Online Bereavement Support: Research & Insights
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1 Online Bereavement Support: Research & Insights J. Worth Kilcrease, MBA, MA, LPC, FT Emily A. Eakin, MA with TrueSolace
2 We'll cover : 1. traditional bereavement support 2. grief styles 3. online tools usage today 4. online bereavement support now 5. matching styles to tools 6. the future
3 Part 1 traditional bereavement support (unplugged)
4 traditional images of the bereaved
5 traditional (unplugged) hospice bereavement support
6 traditional (unplugged) hospice bereavement support
7 traditional (unplugged) hospice bereavement support
8 Part 2 grief styles
9 G R I E F S T Y L E S Intuitive Instrumental
10 G R I E F S T Y L E S Intuitive "traditional" grievers strong emotional reactions openly express inner finds helpful: talking to others
11 G R I E F S T Y L E S Instrumental grieving is cognitive, physical often perceived as not caring decision-makers, do-ers may feel pressured to express grief in intuitive styles
12 G R I E F S T Y L E S Intuitive Instrumental continuum
13 Part 3 online usage
14 O NL Connected by computer to 1 or more other computers or networks, as through a I N E commercial electronic information service or the Internet.
15 online tech usage stats OVER OVER EST MILLION MILLION MILLION 2016 U.S. POPULATION U.S. INTERNET USERS U.S. FACEBOOK USERS
16 online use by age % OF U.S. INTERNET USERS to 29 yrs 30 to 49 yrs 50 to 64 yrs 65+ yrs AGE GROUP
17 yes, age is relative... yet still...
18 seniors are the fastest growing group of internet users % of seniors who use internet y e a r
19 a majority of internet users go online every day 90 % of users who go online DAILY age group
20 offline usage stats % OF U.S. ADULTS WHO DO NOT USE THE INTERNET YEAR
21 Everybody's doing it. Guys, I don't think we can get this down to 144 characters...
22 Part 4 current online support tools
23 Typical Hospice Online Bereavement Support Options SOCIAL/COMMUNITY INFORMATIONAL ONLINE COUNSELING Connects people virtually for social networking. such as facebook, Twitter, Griefnet, chat groups, etc. Offers access to information such as a library database, Wikipedia, WebMD, resource link collections, etc. Offers guidance by professional. Requires user interaction and feedback. TalkSpace, BetterHelp, PrestoExperts, etc.
24 Online Bereavement Support SOCIAL/COMMUNITY
25 Online Bereavement Support INFORMATIONAL
26 Online Bereavement Support ONLINE COUNSELING
27 Research suggests... being online promotes disclosure "self disclosure is even greater in computer mediated communication than in face to face communication" (Doveling, p.405) "Among the important advantages of the internet bereavement community are anonymity, privacy, non confrontational nature, and 24 hour availability." (Tolstikova & Chartier, p.329)
28 Research suggests... digital presence can help heal "online outlets like SNS are good for maintaining relational continuity with deceased persons" (Egnoto et al., p.284) because "bonds with deceased persons do not need to be severed entirely, but rather are transformed so the living can grow and recover from the death of a loved one" (Egnoto et al., p.284)
29 Part 5 matching styles to tools
30 G R I E F S T Y L E S Intuitive Instrumental emotional likes to share cognitive keeps busy alone
31 O N L I N E T O O L S SOCIAL/COMMUNITY INFORMATIONAL EXPERT GUIDANCE
32 P R O S T O E A C H T O O L T Y P E SOCIAL/COMMUNITY INFORMATIONAL EXPERT GUIDANCE peer normalization available any time available any where chosen degree of anonymity readily available re retrievable multitude of sources "expert" information customizable to needs face to face (videocam) one to one w/ expert 2 way communication build professional relationship
33 C O N S T O E A C H T O O L T Y P E SOCIAL/COMMUNITY INFORMATIONAL EXPERT GUIDANCE no quality control of advice limited overall assistance can't determine efficacy disclosure hinges upon degree of feedback & anonymity overwhelming info no conversation / interchange of ideas possible conflicting info info is static difficult to determine if "expert" content limited availability cost prohibitive for many requires an expert present
34 Intuitive G O O D M A T C H
35 Instrumental G O O D M A T C H
36 Part 6 the future
37 Next we... take what we know about grief styles and online bereavement support to design an approach that easy peasy, yo. minimizes cons & maximizes pros
38 So we'd need something that would: provide dynamic customization provide articles by known experts have exercises for self-expression have option to interface with others have efficacy measures through feedback provide referral to local experts
39 What would YOU add? Yolo!
40 We've covered : 1. traditional bereavement support 2. grief styles 3. online tools usage today 4. online bereavement support now 5. matching styles to tools 6. the future
41 Questions?
42 Thank you! linkedin.com/in/kilcrease linkedin.com/in/emilyeakin
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