State Team Coordinators Webinar

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1 Act Early Regional Summit Project REGION 9 SUMMIT American Samoa Arizona California Guam Hawaii Nevada Northern Mariana Islands State Team Coordinators Webinar Sue Lin Jennifer Bogin Karla Kmetz 1

2 Agenda for Today s Call Background Region 9 Summit State teams formulation Invitation materials Summit activities Pre Summit team activities 2

3 Act Early Regional Summit Project BACKGROUND Nti National lcenter on Birth Df Defects and Developmental l Disabilities (NCBDDD) Center for Disease Control and Prevention (CDC) launched the Learn the Signs. Act Early. (LSAE) campaign in 2004 To reach out and educate parents, health care professionals, and child care providers about developmental milestones and the importance of early identification and intervention for children with signs ofautism spectrum disorder (ASD) and related disabilities. 3

4 Act Early Regional Summit Project BACKGROUND Maternal Child Health Bureau (MCHB), Health Resources and Services Administration (HRSA) implementation of the Combating Autism Act Initiative The goal of the Combating Autism Act Initiative (CAAI) projectsis to enable all children to reach their full potential by developing a system of services that includes screening children early for possible ASD and other DD; conducting early interdisciplinary i evaluations to confirm or rule out ASD and other DD; and if a diagnosis is confirmed, providing evidence based early interventions. i 4

5 Overall Summit Framework Principles Focus on early identification, assessment, provision of services and coordination Include individuals from all important sectors Provide venue for shared learning & sharing across and within states Work toward actionable plans and priorities Summit as step in the process of developing comprehensive, family friendly system 5

6 Region 9 Act Early Summit Date: June 8 9, 2009 Location: Sacramento, CA States: American Samoa, Arizona, California, Guam, Hawaii, Nevada, Northern Mariana US-DHHS Regions Islands 6

7 State teams formulation State of the State or Territory State/Territory systems, Current initiatives, and Future plans Identification and invitation of team members How can AUCD assist you in further formulation of your state team Identification and invitation of team members 7

8 State teams formulation: Regional Summit Participants Invited Stakeholders American Academy of Pediatrics State Chapter Representative Part C Early Intervention Program UCEDD Representative Preschool Special Education Section 619 of IDEA LEND Representative Children with Special Health Care Autism Organizations Autism Needs Title V Society of America, Autism Speaks, Easter Seals, NATTAP, etc. Mental Retardation Developmental Disabilities Office (MRDD) Parent Organizations Parent Training Center, Family Support, State Public Health or Parent Health Information Child Care Resource and Referral Center Foster CareBureau Medicaid and Health Insurance Head Start and Early Head Start Program Developmental Disabilities Council Legislature member or staff 8

9 AR LA NM OK TX IA KS MO NE Past Summits Participant Representation State Agencies Part C of IDEA Section 619 of IDEA Title V State MRDD Agency State Public Health Head Start and Early Head Start State Dept. of Education DD Council; P&A Academics Providers & Advocates UCEDD, LEND, other academic institutions AAP and Pediatricians Autism and Disability Orgs (service providers, training, T/A entities) Parent Advocacy Orgs Policy Maker/Legislative Staff Other 4 1 Total Participants Average state attendance 14 9

10 Invitation materials Drs. Trevathan eata (NCBDDD Director) and Van Dyke ye (MCHB Associate Administrator) joint invitation letter Joint invitation letter to Title V Programs from AMCHP and AUCD Invitation letter template to be customized by each AUCD member Center Travel lri Reimbursement tpolicies i for those requiring financial assistance to attend the meeting Tentative Agenda 10

11 Summit activities Tentative Agenda Welcome Keynote Overview of Learn the Signs. Act Early. Campaign Overview of Combating Autism Act Initiative State Presentations Reaction Discussion Cross State Breakouts: of individuals with similar functions Speaker Presentation Networking Reception Posters and Exhibits Overview of Logic Model to Guide Discussion State Plan Development working break out meetings State Outcomes Presentation Question and Answer Participant Reflection (Open Mic) Closing Remarks 11

12 Pre Summit team activities Pre Summit Team Teleconferences Introduction of team members Learning briefly about each other s role and activities in the area of ASD and other related DD Generating ideas for your state of the state presentation Identifying a sub group to finalize and deliver the state of the state presentation Begin developing two modules in the state plan logic model 12

13 State Plan Logic Model 13

14 Region 9: What we will do next? Assist in formulating teams State team list developed on or before April 24 th, 2009 Onlineregistration available at AUCD website NOW Facilitate pre summit state team conference calls a) 1 st Pre Summit Call : On or before the week of May 4 th, 2009 b) 2 nd Pre Summit Call (if needed): On or before the week of May 11 th,

15 Questions? OR Comments? 15

16 For assistance at any time Jennifer Bogin g Sue Lin George Jesien Karla Kmetz (301)

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