Dr. Anne Marie Mork Rokstad Celje, Slovenia May 2017

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1 Dr. Anne Marie Mork Rokstad Celje, Slovenia May 2017

2 Dementia teams Action package dementia Program for Day activity Educational programs, schools and support groups, for family caregivers Meeting place for cooping Time to be young Children of a parent with dementia 2

3 Assist family doctors in diagnosing persons with symptoms that may indicate dementia Follow up the patient and family carer through the course of the disorder Dementia teams are a part of the municipalities primary health care, paid for by tax money with no charge for the receiver 3

4 Registered nurses Occupational therapists Other health care professionals Cooperation with an assigned doctor is preferred Easy for family doctors, community nursing service and families to contact the dementia team Primary assessment in the patient s home, with patient and family carer present 4

5 Dementia team: Family doctor: Interview Observations Safety at home MMSE Diagnosis Clock Drawing Test IQCODE (change in cognition) ADL assessments Depression (Cornell) Family carer s burden (RSS) Physical examination Blood tests CT or MRI

6 Information, motivate patients and carers to receive services like Day activity services Assistive technology Home nurse services Provide guidance to patients and family carers and being available when needed Help with practical problems Update on functioning and need for services every 6 months Re-assessment once a year 6

7 Arrange courses for family carers Run support/self-help groups Offer teaching and supervision to other health care professionals in the municipality Take part in planning of dementia care in primary health services Cooperation with the specialist health care 7

8 At least one monthly visit by their contact from home care services, even though they don t yet have special needs Collect their history Assess medication Assess nutrition (weight) Assess need for help to maintain personal hygiene Assess walking, balance 8

9 Assess home environment Assess need for practical help, day care activity or other services Assess need for assistive technology An important goal is to identify problems as early as possible and prevent them from escalation 9

10 It a jungle out there.. 10

11 Make a new assessment Analyze needs and give guidance Get the right assistive technology Notice changes in need Make sure it works like intended Implement it 11

12 Focus on: Cultural and physical activities Cognitive stimulation Every day living activities Well-being measures Milieu therapy Aim: Aim to prevent/postpone institutionalization Respite for family caregivers 12

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17 School for family caregivers Support groups To improve knowledge and awareness To support family caregivers To provide skills and knowledge on how to cope with the burden of care 17

18 Many schools and support groups also open for people with dementia Some of them run by voluntary organizations in cooperation with the local municipality The schools get financial support from the authorities 77 % of Norwegian municipalities offer a school for family carers, sometimes in cooperation with other municipalities near by 18

19 Projects to meet the special needs of: the Sami population, using video conference immigrants, with separate groups next of kin to disabled people with dementia, with separate groups 19

20 Weekend courses for people with dementia under the age of 65 and a next of kin/partner Information, knowledge and support to cope with a new situation Sharing experiences Social activities 20

21 Weekend course for youths, years old, with a mother or father with dementia 21

22 News What is dementia? Useful links Advice Meetingplaces

23 Summer camp Meet others in the same situation Get knowledge about dementia Ask questions and get support from experts Have fun

24 About dementia Do you need anybody to talk to Information for adults Information about summer camp

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