Destination Fitness Workshop Guidelines

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1 Destination Fitness Workshop Guidelines Goal of workshop The workshop, Destination Fitness, will provide guidance and direction to people with bleeding disorders on not only how to maintain an active lifestyle, but also on how to do it safely. Target audience People with hemophilia or another bleeding disorder Parents or caregivers of a person with a bleeding disorder Workshop format An interactive educational session which could include one or more of the following elements: introductory PowerPoint presentation; panel discussion to allow people with bleeding disorders, parents and health care providers to share experiences regarding the selection of appropriate sports and activities; demonstration or interactive session on specific options for physical activity and maintaining fitness, e.g. Tai-Chi, Yoga, Aquacise, Introduction to Weight Training, How to Establish a Personal Fitness Plan, How to use a pedometer, etc. The workshop could be offered at: chapter family weekends or annual general meetings; parent support group meetings; HTC information sessions; chapter/regional educational sessions. Suggested speakers and/or facilitators Local HTC physiotherapist (see HTC listing on CHS website: CHS provincial or regional staff member Experts on specific activities (to be selected in consultation with HTC Physio) Consumers representing various perspectives (parent, child/adolescent with a bleeding disorder, person with an inhibitor, etc.)

2 Sample agenda 1. Opening remarks (see Sample introductory remarks below) Chapter President or Provincial/Regional Staff 2. PowerPoint presentation (use enclosed CD and copy of slides) HTC Physiotherapist 3. Interactive Session Option # 1 Panel Discussion Issues in Selecting Sports and Activities (see Suggestions below) Or Option # 2 Interactive Session on Options for Maintaining Fitness (See Suggestions below) 4. Evaluation of workshop (see Sample evaluation below) 5. Closing remarks (see Sample closing remarks below) Chapter President or Provincial/Regional Staff Sample introductory remarks Welcome to the workshop Destination Fitness. The presentation is one of the modules from the new Canadian Hemophilia Society program: Passport to Well-Being, designed to empower people with bleeding disorders to maximize their quality of life. Over the next year you will have the opportunity to participate in the other modules: home care, roadmap for managing pain and charting your course. At each session you will receive a visa stamp on your passport; collecting all four stamps will make you eligible to enter a draw for exciting prizes. The goal of this workshop is not to provide all the answers. Rather, it is intended as a guide, showing some of the different routes to take on the journey to fitness. It will provide guidance and direction on not only how to achieve an active lifestyle, no matter how old you are or what type of bleeding disorder you have, but also on how to do it safely. Begin Power Point presentation (distribute hand-out of slides for note-taking)

3 Option # 1: Suggestions for panel discussion - Issues in Selecting Sports and Activities Moderator HTC Physiotherapist Panel members An adult with a bleeding disorder A parent of a child with a bleeding disorder A parent of an adolescent with a bleeding disorder An adolescent with a bleeding disorder A child with an inhibitor Suggested discussion topics What are children s, adolescents and adults experiences in terms of participation in physical activities and sports? What are the risks and benefits of participating in physical activities and sports? How can one make informed choices about sports and activities appropriate to condition, ability and interest? What are effective ways for parents to guide children and adolescents in their choices about sports and activities? Option # 2: Suggestions for Interactive Session on Options for Maintaining Fitness Interactive Demonstration One or more knowledgeable and interested instructors would be invited to give a 20 minute interactive demonstration (Yoga, Tai Chi, Aquacize, Introduction to Weight Training, etc). HTC physio to help assess suitability of speakers/instructors. Participants can select one or rotate to several different activities. How to use a pedometer Practical session, led by the HTC Physiotherapist, in which participants would have the opportunity to learn how to use a pedometer to promote fitness. Contact CHS regarding ordering pedometers (1 per family), How to establish a personal fitness plan Practical session, led by the HTC Physiotherapist, in which participants would have the opportunity to learn about the components of a fitness plan, about how to conduct baseline measures (e.g. resting heart rate, BMI (Body Mass Index) calculation and/or % fat, grip strength and/or flexibility) prior to embarking on their personal destination to fitness. In so doing, they can then eventually compare these baseline measures with similar measures taken down the road.

4 Sample closing remarks Thank speakers and participants for attending Collect evaluations Hand out - Destination Fitness and WFH Go For It Booklets Invite participants to pick up a passport and have it stamped with the Destination Fitness visa at the Passport to Well-Being Booth. (If not available, set up a table for this.)

5 Destination Fitness Workshop Evaluation Your feedback helps us to improve the quality of our programs. Please take a few minutes to reply and give your comments. 1. The format of this workshop involved a PowerPoint presentation followed by interactive sessions regarding maintaining fitness. How would you rate the effectiveness of this format? Poor Fair Average Good Excellent 2. How well do you feel this workshop addressed relevant issues relating to how persons with bleeding disorders can maintain an active lifestyle? Poor Fair Average Good Excellent 3. What part(s) of this workshop were helpful to you? 4. Comments or suggestions for future workshops on this topic. 5. Please indicate your role within the bleeding disorder community: a) person with hemophilia - FVIII deficiency FIX deficiency b) person with von Willebrand Disease Type Other c) parent/caregiver of a person with hemophilia or VWD d) HTC health care professional nurse clinic director other e) CHS staff national provincial regional

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