Pneumonia and Acute Chest Syndrome in Sickle Cell Disease

Transcription

1 Procedure/Treatment/Home Care Si usted desea esta información en español, por favor pídasela a su enfermero o doctor. #1465 Name of Child: Date: Pneumonia and Acute Chest Syndrome in Sickle Cell Disease What is pneumonia? Pneumonia is a common lung infection that children may get. This infection can be in one or both of the lungs. It is caused by a bacteria, virus, or fungus. What is acute chest syndrome? Acute chest syndrome (ACS) happens when red blood cells sickle inside blood vessels in the lungs. It is very painful. It is hard to find the exact cause of ACS. ACS can happen after an infection, pain crisis, or surgery. What are the signs and symptoms of pneumonia and ACS? Signs and symptoms of pneumonia and ACS: fever of 101 or greater once, or times in an hour coughing chest pain, back pain, or stomach pain shortness of breath fast breathing wheezing changes on chest x-ray lower oxygen levels Call your child s doctor right away if your child has any of these signs and symptoms or you have any concerns. 1 of 5

2 How is pneumonia and ACS in sickle cell disease treated? You need to call the Hematology Clinic right away. They will tell you to either come to the clinic or go to the emergency room. Your child may need: blood cultures and other blood labs drawn a chest x-ray antibiotics or fluids given through an intravenous catheter (IV) oxygen medicine for pain a blood transfusion How is pneumonia and ACS in sickle cell disease prevented? Your child should get all immunizations including: prevnar (at 2 months, 4, months, 6 months, and months) pneumovax (at 2 years, 5 years, and then every 5 years after that) influenza vaccine (every year) Your child will need to take penicillin 2 times a day until 5 years old. A medicine called hydroxyurea may be used to help decrease the number of ACS episodes. Your child may need to see a pulmonologist (lung doctor). Now that you ve read this: r Tell your nurse or doctor the signs of pneumonia and ACS. (Check when done.) r Tell your nurse or doctor what you would do if your child shows signs of pneumonia and ACS. (Check when done.) If you have any questions or concerns, r call your child s doctor or r call 2 of 5

3 If you want to know more about child health and illness, visit our library at The Emily Center at Phoenix Children s Hospital 1919 East Thomas Road Phoenix, AZ Facebook: facebook.com/theemilycenter Disclaimer The information provided at this site is intended to be general information, and is provided for educational purposes only. It is not intended to take the place of examination, treatment, or consultation with a physician. Phoenix Children s Hospital urges you to contact your physician with any questions you may have about a medical condition. September 21, 2017 In family review #1463 Written by Nicki Mitchell, MSN, RN, CPN Illustrated by Irene Takamizu 3 of 5

4 Si usted desea esta información en español, por favor pídasela a su enfermero o doctor. #1465 Pneumonia and Acute Chest Syndrome in Sickle Cell Disease Name of Health Care Provider: Date returned: r db Family Review of Handout Health care providers: Please teach families with this handout. Families: Please let us know what you think of this handout. Would you say this handout is hard to read? r Yes r No easy to read? r Yes r No Please circle the parts of the handout that were hard to understand. Would you say this handout is interesting to read? r Yes r No Why or why not? Would you do anything differently after reading this handout? r Yes r No After reading this handout, do you have any questions about the subject? r Yes r No 4 of 5

5 Is there anything you don t like about the drawings? r Yes r No What changes would you make in this handout to make it better or easier to understand? Please return your review of this handout to your nurse or doctor or send it to the address below. The Emily Center Health Education Specialist Phoenix Children s Hospital 1919 East Thomas Road Phoenix, AZ Thank you for helping us! 5 of 5