Minnesota Region V State Report. September 27 & 28, 2010 Indianapolis, Indiana

Transcription

1 Minnesota Region V State Report September 27 & 28, 2010 Indianapolis, Indiana

2 Minnesota ASD Prevelance Similar Trends As With Other States National Survey of Children with Special Health Care Needs approximately 12,000 families of children aged 3 17 who have been told at some point their child has autism (approximately 16/1000); approximately 26,400 children birth to 21 years of age who are experiencing a developmental delay, mental retardation, epilepsy, autism, Down syndrome and / or cerebral palsy approximately 25/1000. No Surveillance System

3 Autism Spectrum Disorders in Minnesota MDE Child Count Trends for ASD Birth to 21 years Individuals Served under Autism Spectrum Disorders (ASD) Category MN Child Count Data (Birth-21 yrs.)

4 Number of Individuals Identified Under SpEd Criteria Minnesota MDE a closer look Age Distribution of ASD Age Distribution of Autism Spectrum Disorders MN Child Count Dec. 1, Ages Birth-21 years old

5 Minnesota MDE a closer look Disability Categories as a Percentage within Special Education 2009 Child Count (N=126,108) ASD =13,879

6 Commitment to Training and Professional Development in ASD Technical Assistance/Training Regional Low Incidence Projects and State Autism Network Annual Autism Symposium Universities in MN eight ASD Certificate programs Workshops and Train the Trainer initiatives National partnerships National Professional Development Center on ASD (NPDC-ASD) Network of Autism Technical Assistance and Training Programs (NATTAP) Board of Teaching recommendation for ASD license Department of health workshops and educational materials

7 Leadership Education in Neurodevelopmental LEND and Related Disabilities July 1, 2009 June 30, 2011 Maternal and Child Health Bureau

8 Minnesota Department of Health Autism Plan Assessment Develop a clear understanding of autism prevalence within the general population Provide leadership and coordination to foster equal access to health care services and resources. Identify outreach activities designed to identify children with developmental disabilities on available information about the prevalence of autism Policy Development Policymakers have needed information

9 Minnesota Department of Health Autism Plan (cont.) Assurance Familiarize families with available resources, and facilitate access Reaffirm the role of MDH in promoting immunization against vaccinepreventable diseases, and the importance of immunizing children. Work with health care professionals and providers to ensure consistency in developmental screening of the pediatric population, by identifying and encouraging the adoption of validated and well-accepted screening tools Establish MDH as a trusted and credible source of information Develop clear, accurate, credible messages and information about autism, and others, designed to address the needs and interests of identified target audiences. Identify and make use of appropriate and effective tools and mechanisms to deliver messages to target audiences.

10 Minnesota Department of Health Autism Plan (cont.) Mobilize Involve other agencies with an identifiable stake in this issue in our planning and decision-making (i.e. MDE, DHS.) Identify other agencies, organizations or professionals, at the regional and national level, who are working to understand the causes of autism, and explore possible partnering opportunities. Clarify the role and expectations of MDH in addressing autism issues. Coordinate our messages regarding this issue with other stakeholder agencies.

11 MN Department of Human Services DD HCBS (includes related clause) and CADI Approx 3,000 people with ASD served Self-directed option and large service menu (e.g. assistive technology, caregiver training, chore services consumer support grants, early intervention, family counseling and training, sensory integration, OT, ST) Children s mental health Skills training Behavior aide services Mental health psychotherapy ,180 served; 21+ 9,628 served

12 Strengths and Resources Community Partnerships Collaborative for ASD / DD Medical Home Legislative commitment/task force An active group of families are spreading the word in culturally diverse communities that children should be screened. Strong parent advocacy through Arc, PACER and others Initial collaborations successful MDE, DHS and MDH ADOS statewide training and local expertise/trainer

13 Challenges Pediatricians uncertain about where to refer children who failed developmental screens; Long wait times (average=9 months) for a first appointment with a specialist for a medical diagnosis; Screening and evaluation tools are inconsistently and sometimes incorrectly used by both physicians and special education program staff in the public schools throughout Minnesota; Families of immigrant and other minority groups are uncertain of what services their children needed; Language and other cultural differences serve as barriers to children and families receipt of timely information regarding their child s health and early intervention services

14 Challenges Low incidence but dramatic increases No surveillance system Finding and retaining qualified clinical staff, teachers and community staff Professional development needs at all levels Increasing pressure on communities to provide services Recent cuts in PCA services 3,858 people on HCBS waiting list (3,000 are under age 22) County inconsistencies

15 Resources Minnesota Department of Education MN Parents Know Website MN State Autism Network NPDC-ASD (National Professional Development Center on ASD) MN LEND MN Department of Health 15