London Cancer Urology Pathway Board

Transcription

1 Urology Pathway Board Date: rsday, 27 th August 2015, 16:30-18:00 Venue: Meeting room 1, 3rd floor, 170 Tottenham Court Road, London W1T 7HA Chair: John Hines, Pathway Director 1. Welcome, Introductions and Apologies (JH) JH welcomed members of the board, introductions were made and apologies heard. Professor Naomi Fulop (NF) and Dr Angus Ramsay (AR) were welcomed to the meeting as observers. Due to lack of attendance at the Board, JH reported that there would be a change to the order of the agenda. 2. NIHR-RESPECT 21 (NF) Professor Naomi Fulop (UCL Department of Applied Health Research) has been awarded 1.2 million over three and a half years by the National Institute for Health Research Health Services and Delivery Research Programme to study the centralisation of specialist cancer surgical services. The study commences in September and will focus on the impact of the centralisation of specialist surgical pathways for four cancers across two health care systems: London Cancer and Manchester Cancer. The research will combine quantitative and qualitative methods to analyse how the centralisations were planned and implemented, and the impact of the changes on organisation and delivery of care, clinical outcomes, patient experience, and cost-effectiveness. The study will also analyse patient, professional, and public preferences for changes of this kind. In doing so, it will address a number of important gaps in the evidence on centralising specialist cancer surgery, addressing key priorities highlighted in the Five Year Forward View. In addition, it will build on methods developed by the team in conducting high impact research on other forms of major system change (document tabled: BMJ report) NF reported that she or senior members of her team are attending various meetings to observe the discussions taking place and how these feed into the bigger picture regionally / nationally. As the pathway board was poorly attended, JH invited NF and AR to the next meeting. JH also suggested that AR speaks with the Board s patient representative (JSm) as she runs a monthly support group meeting. JS runs an organisation named APPLE (Association of Prostate Patients in London and Essex). APPLE was set up fifteen years ago and has 190 members. JSm invited NF to a future meeting. 3. Review of minutes of last meeting and action log The minutes of meeting held on 14May 2015 were approved as an accurate record of proceedings. Action log: Peer review: letter to NHSIQ and relationship in process JS reported that he conducted a peer review for haematology at a hospital in London but not within the London Cancer 1

2 / UCL Partners patch. He reported that they the hospital had not invited the other hospitals with who they work with to the meeting and didn t realise they had to. JS felt that peer review needs to continue and be conducted by an external group of people. JH reported that peer review was continuing but the mechanics of it were yet to be determined. ACTION: JH to re-write to NHSIQ Guidelines: penile and testicular guidelines ACTION: PA to write to AM and Jonathan Shamash for guidelines to upload to website. Sir Martin Sorrell Board agreed that it would be useful investigate the possibility of a professional manager coming in 1 day per month to work on urology from WPP plc ACTION: JH to discuss with NC to take forward Pathology subgroup minutes to be shared ACTION: LS to share Pathology subgroup minutes with board. Brachytherapy FC reported that numbers for this has increased at Barts Health recently and that we should continue with this treatment. RFL are stopping as numbers are too low. UCLH are doing high dose brachytherapy. PSA levels raised again at this meeting as LCA are recommending doing a second PSA test one month later if first test is borderline this is to reduce referrals. However if the first PSA level is high, patient would be referred immediately. This will be discussed at a pan London meeting on 02Sep but the pathway board do not agree to this being added to London Cancer guidelines. 4. Guidelines (ALL) Penile completed but will need to be uploaded to the website Bladder not completed Renal completed and on website Testicular completed but will need to be uploaded to website Prostate The guidelines were discussed and amendments made. The pathway has been amended to include an MRI scan and report prior to biopsy ACTION: PA to AM for final penile guidelines ACTION: PA to Jonathan Shamash for final testicular guidelines and chemo guidelines for prostate cancer ACTION: JH to make agreed changes to prostate guidelines including reference to AOS guidelines ACTION: PA to send revised guidelines to Pathway Board and ask non attendees to review prior to 04Sep. 5. Blood in Pee Campaign The letter regarding the new campaign was noted by the Board. 6. Pathway Board reconstitution JH reported that there will be changes to the Board membership and will take effect in time for the next meeting on 03Dec. ACTION: PA to update the Board membership with new members. 2

3 ACTION: JH and Kathy Pritchard-Jones (KPJ) to write to members / trusts being asked to step down 7. Dates for 2016 It was agreed by the Board that a poll would be circulated for different days of the week but with same time / location. ACTION: PA to circulate poll once board membership is actioned. 8. AOB NHSE audit this is related to cancer wait times in particular for lower GI and prostate. JH reported that he had replied to KPJ highlighting that MRI is a major problem due to capacity. It was suggested by the Board the only resolution for this would be to increase the 62 day wait by 42 days for prostate to allow for MRI scan and report. Barts Health - JS reported that patients are still not being involved in reorganisation as prioritised by the CQC in particular with Whipps Cross site. This was promised by the Chief Nurse but is yet to happen. ACTION: JH to write to KPJ who can raise this at meeting with Alwen Williams in October. 9. Date of next meeting 19-Feb :30-18:00 Urology Pathway Board Meeting Room 1, 3rd floor, 170 Tottenham Court Road, W1T 7HA 14-May :30-18:00 Urology Pathway Board Meeting Room 1, 3rd floor, 170 Tottenham Court Road, W1T 7HA 27-Aug :30-18:00 Urology Pathway Board Meeting Room 1, 3rd floor, 170 Tottenham Court Road, W1T 7HA 03-Dec :30-18:00 Urology Pathway Board Meeting Room 1, 3rd floor, 170 Tottenham Court Road, W1T 7HA 3

