The basics a. Mission Statement (unchanged) eurordi s.org
|
|
- Maximillian Lloyd
- 5 years ago
- Views:
Transcription
1 The basics a. Mission Statement (unchanged) To build a strong pan-european community of patient organisations and people living with rare diseases, To be their voice at the European level And directly or indirectly to fight against the impact of rare diseases on their lives eurordis.org 1
2 EURORDIS in 2020 has consolidated its position as the organization of reference for rare diseases both in EU and in Europe for its legitimate membership base and its credible European patient voice; EURORDIS has created a global patient voice for rare diseases to promote the cause as an international public health challenge and is recognised as an actor in worldwide processes that have an impact on patients living with rare diseases; National Alliances, European Federations, EURORDIS and Rare Diseases International have adopted a structured strategic approach based on Common Goals. 2
3 EURORDIS is combining unity and diversity; EURORDIS has structured its membership base in Community Advisory Boards by rare disease groupings so to enable patient engagement in European Reference Networks, Registries & Data Collection, European Research projects, R&D and Assessment of therapies; EURORDIS Community Advisory Boards per rare disease grouping will empower our members while being inclusive of and supportive to even the rarest diseases; EURORDIS enables acting at national, European, International levels, partnering with all stakeholders, and in all strategic areas of public health, healthcare, research, social, rights, so to have a patient-centric 360 view 3
4 EURORDIS in 2020 is facilitating the effective implementation of European regulations and strategies at European and national levels in more policy areas research, public health, healthcare, social, digital, rights - for the benefit of patients and families; EURORDIS is promoting a better regulatory and policy environment for PLWRDs to access diagnostic, treatments, care, cross-border care ; EURORDIS is producing more patient generated knowledge and promoting patient-centered policy; EURORDIS has developed a foresight vision for the next decade 4
5 EURORDIS in 2020 is empowering its members, its volunteers, patient advocates at large and beyond PLWRDs through enriched and more capacity building reinforcing their autonomy; EURORDIS is enabling PLWRDs to be represented and rare disease patient advocates to be engaged, in a larger number of innovation research & development, assessments, decision-making bodies, scientific opinion-making committees and projects relevant to fulfiling its mission 5
6 EURORDIS in 2020 is developing direct services to PLWRDs, highly valued by them as well as by our members; EURORDIS has developed a strong global social network of online communities of PLWRDs; EURORDIS has developed services to access comprehensive quality information; EURORDIS has developed services to enable access to cross-border healthcare 6
7 EURORDIS in 2020 is raising public awareness & societal support to the cause of rare diseases, mostly through its members; EURORDIS has reached out to PLWRDs in the EU (if not in Europe) and is recognised by them; EURORDIS members and PLWRDs are engaged with EURORDIS in some key advocacy & citizen actions; PLWRDs are increasingly supporting EURORDIS as individual donors. 7
8 EURORDIS in 2020 is more sustainable in terms governance and of human, financial and organisational resources; EURORDIS resources are growing through a diversification of public and private funding; EURORDIS is reinforcing its volunteer base and long term leadership capacities; EURORDIS is consolidating its multi-cultural & multi-skilled staff and establishing a human resource management; EURORDIS is becoming a movement, its organisation is multi-centric, flexible, responsive, webbased; EURORDIS is working through partnerships, alliances and consortiums; EURORDIS is innovating advanced quality governance. 8
Table Of Content. European Organisation for Rare Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs...
