London Cancer Urology Pathway Board

Transcription

1 Urology Pathway Board Date: rsday, 19 February 2015, 16:30-18:00 Venue: Meeting room 1, 3rd floor, 170 Tottenham Court Road, London W1T 7HA Chair: John Hines, Pathway Director 1. Welcome, Introductions and Apologies (JH) JH welcomed members of the board, introductions were made and apologies heard. The minutes of the last meeting(s) were accepted as an accurate record of proceedings. 2. Review of minutes of the last meeting(s) and action log (JH) Minutes of the 25 September 2014 meeting: Caroline Moore to circulate Minutes of the MRI group. JH wrote a letter about the Peer Review process. MY reported that the National Peer Review team still exists; their focus has been on other programs but will still peer review Cancer. Trusts self-assessment will be encouraged with the continuation of internal validation. This will only be escalated if brought to national attention. The Trusts can approach the Commissioners to be part of Peer Review self-assessment. JH said this would allay suspicion around internal self-assessment. Patient Representatives can volunteer for the validation team via the CCGs, and training will be given. MY advised that Peer Review results are quality assured. The actions from plans submitted annually, on a quarterly basis. JS asked how commissioners assess / guarantee they turn up; the exact procedure in Central London was unclear, JS suggested that this need to be part of the written process. CM assured that it is taken very seriously in order to achieve their goals. MY advised it was not always carried out in same way in North East. CM asked how London Cancer would respond to this, JH advised that respondents would be the Trusts within London Cancer, rather than London Cancer being assessed. But JH will check and clarify the relationship in the Peer Review process between the Commissioners and the Trusts. Bladder pathway still with OSG, NICE guidance due out next week (24 Feb) will be incorporated KM circulate a link for members (incorporate with OSG). The minutes of the 25 September 2014 meeting were approved. ACTION: KM to provide MY to VB and any other interested members ACTION: JH will check and clarify the relationship in the Peer Review process between the involved bodies, Commissioners, the Trusts and London Cancer. ACTION: KM to send attendance of last year to JH for pathway boards 1

2 Minutes of 27 November 2014 meeting: London Cancer Monthly Bladder Cancer Meetings. VB will be invited to OSG meetings (not 24 th ). JS / VB due attended the Outpatients clinics as planned, they will arrange visits and inform JH. Issue around unavailability of patient notes in outpatients at Whipps. BH okay. Suggested that PALS volunteers could help on admin side. Patient Survey struggling slow on Harlow now have a new Director and rep on this Board to speed up process. The minutes of the 27 November 2014 meeting were approved. ACTION: VB will be invited to next meetings (not 24 th ) JH to let VB know dates and location of meetings ACTION: JS / VB due attended the Outpatients clinics as planned, they will arrange visits and inform JH ACTION: Penile Guidelines on next meeting agenda and Asif Muneer to provide the doc for circulation 3. Guidelines a. Testicular cancer update Guidelines written but pathway not definite (TP not available to update), awaiting Royal Marsden confirmation that they will be doing lymph nodes. London Cancer equivalent at the Royal Marsden is London Cancer Alliance. Royal Marsden have appointed New Urologist, Declan Cargill who will take on testicular cancer. b. Penile Cancer Guidelines update On agenda for next meeting, JH to ask Asif Muneer to circulated the document. c. Bladder Cancer Guidelines update NICE guidance due next week, will wait till then to complete d. Prostate Cancer Guidelines update Simon Jenkinson has completed the chemo guidelines Treatment Guidelines - Kidney (Renal) Guidelines were completed in July 2014 and are published on the website. Overall need to be more condensed/concise with a pathway diagram. 2WW referral forms due to go live imminently, contact details have now been tested and should be centralised details for Trusts. System1 / Vision not yet ready but Word formats are. Latest versions not yet published on London Cancer website as final tweaks being made. Vision to be released separately. Data protection issue with address that was being used now resolved. Transferring Cancer Services Team (TCST) to have responsibility for these updates in future. Pathway Board members including CM happy with the forms. JH assured that the delay to release the newly formatted forms has never caused an issue of 2WW referral being delayed in the pathway. 2

3 CM - good process to resolve/fix, especially now only 1 form to be used, with separate guidance and contact details for reference. The board discussed whether the 2WW form were sufficient for better Early Diagnosis, or if anything else could be done, CM agreed form now ok the next process is for public consultation and GP engagement. CM and MR advised on a pilot around better earlier referral and MR described the intended process. Abdominal pain. Suggestion was made by NC to convince/get a good PR company, e.g. WPP, Martin Sorell (CEO), to donate a good media campaign to produce an engaging effective smart campaign for public awareness. MR advised of work in Camden program with premiership Football Clubs and the Small c campaign, and financial issues that constrain that work. ACTION: NC to contact Martin Sorell (WPP) about public awareness media campaign support 4. Stratified Follow-up update Meetings have taken place with the Stratified Follow-up Board. Examples have been looked at from St George s to free up resources by their nurses running clinic. Jon MacFarlane from Bath previously presented on system used there. Looking to adopt the London Cancer Breast Cancer Stratified Follow-up model for Prostate. Screening PSA in the community will reduce approx hospital visits. If PSA positive they will enter the pathway via a different route. Planned pilots for BHRUT. UCLH might be questionable because UCL has done similar activity. JS raised an issue around commissioned funding of patient visits and per unit PSA, JH explained the current process and problems associated with this and any changes that may be introduced. Active surveillance monitoring for all prostate patients by biopsy at Year 1, 3, 5 and 10. Breast pilot proposed to be run at BH, unbeknownst to the London Cancer Pathway Board, despite assurance of transparency between Trusts in the London Cancer patch. ACTION: SC and JH to write to all Trusts to ensure no duplication of Stratified Follow-up Pilots. There was an issue about attendance, possibly as result of mid-term, holiday, etc. or the possibility of being less prominent due to fewer meetings. JH pointed out that this must be addressed for continued engagement from the partner Trusts. Next Stratified meeting on 27 February, followed by the OSG meeting. 5. OG Operational Steering Group (OSG) - update (JH) Trust based group responsible for the smooth and safe transition of services. Monthly or fortnightly meetings. Commissioners approve progression by approving the process through five gateways. An exception of 3 Urology SMDTs has been agreed (by Teresa Moss, National Commissioner) because of patient numbers provided there is strict criteria of attendance and clear auditing. Gateway-3 has been passed. Gateway-4 concentrates on performance against indicators, how these are met and what steps are taken. 3