4 ACTION LOG Action Owner Date agreed Status PB members to send any ideas on Early Diagnosis & how to raise awareness to JH ALL 12 Jun 2014 ongoing JH / Pathway Directors to establish a programme of education JH 24 Jul 2014 TBD CL to out minutes from MRI meeting CL 25 Sep Nov 2014 JH to send minutes from the UCLH bladder pathway meeting to KM to circulate JH to write a letter to the NHSIQ / NHS England regarding the peer review process on behalf of the pathway board members JH, KM 25 Sep Nov 2014 JH 25 Sep 2014 Re discussed Completed JH to resend letter KM to provide MY to VB and any other interested members KM 19 Feb 2015 completed JH will check and clarify the relationship in the Peer Review process between the involved bodies, Commissioners, the Trusts and London Cancer. JH 19 Feb 2015 as peer review process ongoing KM to send attendance of last year to JH for pathway boards KM 19 Feb 2015 completed VB will be invited to next meetings (not 24 th ) JH to let VB know dates and location of meetings JS / VB due attended the Outpatients clinics as planned, they will arrange visits and inform JH Penile Guidelines on next meeting agenda and Asif Muneer to provide the doc for circulation NC to contact Martin Sorrell (WPP) about public awareness media campaign support and possibility of professional manager 1 day/month SC and JH to write to all Trusts to ensure no duplication of Stratified Follow-up Pilots being run. JH to write to CAG to suggest two patient representatives attend (John Sandell/Patricia Jupp) Stratified Care: Contact SC if interesting in joining tracking software webinar Stratified Care: Contact Nick Kirby s office for date of next meeting of operational and clinical leads JH, VB 19 Feb 2015 completed JS, VB 19 Feb 2015 ongoing JH, Asif Muneer 19 Feb 2015 Completed NC 19 Feb May Dec 2015 SC, JH 19 Feb 2015 completed JH 19 Feb May 2015 All 14 May 2015 SC 14 May 2015 Pathology: LB to share minutes with JH LB/JH 14 May Dec 2015 Brachytherapy: HB to raise with CNS the possibility of an October meeting Guidelines: 2WW form for urology along with Ian Rubenstein s contact details to AM Guidelines: PA to operational and clinical leads contact details to AM Guidelines: AM to circulate guidelines once peer review comments have been incorporated PA to write to AM for final guidelines for upload to website Guidelines: Source date and venue for the extraordinary guidelines sign off meeting HB 14 May 2015 Completed PA/AM 14 May 2015 Completed PA 14 May 2015 Completed AM PA/AM 14 May Dec 2015 PA 14 May 2015 Completed 4

5 Action Owner Date agreed Status Guidelines: Jonathan Shamash for final testicular guidelines and chemo guidelines for prostate cancer Guidelines: make agreed changes to prostate guidelines including reference to AOS guidelines Guidelines: send revised guidelines to Pathway Board and ask non attendees to review prior to 04Sep. PA 03 Dec 2015 JH 03 Dec 2015 PA 03 Dec 2015 M ship: add new members to Pathway Board PA 03 Dec 2015 M ship: write to members / trusts being asked to step down JH / KPJ 03 Dec dates: circulate poll once board membership is actioned PA 03 Dec 2015 Pat Rep/ BH: write to KPJ who can raise this at meeting with Alwen Williams in October re: lack of Pat Reps in reorganisation JH 03 Dec

6 Attendees Name Role Trust/Organisation John Hines Urologist Barts Health Jane Smith Patient Representative / APPLE rep Patient Representative / APPLE rep John Sandell Patient Representative Patient Representative Frank Chinegwundoh Urologist Barts Health Luis Beltran Histopathologist Barts Health Pinki Amin Senior Administrator - minutes London Cancer Naomi Fulop Department of Applied Health Research UCL Angus Ramsay Department of Applied Health Research UCL Apologies Name Role Trust/Organisation Sandeep Gujral Urologist Barking, Havering and Redbridge University Trust Christine Moss General Practitioner GP - West Essex CCG Hilary Baker CNS UCLH Michael Yare Clinical Adviser, Transforming Cancer Services Team - Cancer Commissioning Team NEL Commissioning Support Unit Representative Jonathan Gardner Programme Director Cancer Change University College London Hospitals Sharon Cavanagh Survivorship Lead London Cancer Veronica Brinton Patient Representative Patient Representative Sacha Ali Clinical Nurse Specialist Homerton University Hospital Michael Aitchison Consultant Urologist, Director renal cancer services Royal Free London Hampstead Melanie Ridge London Cancer No apologies Name Role Trust/Organisation Clare Stevenson Clinical Psychologist Homerton University Hospital Guy Webster Urologist Royal Free London Barnet and Chase Farm Harshawardhan Godbole Urologist North Middlesex University Hospital Manit Arya Consultant Urological Surgeon Princess Alexandra Hospital Thomas Powles Medical Oncologist Barts Health Jeevan Kumaradevan Consultant Radiologist Whittington Hospital Jolanta McKenzie Medical Director Princess Alexandra Hospital Neil Cameron Patient Representative Patient Representative Gabriel Sayer Divisional Director of Surgery Barking, Havering and Redbridge University Trust Lois Roberts Manager University College London Hospitals 6