Dementia A public health priority. Richard Kelly Policy Manager - Dementia

Transcription

1 Dementia A public health priority Richard Kelly Policy Manager - Dementia Richard.kelly@phe.gov.uk

2 Aims Current impact of dementia Future impact of dementia National PHE action 2

3 Dementia affects huge numbers of people 816,000 people with dementia in the UK 21 million of the UK population have a close friend or family member with dementia. Costs approximately 26 billion a year ( 4bn NHS, 10bn social care, 12bn unpaid carers) 3 Sources: State of the Nation DH 2013, Dementia UK: Second Edition, 2014

4 Dementia causes significant disability DEMENTIA 4 Ref: Global Burden of Disease Study

5 Dementia causes significant, and rising, premature mortality 5 Source: Global Burden of Disease Note: Alzheimer s Disease in this chart is a shorthand for all dementias

6 6 The population at risk is complex and changing

7 Without change to risk factors, numbers with dementia are forecast to rise dramatically Forecast dementia carers in England Projected increases in the number of people with dementia in the UK ( ): Source: Dementia UK: Second edition Source: CEBR analysis The Economic Costs to English Business July 2014

8 A rise of this magnitude is not inevitable Risk factors for dementia are common with many other conditions, and include: Source: In-MINDD

9 PHE areas of focus one part of a much larger government programme Two main outcome areas: Crosscutting PHE themes include: Risk reduction Living well Equity Knowledge and Intelligence 9

10 PHE action on dementia risk Global consensus Professional understanding and action Support for people at higher risk Marketing and personalised messages Evidence and data Local products in

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12 Dementia Friends campaign Two thirds of those who saw the ads now claim they would help a stranger with dementia Most people (61%) who saw the online film said they had boosted confidence to help someone with dementia 12

13 Dementia Intelligence Network Local products in

14 Equity See you at

15 Promoting equity amongst people with dementia and carers Richard Kelly Policy Manager - Dementia Richard.kelly@phe.gov.uk

16 Aims Overview of equity impacts Forthcoming tools Testing high level principles 16 Presentation title - edit in Header and Footer

17 Most equality strands have relevance to dementia, but work to date has been limited This discussion focuses on equality within the dementia cohort, not between the dementia cohort and the wider population Nine protected characteristics age disability gender reassignment marriage and civil partnership pregnancy and maternity race religion or belief sex sexual orientation Other major sources of inequality Socio-economic status Geography Seldom heard/vulnerable Are people getting the support they need in line with our legal obligations? 17

18 18 PHE has begun work on dementia and equalities with partners (join us!)

19 19 Age is the most significant risk factor - Prevalence roughly doubles every 5 years

20 Age and sex both impact on needs Women more likely to live alone, and to be carers Men likely to be cared for in a more female environment Oldest carers most likely to care 50+ hours a week Older carers and people with dementia likely to have significant comorbidities 20

21 Younger people with dementia can feel marginalised 21 Presentation title - edit in Header and Footer

22 Diagnostic overshadowing can mean dementia is missed in people with disabilities 22 Source: Jo Moriarty. KCL Social Care Workforce Research Unit

23 Particular issues of sexual identity in older groups, and complexities of cognitive impairment 23 Source: Jo Moriarty. KCL Social Care Workforce Research Unit

24 Gender identity issues are poorly understood 24 Presentation title - edit in Header and Footer

25 Incredibly complex and varied associations with ethnicity, religion, and cultural heritage 25 Source: Jo Moriarty. KCL Social Care Workforce Research Unit

26 Discussion about equality issues has been growing over the past year Local projects - have seen notable successes, but are small scale and national learning and sharing is limited Particular recent focus on BME issues APPG report and voluntary / community sector awareness raising has highlight dramatic differences in people s experience of dementia, both with the condition and as carers. 26

27 Coming soon a toolkit for commissioners 1. Impact of characteristics on dementia 2. How to build a local data profile 3. Simple local actions that make a difference 4. Case studies of good practice 5. Library of links, resources etc Please help! Case studies to richard.kelly@phe.gov.uk 27

28 Ten overarching themes 1.Seek to understand each person with dementia, and carer, as an individual 8.Locally tailored public-awareness campaigns 9.Exploit local data resources 2.Improve professional understanding of equity issues and how this affects individuals 7.Work through community intermediaries 10.Embed in research and evaluation 3.Consider different pathways to diagnosis 6.Tailor engagement with families and carers Do these feel right? Challenge very welcome! 4.Explore tailored support options following diagnosis 5.Enable tailored peersupport options for people with dementia and carers 28

29 29 Thank you, and please keep in touch: