Welcome Colin Driscoll MD Chair, ACI Alliance Board of Directors
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1 Welcome Colin Driscoll MD Chair, ACI Alliance Board of Directors
2 Recognizing the ACI Alliance Board of Directors Colin Driscoll (Chair), Oliver Adunka, Nikolas Blevins, Dan Choo, John Dornhoffer, Jill Firszt, David Haynes, Meredith Holcomb, Jan Larky, Steven Rech, Amy McConkey-Robbins, Andrew Shuman, Holly Teagle, Sally Tannenbaum Katsaggelos AC I alliance
3 Board of Directors Nominations Committee Holly Teagle Nominations Chair Committee Members Colin Driscoll, John Dornhoffer, Amy McConkey Robbins
4 Nominations for Election to the Board of Directors Term Camille Dunn PhD Term Melissa J.W. Hall AuD Term David Kelsall MD Term Andrea Warner-Czyz PhD Term AC I alliance Fred Telischi MD (CI2019 Chair) For 2 nd term: Meredith Holcomb AuD Term For Chair of the Board: Colin Driscoll for a Third One-Year Term
5 We are grateful to the Board Members comple5ng their service Nikolas Blevins MD Daniel Choo MD Jill Firszt PhD Holly Teagle AuD AC I alliance
6 Executive Directors Report Celebrating Our Accomplishments Donna L. Sorkin, Execu5ve Director
7 Mission: Strategic Plan Goals 1. Encourage/support research on candidacy, criteria, broad impacts of CI 2. Advance awareness of best practices to broad audience: primary care doctors and other health professionals, early intervention, educators, policy-makers, payers, general public 3. Educate/encourage policy-makers/payers to expand access 4. Build an effective, sustainable organization
8 Major Accomplishments this Year 1. Pursued aggressive public policy agenda and expanded State Champion Network 2. Initiated/continued research initiatives 3. Outreach Outside of CI Community 4. New Web Resources and Visibility 5. Grew as an organization 2017 Accomplishments on Website/About Us
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10 ACI Alliance Organizational Members (86) WA Seattle Children s Swedish Medical Virginia Mason U of WA ID Idaho Elks Hearing & Balance CA Douglas Grant/UCSF House Clinic Providence Hearing & Speech Stanford UCSF/Childrens Oakland USC Keck UT Utah CI Team AZ Mayo Arizona MT Rocky Mt. ENT MN Children s MN Envoy Med. Grp. Health Partners Mayo Clinic U of Minnesota Health NM Presbyterian Ear NE Boys Town CO Rocky Mt. Ear U of Colorado IA U of Iowa February 2018 Mercy Clinic Audiology Midwest Ear Washington U TX Hearts for Hearing, U of Oklahom. Ctr. for Hearing & Speech UT SW Med. Ctr. MO Hear Indiana Indiana U Peyton Manning Children s OK IN AR Arkansas Children s WI Med. College of WI, Koss U of WI,Sch. of Med. FL Joe Dimaggio Children s Nemours Children s Silverstein Inst. Tampa Bay Hearing/ Balance U of Miami IL Lurie Hosp. of Chicago Loyola U Med NorthShore U Hlth Northwestern Med Rush U Med SIU Sch., Med U of Chicago U of Illinois (Chi) MI U of Michigan KY SC Medical U of South Carolina MS Univ. of MS Medical Ctr. GBMC Johns Hopkins MCICE WVU Otolaryngology WV U of Kentucky TN Vanderbilt OH Cincinnati Children s Cleveland Clinic Nationwide Children s Ohio State U University Hospitals U of Cincinnati NC CT Yale Hearing & Balance MD Duke Medical Ctr. UNC Ear & Hearing PA CHOP Jefferson Bal. & Hearing Ctr. Penn Medicine MA Boston Children s BU Med Ctr. Mass. Eye & Ear NY Columbia University NY Eye & Ear NYU Univ, of Rochester Weill Cornell Med. DC Georgetown U The River School VA Washington Carilion Hosp. Ctr. Eastern VA Med. School UVa VCU
11 Membership Expansion Membership provides strength & credibility Organizational Members: 86 (up from 69) Professional Members Total: 1096 (up 9%) Students 72 (up 38%) / Consumers 172 (up 23%) Total Membership of ACI Alliance: 1435 (11%)
12 State Champion Network 40 States Represented Total of 85 State Champions Connect on issues with s and calls + once/year in-person Expanding opportunities for involvement via new state committees Opportunities for consumers, parents, professionals who want to be involved but just not as much
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19 Public Policy Issues We Addressed Broader knowledge of CI among elected and appointed officials and position to argue for appropriate coverage Veterans Access Maintain Medicaid funding for CI Maintain Essential Health Benefits (EHBs) in Healthcare Plans STATE LEVEL ISSUE Support parent choice on CI and child s communication modality
20 Veterans Access to CI Comments from CI clinicians and candidates about VA process Submitted comments to VA (proposed rule) on prosthetics 12/2017 Candidates not being given info on CI because of age (e.g., mid 70s), type of hearing loss (e.g., Meniere s), focus on hearing aids and assistive devices, testing only in quiet Other issues: distance to surgical center, limited # surgical slots Numbers of CI provided in 2016 was 477 (2.5% of expected # based on hearing aids fit)
21 2016 Adult CI Utilization VA vs General Population 2.5% candidates in VA received CI 10% candidates in general popula;on received CI
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23 Sponsored Research Medicare (CMS) Coverage Expansion Quality of Life Cost Effectiveness
24 Medicare Sponsored Study Objectives Demonstrate that older adults with sentence recognition scores that fall between 40-60% benefit from CI Expand Medicare candidacy to better align with FDA indications Findings 28 subjects/strong outcomes but not close to planned patient numbers (90) Next Steps Continue to gather data / share with CMS
25 Quality of Life Research Medical University of SC (MUSC) selected via competitive process CI Quality of Life Development Consortium established to recruit a diverse sample of adult patients 25 CI centers representing all regions of the US Patient recruitment complete / 500 subjects Performing psychometric analysis to review themes and domains identified in focus groups Why examine Quality of Life? Consideration in cost effectiveness of healthcare interventions Non-hearing impacts should be part of the patient advisement process
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27 Focus: (1) Website (2) Outreach on Adult Candidacy Web Visibility Adult Clinical Guidance (aimed at Primary Care Physicians) Older adults age is not a contraindication General audiologists
28 Website Search Google Search points to ACI Alliance website (first page, often #1) on many key topics Examples: Steps to a cochlear implant, insurance, candidacy, what is a cochlear implant, cochlear implant advances, older adults, outcomes in adults/children # Hits + position on page improved Better information on CI for primary care, general public
29 Steps to a cochlear implant
30 Cochlear Implant Candidacy
31 Cochlear Implant Insurance
32 Cochlear Implants Older Adults
33 Cochlear Implant Outcomes
34 Referral Tool for PCPs Available on website under Cochlear Implants/Clinical Guidance
35 Address percep5on that 80 is too old to get a CI Describe the CI journey (it s similar)
36 ACI Alliance State Champions Panel Jerrica Maxson AuD, ND Sarah Mowry MD, OH Jason Wigand AuD, SC Naomi Horton MS, IN David Kelsall MD, CO Victoria Gonzalez AuD, MS
37 New Grant Opportunity: Cost Effectiveness Societal Costs of Severe-Profound Hearing Loss Study intended to explore and recommend detailed plan for updating seminal Project HOPE study by Mohr et al (2000) Partnership with American Hearing Research Foundation Proposals due Aug 15, 2018 information on ACI Alliance website under Research
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