Project. Funding $15,000. Health Education via ipad: A pilot project using tablet computers to share health education with LEP patients 3/9/2013

Transcription

1 Health Education via ipad: A pilot project using tablet computers to share health education with LEP patients Christine Wilson Owens EthnoMed.org Interpreter Services Department Harborview Medical Center, Seattle Project Develop video slideshows in 6 LANGUAGES about 4 TOPICS Engage Caseworker / Cultural Mediators in using ipads to share education with patients Funding $15,000 National Networks of Libraries of Medicine, Pacific Northwest Region Express Outreach Program Goals: To improve use of quality online health information resources by priority populations To promote improved health information literacy; To build or strengthen partnerships between network members and other community organizations; To foster health information expertise in community organizations; To promote awareness and use of the products and services of the NLM and the NN/LM. 1

2 Partners Healthy Roads Media Partners Community House Calls Program Photo Credit: UW Medicine Partners Community advisors 2

3 Partners Systems Analyst Oncologist Partners Clinic staff and providers, patients Photo Credit: UW Medicine Content Develop new materials Multimedia for viewing/listening on ipads Cancer identified by CCMs and Community Advisory Board as priority topic Survey of CCMs, health disparity data to select specific introductory topics: Biopsy, Chemotherapy, Mastectomy, Prostate Cancer 3

4 Content 3 topics, existing HRM modules in English 1 topic (biopsy) develop content from trusted sources National Library of Medicine, NCI, Mayo, Intelihealth Harvard Medical School; previous handouts EthnoMed created Content CCMs reviewed source English text and images; suggested adjustments e.g. additional info, alternate images rewording, etc. Mastectomy: source draft: 5 slides after CCM review draft: 14 slides examples of additional slides: It is normal to be afraid of cancer. Breast cancer, when found early, is very treatable. The type of surgery you have also depends on what is acceptable to you and your doctor. Many women seek a second doctor's opinion before having surgery. Content Source draft: Modified radical mastectomy removal of the breast, most of the lymph nodes under the arm and often the lining over the chest muscles CCM draft: added explanation Lymph nodes are part of the body s lymphatic system that helps to fight infections and filters unwanted substances, like cancer cells and bacteria. Cancer cells trapped by lymph nodes can grow. 4

5 Content Clinician review Revised English modules Community Input Groups of community advisors, per language Review English modules, CCM narrating translation Discuss/recommend graphics changes, translation edits, content changes to make more meaningful for community Tailoring An organ that is biopsied is not damaged by the biopsy. The body heals quickly from this kind of procedure because the amount of tissue that is taken is so small. Surgeries for Breast Cancer instead of Mastectomy (to include lumpectomy) Image of cells caption to indicate what is shown Add image of woman in hijab Hair lost during chemotherapy treatment will grow back 5

6 Language 2 words for bruising indicate like this: morado/morete (Morado is Spanish word used south of Panama. Morete is used north of Panama.) The word used for marrow in Amharic was translated as broth (that comes from boiling bones); discussion of alternative term for substance inside bones Arabic vs. Somali words for drug therapy Register of Khmer words for doctor, tissue Final Content Review community feedback with CCMs as group, HRM Incorporate changes revised content, translation additions & corrections, images Capture narration Produce new language versions of the modules, handouts 6

7 ipad 2s Harborview s Clinical Research and Innovation Librarian + ISD Systems Analyst recommendation Budget 4 tablets purchased (1 for HRM partner) Cases with keyboards Model: Sharing tablets? 7 CCMs, 3 ipads 2 weeks CCMs tracking encounters in which they would use ipads Photo Credit: UW Medicine Training 7

8 Safari Bookmarks Puffin Bookmarks 8

9 1 CCM emerged as super user 9

10 Funding $15,000 + Develop content $5500 develop media $3000 translations $1850 community honoraria ipads and accessories, service $4650 ipads, 3G service, Apple care protection, keyboard/cases + food, staff time Currently 7 ipads Headphones w/splitter Stylus pens 10

11 Currently Completing cancer modules Going Forward 11

12 Going Forward Photo Credit: UW Medicine Thank you Questions? 12