4 6. AOB (All) BH Cancer Clinical Academic Group (CAG) has now merged with Surgical Cancer CAG. They are taking into account Patient Representatives views but Patient Representatives haven t actually been able to attend the Board meeting. JH will write a letter asking for update on plans for patient representative involvement (JH used to attend and would also like join that Board again). CCG report due out this week may indicate problem. APPLE cards have been distributed. ACTION: JH to write to CAG to suggest two patient representatives attend (John Sandell/Patricia Jupp) 7. Next Meeting The next Pathway Board meeting(s) will be held on: 14 May 2015, 16:30-18:00 19-Feb :30-18:00 Urology Pathway Board Meeting Room 1, 3rd floor, 170 Tottenham Court Road, W1T 7HA 14-May :30-18:00 Urology Pathway Board Meeting Room 1, 3rd floor, 170 Tottenham Court Road, W1T 7HA 27-Aug :30-18:00 Urology Pathway Board Meeting Room 1, 3rd floor, 170 Tottenham Court Road, W1T 7HA 03-Dec :30-18:00 Urology Pathway Board Meeting Room 1, 3rd floor, 170 Tottenham Court Road, W1T 7HA 4

5 ACTION LOG Action Owner Date agreed Status PB members to send any ideas on Early Diagnosis & how to raise awareness to JH ALL 12 Jun 2014 ongoing JH / Pathway Directors to establish a programme of education JH 24 Jul 2014 TBD CL to out minutes from MRI meeting CL 25 Sep Nov 2014 JH to send minutes from the UCLH bladder pathway meeting to KM to circulate JH to write a letter to the NHSIQ / NHS England regarding the peer review process on behalf of the pathway board members KM to provide MY to VB and any other interested members JH will check and clarify the relationship in the Peer Review process between the involved bodies, Commissioners, the Trusts and London Cancer. JH, KM 25 Sep Nov 2014 JH 25 Sep 2014 completed KM 19 Feb 2015 completed JH 19 Feb May 2015 KM to send attendance of last year to JH for pathway boards KM 19 Feb 2015 completed VB will be invited to next meetings (not 24 th ) JH to let VB know dates and location of meetings JS / VB due attended the Outpatients clinics as planned, they will arrange visits and inform JH Penile Guidelines on next meeting agenda and Asif Muneer to provide the doc for circulation NC to contact Martin Sorell (WPP) about public awareness media campaign support SC and JH to write to all Trusts to ensure no duplication of Stratified Follow-up Pilots being run. JH to write to CAG to suggest two patient representatives attend (John Sandell/Patricia Jupp) JH, VB 19 Feb May 2015 JS, VB 19 Feb May 2015 JH, Asif Muneer 19 Feb May 2015 NC 19 Feb May 2015 SC, JH 19 Feb May 2015 JH 19 Feb May

6 Attendees Name Role Trust/Organisation John Hines Urologist Barts Health Asif Muneer Consultant Urological Surgeon University College London Hospitals and Andrologist Christine Moss General Practitioner GP - West Essex CCG Jane Smith Patient Representative / APPLE Patient Representative / APPLE rep rep John Sandell Patient Representative Patient Representative Michael Yare Clinical Adviser, Transforming Cancer Services Team - NEL Commissioning Support Unit Cancer Commissioning Team Representative Neil Cameron Patient Representative Patient Representative Veronica Brinton Patient Representative Patient Representative Also Present Karen Molloy Senior Administrator - minutes London Cancer Melanie Ridge London Cancer Apologies Name Role Trust/Organisation Frank Chinegwundoh Urologist Barts Health Jeevan Kumaradevan Consultant Radiologist Whittington Hospital Jolanta McKenzie Medical Director Princess Alexandra Hospital Sandeep Gujral Urologist Barking, Havering and Redbridge University Trust Sharon Cavanagh Survivorship Lead London Cancer No Apologies Name Role Trust/Organisation Cid O Sullivan Clinical Nurse Specialist Royal Free London Hampstead Clare Stevenson Clinical Psychologist Homerton University Hospital Guy Webster Urologist Royal Free London Barnet and Chase Farm Harshawardhan Urologist North Middlesex University Hospital Godbole Karen Tipples Clinical Oncologist Barts Health Lois Roberts Manager University College London Hospitals Luis Beltran Histopathologist Barts Health Manit Arya Consultant Urological Surgeon Princess Alexandra Hospital Michael Aitchison Consultant Urologist, Director Royal Free London Hampstead renal cancer services Sacha Ali Clinical Nurse Specialist Homerton University Hospital Thomas Powles Medical Oncologist Barts Health 6