanding Felix
3 What happens to people with autism in middle age and beyond? Childhood Adolescence Adulthood Older age?
4 Literature review (1) Need for research on age-related change not age-related difference Importance of retrospective detail (2) Need for experiential research Importance of hearing individual s voices
5 Methodology Sample: Families and caregivers of 7 former students Retrospective study Grounded theory no pre-existing assumptions 7 Semi-structured interviews
6 Analysis Reaching theoretical sufficiency Initial coding Focused coding Categorising Theoretical category development
7 Parents as Champions MICRO MESO MACRO every single thing that he has done, every change of direction, every kind of service has been initiated by ourselves - Participant 2 Father of 26 yr old former student
8 Continuing Development she is continuing to surprise us with her abilities still able to develop new skills - Participant 3 Father of 41 yr old former student I am proud of her ability to cope with complex situations - Participant 1 Mother of 31 yr old former student Now he s older, he s just a big gentleman - Participant 10 Mother of 44 yr old former student
9 Individualised development Adults with autism fixed their own markers of change Recognising a valued self Realising one s own individual goals and needs Artist 31 yrs Baker 26 yrs Choir singer 41 yrs Enjoys walks 43 yrs Artist 31 yrs Music-lover 50 yrs Gardener 44 yrs
10 Will I still go to my Garden centre* when Mum is not here? - Former student 7 *Name has been changed
11 What does the future look like? Further research into lifespan development Ageappropriate services Continuing opportunities for development Anna Gilleard, University of Glasgow
12 References *All identifying information and names have been changed to protect the anonymity of the participants Stuart-Hamilton and Morgan, (2011) What happens to people with autism spectrum disordrs in middle age and beyond? Report of a preliminary on-line study. Advances in Mental Health and Intellectual Disabilities, 5(22):8 Pellicano (2007) Autism as a Developmental Disorder, BPS (20): Charmaz, K. (2014) Constructing Grounded Theory (2nd ed.) SAGE. Wright and Wadsworth (2016), ch1, Autism Spectrum Disorder in Mid and Later Life, Jessica Kingsley Publishers, (London) Adult Autism Spectrum Cohort (AASC-UK) Newcastle University Progress report (2017) Summary of Quality of Life Research Findings Geurts, H. & Vissers, M (2012) Elderly with autism: executive functions and memory. Journal of Autism and Developmental Disorders 42(5): Geurts (2016) Autism and age-related cognitive decline. Autism Spectrum Disorder in Mid and Later Life, Jessica Kingsley Publishers, (London) Oberman & Pascual-Leone (2014) Hyperplasticity in Autism spectrum disorder confers protection from Alzheimer's deisease. Medical Hypothesis Michael, C. (2016) Why we need research into ageing and autism, Autism. 20(5):
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