London and South East England Sarcoma Network Sarcoma Advisory Group

Transcription

1 London and South East England Sarcoma Network Sarcoma Advisory Group Date: Friday 18 January 2013, 15:00-17:00 Venue: Boardroom, 3 rd Floor, 170 Tottenham Court Road, W1T 7HA Chair: Professor Jeremy Whelan ACTION LOG Action Owner Date Agreed Status DS/AS to provide an update on retroperitoneal complex case meeting in April JWh to liaise with JWo to produce a summary document about QUIDIS rehab project PD to undertake an update of the trial list, BS to work on the website TB and AH to present an audit on atypical lipomas in April RMH to send the results of the patient survey to EP EP to scope potential for teleconference between commissioners, chair and CSCCN EP to request all members comments on specifications to be sent to JWh EP to send out information about joining the Commissioning Board CRGs to members London SCG representative to provide an update at the April meeting Any RMH CNSs interested in attending the peer review meeting to contact GF DC to share link to chemotherapy treatment algorithm with Chemotherapy Expert Reference Group EP to contact trust leads to communicate delays in the histopathology departments Dirk Strauss and Arj Shankar Julie Woodford Palma Dileo and Beatrice Seddon Tim Briggs and Andrew Hayes 19 October 2012 To be completed by Royal Marsden and Emma Painter Emma Painter 18 January 2013 Ongoing Emma Painter 18 January 2013 Completed Emma Painter 18 January 2013 Completed London SCG representative RMH CNS and Gemma French 28 February 2013 Donna Chung 18 January 2013 Completed Emma Painter 18 January 2013 Ongoing 1

2 Action Owner Date Agreed Status GF to make the suggested changes to the GP letter UCH data manager to undertake the circulation of the letter to GPs MM to circulate staging data from RMH EP to contact Emily Collins, Manager for the AOS Expert Reference Group to arrange a meeting between chairs Gemma French UCH Data Manager Melissa Morris Emma Painter 1. Welcomes, Introduction and Apologies JWh welcomed the group and apologies were heard. Post meeting note: There was severe transport disruption due to adverse weather so attendance was very limited but it was a productive and active meeting. Terms of Reference will be discussed and made available at the next meeting. 2. Minutes of the meeting held on 19th October 2012 and matters arising The minutes were agreed as a true recording of the meeting that took place on 19 October Retroperitoneal Complex Case Meeting (DS/AS) DS and AS were not present to provide an update on this item. ACTION: DS/AS to provide an update on retroperitoneal complex case meeting in April CNS continuity of care and update on QUIDIS rehab project (JWo) JWo was not present to provide an update on this item. ACTION: JWh to liaise with JWo to produce a summary document about QUIDIS rehab project London Cancer 2WW referral form Post Meeting Note: It was agreed that the 2WW referral form would remain in its current state for the time being after confirmation with Nick Hodgkiss. Clinical trials re-formatting and website There was discussion regarding the reformatting of the website to include the list of clinical trials and NCRN portfolio maps. ACTION: PD to undertake an update of the trial list and BS to work on the website RMH user involvement There was no RMH representation at the meeting; therefore this item will be carried over to the April meeting. ACTION: EP to include RMH user involvement to the agenda of April meeting Designated practitioners It was agreed that designated practitioners would be ed to provide missing information, however this has proven difficult to complete. The SAG does not have the required job plans and 2

3 agreements from the designated practitioners in order to pass the peer review measure, therefore this will be discussed at the peer review visit on 28 February. Atypical Lipoma audit It was agreed that Christine Lam (RMH) and Panos Gikas (Stanmore) would support TB and AH in running an audit on atypical lipomas which would be presented at the meeting in April ACTION: TB and AH to present an audit on atypical lipomas in April National Cancer Patient Survey UCLH/RNOH survey responses were circulated to the group previously to the meeting. The Group noted that RMH results were still outstanding. JWh informed members that there was a requirement for individual trusts and services to respond to the results of the surveys. ACTION: RMH to send the results of the patient survey to EP CSCCN pathway LD provided an update on behalf of UP. The response for CSCCN was that it was unable to agree to GIST pathway as it currently stands. A letter of response will be sent back reiterating SAG discussions. It was agreed that this communication will continue through UP and LD. JWh queried the potential for discussions through the National Peer Review team. It was agreed that it may be possible have a teleconferences between commissioners, SAG Chairs and CSCCN representatives. ACTION: EP to scope potential for teleconference between commissioners, chair and CSCCN Thoracic Sarcoma Surgery Pathway LD reported that UP had spoken to the divisional manager at Royal Brompton and Harefield NHS Foundation Trust and will be following up in the near future. ACTION: London SCG representative to provide an update at the April meeting 3. Response to NHS Commissioning Board sarcoma service specification The specification was circulated previously. Members agreed that the specification was very closely aligned with peer review and IOG measures. JWh stated that there were issues with the bone sarcoma surgery and such measures were unclear. Members were asked to send any other comments on the specification to JWh, who would be contacting the Commissioning Board on behalf of the SAG. ACTION: EP to request all members comments on specifications to be sent to JWh Members were informed that invitations to join Clinical Reference Groups as members or Chairs were open and could be accessed on the following website: ACTION: EP to send out information about the CRGs to the SAG members 4. Peer Review JWh informed members that the London Sarcoma Service MDT and the SAG Network Board were being peer reviewed on 26 February The meeting would require an RMH CNS to attend the meeting. ACTION: Any RMH CNSs interested in attending the peer review meeting to contact GF 5. Site Specific Pathways workshops and London Cancer workshop 3

4 JWh proposed a site specific pathway workshop that could be run to engage with pathways and allow for better communication. In order to maximise the opportunity for clinicians to attend, the programme would be run on multiple dates with three months notice. These workshops could extend understanding and allow for discussion of concerns and could be attended by members of MDTs, managers, commissioners etc. The dates and information on the workshops will be circulated in due course. 6. LSESN Chemotherapy Treatment Algorithm Members heard that the updated algorithm can be found on the network website. It was noted that this is document will require continuous updating to reflect current practice. JWh thanked BS and the other medical oncologists for the work that had been put into the development of the document. It was also noted that the algorithm represents practice across both centres. ACTION: DC to share link to chemotherapy treatment algorithm with Chemotherapy Expert Reference Group 7. Specialist Sarcoma Histopathology Review There had been previous concerns raised about the time to retrieve biopsies and the associated delays in patient management systems. These concerns have been forward the centre pathologists for comment. ACTION: EP to contact trust leads to communicate delays in the histopathology departments 8. Staging Data at each centre ACTION: MM to circulate staging data from RMH 9. Update from SCG LD informed the Group that there was decisions about who will be linking with the Sarcoma group. Anxiety about a loss of continuity with commissioning input on their work. 10. Feedback from GP's on 'experience of route to diagnosis for sarcoma' JWh thanked London Cancer for pushing this forward. The letter was put forward to members for review. The current changes were as follows: formatting the letter to ensure space for answers to include the website addresses on the letter to attach the 2WW referral form to the letter ACTION: GF to make the suggested changes to the GP letter ACTION: UCH data manager to undertake the circulation of the letter to GPs 11. AOB London Cancer JWh reported back that discussions that took place with London Cancer Board and it had been agreed that the pathways set down by SAG would be agreed by site specifics MDTs. The SAG will be jointly hosted by London Cancer and London Cancer Alliance. Members heard that patient representatives will be attending the meeting. 4

5 Shared Care There was discussion surrounding the problematic nature of supportive care and shared care. It was agreed that patients will be treated at a variety of trusts if they suffer complications from chemotherapy. As result, the patients will not be familiar with staff members. It would be necessary to ensure that the acute oncology services are able to provide appropriate support and treatment to such patients. ACTION: EP to contact Emily Collins, Manager for the AOS Expert Reference Group to arrange a meeting between chairs The next meeting of the SAG will take place on the 26th April 2013 from 15:00-17:00 in the Boardroom, Royal Marsden Hospital, Chelsea. Attendees Name Role Trust/Organisation Beatrice Seddon (BS) Consultant Clinical Oncologist UCLH Donna Chung (DC) Quality Manager London Cancer Emma Painter (EP) Pathway Manager London Cancer Jeremy Whelan (JWh) Chair UCLH Linda DeFreitas (LD) Commissioning Manager London SCG Palma Dileo (PD) Consultant Clinical Oncologist UCLH Apologies Name Role Trust/Organisation Aisha Miah Consultant Clinical Oncologist Royal Marsden Andrew Hayes Consultant Surgeon Royal Marsden Aria Daneshfar Consultant Orthopaedic Surgeon University Hospital Lewisham Charlotte Benson Consultant Medical Oncologist Royal Marsden Chi-Hwa Chan Consultant Oral & Maxillofacial Surgeon Luton & Dunstable University Hospital Chrissie O'Leary General Manager Oncology UCLH Dirk Strauss Consultant Surgeon/Oncologist UCLH David Sallomi Consultant Radiologist East Sussex Helen Bennett Cancer Services Manager Royal Surrey County Hospital NHS Foundation Trust Ian Vousden Quality Manager Kent & Medway Cancer Network Jeffrey Summers Consultant Clinical Oncologist Maidstone and Tunbridge Wells NHS Trust John Schofield Consultant Histopathologist Maidstone and Tunbridge Wells NHS Trust Louise Dale Project Manager Anglia Cancer Network Lucy McLaughlin Programme Manager Mount Vernon Cancer Network Mary Emurla Programme Manager Anglia Cancer Network Rik Hemmingfield Clinical Support Manager Dorset Cancer Network Sandra Strauss Oncologist UCLH Sajid Shariff Orthopaedic Surgeon Medway Trust 5

6 Name Role Trust/Organisation Scott Mitchell Lung and Sarcoma Specialist Royal Marsden Pharmacist Tim Briggs Consultant Orthopaedic Surgeon Royal National Orthopaedic Hospital Tricia Moate Patient Representative - 6