ECIBC overview. Donata LERDA Healthcare Quality Team leader
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1 ECIBC overview Donata LERDA Healthcare Quality Team leader Joint Research Centre Institute for Health and Consumer Protection Public Health Policy Support Disclaimer: The contents of this presentation are the views of the author and do not necessarily represent an official position of the European Commission. European Union, 2013
2 2 ECIBC Plenary to 11 December Baveno 2013
3 2013 JRC team 3 ECIBC Plenary to 11 December Baveno
4 ECIBC: Background The European Commission supports the development of European Guidelines for breast cancer services the development & pilot a voluntary quality assurance scheme for breast cancer services DG SANTE allocated to JRC the coordination of the ECIBC (Dec 2012) JRC is a suitable institution to coordinate this initiative: Sustainable structure in the long-term Neutral platform for the involvement of stakeholders 4 ECIBC Plenary to 11 December Baveno
5 Breast Cancer Services Report: survey Prevalence of (mainly) public health systems Many organisational models for BCSs Many (co-existing) QA schemes 5 ECIBC Plenary to 11 December Baveno
6 2013 consensus workshops 6 ECIBC Plenary to 11 December Baveno
7 7 ECIBC Plenary to 11 December Baveno 2015
8 The JRC s Healthcare Quality Team Quality Assurance & Indicators Healthcare Quality Epidemiology Cancer screening Public health Health Technology Assessment Cancer registries Radiology IT, web hub development Systematic reviews Evidencebased guidelines Communication Oncology 8 ECIBC Plenary to 11 December Baveno
9 Quality in healthcare Inequalities in outcomes are evident. HOW TO IMPROVE? Quality of care should be defined, measured, and monitored by essential indicators based on evidence. (The what) In collaboration with Member States, a set of VOLUNTARY, ESSENTIAL and EVIDENCE-BASED quality indicators for care is proposed: monitoring and on-site auditing will support their application (The how) Countries can implement them in total autonomy according to Art. 168 of the treaties (decide on which model to apply in order to attain the quality indicators) 9 ECIBC Plenary to 11 December Baveno
10 European Commission Initiative on Breast Cancer Plenary of the ECIBC Improving breast cancer screening, diagnosis and care in Europe Baveno, Lago Maggiore, Italy 9-11 December 2015 Disclaimer: The contents of this presentation are the views of the author and do not necessarily represent an official position of the European Commission. European Union, 2015
11 In the meantime 11 ECIBC Plenary to 11 December Baveno
12 Policy responsibility and endorsement of ECIBC 12 ECIBC Plenary to 11 December Baveno
13 What is ECIBC, what are expected outcomes? A pilot and voluntary European quality assurance (QA) scheme for breast cancer services based on guidelines New European Guidelines for breast cancer screening and diagnosis A platform of guidelines for other stages of BC A European template of training on digital mammography A long-term web hub hosting all the outcomes After the successful implementation of the ECIBC, its outcomes and results could be of value for other areas of healthcare 13 ECIBC Plenary to 11 December Baveno
14 ECIBC: Working modality GDG & QASDG Individuals (not entities) WORKING GROUPS STAKEHOL DERS Entities, Joint Actions, other projects JRC NATIONAL CONTACTS 34 nominated for the project 14 ECIBC Plenary to 11 December Baveno
15 ECIBC guidelines Concept after 2013 WSs conclusions 1. SCREENING 2. DIAGNOSIS European Guidelines for breast cancer screening and diagnosis 3. TREATMENT 4. REHABILITATION 5. FOLLOW-UP PLATFORM of HIGH QUALITY (trustworthy) GUIDELINES According to Council Recommendation of 2003 "mammography screening for breast cancer in women aged 50 to 69 in accordance with European guidelines on quality assurance in mammography;" The QA scheme has to refer to European Guidelines for screening and diagnosis; therefore their revision is necessary for covering all BCC stages. 15 ECIBC Plenary to 11 December Baveno
16 1. SCREENING ECIBC: a common benchmarking, the voluntary QA scheme 2. DIAGNOSIS Underpinned by Regulation (EC) No 765/2008 and including: 3. TREATMENT 4. REHABILITATION 1 - Specific requirements from Guidelines and from searches (plus trackability between stages and information to patients on what they can expect at next stages) 2 - General context (inputs from Directive 2011/24/EU & Council Recommendation of 2009, inputs from relevant projects and Joint Actions) 5. FOLLOW-UP And: Quality Management Systems, Testing activities accreditation, Data collection requirements (KPIs, possible cancer registries indicators) 6. END-OF-LIFE CARE 16 ECIBC Plenary to 11 December Baveno
17 ECIBC concept : guidelines go hand in hand with QA scheme Guidelines Systematically developed statements to assist practitioner and patient decisions about appropriate healthcare. 1 [and support policy makers] Evidence-based guidelines are essential for the QA Scheme. The QA scheme monitors & enhances guidelines implementation Quality Assurance Scheme Quality requirements for clinical aspects should correspond to key recommendations from guidelines, supported by the best available evidence. 1 Field MJ, Lohr KN, editors; Committee to Advise the Public Health Service on Clinical Practice Guidelines, Institute of Medicine. Clinical practice guidelines: directions of a new program. Washington, DC: National Academy Press; ECIBC Plenary to 11 December Baveno
18 JRC preparatory work for ECIBC and its working groups Networking Outsourcing (literature review, QA scheme, guidelines selection) Database of related literature, projects, networks, entities, contacts Surveys and studies Dissemination (flier, concept) and the web hub Identification of IT tools (CIRCABC, EUSurvey for consultations) 18 ECIBC Plenary to 11 December Baveno
19 GDG and QASDG 19 ECIBC Plenary to 11 December Baveno
20 The EC invited individual experts to join the working groups which will be established in the framework of the ECIBC 20 ECIBC Plenary to 11 December Baveno
21 Profiles Eligibility & Selection criteria Guidelines Development Group (127 applications) Professionals Methdologists Individuals Quality Assurance Scheme Development Group (63 applications) Professionals WG language (EN) proficiency Experience in working groups Education Working experience Fields of competence (main & additional ones) Data protection policy acceptance Commitment Independence Individuals Nomination process concluded in July 2015 (34 members each) 21 ECIBC Plenary to 11 December Baveno
22 The JRC needs the support of experts and stakeholders Guideline Development Group (GDG) Quality Assurance Scheme Development Group (QASDG) 34 members 34 members Kick-offs: from 7 to 11 September 2015 First outcomes starting from ECIBC National Contacts European/international entities and projects 22 ECIBC Plenary to 11 December Baveno
23 For more information on ECIBC 23 ECIBC Plenary to 11 December Baveno
24 Institutional JRC Website JRC can provide support for dissemination actions. E.g. Visits of JRC team to National Contacts, Interactions National Contacts / NABs, template presentations, JRC presentations at meetings/conferences ECIBC web hub ecibc.jrc.ec.europa.eu 24 ECIBC Plenary to 11 December Baveno
25 2016 Plenary in the week November 25 ECIBC Plenary to 11 December Baveno
26 Thank you for your attention Disclaimer: The contents of this presentation are the views of the author and do not necessarily represent an official position of the European Commission. European Union, 2013
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