Table Of Content European Organisation for Rare Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7 D04 - Electronic Newsletter (EN)... 7 D01 - Activity Report EURORDIS
More informationNORDIC CONFERENCE ON RARE DISEASES
www.eurordis.org NORDIC CONFERENCE ON RARE DISEASES 31 May 2012, Reykjavik, Iceland www.eurordis.org RARE DISEASES IN EUROPE Terkel ANDERSEN President of EURORDIS European Organisation for Rare Diseases
More informationTable Of Content. EURORDIS_FY Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7
Table Of Content EURORDIS_FY2010... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7 D04 - Electronic Newsletter and V.3 of EURORDIS website (EN)... 7 D01 - Activity Report OPERA
More informationTABLE of Contents. EURORDIS in brief
TABLE of Contents 02 Foreword 06 EURORDIS in brief 07 Strategic approach 2015-2020 09 Activity Report 2017 HIGHLIGHTS 2017...11 PATIENT ADVOCACY...12 PATIENT EMPOWERMENT: BUILDING THE NETWORK & CAPACITIES..27
More informationSTRATEGIC APPROACH & WORKPLAN 2007
Rare Diseases Europe STRATEGIC APPROACH 2007-2009 & WORKPLAN 2007 Paris, March 2007 www.eurordis.org Contents Our strategic approach 2007 2009 o Eurordis in 2010 o Strategic orientations o Priorities 2007-2009
More informationthe patients perspective and role of epags
Patients Registry in ERNs: the patients perspective and role of epags 5th International Summer School Rare Disease & Orphan Drug Registries VirginieBros-Facer, Research Infrastructure Project Manager 18
More informationDRAFT STRATEGIC APPROACH & ACTION PLAN For consultation at RDI Annual Meeting Edinburgh, Scotland May 25, 2016
DRAFT STRATEGIC APPROACH & ACTION PLAN 2016-2018 For consultation at RDI Annual Meeting Edinburgh, Scotland May 25, 2016 STRATEGIC PRIORITIES 1. Build a legitimate Global RD Patient Alliance to be the
More informationCarers Australia Strategic Plan
Carers Australia Strategic Plan 2012 2015 About Carers There are 2.6 million carers in Australia who provide unpaid care and support to family members and friends who have a disability, mental illness,
More informationPfizer Support to European and International Patient Organisations based in Belgium & Luxembourg in 2016
Pfizer Support to European and International Patient Organisations based in Belgium & Luxembourg in 2016 Please note that all information in this document is also disclosed in the overall report on Pfizer
More informationMRCG Strategic Document
MRCG Strategic Document 2015-2016 The Medical Research Charities Group (MRCG) is an umbrella group of medical research and patient support charities that seeks to generate dynamic medical research in Ireland,
More informationNSW Consumer Advisory Group Mental Health Inc
NSW Consumer Advisory Group Mental Health Inc Strategic Plan 2008 2010 We would like to thank Westwood Spice for guiding us through the process of developing this plan 501/80 William St Sydney NSW 2000
More informationSTRATEGIC PLAN 2014 to 2017
STRATEGIC PLAN 2014 to 2017 September 2014 1 P a g e KHNZ s STRATEGIC PLAN Contents Page 1. Introduction to the Strategic Plan 3 2. About Kidney Health New Zealand 4 3. The Challenges 6 4. Strategic Context
More informationEuropean map of investments in innovative digital solutions for AHA Early results
European map of investments in innovative digital solutions for AHA Early results Julien Venne Strategic Advisor, European Connected Health Alliance @ ECHAlliance / @JulienVenne THE BLUEPRINT STRATEGY
More informationDRAFT STRATEGIC APPROACH & ACTION PLAN For consultation at RDI Annual Meeting Edinburgh, Scotland May 25, 2016
DRAFT STRATEGIC APPROACH & ACTION PLAN 2016-2018 For consultation at RDI Annual Meeting Edinburgh, Scotland May 25, 2016 STRATEGIC PRIORITIES 1. Build a legi4mate Global RD Pa4ent Alliance to be the Voice
More informationRD-ACTION DISSEMINATION PLAN TABLE I - STAKEHOLDER ANALYSIS
RD-ACTION DISSEMINATION PLAN TABLE I - STAKEHOLDER ANALYSIS Stakeholder Group Interest in RD-Action Dissemination purpose Channels of Dissemination (WHO) (WHY) (WHY) (HOW) Partners of RD-Action & members
More informationEPAG UPDATE. Lenja Wiehe. European Patient Advocacy Groups Manager, EURORDIS
EPAG UPDATE Lenja Wiehe European Patient Advocacy Groups Manager, EURORDIS Patient Centre & Empowerment European Reference Networks (ERNs) created on founding principles of patient-centred care, patient
More informationTuberous Sclerosis Australia Strategic Plan
