Summary of key points / outcomes/ action Party & date

Transcription

1 Haematology Regional Group Meeting Tuesday 25 th May 2010, Antrim Hospital In attendance: Dr Anne Kyle Clinical Lead Ms Sarah Taggart Ms Clare Marshall Dr Tom Lynch Ms Ruth Thompson Ms Caroline McCaughey Ms Margaret Michael Dr J Carson Dr Martin Eatock Dr Robert Cuthbert Ms Joanne Ogborn Dr Paul Kettle Dr Karl Dedic Ms Sally Campalani Mr John Curran Dr Philip Burnside Dr Lakshmi Venkatraman Ms Louise Gribben Dr Feargal MacNicholl Ms Sylvia Cole Dr Mervyn Humphreys Dr Philip Windrum Dr Jeremy Hamilton Mr Scott McCloskey Dr Michael Quinn Ms Sarah Williamson Ms Davinia Lee Ms Bridget Tourish Mr Michael Megaw Apologies: Dr Yong Lee Ong Ms Mandy Hamilton Ms Claire Walsh Ms Christine McCartney Mr Moulod El-Agnaf Mr Gordon Marron Ms Margaret Bowers Ms Alison Porter Ms Jackie Quinn Ms Yong Lee Ong Dr Katherine Boyd Ms Susan Pigott Ms Lisa McGurgan Summary of key points / outcomes/ action Identified Party & date Minutes of previous meeting The minutes of the previous meeting were agreed as a true and accurate reflection. Haematology workforce Prof McMullin outlined 3 SpRs will be finishing their training in

2 2010/11, 3 people finishing in 2012, and three people finishing in Two new ST3 s have been recruited. It was agreed to keep haematology workforce as a standing agenda item. Drugs and Therapeutics Process Dr Martin Eatock gave a presentation on the NICaN Drugs and Therapeutics process. After discussion, the group agreed to consider NICE costing and implementation templates prior to submission of any business cases to ensure that estimated patient numbers and associated costs are in line with NICE and where they vary, a clear explanation should be documented. It was also agreed that D&T would be a rolling agenda item and that all business cases should be shared with the group for information/comment prior to submission to the committee. Work plan to be updated to reflect embedding of agreed process B Tourish / M Megaw Annual Report 09/10 and Workplan 2010/11 Both the annual report 09/10 and work plan 10/11 formally signed off, with the exception of some minor amendments. The key actions are as follows: Regional audit: has asked Kathryn Boyd to be audit lead for the group and is awaiting a response. The group is to explore audit topics and a list of audits undertaken by the Lung regional group is to be shared as an example. The following audits were suggested at the meeting: Uptake of drugs and therapies against approved business cases Various queries from CML database ( to discuss with Mary Francis McMullin) Appropriates of GP red flag referrals against the NICaN referral guidelines Audit to consider number of patients who were treated at Belfast who should have been treated in a DGH. to explore audit topics with the group and agree in year audits. Leads are to be identified to take audits forward. Patient experience measures: It was agreed that the various patient experience tasks are to be taken forward via the established CNS forum. Sally Campalani to share sample patient record of consultation S Campalani

3 and patient surveys to be shared with the forum. Follow up work stream Sub-group to be established to take forward a scoping exercise in relation to a review of follow up mechanisms and evidence base with a view to developing regionally agreed guidelines. to work with network coordinator in establishing subgroup to take this piece of work forward. Education Group to consider education needs off line. Clinical Trials Dr Kettle advised that due to other commitments, he is unable to take on the role of trials lead. Network coordinator to share role description for trials lead with and to explore nomination of lead with the trials unit. Final work plan and annual report to be circulated to the group with minutes and uploaded onto NICaN website. Haematology issues at Belfast Trust advised that she had brief discussions with colleagues at Belfast Trust in relation to patients being referred to Belfast who should have been treated at their DGH and this was becoming an increasing problem due to reduced number of beds for Haematology patients. Ms Williamson advised that referrals may need to be sent back to GPs if this continues. It was unclear whether the issue was with GP referral or internal referrals and detailed analysis would be required to advise this. Ms Williamson to draft a report highlighting issues to explore if contacting GPs and encouraging them to refer within their own trust area would be an option. Network coordinator to discuss with NICaN Primary Care Director and liaise with. S Williamson / Agreed that, Dr Kettle and Dr Jeremy Hamilton to meet with Geoff Hill and Sarah Williamson to progress. Clinical Management Guidelines Development Myeloma Guidelines Updated Myeloma national guidelines expected to be published in the coming months. Await publication of national guidelines prior to commencing work on CMG development for this site. Lymphoma Guidelines This work is being led by Fergal McNicholl and Dr Michael Quinn.

4 Kent and Medway guidelines provide a good baseline and these have been circulated to all Haematologists for comment/highlighting of local variations with comments requested by 7 th June. DRAFT Lymphoma guidelines to be available for discussion at September meeting Acute Leukaemia Work being led by sub-group. A pathway has been worked up, however agreed that clinical management guidelines are required to provide the detail of the pathway. Network coordinator to share samples of CMGs and national guidelines with group to progress. Radiology Sub-group established to include the following: Tom Lynch and Willie Page (Radiology) Fergal McNicholl and Michael Quinn (Haematology) Agreed that it would be good to include a radiologist from another MDM - Fergal is to discuss with his team. Also noted that there was a need to include radiologists who delver the service to explore if any further radiologists want to be involved in meetings or prefer to be consulted via Lack of equity of PET provision Agreed that there is likely to be an increase in requests for PET following completion of CMGs and the need to feed into capacity planning at Belfast Trust. has previously corresponded with Belfast Trust highlighting this. to write a further letter to Bernie Owens, Co-Director at Belfast Trust highlighting issues on behalf of the NICaN Group. F MacNicholl Pathology sub-group and development of CMGs Sub-group (led by Lakshmi and Mervyn Humphries) established to consider overall implementation of pathology recommendations in IOG. The 3 key aims of this sub-group are as follows: Establishment of Haemato-pathology Network Development of Clinical Management Guidelines Integrated reporting Noted that the first two aims are achievable, however the 3 rd is not within reach as challenges are presented due to the non integrated IT system. Overall action: Network coordinator to share sample CMGs from other networks and any available national guidelines with the sub-groups together with a copy of the network template for the CMGs. Item to be included on agenda for the next meeting.

5 Flow Cytometry in the investigation of Haematological Malignancies Guidelines developed by Dr Cuthbert formally agreed. Dr Cuthbert/Mr Humphries to explore development of standardised request form. Guideline to include section on provision of clinical information. Dr Cuthbert / Mr Humphries Date of Next Meeting: