LONDON CANCER HEAD AND NECK PATHWAY BOARD

Transcription

1 LONDON CANCER HEAD AND NECK PATHWAY BOARD Date: Tuesday 18 th September 2012, 14:30-16:30 Venue: Meeting Room 1, UCL Partners, 170 Tottenham Court Road, London, W1T 7HA Chair: Dr Amen Sibtain (standing in for Mr Simon Whitley) ACTION LOG Action Owner Date Agreed Status To let TB and SW have suggestions for the Lead for Primary Care role All 18 th September rd October 2012 To produce head and neck data pack TB 18 th September rd October 2012 To update group on the outcomes of the COSD TB 18 th September rd October 2012 readiness roadshow To write to DfE re cancer signs and symptoms in the National Curriculum To explore the possibility of accessing resource and support centrally within London Cancer for a data manager. To approach colleagues (e.g. MDT coordinators) who might be interested in taking on the data manager role. AS 18 th September 2012 Ongoing TB 18 th September 2012 Ongoing NS and FV 18 th September 2012 Ongoing To update the group following the COSD TB 18 th September rd October 2012 readiness roadshow event about opportunities to address the DAHNO objective via the COSD work programme. To invite Karen Graham (Data Improvement Manager, Merseyside and Cheshire Cancer Network) to attend the next meeting. To approach Louise Occomore (SLT) and Melanie Powell to see if they are interested in joining the head and neck technical subgroup. To approach Dr Alex Clarke to see if she is interested in participating in the head and neck technical subgroup. TB 18 th September th October 2012 SA 18 th September th October 2012 MB 18 th September th October

2 1. Welcome, introductions and apologies; minutes of the previous meeting AS welcomed colleagues to the meeting. The Board heard the apologies that had been received, which are listed at the end of these minutes. The minutes of the previous meeting (21 st August 2012) were accepted as an accurate record of proceedings. The group reviewed the actions and matters arising as follows: A Lead for Primary Care is still needed on the Pathway Board. CM confirmed that she has already begun to approach colleagues working in community dentistry. AS encouraged colleagues to think about possible candidates for this important role and to let TB and SW have their suggestions. TB explained that the head and neck data pack will be produced primarily to inform the technical subgroup process. This will be ready for review by the Pathway Board before the first meeting of the technical subgroup. TB agreed to feed back to the group at its next meeting following the COSD (Cancer Outcomes and Services Dataset) readiness roadshow on 19 th September Any actions from the previous meeting that are not mentioned above can be considered complete. MB updated the group on UCL Partners application to become an Academic Health Sciences Network (AHSN). One of the strands of the bid is improving early diagnosis and detection. He reported that the provost of City University is very supportive of this agenda. This individual had confirmed to MB that he would be prepared to champion education and training in early detection for nurses, paramedics, etc. AS informed the group that he plans to write to the Department for Education about the inclusion in the National Curriculum of material to promote awareness of cancer signs and symptoms. 2. London Cancer update TB informed the group that the Expert Reference Group for Acute Oncology is due to meet next week. A recruitment process for the Chair of the Radiotherapy and Chemotherapy Expert Reference Groups (neither of which have been established yet), is open until Friday 28 th September Review of Pathway Board objectives and draft workplan The Board reviewed the objectives and activities as outlined in the draft workplan. (i) Improve performance in Head and Neck clinical trials Lead: Dr Amen Sibtain This was discussed later in the agenda (item 6). (ii) Improve quality and comprehensiveness of London Cancer trusts contribution to the DAHNO national audit Lead: TBC The group agreed that trusts failed to deliver the DAHNO requirement because they have insufficient resources. It was felt that, without sufficient resource and, specifically, without a dedicated data manager who can work across the ICS they will be unlikely to meet the requirement in future. Colleagues agreed that, rather than bemoaning this situation, the group should take steps to define what is needed to achieve the requirement and then develop a business case containing a cogent plan and SWOT analysis of options. This will then be submitted to London Cancer for consideration. 2

3 PR suggested that, rather than identify a person to do the data entry, what is needed is someone who can work on a six-month funded research project to develop a user-friendly database that interfaces with Somerset, and that supports automated data entry. The group were keen to learn from other parts of the country, or from other cancer specialities, that have managed to achieve a good level of DAHNO data compliance. A lead for this strand of work is still needed. ACTION: TB to explore the possibility of accessing resource and support centrally within London Cancer for a data manager ACTION: NS and FV to approach colleagues (e.g. MDT co-ordinators) who might be interested in taking on the data manager role. ACTION: TB to update the group following the COSD readiness roadshow event about opportunities to address this objective via the COSD work programme. ACTION: TB to invite Karen Graham (Data Improvement Manager, Merseyside and Cheshire Cancer Network) to attend the next meeting. (iii) Redesign services to enable better organisation, better system leadership and high quality patient-centred care in line with the recommendations of the Model of Care Lead: Mr Simon Whitley This was discussed later in the agenda (item 4). (iv) Improve one-year survival through better early detection and diagnosis of head and neck cancer Lead: Prof Iain Hutchinson AS informed the group that SW had had some preliminary conversations with IH about what this workstream might involve. It is hoped that IH will be in a position to update the group at the next Pathway Board meeting. Colleagues felt that targeted education is more important that screening. There may be some opportunities for education at the point at which girls receive HPV vaccination. (v) Implement the local support team model Leads: Kim Ainsworth and Bella Talwar BT and KA agreed that discussions about the local support team would be progressed offline in the existing group, and this would be revisited at the next Pathway Board meeting. 4. Implementing the recommendations of the London Model of Care for Cancer Services: Establishing the technical sub-group process The group reviewed the lists of individuals who have been invited to join the technical subgroups for head and neck and thyroid. It was agreed that individuals (e.g. AHPs, CNSs, MDT Co-ordinators) nominated for the head and neck subgroup could be in a position to be deployed to address gaps in membership in the thyroid group. Some members of the group expressed concern about the dates chosen for the meetings in particular the fact that the first meeting takes place in the half-term holidays. TB agreed to look at the dates and see whether there is any opportunity for flexibility to accommodate those colleagues who would find attendance difficult. 3

4 ACTION: SA to approach Louise Occomore (SLT at ) to see if she is interested in joining the head and neck technical subgroup. ACTION: MB to approach Dr Alex Clarke (Clinical Psychologist at RFH) to see if she would be interested in participating in the head and neck technical subgroup. In particular, this is to represent expertise in psychosocial support for patients undergoing reconstructive surgery. 5. DAHNO update The group agreed that there was nothing to discuss in addition to that which had been discussed under agenda item Research and audit The group discussed the following notable current non-surgical studies: (i) Art Deco: this is a study involving IMRT and selective dose-boosting. Colleagues felt that this is one of the best head and neck studies ever designed. ACTION: FV to ask Dr Martin Forster to contact AS about initiating the Art Deco trial between and. (ii) De-escalate: this is a trial involving the stratification of patients into HPV positive and negative groups and progressively deintensifying their chemoradiation. BT asked whether there is support from within London Cancer to develop new studies. 7. AOB MB informed the group that NALC (the National Associated of Laryngectomy Clubs) is updating the patient information on its website. Colleagues interested in reviewing this content particularly the information on radiotherapy or palliative care should contact MB. KA informed the group that the speech and language therapists group had met recently to discuss local support team arrangements. She described the current model for patient local support and ongoing care, which is different in different parts of the London Cancer area. Patients attached to are funded by consultant (i.e. based on where they are seen/who they are seen by); whereas patients at Barts are funded by geography (i.e. based on where they live). This is leading to a situation where patients end up in a funding no-man s land. The group agreed that this is not acceptable, but that the structures that cause such a situation to arise could take some time to address. It was felt that, in such situations, clinician-to-clinician referral would be a helpful interim measure to ensure that patients do not lose out on funding for their follow-up care. The date of the next meeting of the Head and Neck Cancer Pathway Board on Tuesday 23 rd October 2012 from 14:30-16:00, Meeting Room 1, UCLPartners, 3 rd Floor, 170 Tottenham Court Road, London W1T 7HA. 4

5 Attendees Name Amen Sibtain Bella Talwar Claire Morgan Francis Vaz Kim Ainsworth Kim Piper Laila Parvanta Lisa O Leary Lynda Farmer Martin Birchall Mary Burgess Neil Shah Polly Richards Tim Burdsey Trust/Organisation HUH BCFH UCL BHRUT London Cancer Apologies Name Margaret Brown Sian Davies Simon Whitley Tony Smith Vanessa Smith Wayne Halfpenny Trust/Organisation NMUH NMUH Patient representative Patient representative BCFH 5