Tuberous Sclerosis Australia Strategic Plan Last updated 27 November 2017 1. Our vision for the lives of people affected by tuberous sclerosis (TSC) 1. The impact of a diagnosis of TSC Tuberous Sclerosis
More informationAn introduction to the Alliance for Maternal Health Equality
An introduction to the Alliance for Maternal Health Equality Euro-Peristat Meeting 5 April 2016 Jacqueline Bowman-Busato Policy Lead Alliance for Maternal health Equality 1 Challenge Maternal and perinatal
More informationPogány Gábor Ph.D. President of HUFERDIS Member of EUCERD and Orphanet International Advisory Board
Start by doing what's necessary then do what's possible and suddenly you are doing the impossible Saint Francis of Assisi Pogány Gábor Ph.D. President of HUFERDIS Member of EUCERD and Orphanet International
More informationConsumer Participation Strategy
Consumer Participation Strategy Plan Implementation Period 2011-2013 Date: 24 December 2010 Developed by: NEMICS Directorate in consultation with Acknowledgements and thank you to: s, Dr Ian Roos (Cancer
More informationStrategic Direction. At The Kids Cancer Project our vision is to find a cure for kids cancer
2016-2018 Strategic Direction At The Kids Cancer Project our vision is to find a cure for kids cancer Our commitment Through the power of science, The Kids Cancer Project is at the forefront fighting for
More informationAdvocates Rights Actors Justice for
Advocates Actors for Rights Justice about Defence for Children International Sierra Leone (DCI-SL) is a local, grassroots non-governmental organisation that was founded in 1998 to promote and protect the
More informationSTRATEGIC PLAN
STRATEGIC PLAN 2019-2028 3 EXECUTIVE SUMMARY Health at the center Good health changes everything. With good health, children can learn, parents can provide and neighbors can work together to build, and
More informationSTRATEGIC PLAN
STRATEGIC PLAN 2016 2020 Promoting and supporting excellence in research www.immunology.org BSI STRATEGY 2016 2020 EXECUTIVE SUMMARY OUR MISSION Our mission is to promote excellence in immunological research,
More informationWorld Hepatitis Alliance Strategic Plan 2015
World Hepatitis Alliance Strategic Plan 2015 Overview Foreword The World Hepatitis Alliance is a notfor-profit international umbrella Non- Governmental Organisation (NGO). Our membership is composed of
More informationMental Health Matters
www.stpatricks.ie Mental Health Matters 2013 2018 Empowering Recovery st patrick s mental health services Empowering recovery St. Patrick s Mental Health Services Mental Health Matters 2013 2018 strategy
More informationEUCERD Recommendations on Rare Disease European Reference Networks (RD ERNs)
EUCERD Recommendations on Rare Disease European Reference Networks (RD ERNs) EUROPEAN REFERENCE NETWORKS FOR RARE DISEASES IN EUROPE: THE CONTEXT The need for European Reference Networks (ERNs) for rare
More informationPARTNERS FOR A HUNGER-FREE OREGON STRATEGIC PLAN Learn. Connect. Advocate. Partners for a Hunger-Free Oregon. Ending hunger before it begins.
Learn. Connect. Advocate. PARTNERS FOR A HUNGER-FREE OREGON STRATEGIC PLAN 2016-18 Partners for a Hunger-Free Oregon Ending hunger before it begins. Dear Partners, This has been a year of celebration,
More informationER-WCPT Advancing Physiotherapy demonstrating value and impact Friday 11 th November 2016 ER-WCPT Congress ER-WCPT
ER-WCPT Advancing Physiotherapy demonstrating value and impact 12.45 Friday 11 th November 2016 ER-WCPT Congress ER-WCPT INDEX WCPT ER-WCPT Structure Working Groups Objectives of WGs EU Matters WG questions
More informationGymnastics Victoria Strategic Plan:
Gymnastics Victoria Strategic Plan: 2015-16 What is gymnastics? Gymnastics is a fun activity that is the foundation for all sports. Gymnastics teaches all participants how to roll, jump, swing and turn
More informationWorld Vision Australia Supplement to How we performed to our strategy in 2013 FY13 Annual Report pages 20-23
World Vision Australia Supplement to How we performed to our strategy in 2013 FY13 Annual Report pages 20-23 Performance to Strategy The end of September 2013 marks the 2 year point in progress towards
More informationCreating the change. Homeless Link s strategy to end homelessness. June 2018 to June 2021
Creating the change Homeless Link s strategy to end homelessness June 2018 to June 2021 Everyone should have a place to call home. This is Homeless Link s vision and, together with our members and experts
More informationALCOHOL, TOBACCO & OTHER DRUGS COUNCIL TAS INC.
ALCOHOL, TOBACCO & OTHER DRUGS COUNCIL TAS INC. STRATEGIC PLAN 2015 2018 ABOUT THE ATDC The Alcohol, Tobacco and other Drugs Council Tas Inc. (ATDC) is the peak body representing the interests of community
More informationVision. Mission. Hopelink s Values. Introduction. A community free of poverty
Vision A community free of poverty Mission Hopelink s mission is to promote self-sufficiency for all members of our community; we help people make lasting change. Hopelink s Values Growth and Human Potential
More informationCounting down to zero
12%... 10%... 8%... Counting down to zero Towards a future with underfunded health research? We, as representatives of the undersigned organisations, welcome the current European Commission s proposal
More informationPHOTO. VHPB/ELPA MEETING Prevention and Control of Viral Hepatitis The role and impact of patients and advocacy groups in and outside Europe
www.eurordis.org VHPB/ELPA MEETING Prevention and Control of Viral Hepatitis The role and impact of patients and advocacy groups in and outside Europe Lucca ( Italy ) March 13-14, 2008 PHOTO www.eurordis.org
More informationINFORMATION PACK FOR CANDIDATES. Foundation for Women s Health Research and Development (FORWARD)
INFORMATION PACK FOR CANDIDATES Foundation for Women s Health Research and Development (FORWARD) AUGUST 2015 1 2 1. Introduction The Foundation for Women s Health Research and Development (FORWARD) is
More informationABOUT LUNG CANCER ALLIANCE
ABOUT LUNG CANCER ALLIANCE www.lungcanceralliance.org 1-800-298-2436 WHO WE ARE Lung Cancer Alliance serves and listens to those living with and at risk for lung cancer to reduce stigma, improve quality
More informationWhole Of Society Approach To Preparedness
Whole Of Society Approach To Preparedness Dr Chadia Wannous UN System Influenza Coordination Geneva International Civil Aviation Organization CAPSCA, 3-5 December 2013 UN System Influenza Coordination
More informationThe Life Course Immunisation Initiative
Contents Case Study... 1 Action Proposed... 3 Methodology... 4 Results... 9 Conclusions... 10 Case Study Background Anyone can contract meningitis and septicaemia, therefore everyone has the right to access
More informationEurasian Harm Reduction Association (EHRA) Strategic Framework
Eurasian Harm Reduction Association (EHRA) Strategic Framework 2018-2019 What is the Eurasian Harm Reduction Association (EHRA)? 2 The mission, vision and role of EHRA 2 The current context of harm reduction
More informationStrategic Framework 2020
Strategic Framework 2020 of the Caritas Europa Network United in fraternity for more solidarity in Europe Approved by the Regional Conference 2016 in Lourdes Caritas Europa s Strategic Framework 2020 1
More informationEurasian Harm Reduction Association (EHRA) Strategic Framework
Eurasian Harm Reduction Association (EHRA) Strategic Framework 2018-2019 What is Eurasian Harm Reduction Association (EHRA)? 2 How does strategic framework work? 2 Harm reduction, current context 3 EHRA
More informationCONSENSUS STATEMENT OF THE NATIONAL FOOD AND NUTRITION SUMMIT 2018, LUSAKA, ZAMBIA
CONSENSUS STATEMENT OF THE NATIONAL FOOD AND NUTRITION SUMMIT 2018, LUSAKA, ZAMBIA MAY, 2018 Secretariat National Food and Nutrition Commission The National Food and Nutrition Summit, was held from 24-26
More informationAchieving a dementia friendly New Zealand
Achieving a dementia friendly New Zealand Alzheimers NZ Strategy 2015-2025 1 Alzheimers NZ VISION Towards a world without dementia Kia mate wareware te ao Guiding us for the longer term Making life better
More informationTransforming health through IT
@himsseurope HIMSS Europe 02 HIMSS Europe www.himss.eu The Leading Health IT Knowledge Organisation HIMSS Europe is a voice, advisor and thought leader of transformation through health IT. As an independent
More informationHealthwatch Cheshire CIC Board Recruitment Information Pack
Healthwatch Cheshire CIC Board Recruitment Information Pack ` Healthwatch Cheshire CIC is looking to recruit 7 lay people from all communities across both Cheshire East and Cheshire West to become members
More informationUnited Way Suncoast Women United. March 19, 2018 LOCATION unitedwaysuncoast.org
United Way Suncoast Women United March 19, 2018 LOCATION Women United Leading the Charge. Inspiring the Change. Women United is a global, growing force of 70,000+ women dedicated to creating a world of
More informationA multi-stakeholder partnership initiative. 10 February 2012
A multi-stakeholder partnership initiative 10 February 2012 1 History 39 recommendations on stakeholder actions and public policies:» 8 addressing regulatory barriers in rare cancer care» 11 addressing
More informationBuilding on Our Strengths
Association of Local Public Health Agencies 2014-16 Strategic Plan Building on Our Strengths Promoting Representing Enriching Supporting Connecting INTRODUCTION This document outlines elements in alpha
More informationEpilepsy Foundation of Mississippi Strategic Plan
Epilepsy Foundation of Mississippi Strategic Plan 2014-2017 Mission The Epilepsy Foundation of Mississippi leads the fight to stop seizures and SUDEP, find a cure, and overcome the challenges created by
More informationPrevention and control of viral hepatitis: the role and impact of patient and advocacy groups in and outside Europe. Lucca, Italy March 2008
Prevention and control of viral hepatitis: the role and impact of patient and advocacy groups in and outside Europe Lucca, Italy 13-14 March 2008 Objectives Review activities, role, rationale and impact
More information5 th SPA VISIONING WORKSHOP
5 th SPA VISIONING WORKSHOP LEADERSHIP TRANSITIONS - PROVIDING CONTINUITY AND MAINTAINING PROGRESS FOR THE PROFESSION IN SINGAPORE March 2016 FOREWORD It has been our tradition, since 1995, that the council,
More informationPatient and Carer Network. Work Plan
Patient and Carer Network Work Plan 2016 2020 Introduction from our chair When it was established over a decade ago, the RCP s Patient and Carer Network (PCN) led the way in mapping and articulating the
More informationAdvocacy Strategy
Advocacy Strategy 2016-2021 September 1, 2016 CONTRIBUTE C1 & C4 1. Executive Summary As Canada s largest Catholic provider of health care with a 150-year legacy of quality, compassionate care Covenant
More informationIntroduction. Legislation & Policy Context
Consumer Participation Plan 2017-2018 1 Introduction Barwon South Western Regional Integrated Cancer Service (BSWRICS) is committed to improving the experiences and outcomes of those affected by cancer
More informationCarers UK and TSA Madeleine Starr Director of Business Development and Innovation
Carers UK and TSA Madeleine Starr Director of Business Development and Innovation Carers UK s vision We want society to respect, value and support carers Carers UK s mission To improve carers lives About
More informationThe Global AIESEC Leadership Initiative. Leadership for a Better World
The Global AIESEC Leadership Initiative 00 Leadership for a Better World 1 The Global AIESEC Leadership Initiative AIESEC youth and AIESEC alumni develop and activate leaders for a better world. Developing
More informationTransparency in drug regulatory decision making Why transparency? Birthe Byskov Holm, Rare Diseases Denmark Copenhagen October
Transparency in drug regulatory decision making Why transparency? Birthe Byskov Holm, Rare Diseases Denmark Copenhagen October 2. 2017. Transparency - A tool to drive change and innovasion? Breaking the
More informationStrategic Framework HEALTHY WOMEN. HEALTHY WORLD.
Strategic Framework 2018 2022 HEALTHY WOMEN. HEALTHY WORLD. LETTER FROM CEO Dear colleagues, partners and friends: WRA s 2018-2022 strategic plan sets out a united framework for the Global Alliance, defining
More informationStrategic Plan
Strategic Plan 2018 2022 Pallative Care Victoria Palliative Care Victoria Palliative Care Victoria is the peak body for palliative care and end of life care. Established in 1981, we are an incorporated
More informationResearch strategy
Research strategy 2016-2020 Preamble The s Strategy A New Way Forward (2015-2020) directs our research, policy and programmatic work to progress Mental Health for All. Mental health problems cost the UK
More informationdetermination Safety Autonomy Perspective Strength Justice Pride Change Partnership Future Accessibility Power Healing
goals Pride U n n i i tt y y Bravery Courage Empowerment Self- Collaborate Partnership determination Safety Autonomy Perspective Strength Justice Stability Pride Satisfaction Independence Future Accessibility
More informationENGAGING YOUTH IN POLICY CHANGE INITIATIVES
ENGAGING YOUTH IN POLICY CHANGE INITIATIVES G U S TAV O TO R R E Z, AS S O C I AT E D I R E C TO R Y O U T H AD V O C A C Y J O S H U A P R I T C H E T T, Y S T - 2 0 1 5 E A S T R E G I O N Y O U T H
More informationYoung Person s Lead-- Temporary initially for 1 year. 3 point 20 inclusive of Outer London Weighting
Job description Job Title: Young Person s Lead-- Temporary initially for 1 year Department: Operational Services Location: Hours: Grade: Service: Reports to: London Full time 37hrs per week 3 point 20
More informationWelcome. A Legacy of Success. Brighter Futures Together
Welcome I welcome you to the publication of our Strategic Plan 2015 2018 Brighter Futures Together on behalf of the Board of Kerry Diocesan Youth Service [KDYS]. A Legacy of Success The Diocese of Kerry
More informationFrom choice, a world of possibilities. Strategic framework
From choice, a world of possibilities Strategic framework 2005 2015 Who we are The International Planned Parenthood Federation (IPPF) is a global service provider and a leading advocate of sexual and reproductive
More informationEuropean Dietetic Action Plan EuDAP ( )
European Dietetic Action Plan EuDAP (2015-2020) Dietitians stating clearly their commitment to action for health improvement through nutrition across the social gradient Adopted by EFAD 2015 EFAD the voice
More informationGavi Risk Appetite Statement Version 2.0
Gavi Risk Appetite Statement Version 2.0 DOCUMENT ADMINISTRATION VERSION NUMBER 1.0 2.0 APPROVAL PROCESS Reviewed and recommended by: Gavi Programme & Policy Committee Reviewed and approved by: Gavi, the
More informationThe Global AIESEC Leadership Initiative. Leadership for a Better World
The Global AIESEC Leadership Initiative 00 Leadership for a Better World 1" The Global AIESEC Leadership Initiative AIESEC youth and AIESEC alumni develop and activate leaders for a better world. Developing
More informationCahoots Strategic Plan & Vision JULY 2017 JULY 2020
Cahoots Strategic Plan & Vision JULY 2017 JULY 2020 Contents 1 Executive Summary... 3 1.1 Aim... 4 1.2 Cahoots: Our Mission, Vision, Values and Priorities... 4 2 Cahoots: The Communities We Serve... 5
More informationExecutive Summary. Your life, your responsibility. 2nd Colorectal Cancer Patient Conference 5th & 6th July 2013 Barcelona Spain
2nd Colorectal Cancer Pat i e n t C o n f e r e n c e 2013 Your life, your responsibility 2nd Colorectal Cancer Patient Conference 5th & 6th July 2013 Barcelona Spain Executive Summary 15th Co-funded by
More informationPfizer Support to European and International Patient Organisations in 2008
Pfizer Support to European and International Patient Organisations in 2008 The EFPIA Code on Relationships between the Pharmaceutical Industry and Patient Organisations came into force across Europe on
More informationChild Neurology Foundation
Child Neurology Foundation Creating a Community of Support 2017-2021 Strategic Plan Page 1 Our Mission How We ll Get There To serve as a collaborative center of education and support for children and families
More informationBINATIONAL HEALTH WEEK
A report prepared by the Health Initiative of the Americas Ten Years of Improving the Underserved Latino Population s Access to Care The Opportunity: Providing Health Access The Latino population is the
More informationPublished December 2015
Published December 2015 Contents Executive summary 3 1. Introduction The changing story of cancer 6 2. Current state Poor performance 7 Fragmentation and duplication 7 Existing and developing programme
More informationInternational Kidney Cancer Coalition. Patient Organisations Working Together Globally to Support Those Affected by Kidney Cancer
International Kidney Cancer Coalition Patient Organisations Working Together Globally to Support Those Affected by Kidney Cancer 2 Our Global Network The IKCC (International Kidney Cancer Coalition) is
More informationStrategic Plan
YMCA of Whittlesea Healthier, happier, connected communities Strategic Plan 2013-2018 For more than 25 years, the YMCA of Whittlesea has been dedicated to strengthening people and the community. Today
More informationThe Global AIESEC Leadership Initiative. Leadership for a Better World
The Global AIESEC Leadership Initiative 00 Leadership for a Better World 1 The Global AIESEC Leadership Initiative AIESEC youth and AIESEC alumni develop and activate leaders for a better world. Developing
More informationAtlanta Declaration for the Advancement of Women s Right of Access to Information
Atlanta Declaration for the Advancement of Women s Right of Access to Information February 2018 Atlanta, Georgia We, the 100 participants from almost 30 countries, representing governments, multi-stakeholder
More informationVALUE TO A SPONSOR PARTNER OR DONOR. Dementia Alliance International
VALUE TO A SPONSOR PARTNER OR DONOR Dementia Alliance International ABOUT DEMENTIA ALLIANCE INTERNATIONAL (DAI) Dementia Alliance International (DAI) is a registered non-profit organisation and a US Corporation
More informationUnited in fraternity for more solidarity in Europe - Strategic Framework 2020 of the Caritas Europa Network
United in fraternity for more solidarity in Europe - Strategic Framework 2020 of the Caritas Europa Network Foreword The person in need, the poor, in communion with the entire human family and the whole
More informationEpilepsy Foundation North/ Central Illinois. FY19-FY21 3 year Strategic Plan 20 June 2018
Epilepsy Foundation North/ Central Illinois FY19-FY21 3 year Strategic Plan 20 June 2018 Strategic Plan Overview The reason we exist is to bring hope where there is none Help connect people with resources
More informationFPA Strategic Plan
FPA Strategic Plan 2016-2019 Introduction This strategic plan has been developed with the input of FPA staff, senior management and trustees. It sets out what we aim to achieve during 1 April 2016 to 31
More information10.4 Advocacy, Communication and Social Mobilization Working Group: summary strategic plan,
10.4 Advocacy, Communication and Social Mobilization Working Group: summary strategic plan, 2006 2015 Introduction A significant scaling-up of advocacy, communication and social mobilization for TB will
More informationNHS Youth Forum Coordinator
Closing date: Monday 7 May 2018 23:59 NHS Youth Forum Coordinator 24,171-32,486 (Pro Rata) Welcome I am so pleased that you are interested in joining our team. This is a really exciting time for the British
More informationPatient and Public Involvement, Engagement and Participation Strategy NIHR Newcastle Clinical Research Facility
Patient and Public Involvement, Engagement and Participation Strategy 2017-2022 NIHR Newcastle Clinical Research Facility Context The NIHR Newcastle Clinical Research Facility (CRF) delivers high quality,
More informationCANADIAN HARD OF HEARING ASSOCIATION (CHHA) Bringing Visibility to the Invisible Disability
CANADIAN HARD OF HEARING ASSOCIATION (CHHA) Bringing Visibility to the Invisible Disability CHHA Background Formed in 1982 to be the voice of hard of hearing and deafened Canadians. Includes approximately
More informationSTRATEGIC PLAN. Working to address health inequalities and improve the lives of LGBT people in Scotland
STRATEGIC PLAN Working to address health inequalities and improve the lives of LGBT people in Scotland Published 18 November 2014 STRATEGIC OBJECTIVES Building capacity to achieve better health and wellbeing
More informationInternational Bureau for Epilepsy MEMBERSHIP GUIDE Benefits and Responsibilities
MEMBERSHIP GUIDE Benefits and Responsibilities IBE is an international umbrella network organisation comprised of more than 130 national epilepsy patient education and advocacy associations worldwide www.ibe-epilepsy.org
More informationBoys & Girls Club of Clifton Strategic Plan Summary
Boys & Girls Club of Clifton Strategic Plan Summary 2014-2016 ORGANIZATION MEMBERSHIP PROFILE 5,527 Registered Members 4,525 Additional Youth Served 258 Adult Members Served 314 Early Childhood Department
More informationTerms of reference for Malawi Civil Society Organisations Nutrition Alliance (CSONA)
Terms of reference for Malawi Civil Society Organisations Nutrition Alliance (CSONA) Background Although there have been improvements in maternal and child malnutrition in Malawi, undernutrition remains
More informationFulfilling Our Promise
Fulfilling Our Promise How Kids Help Phone will support more young people in Canada and demonstrate impact through innovative solutions Our strategy for 2017-2021 For some people it s really hard to get
More informationCanadian Mental Health Association Nova Scotia Division. Strategic Plan (last updated: June 28, 2016 TW; July 4, 2016 PM)
Canadian Mental Health Association Nova Scotia Division Strategic Plan 2015-2018 (last updated: June 28, 2016 TW; July 4, 2016 PM) VISION OF CMHA (NATIONAL) Mentally healthy people in a healthy society.
More informationAlcohol advocacy in Europe. Alcohol Prevention Day Rome, Italy
Alcohol advocacy in Europe Alcohol Prevention Day Rome, Italy 29 April 2010 Alcohol in Europe Europe = centre of the global alcohol industry (largest market + major producer) ¼ of world s alcohol and over
More informationPatient and Public Engagement at Vancouver Coastal Health Meaningful Engagement of Patients and the Public for Improved Health Outcomes
Patient and Public Engagement at Vancouver Coastal Health Meaningful Engagement of Patients and the Public for Improved Health Outcomes BC Cancer Agency Conference November 1, 2013 Outline. About VCH What
More informationAn Active Inclusive Capital. A Strategic Plan of Action for Disability in London
An Active Inclusive Capital A Strategic Plan of Action for Disability in London Angus Robertson Director of Operations, London Sport In 2015, London s Blueprint for a Physically Active City was launched,
More informationPOSITION DESCRIPTION. Employment Status: Maternity Leave Contract 5 months (Jan-May 2018) PURPOSE OF POSITION DESCRIPTION
POSITION DESCRIPTION Position Title: Location: Research Coordinator Clinical Trials National Secretariat, Brisbane-based Employment Status: Maternity Leave Contract 5 months (Jan-May 2018) Reporting Relationships:
More informationHEALTH AND SPORT COMMITTEE AGENDA. 14th Meeting, 2018 (Session 5) Tuesday 1 May 2018
HS/S5/18/14/A HEALTH AND SPORT COMMITTEE AGENDA 14th Meeting, 2018 (Session 5) Tuesday 1 May 2018 The Committee will meet at 10.00 am in the James Clerk Maxwell Room (CR4). 1. Scottish Health Council Review:
More informationHealth and Social Care Alliance Scotland: People at the Centre
Health and Social Care Alliance Scotland: People at the Centre Nancy Greig, Network Development Officer, Health and Social Care Alliance Scotland (the ALLIANCE) The Long Term Conditions Alliance Scotland
More information